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Yesterday at 5:05 am by SinclairSassy

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Stress causing vulvodynia

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Stress causing vulvodynia

Post  Caropes on Tue Jun 03, 2014 2:55 pm

Hello Ladies, in reading some of the past posts, I saw a lot of people saying their vulvodynia was initially caused by stress. Although I haven't been officially diagnosed yet (I self-diagnosed myself with a lot of research), with vulvodynia I can say that all my symptoms started after a very, very stressful time in my life! And although the stress has passed I am still stuck with the pain. I have a constant achy type pain all around my vulvar area. Not the inside, and I don't have trouble with pain on the inside. I see the gynecologist tomorrow and am bringing everything I learned about vulvodynia with me to show him. Hoping and praying he has some answers for me. The depression that comes along with this is debilitating. I just want to be better again. Thanks all for listening.

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Re: Stress causing vulvodynia

Post  Sebby (Admin) on Fri Jun 20, 2014 10:37 am

Hi, I do feel that stress and specifically ptsd greatly contributed to my symptoms. This is not to say that it's all in our heads! It's a very real physical problem and stress can contribute like it can to most if not all illnesses and syndromes. How did the appt with the gynae go?
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Re: Stress causing vulvodynia

Post  meelie on Fri Jun 20, 2014 1:28 pm

Stress causing this curse has nothing to do with being in our heads. It sounded like you think if it is caused by stress that it is in our heads. The stress causes our muscles to tighten like knots and damages the nerve ending and stuff like that. Absolutely it is not in our heads if it is stress related. You may not have meant it like this but it sounded like if it's stress it's phycosomatic (spelling) and not physical. It is totally physical pain. Sorry, just didn't want it misunderstood. Smile 

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Re: Stress causing vulvodynia

Post  Caropes on Fri Jun 20, 2014 3:48 pm

I think my symptoms were absolutely caused by stress!

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Re: Stress causing vulvodynia

Post  Katiej on Thu Nov 23, 2017 1:46 pm

Have any of you guys recovered? Wanna help a girl out. I know im three years late ha but just want some hope

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Re: Stress causing vulvodynia

Post  sarisbaris on Sun Nov 26, 2017 5:42 am

Katiej,
I think I just replied to another post. Yes. I have fully recovered. I can wild sex and fully enjoy it. (Sorry for TMI... sex was always my ultimate test Wink

OK... I followed the recommendations by Anthony William. According to him, stress can be a trigger. It's not the reason your vagina burns but it wears down your immunity. If your vagina burns it means your fighting a strep infection or shingles (both currently undetectable). If you immunity is comprised and your body isn't strong enough to fight these infections, then they get stronger. Also, if the stress is forcing you to produce adrenaline then that is corrosive to the entire body. So yes, it can act like a trigger.

http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html


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Re: Stress causing vulvodynia

Post  Katiej on Sun Nov 26, 2017 7:55 am

That makes sense. U mentioned in other post a rash. Im very itchy but I dont have any rash or any visible signs of anything. The inside of my vag is fine its all the outside. What do u do to get rid of the shingles down there if thats the cause.

Katiej

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Re: Stress causing vulvodynia

Post  sarisbaris on Sun Nov 26, 2017 3:39 pm

Katiej,
The reason women have such a hard time getting rid of this is because they need to fully understand the virus. It's not hard once you understand how it works. Eggs, dairy, wheat, canola oil and metals all feed shingles and strep. So you need to avoid those. Lobelia cured mine but I was already doing the detox/avoiding foods that feed it and I was eating foods that kill it.

So first educate yourself. http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html
Listen/read to the shingles show/post, strep and EBV. All listed in the necessary reading section. EBV is actually the foundational virus. Basically, this virus that no one understands weakened your liver/organs which allowed these other weak viruses to take over. If you really think that you are fighting shingles then you can buy his book. He has a whole chapter on shingles and his writing is a little more clear then his radio shows. You can download it straight to your phone if you don't want to wait. The more you understand what's going on the faster you will heal because you will know what to do.

If you don't see a difference with lobelia then you might want to try the strep protocol. But follow your gut! If you feel that your body is battling shingles then you're probably fighting it. That was the most important lesson I learned battling V. I learned how to listen to my intuition.

Keep me posted and let me know if you have any questions.
Sarah
sarahcamp20@gmail.com

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Re: Stress causing vulvodynia

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