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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Vulvodynia

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Vulvodynia

Post  Caropes on Mon Jun 02, 2014 1:00 pm

I am new to this sight and looking for answers. I have suffered chronic BV for the last few years. I was always prescribed Metrogel. After the last treatment I started having constant pain on the outside of my vaginal area(vulvar region). The way I can explain it is a constant "achiness". It never goes away. I don't have pain on the inside of the vagina or have problems with tampons. The pain is all on the outside. The pain is bad enough to where I don't want to do anything! I find it hard to just get thru every day. I know I am depressed and my husband and son are suffering as well. I had a CT scan last week and am following up with my Gyn on Wed. Some of my symptoms seem to be Vulvodynia? Has anyone else only had my symptoms? Anyone have success stories. I feel myself sinking deeper and deeper into the black hole. Any help will be great.

Caropes

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Re: Vulvodynia

Post  Alana3 on Mon Jun 02, 2014 2:44 pm

I have not had your symptoms but I did have the surgery (vestibulectomy) and I am cured.  So there's hope, but maybe the meds burned you or something? Metrogel is ouchie!

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Re: Vulvodynia

Post  zarli on Tue Jun 03, 2014 11:55 am

Yes I have your symptoms, my pain is neuralgia like and is on the outside all around my vulv a area. Medication helps me. Ask me any questions happy to help you

zarli

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Re: Vulvodynia

Post  Caropes on Tue Jun 03, 2014 2:03 pm

Sarli, what meds helped you?

Caropes

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Re: Vulvodynia

Post  meelie on Fri Jun 06, 2014 9:38 pm

yes, what meds helped.

meelie

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Re: Vulvodynia

Post  zarli on Sun Jun 08, 2014 10:33 am

Girls if you suffer from nerve pain the only meds that will work are amiltriptilyn nortriptyline and lyrica. I have delt with this for 7 years now and have had a lot of great success with these meds. Yes I wish I was normal and never had to take them but this is how it is so I have been on a long journey of acceptance and of creating a positive mind and a journey of loving myself which is very hard for me but I am making great progress. Good luck Smile

zarli

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Hoping for relief

Post  Caropes on Sun Jun 08, 2014 1:18 pm

I am into day four of my Neurontin. I can say the pain has gone from a 10 to maybe an 8. That's not really success to me. I am going to call my Gyno tomorrow and BEG for amitriptyline or nortriptyline. I somehow feel he may not agree though. Starting my prayers now. Zarli, you have given me a lot of hope with your story. Thank you. -Cathy

Caropes

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Re: Vulvodynia

Post  Alana3 on Mon Jun 09, 2014 2:46 pm

Gabapentin too watch out saying the only though, different things do work for different people!  Smile Glad youre feeling good though Zarli! Also, the drugs are not going to work in 4 days they'll tell you to continue to take them for a few months and than try something new.   Smile

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Re: Vulvodynia

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