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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Bullet to my head

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Bullet to my head

Post  meelie on Thu Jun 05, 2014 11:17 pm

I'm having a really bad day and I just need to rant to someone. My back hurts, I'm so tired I can' t move and my pussy is on fire!!!!!!!! I am so so so damn sick of this shit, sorry about the language. No one else can understand, so I just have to rant to those who know. I'd rather be dead than to live another day like this. There is NO quality of life. My marriage sucks, I can't ride my horse or even enjoy being with them cause I am so miserable. My children are grown and gone and my grand children have never gotten close to us, never hear from any of them unless they need something. I can't communicate with my husband anymore or anyone for that matter. No one understands. I've even lost contact with God. Please please pray for me.

meelie

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So sorry

Post  Caropes on Fri Jun 06, 2014 12:10 am

Meelie, I am sorry you are so down. I feel your pain and am in the depressed state. My pain is constant and unbearable. I have isolated myself from everyone and feel alone. I will pray for you daily. No one should have to live with chronic pain and live a life like this. I know hearing "hang in there" doesn't really help but just try! You can private message me if you'd like. Praying for you. Cathy

Caropes

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..

Post  lavrose on Fri Jun 06, 2014 3:16 pm

I know everyone on here prolly thinks Im nuts, but ive been there, and Ive been suicidal too before, especially having IC aswell.

Please run out to a whole foods, or a Trader JOs, any Organic Grocery store, and get some Yeast Arrest vaginal Homeopathic suppositories, as soon as I would use a few, Id feel a whole lot better (get some relief) Inside, that burning sensation I know too well, Ive had it for most of my life, and things that would help me, (one part apple Cidar Vinegar,to one part water ) soaked on a washcloth and held to the area for a half an hour, (will burn at first, but goes away after a bit) Calendula and Comfrey ointments are also helpful, applied to the outside.
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lavrose

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How are you doing?

Post  Caropes on Fri Jun 06, 2014 7:11 pm

Meelie, how are you doing today? - Cathy

Caropes

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Bullet to my head

Post  meelie on Fri Jun 06, 2014 9:35 pm

Thanks Rose, but my pain in from pelvic floor dysfunction. Skin condition looks fine according to GYN. PT helped for a while and then benefits ran out. Can't say for sure that it would have cured it. Thinking it is from a combo and IBS and straining along with severe stress going on at the time it started. A little better today. Sat in a warm soda bath for a while. Starting back now though.

meelie

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Re: Bullet to my head

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