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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

when I loved myself enough. ...

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when I loved myself enough. ...

Post  zarli on Sun Jun 08, 2014 10:51 am

I have just read some recent posts which brought me back to my darkest days...I drove myself to an after hours clinic 7.5 years ago telling them I wanted to not be here any more because of this shit chronic pain disorder, a lady doctor saw me she was my 6th doctor she diagnosed me and prescribed amiltriptilyn. I started at 10 mg and slowly went up to 35mg. It saved my life. I am here for any one of you even if you think you can't say what you are thinking. No one understands this unless they have it. Neuralgia pain is often called the suicide pain. BUT as much as its how we may feel there is help and long lasting pain relief. Typical of us women that we have to sometimes ( often) find our own support and way ahead. I have learnt to say in the mirror every day WHEN I LOVED MYSELF ENOUGH. ....I WILL ALWAYS TAKE CARE OF MY MIND AND BODY BECAUSE I AM WORTH IT.


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Post  Caropes on Sun Jun 08, 2014 1:22 pm

Thanks Zarli. Very well said Smile


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In need of a rant!

Post  virgo33 on Mon Jun 16, 2014 2:03 am

Ok so I am new here but have been suffering with vulvodynia for a little over 2 years. I have seen 4 docs., taking amitriptyline 50m per night, fish oil/daily, magnesium/daily and coq10/daily. My meds for the most part keep my pain at a level 1-2 the majority of the time, which at this stage is tolerable being that my pain began anywhere between 5-10 and was unable to sleep most nights. I am excited that I have found this site. When I have been to the dr. I say it is really hard and I feel alone without support. I'm sure you know the response I get"Yes I have other patients that say this too". But that is where it ends! no support group name, no 800#  no website. I can tell my sis and bff but they can only relate so much. They don't understand that this really does affect my everyday life and that I have to put on a happy face because I cant just go around telling people when they ask how I'm doing that the truth is my vag burns all the time and when they say they can't believe i'm single or that some one hasn't just swept me off my feet I want to say oh they could but then they wouldn't be happy with their sex life. Yes I am in need of a rant!
Thanks for being here!


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Re: when I loved myself enough. ...

Post  Caropes on Mon Jun 16, 2014 12:12 pm

Hey Virgo33, I sent you a PM.


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Re: when I loved myself enough. ...

Post  tinkerbelle2 on Mon Jun 16, 2014 10:03 pm

Sending love  I love you I love you I love you 

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Re: when I loved myself enough. ...

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