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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


New member

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New member

Post  Celticrose on Sun May 25, 2014 12:31 am

I would like to say 'hi' to everyone and to introduce myself. I am Irish but have lived in Australia for 7 years now. I originally was diagnosed with degenerative disc disease in 2003 in the UK and have been on fentanyl patches (25) ever since. I started menopause in 2006 and take HRT for that. In 2007 we moved to Australia and it was around that time that I started to experience urinary frequency for which I had a bladder investigation. My bladder apparently cracked and bled when examined, which I wasn't told about at the time. I continued to experience frequency and was given Vesicare tablets, which didn't help. Last year I had a radical nerve block in my back but continued to have referred nerve pain. It was around this time that I began to suffer from pelvic pain and severe itchiness in my vagina. I began to experience severe bouts of cystitis-like symptoms but each time I saw the doctor, there was no infection only some blood and raised white cell count. No one could tell me what was wrong until I saw a leading urologist two weeks ago who after looking at my notes informed me that I have Painful Bladder Syndrome (IC) and Vulvodynia with perhaps some VA thrown in for good measure. I am in so much pain sometimes, that I now have to change the fentanyl patches every 2 days instead of 3. Having this on top of back pain has left me feeling very low but antidepressants react with the patches so that's not an option. Sorry to be so long winded about this but I know that I have to live with what I've got and no amount of crying will change that. I am so glad to find a support group and hope to gain more knowledge through this site. My husband is totally unsupportive and as sex is so painful and my husband, uncaring, I know I will be on my own soon. This really concerns me as I know that I won't be able to work full time due to the pain and discomfort. I am completing my postgrad degree in June. Anyway, thanks for listening and I hope to hear from others who may have similar experiences.

Celticrose

Posts : 6
Join date : 2014-05-24
Age : 61
Location : Adelaide SA

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Re: New member

Post  zarli on Mon May 26, 2014 9:19 am

Hi there and welcome. I am so sorry to hear your story. Do you have any other support apart from your husband ? Men.....Some times I have to remember not to judge them all the same !! Do you have a good gp? I would like to offer my friend ship to you and let you know that your not alone. Its great that you are completing your post grad. I am 42 and have had to go back to study so I can change my job because of my pain its hard work but so worth it. You will be ok. Love your self and believe you are strong and will be able to cope if you're on your own as you are more important than any one else.
Smile

zarli

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Location : Australia

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Re: New member

Post  Celticrose on Thu May 29, 2014 12:18 am

Thank you Zarli,
Your offer of friendship is greatly appreciated and it's good to know there is someone who understands. I have a daughter and son near me but of course they must live their own lives. Do you find that even though we are loved by family, they don't always want to hear about your pain? I can understand this as they feel helpless and when the pain is constant, no one wants to hear about it, not even me! It has been difficult to study especially as stress over assignments makes the pain worse but it has also been a wonderful experience and given me something to look forward to. I have been busy with assignments this week so didn't get a chance to get onto this site. Hope to hear from you again, zarli x

Celticrose

Posts : 6
Join date : 2014-05-24
Age : 61
Location : Adelaide SA

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Re: New member

Post  tinkerbelle2 on Wed Jun 18, 2014 9:31 am

cheers Welcome, Celticrose Smile
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tinkerbelle2

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Re: New member

Post  zarli on Thu Jun 19, 2014 10:28 pm

Hi there just wondering how you are getting on ? What state in Australia do you live in?
Sorry I haven't made contact with you I am so busy but its no excuse !
Hope you are doing well Smile

zarli

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Re: New member

Post  zarli on Thu Jun 19, 2014 10:29 pm

Sorry just read properly your from Adelaide! Im from Melbourne

zarli

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Location : Australia

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Re: New member

Post  Sebby (Admin) on Fri Jun 20, 2014 10:33 am

Welcome! We have quite a few Australian members!
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Sebby (Admin)
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