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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Vulval pain cured only to have a bartholin cyst again

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Vulval pain cured only to have a bartholin cyst again

Post  mary jane on Wed Jun 04, 2014 7:54 pm

After 8 months of Amitriptyline 50 mg and 3 1/2 of Pregabalin added I cured all my pain, pain with touch, pain with intercourse, you name it.
However, now I have another bartholin cyst (my 6th in 9 years) and am begging doctors to give me a marsupialisation only to be sent home with pills. I will soon be back to square one with the pain...I really detest all OBGYNs right now....
I went to my GP who refused to see me and told me to go to A&E (ER). When I got to the ER, they told me to go back to my GP and ask for a gyn. referral? WTH???
I think that either 1. they are scared to operate on me because I have chronic pain OR
2. my medication cannot be taken when given a general anaesthetic

I hate doctors so much right now
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Re: Vulval pain cured only to have a bartholin cyst again

Post  Alana3 on Wed Jun 04, 2014 8:26 pm

Sorry to hear that I think it's fine to take those drugs under anesthesia.  I never discontinue birth control when I go under and I'm fine.  They never tell me to do that either.  Go to a specialist rather than generic gynos.  Plus the ER is def NOT trained to deal with womens issues like ours.  Go find someone who is known in what they do.  Of course I don't really know how things work over there so that may not be doable.  Ugh that sucks so bad I was feeling good that you weren't posting on here! I figured everything was going well.  Damn! Are you still with that guy??? Smile

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Sorry

Post  Caropes on Wed Jun 04, 2014 10:31 pm

So sorry and I feel your pain. I was just diagnosed today with vv. it happened along with a Bartholin cyst that I had excised. The doctor prescribed pregabalin 300mg three times a day. I was wondering what else you are taking that made you pain free until your cyst came back? I have been in pain now for three months and am praying the pregabalin gives me relief! I hope you get answers for your pain.

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Re: Vulval pain cured only to have a bartholin cyst again

Post  Leslieg on Thu Jun 05, 2014 1:21 am

Sorry Maryjane......like Alana, I was feeling good for you too. What pills did the doctors give you for the cyst? Try not to panic....maybe they'll work. You will be pain free again. Hang in there......xo

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Re: Vulval pain cured only to have a bartholin cyst again

Post  zarli on Thu Jun 05, 2014 10:07 am

Thinking of you Mary Jane try and stay positive if you got rid of the pain once you can do it again and it might not come back as bad. Be as assertive as you can with your Doctors I feel letting them know exactly how you are feeling will hopefully make them show empathy.
xx

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Re: Vulval pain cured only to have a bartholin cyst again

Post  mary jane on Thu Jun 05, 2014 11:41 am

You're all just great. Sending a big hug for you all I love you 
@ Alana, it makes sense what you say. It can't be the pills I'm on...and yes, I'm still with that guy, I attribute the last bit of my cure to him, he's been very sweet...
@leslieg: hug

Carotes: that's interesting, can I ask more about your cyst ? did they lance and drain it and then your pain started or how exactly ?
It was the amitriptyline which worked for my pain initially, but it took 3 months for it to work...another thing that helped was desensitisation, where you gradually get the area used to touch again..make the nerves learn there is no reason for them to create pain
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Sorry

Post  Caropes on Thu Jun 05, 2014 12:07 pm

MaryJane, I sent you a msg.

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Feeling better

Post  Caropes on Tue Jun 10, 2014 11:40 am

Mary Jane, how is your Bartholin cyst doing? How is you vulvar pain? Hoping your doing better Smile. -Cathy

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Re: Vulval pain cured only to have a bartholin cyst again

Post  Alana3 on Tue Jun 10, 2014 1:17 pm

Ahh well that's good news! At least about the guy, how's your hooha doing (I love I can be blunt here! haha) Was thinking of you the other day, love.  Hope you're feeling better.  Remember each day brings something different some good and bad.  I'm headed in for surgery on the 25th for endo so I feel how bummed you are!  I keep trying not to think about it, but they took me off bcps and now I'm an emotional wreck.

Anyway, shoot me a message and catch me up on your life!  Very Happy

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Re: Vulval pain cured only to have a bartholin cyst again

Post  mary jane on Sat Jun 14, 2014 9:59 am

Hi girls,

@ Alana: Endo sounds like a proper challenge, you are a real fighter in all of this!

I ended up doing a marsupialisation on my cyst a week ago, I recovered fast thanks to ami & lyrica.
However I seem to be getting the same cyst AGAIN so I don't know what now. Doctors say there is no way to prevent them
and a good hygiene is not enough. So now I have an extra hole for nothing. S***
They also said they want to remove the gland which might mean full blown pudendal neuralgia which is almost impossible to treat.
ah well

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Re: Vulval pain cured only to have a bartholin cyst again

Post  Alana3 on Mon Jun 16, 2014 1:19 pm

Maybe removing it will make you feel better?  I have no idea that is one thing I never got.  I know another girl on here got her's removed.  I think she was OK after.  Don't quote me on that though

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Re: Vulval pain cured only to have a bartholin cyst again

Post  mary jane on Mon Jun 16, 2014 5:06 pm

I will remove it if it's a must, but it's so deep inside and they cut into the vaginal wall as well, and a rare complication is nerve pain Smile) this is quite funny actually
Is there like a charity where we can donate money so they research this damn disease more??

Everyone is talking about cancer, but chronic pain is no fun

anyway, how have you been, Alana?? Give me a quick update
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Re: Vulval pain cured only to have a bartholin cyst again

Post  Alana3 on Mon Jun 16, 2014 5:44 pm

hahaha was supposed to have surgery this month but the hospital FUCKED UP and never scheduled me so now I get to wait until August.  Ask me how excited I am about that one.  I got off birth control everything was great for 10 days and just started bleeding again today (after 8 months of continuous bleeding on the friggin pill).  Besides that I feel great haha (no really I do!).  I'm just waiting for some relief somewhere.  However, my vuvlodynia is still OK and having tons of sex with the boyfriend so I cant really be THAT upset.  It's this damn endo that I want to punch someone in the face with.  Smile Oh and the boyfriends surprise bday is this week so that's stressful too! hahahaha But my attitude is a lot less manic than before so a plus!

Besides the hooha how are you doing??

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Re: Vulval pain cured only to have a bartholin cyst again

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