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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Stress causing vulvodynia

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Stress causing vulvodynia

Post  Caropes on Tue Jun 03, 2014 2:55 pm

Hello Ladies, in reading some of the past posts, I saw a lot of people saying their vulvodynia was initially caused by stress. Although I haven't been officially diagnosed yet (I self-diagnosed myself with a lot of research), with vulvodynia I can say that all my symptoms started after a very, very stressful time in my life! And although the stress has passed I am still stuck with the pain. I have a constant achy type pain all around my vulvar area. Not the inside, and I don't have trouble with pain on the inside. I see the gynecologist tomorrow and am bringing everything I learned about vulvodynia with me to show him. Hoping and praying he has some answers for me. The depression that comes along with this is debilitating. I just want to be better again. Thanks all for listening.

Caropes

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Re: Stress causing vulvodynia

Post  Sebby (Admin) on Fri Jun 20, 2014 10:37 am

Hi, I do feel that stress and specifically ptsd greatly contributed to my symptoms. This is not to say that it's all in our heads! It's a very real physical problem and stress can contribute like it can to most if not all illnesses and syndromes. How did the appt with the gynae go?
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Re: Stress causing vulvodynia

Post  meelie on Fri Jun 20, 2014 1:28 pm

Stress causing this curse has nothing to do with being in our heads. It sounded like you think if it is caused by stress that it is in our heads. The stress causes our muscles to tighten like knots and damages the nerve ending and stuff like that. Absolutely it is not in our heads if it is stress related. You may not have meant it like this but it sounded like if it's stress it's phycosomatic (spelling) and not physical. It is totally physical pain. Sorry, just didn't want it misunderstood. Smile 

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Re: Stress causing vulvodynia

Post  Caropes on Fri Jun 20, 2014 3:48 pm

I think my symptoms were absolutely caused by stress!

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Re: Stress causing vulvodynia

Post  Katiej on Thu Nov 23, 2017 1:46 pm

Have any of you guys recovered? Wanna help a girl out. I know im three years late ha but just want some hope

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Re: Stress causing vulvodynia

Post  sarisbaris on Sun Nov 26, 2017 5:42 am

Katiej,
I think I just replied to another post. Yes. I have fully recovered. I can wild sex and fully enjoy it. (Sorry for TMI... sex was always my ultimate test Wink

OK... I followed the recommendations by Anthony William. According to him, stress can be a trigger. It's not the reason your vagina burns but it wears down your immunity. If your vagina burns it means your fighting a strep infection or shingles (both currently undetectable). If you immunity is comprised and your body isn't strong enough to fight these infections, then they get stronger. Also, if the stress is forcing you to produce adrenaline then that is corrosive to the entire body. So yes, it can act like a trigger.

http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html


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Re: Stress causing vulvodynia

Post  Katiej on Sun Nov 26, 2017 7:55 am

That makes sense. U mentioned in other post a rash. Im very itchy but I dont have any rash or any visible signs of anything. The inside of my vag is fine its all the outside. What do u do to get rid of the shingles down there if thats the cause.

Katiej

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Re: Stress causing vulvodynia

Post  sarisbaris on Sun Nov 26, 2017 3:39 pm

Katiej,
The reason women have such a hard time getting rid of this is because they need to fully understand the virus. It's not hard once you understand how it works. Eggs, dairy, wheat, canola oil and metals all feed shingles and strep. So you need to avoid those. Lobelia cured mine but I was already doing the detox/avoiding foods that feed it and I was eating foods that kill it.

So first educate yourself. http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html
Listen/read to the shingles show/post, strep and EBV. All listed in the necessary reading section. EBV is actually the foundational virus. Basically, this virus that no one understands weakened your liver/organs which allowed these other weak viruses to take over. If you really think that you are fighting shingles then you can buy his book. He has a whole chapter on shingles and his writing is a little more clear then his radio shows. You can download it straight to your phone if you don't want to wait. The more you understand what's going on the faster you will heal because you will know what to do.

If you don't see a difference with lobelia then you might want to try the strep protocol. But follow your gut! If you feel that your body is battling shingles then you're probably fighting it. That was the most important lesson I learned battling V. I learned how to listen to my intuition.

Keep me posted and let me know if you have any questions.
Sarah
sarahcamp20@gmail.com

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Re: Stress causing vulvodynia

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