Log in

I forgot my password

Latest topics
» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Ending Female Pain

Go down

Ending Female Pain

Post  Sarah001 on Tue Nov 16, 2010 8:20 pm

I received a copy of Ending Female Pain today, it's a pretty expensive book (around 30-something pounds I think) but I had some Amazon vouchers and thought rather than use them on everyone else at Xmas why not buy myself something! It's got alot of information in it about the pelvic floor, different types of self massage, positive thinking, topical applications etc and the author is a previous sufferer who recovered. She treats people at her clinic in New York but wrote the book for those of us who can't get there and it's also got alot of testimonals from previous clients who are doing really well with these methods. I haven't absorbed all the info yet but it seems it was well worth buying it, there are 11 different reverse kegel positions in it alone and yoga and pilates style stuff, it seems like a really good book.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Ending Female Pain

Post  Sebby (Admin) on Tue Nov 16, 2010 8:51 pm


Wow I like the sound of that book!! Especially as it has been written by a previous sufferer who has recovered!!

Hey maybe I can contact the author and let her know about this forum, maybe she will do an question and answer session!! sounds like a good idea!!

I just may treat myself to an early xmas present!!

Thanks so much for the info

Hope you are doing ok

Sebby
xxx
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Ending Female Pain

Post  Sarah001 on Wed Nov 17, 2010 1:59 pm

A question and answer session would be fantastic if she'd do it! As she's in NY most of us would have to try and coordinate our times on here, I'll look at her name next time I'm near the book and let you know how to contact her.

She also mentions the other condition you have (vagi... forgotten the rest! The one where the muscles clamp up) and says that's often a pelvic floor issue too. And in the back is a few pages of photos showing the best place for TENS pads for various problems, she has one that affects the pudendal nerve so I might try that!

One thing I really like about the book though is no matter where you are on the pelvic floor work she still gives exercises for you to do so even if you are still in the release stage like I am you can do some of the other exercises but in a way designed not to tighten the pelvic floor up again.

And she also tells us how to find certain muscles that are usually implicated in this, the obturator internus is one I knew where it was but didn't know exactly how to isolate it to massage it and she explains that too. It's a really good book!
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Ending Female Pain

Post  jules on Mon Nov 22, 2010 5:04 am

since i have a tens unit, i think i will buy this book. i need all the info i can get. also want to know about messaging the inside of my lady part.

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Ending Female Pain

Post  Sarah001 on Mon Nov 22, 2010 7:26 pm

The massage advice is good, there's a couple of techniques you can do by hand and she gives advice on using a dilator to reach trigger points higher up which is very helpful. I know for a fact I've got trigger points in my pelvic floor as the physio pressed one when she was testing my contractions with her finger! She also gives some external massage for the vulva to reduce restrictions in the superficial muscles which is something I've not come across before. I like that she's a former sufferer and she's made it her life's work to figure out ways to help the problem.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Ending Female Pain

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum