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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Ending Female Pain

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Ending Female Pain

Post  Sarah001 on Tue Nov 16, 2010 8:20 pm

I received a copy of Ending Female Pain today, it's a pretty expensive book (around 30-something pounds I think) but I had some Amazon vouchers and thought rather than use them on everyone else at Xmas why not buy myself something! It's got alot of information in it about the pelvic floor, different types of self massage, positive thinking, topical applications etc and the author is a previous sufferer who recovered. She treats people at her clinic in New York but wrote the book for those of us who can't get there and it's also got alot of testimonals from previous clients who are doing really well with these methods. I haven't absorbed all the info yet but it seems it was well worth buying it, there are 11 different reverse kegel positions in it alone and yoga and pilates style stuff, it seems like a really good book.
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Re: Ending Female Pain

Post  Sebby (Admin) on Tue Nov 16, 2010 8:51 pm


Wow I like the sound of that book!! Especially as it has been written by a previous sufferer who has recovered!!

Hey maybe I can contact the author and let her know about this forum, maybe she will do an question and answer session!! sounds like a good idea!!

I just may treat myself to an early xmas present!!

Thanks so much for the info

Hope you are doing ok

Sebby
xxx
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Re: Ending Female Pain

Post  Sarah001 on Wed Nov 17, 2010 1:59 pm

A question and answer session would be fantastic if she'd do it! As she's in NY most of us would have to try and coordinate our times on here, I'll look at her name next time I'm near the book and let you know how to contact her.

She also mentions the other condition you have (vagi... forgotten the rest! The one where the muscles clamp up) and says that's often a pelvic floor issue too. And in the back is a few pages of photos showing the best place for TENS pads for various problems, she has one that affects the pudendal nerve so I might try that!

One thing I really like about the book though is no matter where you are on the pelvic floor work she still gives exercises for you to do so even if you are still in the release stage like I am you can do some of the other exercises but in a way designed not to tighten the pelvic floor up again.

And she also tells us how to find certain muscles that are usually implicated in this, the obturator internus is one I knew where it was but didn't know exactly how to isolate it to massage it and she explains that too. It's a really good book!
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Re: Ending Female Pain

Post  jules on Mon Nov 22, 2010 5:04 am

since i have a tens unit, i think i will buy this book. i need all the info i can get. also want to know about messaging the inside of my lady part.

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Re: Ending Female Pain

Post  Sarah001 on Mon Nov 22, 2010 7:26 pm

The massage advice is good, there's a couple of techniques you can do by hand and she gives advice on using a dilator to reach trigger points higher up which is very helpful. I know for a fact I've got trigger points in my pelvic floor as the physio pressed one when she was testing my contractions with her finger! She also gives some external massage for the vulva to reduce restrictions in the superficial muscles which is something I've not come across before. I like that she's a former sufferer and she's made it her life's work to figure out ways to help the problem.
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