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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Ending Female Pain

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Ending Female Pain

Post  Sarah001 on Tue Nov 16, 2010 8:20 pm

I received a copy of Ending Female Pain today, it's a pretty expensive book (around 30-something pounds I think) but I had some Amazon vouchers and thought rather than use them on everyone else at Xmas why not buy myself something! It's got alot of information in it about the pelvic floor, different types of self massage, positive thinking, topical applications etc and the author is a previous sufferer who recovered. She treats people at her clinic in New York but wrote the book for those of us who can't get there and it's also got alot of testimonals from previous clients who are doing really well with these methods. I haven't absorbed all the info yet but it seems it was well worth buying it, there are 11 different reverse kegel positions in it alone and yoga and pilates style stuff, it seems like a really good book.
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Re: Ending Female Pain

Post  Sebby (Admin) on Tue Nov 16, 2010 8:51 pm


Wow I like the sound of that book!! Especially as it has been written by a previous sufferer who has recovered!!

Hey maybe I can contact the author and let her know about this forum, maybe she will do an question and answer session!! sounds like a good idea!!

I just may treat myself to an early xmas present!!

Thanks so much for the info

Hope you are doing ok

Sebby
xxx
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Re: Ending Female Pain

Post  Sarah001 on Wed Nov 17, 2010 1:59 pm

A question and answer session would be fantastic if she'd do it! As she's in NY most of us would have to try and coordinate our times on here, I'll look at her name next time I'm near the book and let you know how to contact her.

She also mentions the other condition you have (vagi... forgotten the rest! The one where the muscles clamp up) and says that's often a pelvic floor issue too. And in the back is a few pages of photos showing the best place for TENS pads for various problems, she has one that affects the pudendal nerve so I might try that!

One thing I really like about the book though is no matter where you are on the pelvic floor work she still gives exercises for you to do so even if you are still in the release stage like I am you can do some of the other exercises but in a way designed not to tighten the pelvic floor up again.

And she also tells us how to find certain muscles that are usually implicated in this, the obturator internus is one I knew where it was but didn't know exactly how to isolate it to massage it and she explains that too. It's a really good book!
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Re: Ending Female Pain

Post  jules on Mon Nov 22, 2010 5:04 am

since i have a tens unit, i think i will buy this book. i need all the info i can get. also want to know about messaging the inside of my lady part.

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Re: Ending Female Pain

Post  Sarah001 on Mon Nov 22, 2010 7:26 pm

The massage advice is good, there's a couple of techniques you can do by hand and she gives advice on using a dilator to reach trigger points higher up which is very helpful. I know for a fact I've got trigger points in my pelvic floor as the physio pressed one when she was testing my contractions with her finger! She also gives some external massage for the vulva to reduce restrictions in the superficial muscles which is something I've not come across before. I like that she's a former sufferer and she's made it her life's work to figure out ways to help the problem.
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