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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 3

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


Time frame questions

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Time frame questions

Post  rejected.803 on Thu May 15, 2014 8:18 pm

My wife was diagnosed with (provoked) Neuroproliferative Vestibulodynia in January this year. We've been married 19+ years and intercourse has been a problem (pain for her) since we got got married. I think she was probably born with it because of her description of her first OB/GYN appointment when she was about 13. I digress.

I find that hope is often tied to perspective,  and it's been miserable from my POV for 18 years. So I was wondering if some would be willing to share some information on the time line of events related to V in their/spouse life.  I'll start.

Time since diagnosis:  5 months
Time spent suffering before first Doctor took you/spouse complaint serious:  17 years
Time spent bouncing bewteen doctors with various diagnosis:  4 months
Time spent forcing yourself through painful sex before seeking medical help:  19 years
Time spent in counseling trying save relationship:  13+ years
Time spent in counseling trying to recover from failed relationship:  0
----------------------
For those that have been "cured" by whatever means (e.g., surgery, physical therapy, chemical/topical, etc.), please address these as well.

Time since "cure":  
Time between diagnosis and decision to be treated:  
Time for emotional/mental recovery following "cure"/treatment:  
Time from "cure"/treatment till sexually active again:

If you think of other important time frame questions, please let me know.

Thank you.

rejected.803

Posts : 6
Join date : 2014-04-16
Location : South Carolina, USA

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Re: Time frame questions

Post  Alana3 on Thu May 15, 2014 8:36 pm

Hate to break it to you there is no cure but here goes

Time since "cure":  8 years
Time between diagnosis and decision to be treated: diagnosis was a year decision to treat right away 
Time for emotional/mental recovery following "cure"/treatment: I'm dealing with that everyday just because you're fixed doesn't mean you don't think it will stop hurting
Time from "cure"/treatment till sexually active again: about 9 months

I don't see how this is going to help you when your wife doesn't want the surgery.  But yes, I had the surgery, yes, it worked.  But NO that does NOT mean that it will work for her.  And it's something she wants to have some people have had enough.  I sure as hell have.

Alana3

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Join date : 2012-09-25

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