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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Vulvodynia

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Vulvodynia

Post  Caropes on Mon Jun 02, 2014 1:00 pm

I am new to this sight and looking for answers. I have suffered chronic BV for the last few years. I was always prescribed Metrogel. After the last treatment I started having constant pain on the outside of my vaginal area(vulvar region). The way I can explain it is a constant "achiness". It never goes away. I don't have pain on the inside of the vagina or have problems with tampons. The pain is all on the outside. The pain is bad enough to where I don't want to do anything! I find it hard to just get thru every day. I know I am depressed and my husband and son are suffering as well. I had a CT scan last week and am following up with my Gyn on Wed. Some of my symptoms seem to be Vulvodynia? Has anyone else only had my symptoms? Anyone have success stories. I feel myself sinking deeper and deeper into the black hole. Any help will be great.

Caropes

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Re: Vulvodynia

Post  Alana3 on Mon Jun 02, 2014 2:44 pm

I have not had your symptoms but I did have the surgery (vestibulectomy) and I am cured.  So there's hope, but maybe the meds burned you or something? Metrogel is ouchie!

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Re: Vulvodynia

Post  zarli on Tue Jun 03, 2014 11:55 am

Yes I have your symptoms, my pain is neuralgia like and is on the outside all around my vulv a area. Medication helps me. Ask me any questions happy to help you

zarli

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Re: Vulvodynia

Post  Caropes on Tue Jun 03, 2014 2:03 pm

Sarli, what meds helped you?

Caropes

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Re: Vulvodynia

Post  meelie on Fri Jun 06, 2014 9:38 pm

yes, what meds helped.

meelie

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Re: Vulvodynia

Post  zarli on Sun Jun 08, 2014 10:33 am

Girls if you suffer from nerve pain the only meds that will work are amiltriptilyn nortriptyline and lyrica. I have delt with this for 7 years now and have had a lot of great success with these meds. Yes I wish I was normal and never had to take them but this is how it is so I have been on a long journey of acceptance and of creating a positive mind and a journey of loving myself which is very hard for me but I am making great progress. Good luck Smile

zarli

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Hoping for relief

Post  Caropes on Sun Jun 08, 2014 1:18 pm

I am into day four of my Neurontin. I can say the pain has gone from a 10 to maybe an 8. That's not really success to me. I am going to call my Gyno tomorrow and BEG for amitriptyline or nortriptyline. I somehow feel he may not agree though. Starting my prayers now. Zarli, you have given me a lot of hope with your story. Thank you. -Cathy

Caropes

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Re: Vulvodynia

Post  Alana3 on Mon Jun 09, 2014 2:46 pm

Gabapentin too watch out saying the only though, different things do work for different people!  Smile Glad youre feeling good though Zarli! Also, the drugs are not going to work in 4 days they'll tell you to continue to take them for a few months and than try something new.   Smile

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Re: Vulvodynia

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