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Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Vulvodynia

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Vulvodynia

Post  Caropes on Mon Jun 02, 2014 1:00 pm

I am new to this sight and looking for answers. I have suffered chronic BV for the last few years. I was always prescribed Metrogel. After the last treatment I started having constant pain on the outside of my vaginal area(vulvar region). The way I can explain it is a constant "achiness". It never goes away. I don't have pain on the inside of the vagina or have problems with tampons. The pain is all on the outside. The pain is bad enough to where I don't want to do anything! I find it hard to just get thru every day. I know I am depressed and my husband and son are suffering as well. I had a CT scan last week and am following up with my Gyn on Wed. Some of my symptoms seem to be Vulvodynia? Has anyone else only had my symptoms? Anyone have success stories. I feel myself sinking deeper and deeper into the black hole. Any help will be great.

Caropes

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Re: Vulvodynia

Post  Alana3 on Mon Jun 02, 2014 2:44 pm

I have not had your symptoms but I did have the surgery (vestibulectomy) and I am cured.  So there's hope, but maybe the meds burned you or something? Metrogel is ouchie!

Alana3

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Re: Vulvodynia

Post  zarli on Tue Jun 03, 2014 11:55 am

Yes I have your symptoms, my pain is neuralgia like and is on the outside all around my vulv a area. Medication helps me. Ask me any questions happy to help you

zarli

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Re: Vulvodynia

Post  Caropes on Tue Jun 03, 2014 2:03 pm

Sarli, what meds helped you?

Caropes

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Re: Vulvodynia

Post  meelie on Fri Jun 06, 2014 9:38 pm

yes, what meds helped.

meelie

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Re: Vulvodynia

Post  zarli on Sun Jun 08, 2014 10:33 am

Girls if you suffer from nerve pain the only meds that will work are amiltriptilyn nortriptyline and lyrica. I have delt with this for 7 years now and have had a lot of great success with these meds. Yes I wish I was normal and never had to take them but this is how it is so I have been on a long journey of acceptance and of creating a positive mind and a journey of loving myself which is very hard for me but I am making great progress. Good luck Smile

zarli

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Hoping for relief

Post  Caropes on Sun Jun 08, 2014 1:18 pm

I am into day four of my Neurontin. I can say the pain has gone from a 10 to maybe an 8. That's not really success to me. I am going to call my Gyno tomorrow and BEG for amitriptyline or nortriptyline. I somehow feel he may not agree though. Starting my prayers now. Zarli, you have given me a lot of hope with your story. Thank you. -Cathy

Caropes

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Re: Vulvodynia

Post  Alana3 on Mon Jun 09, 2014 2:46 pm

Gabapentin too watch out saying the only though, different things do work for different people!  Smile Glad youre feeling good though Zarli! Also, the drugs are not going to work in 4 days they'll tell you to continue to take them for a few months and than try something new.   Smile

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Re: Vulvodynia

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