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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 9

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Bullet to my head

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Bullet to my head

Post  meelie on Thu Jun 05, 2014 11:17 pm

I'm having a really bad day and I just need to rant to someone. My back hurts, I'm so tired I can' t move and my pussy is on fire!!!!!!!! I am so so so damn sick of this shit, sorry about the language. No one else can understand, so I just have to rant to those who know. I'd rather be dead than to live another day like this. There is NO quality of life. My marriage sucks, I can't ride my horse or even enjoy being with them cause I am so miserable. My children are grown and gone and my grand children have never gotten close to us, never hear from any of them unless they need something. I can't communicate with my husband anymore or anyone for that matter. No one understands. I've even lost contact with God. Please please pray for me.

meelie

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So sorry

Post  Caropes on Fri Jun 06, 2014 12:10 am

Meelie, I am sorry you are so down. I feel your pain and am in the depressed state. My pain is constant and unbearable. I have isolated myself from everyone and feel alone. I will pray for you daily. No one should have to live with chronic pain and live a life like this. I know hearing "hang in there" doesn't really help but just try! You can private message me if you'd like. Praying for you. Cathy

Caropes

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..

Post  lavrose on Fri Jun 06, 2014 3:16 pm

I know everyone on here prolly thinks Im nuts, but ive been there, and Ive been suicidal too before, especially having IC aswell.

Please run out to a whole foods, or a Trader JOs, any Organic Grocery store, and get some Yeast Arrest vaginal Homeopathic suppositories, as soon as I would use a few, Id feel a whole lot better (get some relief) Inside, that burning sensation I know too well, Ive had it for most of my life, and things that would help me, (one part apple Cidar Vinegar,to one part water ) soaked on a washcloth and held to the area for a half an hour, (will burn at first, but goes away after a bit) Calendula and Comfrey ointments are also helpful, applied to the outside.
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lavrose

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How are you doing?

Post  Caropes on Fri Jun 06, 2014 7:11 pm

Meelie, how are you doing today? - Cathy

Caropes

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Bullet to my head

Post  meelie on Fri Jun 06, 2014 9:35 pm

Thanks Rose, but my pain in from pelvic floor dysfunction. Skin condition looks fine according to GYN. PT helped for a while and then benefits ran out. Can't say for sure that it would have cured it. Thinking it is from a combo and IBS and straining along with severe stress going on at the time it started. A little better today. Sat in a warm soda bath for a while. Starting back now though.

meelie

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Re: Bullet to my head

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