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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Ending Female Pain

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Ending Female Pain

Post  Sarah001 on Tue Nov 16, 2010 8:20 pm

I received a copy of Ending Female Pain today, it's a pretty expensive book (around 30-something pounds I think) but I had some Amazon vouchers and thought rather than use them on everyone else at Xmas why not buy myself something! It's got alot of information in it about the pelvic floor, different types of self massage, positive thinking, topical applications etc and the author is a previous sufferer who recovered. She treats people at her clinic in New York but wrote the book for those of us who can't get there and it's also got alot of testimonals from previous clients who are doing really well with these methods. I haven't absorbed all the info yet but it seems it was well worth buying it, there are 11 different reverse kegel positions in it alone and yoga and pilates style stuff, it seems like a really good book.

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Re: Ending Female Pain

Post  Sebby (Admin) on Tue Nov 16, 2010 8:51 pm

Wow I like the sound of that book!! Especially as it has been written by a previous sufferer who has recovered!!

Hey maybe I can contact the author and let her know about this forum, maybe she will do an question and answer session!! sounds like a good idea!!

I just may treat myself to an early xmas present!!

Thanks so much for the info

Hope you are doing ok

Sebby (Admin)

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Re: Ending Female Pain

Post  Sarah001 on Wed Nov 17, 2010 1:59 pm

A question and answer session would be fantastic if she'd do it! As she's in NY most of us would have to try and coordinate our times on here, I'll look at her name next time I'm near the book and let you know how to contact her.

She also mentions the other condition you have (vagi... forgotten the rest! The one where the muscles clamp up) and says that's often a pelvic floor issue too. And in the back is a few pages of photos showing the best place for TENS pads for various problems, she has one that affects the pudendal nerve so I might try that!

One thing I really like about the book though is no matter where you are on the pelvic floor work she still gives exercises for you to do so even if you are still in the release stage like I am you can do some of the other exercises but in a way designed not to tighten the pelvic floor up again.

And she also tells us how to find certain muscles that are usually implicated in this, the obturator internus is one I knew where it was but didn't know exactly how to isolate it to massage it and she explains that too. It's a really good book!

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Re: Ending Female Pain

Post  jules on Mon Nov 22, 2010 5:04 am

since i have a tens unit, i think i will buy this book. i need all the info i can get. also want to know about messaging the inside of my lady part.


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Re: Ending Female Pain

Post  Sarah001 on Mon Nov 22, 2010 7:26 pm

The massage advice is good, there's a couple of techniques you can do by hand and she gives advice on using a dilator to reach trigger points higher up which is very helpful. I know for a fact I've got trigger points in my pelvic floor as the physio pressed one when she was testing my contractions with her finger! She also gives some external massage for the vulva to reduce restrictions in the superficial muscles which is something I've not come across before. I like that she's a former sufferer and she's made it her life's work to figure out ways to help the problem.

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Re: Ending Female Pain

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