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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


New member

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New member

Post  Celticrose on Sun May 25, 2014 12:31 am

I would like to say 'hi' to everyone and to introduce myself. I am Irish but have lived in Australia for 7 years now. I originally was diagnosed with degenerative disc disease in 2003 in the UK and have been on fentanyl patches (25) ever since. I started menopause in 2006 and take HRT for that. In 2007 we moved to Australia and it was around that time that I started to experience urinary frequency for which I had a bladder investigation. My bladder apparently cracked and bled when examined, which I wasn't told about at the time. I continued to experience frequency and was given Vesicare tablets, which didn't help. Last year I had a radical nerve block in my back but continued to have referred nerve pain. It was around this time that I began to suffer from pelvic pain and severe itchiness in my vagina. I began to experience severe bouts of cystitis-like symptoms but each time I saw the doctor, there was no infection only some blood and raised white cell count. No one could tell me what was wrong until I saw a leading urologist two weeks ago who after looking at my notes informed me that I have Painful Bladder Syndrome (IC) and Vulvodynia with perhaps some VA thrown in for good measure. I am in so much pain sometimes, that I now have to change the fentanyl patches every 2 days instead of 3. Having this on top of back pain has left me feeling very low but antidepressants react with the patches so that's not an option. Sorry to be so long winded about this but I know that I have to live with what I've got and no amount of crying will change that. I am so glad to find a support group and hope to gain more knowledge through this site. My husband is totally unsupportive and as sex is so painful and my husband, uncaring, I know I will be on my own soon. This really concerns me as I know that I won't be able to work full time due to the pain and discomfort. I am completing my postgrad degree in June. Anyway, thanks for listening and I hope to hear from others who may have similar experiences.

Celticrose

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Age : 62
Location : Adelaide SA

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Re: New member

Post  zarli on Mon May 26, 2014 9:19 am

Hi there and welcome. I am so sorry to hear your story. Do you have any other support apart from your husband ? Men.....Some times I have to remember not to judge them all the same !! Do you have a good gp? I would like to offer my friend ship to you and let you know that your not alone. Its great that you are completing your post grad. I am 42 and have had to go back to study so I can change my job because of my pain its hard work but so worth it. You will be ok. Love your self and believe you are strong and will be able to cope if you're on your own as you are more important than any one else.
Smile

zarli

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Re: New member

Post  Celticrose on Thu May 29, 2014 12:18 am

Thank you Zarli,
Your offer of friendship is greatly appreciated and it's good to know there is someone who understands. I have a daughter and son near me but of course they must live their own lives. Do you find that even though we are loved by family, they don't always want to hear about your pain? I can understand this as they feel helpless and when the pain is constant, no one wants to hear about it, not even me! It has been difficult to study especially as stress over assignments makes the pain worse but it has also been a wonderful experience and given me something to look forward to. I have been busy with assignments this week so didn't get a chance to get onto this site. Hope to hear from you again, zarli x

Celticrose

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Age : 62
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Re: New member

Post  tinkerbelle2 on Wed Jun 18, 2014 9:31 am

cheers Welcome, Celticrose Smile
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Re: New member

Post  zarli on Thu Jun 19, 2014 10:28 pm

Hi there just wondering how you are getting on ? What state in Australia do you live in?
Sorry I haven't made contact with you I am so busy but its no excuse !
Hope you are doing well Smile

zarli

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Re: New member

Post  zarli on Thu Jun 19, 2014 10:29 pm

Sorry just read properly your from Adelaide! Im from Melbourne

zarli

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Re: New member

Post  Sebby (Admin) on Fri Jun 20, 2014 10:33 am

Welcome! We have quite a few Australian members!
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