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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Time frame questions

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Time frame questions

Post  rejected.803 on Thu May 15, 2014 8:18 pm

My wife was diagnosed with (provoked) Neuroproliferative Vestibulodynia in January this year. We've been married 19+ years and intercourse has been a problem (pain for her) since we got got married. I think she was probably born with it because of her description of her first OB/GYN appointment when she was about 13. I digress.

I find that hope is often tied to perspective,  and it's been miserable from my POV for 18 years. So I was wondering if some would be willing to share some information on the time line of events related to V in their/spouse life.  I'll start.

Time since diagnosis:  5 months
Time spent suffering before first Doctor took you/spouse complaint serious:  17 years
Time spent bouncing bewteen doctors with various diagnosis:  4 months
Time spent forcing yourself through painful sex before seeking medical help:  19 years
Time spent in counseling trying save relationship:  13+ years
Time spent in counseling trying to recover from failed relationship:  0
For those that have been "cured" by whatever means (e.g., surgery, physical therapy, chemical/topical, etc.), please address these as well.

Time since "cure":  
Time between diagnosis and decision to be treated:  
Time for emotional/mental recovery following "cure"/treatment:  
Time from "cure"/treatment till sexually active again:

If you think of other important time frame questions, please let me know.

Thank you.


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Location : South Carolina, USA

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Re: Time frame questions

Post  Alana3 on Thu May 15, 2014 8:36 pm

Hate to break it to you there is no cure but here goes

Time since "cure":  8 years
Time between diagnosis and decision to be treated: diagnosis was a year decision to treat right away 
Time for emotional/mental recovery following "cure"/treatment: I'm dealing with that everyday just because you're fixed doesn't mean you don't think it will stop hurting
Time from "cure"/treatment till sexually active again: about 9 months

I don't see how this is going to help you when your wife doesn't want the surgery.  But yes, I had the surgery, yes, it worked.  But NO that does NOT mean that it will work for her.  And it's something she wants to have some people have had enough.  I sure as hell have.


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