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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


New member

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New member

Post  Celticrose on Sun May 25, 2014 12:31 am

I would like to say 'hi' to everyone and to introduce myself. I am Irish but have lived in Australia for 7 years now. I originally was diagnosed with degenerative disc disease in 2003 in the UK and have been on fentanyl patches (25) ever since. I started menopause in 2006 and take HRT for that. In 2007 we moved to Australia and it was around that time that I started to experience urinary frequency for which I had a bladder investigation. My bladder apparently cracked and bled when examined, which I wasn't told about at the time. I continued to experience frequency and was given Vesicare tablets, which didn't help. Last year I had a radical nerve block in my back but continued to have referred nerve pain. It was around this time that I began to suffer from pelvic pain and severe itchiness in my vagina. I began to experience severe bouts of cystitis-like symptoms but each time I saw the doctor, there was no infection only some blood and raised white cell count. No one could tell me what was wrong until I saw a leading urologist two weeks ago who after looking at my notes informed me that I have Painful Bladder Syndrome (IC) and Vulvodynia with perhaps some VA thrown in for good measure. I am in so much pain sometimes, that I now have to change the fentanyl patches every 2 days instead of 3. Having this on top of back pain has left me feeling very low but antidepressants react with the patches so that's not an option. Sorry to be so long winded about this but I know that I have to live with what I've got and no amount of crying will change that. I am so glad to find a support group and hope to gain more knowledge through this site. My husband is totally unsupportive and as sex is so painful and my husband, uncaring, I know I will be on my own soon. This really concerns me as I know that I won't be able to work full time due to the pain and discomfort. I am completing my postgrad degree in June. Anyway, thanks for listening and I hope to hear from others who may have similar experiences.

Celticrose

Posts : 6
Join date : 2014-05-24
Age : 61
Location : Adelaide SA

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Re: New member

Post  zarli on Mon May 26, 2014 9:19 am

Hi there and welcome. I am so sorry to hear your story. Do you have any other support apart from your husband ? Men.....Some times I have to remember not to judge them all the same !! Do you have a good gp? I would like to offer my friend ship to you and let you know that your not alone. Its great that you are completing your post grad. I am 42 and have had to go back to study so I can change my job because of my pain its hard work but so worth it. You will be ok. Love your self and believe you are strong and will be able to cope if you're on your own as you are more important than any one else.
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zarli

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Re: New member

Post  Celticrose on Thu May 29, 2014 12:18 am

Thank you Zarli,
Your offer of friendship is greatly appreciated and it's good to know there is someone who understands. I have a daughter and son near me but of course they must live their own lives. Do you find that even though we are loved by family, they don't always want to hear about your pain? I can understand this as they feel helpless and when the pain is constant, no one wants to hear about it, not even me! It has been difficult to study especially as stress over assignments makes the pain worse but it has also been a wonderful experience and given me something to look forward to. I have been busy with assignments this week so didn't get a chance to get onto this site. Hope to hear from you again, zarli x

Celticrose

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Join date : 2014-05-24
Age : 61
Location : Adelaide SA

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Re: New member

Post  tinkerbelle2 on Wed Jun 18, 2014 9:31 am

cheers Welcome, Celticrose Smile
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tinkerbelle2

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Re: New member

Post  zarli on Thu Jun 19, 2014 10:28 pm

Hi there just wondering how you are getting on ? What state in Australia do you live in?
Sorry I haven't made contact with you I am so busy but its no excuse !
Hope you are doing well Smile

zarli

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Re: New member

Post  zarli on Thu Jun 19, 2014 10:29 pm

Sorry just read properly your from Adelaide! Im from Melbourne

zarli

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Re: New member

Post  Sebby (Admin) on Fri Jun 20, 2014 10:33 am

Welcome! We have quite a few Australian members!
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Sebby (Admin)
Admin

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