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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Bullet to my head

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Bullet to my head

Post  meelie on Thu Jun 05, 2014 11:17 pm

I'm having a really bad day and I just need to rant to someone. My back hurts, I'm so tired I can' t move and my pussy is on fire!!!!!!!! I am so so so damn sick of this shit, sorry about the language. No one else can understand, so I just have to rant to those who know. I'd rather be dead than to live another day like this. There is NO quality of life. My marriage sucks, I can't ride my horse or even enjoy being with them cause I am so miserable. My children are grown and gone and my grand children have never gotten close to us, never hear from any of them unless they need something. I can't communicate with my husband anymore or anyone for that matter. No one understands. I've even lost contact with God. Please please pray for me.

meelie

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So sorry

Post  Caropes on Fri Jun 06, 2014 12:10 am

Meelie, I am sorry you are so down. I feel your pain and am in the depressed state. My pain is constant and unbearable. I have isolated myself from everyone and feel alone. I will pray for you daily. No one should have to live with chronic pain and live a life like this. I know hearing "hang in there" doesn't really help but just try! You can private message me if you'd like. Praying for you. Cathy

Caropes

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..

Post  lavrose on Fri Jun 06, 2014 3:16 pm

I know everyone on here prolly thinks Im nuts, but ive been there, and Ive been suicidal too before, especially having IC aswell.

Please run out to a whole foods, or a Trader JOs, any Organic Grocery store, and get some Yeast Arrest vaginal Homeopathic suppositories, as soon as I would use a few, Id feel a whole lot better (get some relief) Inside, that burning sensation I know too well, Ive had it for most of my life, and things that would help me, (one part apple Cidar Vinegar,to one part water ) soaked on a washcloth and held to the area for a half an hour, (will burn at first, but goes away after a bit) Calendula and Comfrey ointments are also helpful, applied to the outside.
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lavrose

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How are you doing?

Post  Caropes on Fri Jun 06, 2014 7:11 pm

Meelie, how are you doing today? - Cathy

Caropes

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Bullet to my head

Post  meelie on Fri Jun 06, 2014 9:35 pm

Thanks Rose, but my pain in from pelvic floor dysfunction. Skin condition looks fine according to GYN. PT helped for a while and then benefits ran out. Can't say for sure that it would have cured it. Thinking it is from a combo and IBS and straining along with severe stress going on at the time it started. A little better today. Sat in a warm soda bath for a while. Starting back now though.

meelie

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Re: Bullet to my head

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