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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


New member

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New member

Post  Celticrose on Sun May 25, 2014 12:31 am

I would like to say 'hi' to everyone and to introduce myself. I am Irish but have lived in Australia for 7 years now. I originally was diagnosed with degenerative disc disease in 2003 in the UK and have been on fentanyl patches (25) ever since. I started menopause in 2006 and take HRT for that. In 2007 we moved to Australia and it was around that time that I started to experience urinary frequency for which I had a bladder investigation. My bladder apparently cracked and bled when examined, which I wasn't told about at the time. I continued to experience frequency and was given Vesicare tablets, which didn't help. Last year I had a radical nerve block in my back but continued to have referred nerve pain. It was around this time that I began to suffer from pelvic pain and severe itchiness in my vagina. I began to experience severe bouts of cystitis-like symptoms but each time I saw the doctor, there was no infection only some blood and raised white cell count. No one could tell me what was wrong until I saw a leading urologist two weeks ago who after looking at my notes informed me that I have Painful Bladder Syndrome (IC) and Vulvodynia with perhaps some VA thrown in for good measure. I am in so much pain sometimes, that I now have to change the fentanyl patches every 2 days instead of 3. Having this on top of back pain has left me feeling very low but antidepressants react with the patches so that's not an option. Sorry to be so long winded about this but I know that I have to live with what I've got and no amount of crying will change that. I am so glad to find a support group and hope to gain more knowledge through this site. My husband is totally unsupportive and as sex is so painful and my husband, uncaring, I know I will be on my own soon. This really concerns me as I know that I won't be able to work full time due to the pain and discomfort. I am completing my postgrad degree in June. Anyway, thanks for listening and I hope to hear from others who may have similar experiences.

Celticrose

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Age : 61
Location : Adelaide SA

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Re: New member

Post  zarli on Mon May 26, 2014 9:19 am

Hi there and welcome. I am so sorry to hear your story. Do you have any other support apart from your husband ? Men.....Some times I have to remember not to judge them all the same !! Do you have a good gp? I would like to offer my friend ship to you and let you know that your not alone. Its great that you are completing your post grad. I am 42 and have had to go back to study so I can change my job because of my pain its hard work but so worth it. You will be ok. Love your self and believe you are strong and will be able to cope if you're on your own as you are more important than any one else.
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zarli

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Re: New member

Post  Celticrose on Thu May 29, 2014 12:18 am

Thank you Zarli,
Your offer of friendship is greatly appreciated and it's good to know there is someone who understands. I have a daughter and son near me but of course they must live their own lives. Do you find that even though we are loved by family, they don't always want to hear about your pain? I can understand this as they feel helpless and when the pain is constant, no one wants to hear about it, not even me! It has been difficult to study especially as stress over assignments makes the pain worse but it has also been a wonderful experience and given me something to look forward to. I have been busy with assignments this week so didn't get a chance to get onto this site. Hope to hear from you again, zarli x

Celticrose

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Join date : 2014-05-24
Age : 61
Location : Adelaide SA

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Re: New member

Post  tinkerbelle2 on Wed Jun 18, 2014 9:31 am

cheers Welcome, Celticrose Smile
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Re: New member

Post  zarli on Thu Jun 19, 2014 10:28 pm

Hi there just wondering how you are getting on ? What state in Australia do you live in?
Sorry I haven't made contact with you I am so busy but its no excuse !
Hope you are doing well Smile

zarli

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Re: New member

Post  zarli on Thu Jun 19, 2014 10:29 pm

Sorry just read properly your from Adelaide! Im from Melbourne

zarli

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Re: New member

Post  Sebby (Admin) on Fri Jun 20, 2014 10:33 am

Welcome! We have quite a few Australian members!
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