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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


when I loved myself enough. ...

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when I loved myself enough. ...

Post  zarli on Sun Jun 08, 2014 10:51 am

I have just read some recent posts which brought me back to my darkest days...I drove myself to an after hours clinic 7.5 years ago telling them I wanted to not be here any more because of this shit chronic pain disorder, a lady doctor saw me she was my 6th doctor she diagnosed me and prescribed amiltriptilyn. I started at 10 mg and slowly went up to 35mg. It saved my life. I am here for any one of you even if you think you can't say what you are thinking. No one understands this unless they have it. Neuralgia pain is often called the suicide pain. BUT as much as its how we may feel there is help and long lasting pain relief. Typical of us women that we have to sometimes ( often) find our own support and way ahead. I have learnt to say in the mirror every day WHEN I LOVED MYSELF ENOUGH. ....I WILL ALWAYS TAKE CARE OF MY MIND AND BODY BECAUSE I AM WORTH IT.

zarli

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Thanks

Post  Caropes on Sun Jun 08, 2014 1:22 pm

Thanks Zarli. Very well said Smile

Caropes

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In need of a rant!

Post  virgo33 on Mon Jun 16, 2014 2:03 am

Ok so I am new here but have been suffering with vulvodynia for a little over 2 years. I have seen 4 docs., taking amitriptyline 50m per night, fish oil/daily, magnesium/daily and coq10/daily. My meds for the most part keep my pain at a level 1-2 the majority of the time, which at this stage is tolerable being that my pain began anywhere between 5-10 and was unable to sleep most nights. I am excited that I have found this site. When I have been to the dr. I say it is really hard and I feel alone without support. I'm sure you know the response I get"Yes I have other patients that say this too". But that is where it ends! no support group name, no 800#  no website. I can tell my sis and bff but they can only relate so much. They don't understand that this really does affect my everyday life and that I have to put on a happy face because I cant just go around telling people when they ask how I'm doing that the truth is my vag burns all the time and when they say they can't believe i'm single or that some one hasn't just swept me off my feet I want to say oh they could but then they wouldn't be happy with their sex life. Yes I am in need of a rant!
Thanks for being here!

virgo33

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Re: when I loved myself enough. ...

Post  Caropes on Mon Jun 16, 2014 12:12 pm

Hey Virgo33, I sent you a PM.

Caropes

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Re: when I loved myself enough. ...

Post  tinkerbelle2 on Mon Jun 16, 2014 10:03 pm

Sending love  I love you I love you I love you 
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tinkerbelle2

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Re: when I loved myself enough. ...

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