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» I don't know what to do anymore
Sat May 26, 2018 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Dr. Goldstein visit and experience

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Dr. Goldstein visit and experience

Post  ringostarr26 on Fri May 30, 2014 11:29 pm

Hi Ladies,

I just got back from a trip to Washington DC to see Dr. Andrew Goldstein at the Centers for Vulvovaginal Disorders. I must say I was pretty nervous going to see him as I read some less than great reviews but I am happy to say my experience was good. First, and foremost he knows his stuff. This is all he does for a living and is really passionate about helping women. Yes, his bedside manner is at times uncomfortable but his jokes are truly to make light of a pretty crappy situation. I left with a diagnosis! no more self-diagnosing myself. I have hyper-tonic pelvic floor dysfunction where my muscles are so tight that they reduce blood flow to the vulva area up to 50%. That leads to less oxygen and an over production of lactic acid which in turn causes burning, rawness, and all of the pain I constantly complain about. I know my journey with the ailment isn't going to be smooth, but I left with positive thoughts that this CAN BE HEALED. I know his services are pricey, and he does not take insurance, but i can honestly say he is the only doctor that I have seen (and i have seen way too many) that has left me hopeful for a pain free future. I hope all of you ladies are having wonderful days, and keep fighting because this and will be cured for all of us!

ringostarr26

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Re: Dr. Goldstein visit and experience

Post  Alana3 on Mon Jun 02, 2014 2:42 pm

YES! Thank you for posting so glad your experience was a good one Smile 
now onto healing!

Alana3

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Re: Dr. Goldstein visit and experience

Post  Delilah1 on Mon Jun 02, 2014 10:15 pm

That's great! I am so happy for you! What kind of treatment did he prescribe?

Delilah1

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Re: Dr. Goldstein visit and experience

Post  ringostarr26 on Tue Jun 03, 2014 1:14 am

He said i need some intense physical therapy as well as suppositories used rectally that are a compound of baclofen and diazepam. After a few months of physio he wants to inject botox into the muscles. I just need to find a good physic therapist because the last one i saw really was not much help and he said unfortunately physic should be slightly painful in that the therapist should really be working the muscles much deeper than the norm for it to work well. He also gave me the book heal pelvic pain by amy stein and said that the exercises at home should also help lengthen my muscles. So much work! But i'm hoping its worth it in the end.

ringostarr26

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Re: Dr. Goldstein visit and experience

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