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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Stress causing vulvodynia

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Stress causing vulvodynia

Post  Caropes on Tue Jun 03, 2014 2:55 pm

Hello Ladies, in reading some of the past posts, I saw a lot of people saying their vulvodynia was initially caused by stress. Although I haven't been officially diagnosed yet (I self-diagnosed myself with a lot of research), with vulvodynia I can say that all my symptoms started after a very, very stressful time in my life! And although the stress has passed I am still stuck with the pain. I have a constant achy type pain all around my vulvar area. Not the inside, and I don't have trouble with pain on the inside. I see the gynecologist tomorrow and am bringing everything I learned about vulvodynia with me to show him. Hoping and praying he has some answers for me. The depression that comes along with this is debilitating. I just want to be better again. Thanks all for listening.

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Re: Stress causing vulvodynia

Post  Sebby (Admin) on Fri Jun 20, 2014 10:37 am

Hi, I do feel that stress and specifically ptsd greatly contributed to my symptoms. This is not to say that it's all in our heads! It's a very real physical problem and stress can contribute like it can to most if not all illnesses and syndromes. How did the appt with the gynae go?
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Re: Stress causing vulvodynia

Post  meelie on Fri Jun 20, 2014 1:28 pm

Stress causing this curse has nothing to do with being in our heads. It sounded like you think if it is caused by stress that it is in our heads. The stress causes our muscles to tighten like knots and damages the nerve ending and stuff like that. Absolutely it is not in our heads if it is stress related. You may not have meant it like this but it sounded like if it's stress it's phycosomatic (spelling) and not physical. It is totally physical pain. Sorry, just didn't want it misunderstood. Smile 

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Re: Stress causing vulvodynia

Post  Caropes on Fri Jun 20, 2014 3:48 pm

I think my symptoms were absolutely caused by stress!

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Re: Stress causing vulvodynia

Post  Katiej on Thu Nov 23, 2017 1:46 pm

Have any of you guys recovered? Wanna help a girl out. I know im three years late ha but just want some hope

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Re: Stress causing vulvodynia

Post  sarisbaris on Sun Nov 26, 2017 5:42 am

Katiej,
I think I just replied to another post. Yes. I have fully recovered. I can wild sex and fully enjoy it. (Sorry for TMI... sex was always my ultimate test Wink

OK... I followed the recommendations by Anthony William. According to him, stress can be a trigger. It's not the reason your vagina burns but it wears down your immunity. If your vagina burns it means your fighting a strep infection or shingles (both currently undetectable). If you immunity is comprised and your body isn't strong enough to fight these infections, then they get stronger. Also, if the stress is forcing you to produce adrenaline then that is corrosive to the entire body. So yes, it can act like a trigger.

http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html


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Re: Stress causing vulvodynia

Post  Katiej on Sun Nov 26, 2017 7:55 am

That makes sense. U mentioned in other post a rash. Im very itchy but I dont have any rash or any visible signs of anything. The inside of my vag is fine its all the outside. What do u do to get rid of the shingles down there if thats the cause.

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Re: Stress causing vulvodynia

Post  sarisbaris on Sun Nov 26, 2017 3:39 pm

Katiej,
The reason women have such a hard time getting rid of this is because they need to fully understand the virus. It's not hard once you understand how it works. Eggs, dairy, wheat, canola oil and metals all feed shingles and strep. So you need to avoid those. Lobelia cured mine but I was already doing the detox/avoiding foods that feed it and I was eating foods that kill it.

So first educate yourself. http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html
Listen/read to the shingles show/post, strep and EBV. All listed in the necessary reading section. EBV is actually the foundational virus. Basically, this virus that no one understands weakened your liver/organs which allowed these other weak viruses to take over. If you really think that you are fighting shingles then you can buy his book. He has a whole chapter on shingles and his writing is a little more clear then his radio shows. You can download it straight to your phone if you don't want to wait. The more you understand what's going on the faster you will heal because you will know what to do.

If you don't see a difference with lobelia then you might want to try the strep protocol. But follow your gut! If you feel that your body is battling shingles then you're probably fighting it. That was the most important lesson I learned battling V. I learned how to listen to my intuition.

Keep me posted and let me know if you have any questions.
Sarah
sarahcamp20@gmail.com

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Re: Stress causing vulvodynia

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