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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Dr. Goldstein visit and experience

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Dr. Goldstein visit and experience

Post  ringostarr26 on Fri May 30, 2014 11:29 pm

Hi Ladies,

I just got back from a trip to Washington DC to see Dr. Andrew Goldstein at the Centers for Vulvovaginal Disorders. I must say I was pretty nervous going to see him as I read some less than great reviews but I am happy to say my experience was good. First, and foremost he knows his stuff. This is all he does for a living and is really passionate about helping women. Yes, his bedside manner is at times uncomfortable but his jokes are truly to make light of a pretty crappy situation. I left with a diagnosis! no more self-diagnosing myself. I have hyper-tonic pelvic floor dysfunction where my muscles are so tight that they reduce blood flow to the vulva area up to 50%. That leads to less oxygen and an over production of lactic acid which in turn causes burning, rawness, and all of the pain I constantly complain about. I know my journey with the ailment isn't going to be smooth, but I left with positive thoughts that this CAN BE HEALED. I know his services are pricey, and he does not take insurance, but i can honestly say he is the only doctor that I have seen (and i have seen way too many) that has left me hopeful for a pain free future. I hope all of you ladies are having wonderful days, and keep fighting because this and will be cured for all of us!

ringostarr26

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Re: Dr. Goldstein visit and experience

Post  Alana3 on Mon Jun 02, 2014 2:42 pm

YES! Thank you for posting so glad your experience was a good one Smile 
now onto healing!

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Re: Dr. Goldstein visit and experience

Post  Delilah1 on Mon Jun 02, 2014 10:15 pm

That's great! I am so happy for you! What kind of treatment did he prescribe?

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Re: Dr. Goldstein visit and experience

Post  ringostarr26 on Tue Jun 03, 2014 1:14 am

He said i need some intense physical therapy as well as suppositories used rectally that are a compound of baclofen and diazepam. After a few months of physio he wants to inject botox into the muscles. I just need to find a good physic therapist because the last one i saw really was not much help and he said unfortunately physic should be slightly painful in that the therapist should really be working the muscles much deeper than the norm for it to work well. He also gave me the book heal pelvic pain by amy stein and said that the exercises at home should also help lengthen my muscles. So much work! But i'm hoping its worth it in the end.

ringostarr26

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