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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Time frame questions

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Time frame questions

Post  rejected.803 on Thu May 15, 2014 8:18 pm

My wife was diagnosed with (provoked) Neuroproliferative Vestibulodynia in January this year. We've been married 19+ years and intercourse has been a problem (pain for her) since we got got married. I think she was probably born with it because of her description of her first OB/GYN appointment when she was about 13. I digress.

I find that hope is often tied to perspective,  and it's been miserable from my POV for 18 years. So I was wondering if some would be willing to share some information on the time line of events related to V in their/spouse life.  I'll start.

Time since diagnosis:  5 months
Time spent suffering before first Doctor took you/spouse complaint serious:  17 years
Time spent bouncing bewteen doctors with various diagnosis:  4 months
Time spent forcing yourself through painful sex before seeking medical help:  19 years
Time spent in counseling trying save relationship:  13+ years
Time spent in counseling trying to recover from failed relationship:  0
For those that have been "cured" by whatever means (e.g., surgery, physical therapy, chemical/topical, etc.), please address these as well.

Time since "cure":  
Time between diagnosis and decision to be treated:  
Time for emotional/mental recovery following "cure"/treatment:  
Time from "cure"/treatment till sexually active again:

If you think of other important time frame questions, please let me know.

Thank you.


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Re: Time frame questions

Post  Alana3 on Thu May 15, 2014 8:36 pm

Hate to break it to you there is no cure but here goes

Time since "cure":  8 years
Time between diagnosis and decision to be treated: diagnosis was a year decision to treat right away 
Time for emotional/mental recovery following "cure"/treatment: I'm dealing with that everyday just because you're fixed doesn't mean you don't think it will stop hurting
Time from "cure"/treatment till sexually active again: about 9 months

I don't see how this is going to help you when your wife doesn't want the surgery.  But yes, I had the surgery, yes, it worked.  But NO that does NOT mean that it will work for her.  And it's something she wants to have some people have had enough.  I sure as hell have.


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