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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider


I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

Dr. Goldstein visit and experience

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Dr. Goldstein visit and experience

Post  ringostarr26 on Fri May 30, 2014 11:29 pm

Hi Ladies,

I just got back from a trip to Washington DC to see Dr. Andrew Goldstein at the Centers for Vulvovaginal Disorders. I must say I was pretty nervous going to see him as I read some less than great reviews but I am happy to say my experience was good. First, and foremost he knows his stuff. This is all he does for a living and is really passionate about helping women. Yes, his bedside manner is at times uncomfortable but his jokes are truly to make light of a pretty crappy situation. I left with a diagnosis! no more self-diagnosing myself. I have hyper-tonic pelvic floor dysfunction where my muscles are so tight that they reduce blood flow to the vulva area up to 50%. That leads to less oxygen and an over production of lactic acid which in turn causes burning, rawness, and all of the pain I constantly complain about. I know my journey with the ailment isn't going to be smooth, but I left with positive thoughts that this CAN BE HEALED. I know his services are pricey, and he does not take insurance, but i can honestly say he is the only doctor that I have seen (and i have seen way too many) that has left me hopeful for a pain free future. I hope all of you ladies are having wonderful days, and keep fighting because this and will be cured for all of us!


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Re: Dr. Goldstein visit and experience

Post  Alana3 on Mon Jun 02, 2014 2:42 pm

YES! Thank you for posting so glad your experience was a good one Smile 
now onto healing!


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Re: Dr. Goldstein visit and experience

Post  Delilah1 on Mon Jun 02, 2014 10:15 pm

That's great! I am so happy for you! What kind of treatment did he prescribe?


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Re: Dr. Goldstein visit and experience

Post  ringostarr26 on Tue Jun 03, 2014 1:14 am

He said i need some intense physical therapy as well as suppositories used rectally that are a compound of baclofen and diazepam. After a few months of physio he wants to inject botox into the muscles. I just need to find a good physic therapist because the last one i saw really was not much help and he said unfortunately physic should be slightly painful in that the therapist should really be working the muscles much deeper than the norm for it to work well. He also gave me the book heal pelvic pain by amy stein and said that the exercises at home should also help lengthen my muscles. So much work! But i'm hoping its worth it in the end.


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