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» Anyone been to see Dr.Claire Bailey in Birmingham?
Yesterday at 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Yesterday at 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Dr. Goldstein visit and experience

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Dr. Goldstein visit and experience

Post  ringostarr26 on Fri May 30, 2014 11:29 pm

Hi Ladies,

I just got back from a trip to Washington DC to see Dr. Andrew Goldstein at the Centers for Vulvovaginal Disorders. I must say I was pretty nervous going to see him as I read some less than great reviews but I am happy to say my experience was good. First, and foremost he knows his stuff. This is all he does for a living and is really passionate about helping women. Yes, his bedside manner is at times uncomfortable but his jokes are truly to make light of a pretty crappy situation. I left with a diagnosis! no more self-diagnosing myself. I have hyper-tonic pelvic floor dysfunction where my muscles are so tight that they reduce blood flow to the vulva area up to 50%. That leads to less oxygen and an over production of lactic acid which in turn causes burning, rawness, and all of the pain I constantly complain about. I know my journey with the ailment isn't going to be smooth, but I left with positive thoughts that this CAN BE HEALED. I know his services are pricey, and he does not take insurance, but i can honestly say he is the only doctor that I have seen (and i have seen way too many) that has left me hopeful for a pain free future. I hope all of you ladies are having wonderful days, and keep fighting because this and will be cured for all of us!

ringostarr26

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Re: Dr. Goldstein visit and experience

Post  Alana3 on Mon Jun 02, 2014 2:42 pm

YES! Thank you for posting so glad your experience was a good one Smile 
now onto healing!

Alana3

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Re: Dr. Goldstein visit and experience

Post  Delilah1 on Mon Jun 02, 2014 10:15 pm

That's great! I am so happy for you! What kind of treatment did he prescribe?

Delilah1

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Re: Dr. Goldstein visit and experience

Post  ringostarr26 on Tue Jun 03, 2014 1:14 am

He said i need some intense physical therapy as well as suppositories used rectally that are a compound of baclofen and diazepam. After a few months of physio he wants to inject botox into the muscles. I just need to find a good physic therapist because the last one i saw really was not much help and he said unfortunately physic should be slightly painful in that the therapist should really be working the muscles much deeper than the norm for it to work well. He also gave me the book heal pelvic pain by amy stein and said that the exercises at home should also help lengthen my muscles. So much work! But i'm hoping its worth it in the end.

ringostarr26

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