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» Dating with Vulvodynia and Vaginismus advice
Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

» Lyrica has been classed as a Class C drug in UK
Mon Mar 11, 2019 9:20 pm by mary jane

» Long Time No Talk... What's been going on with my V pain the past few years...
Mon Mar 11, 2019 9:15 pm by mary jane

» An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990

» I'm sorry im rambling
Fri Mar 08, 2019 7:34 pm by scrumptuous

» New member need advice please
Fri Mar 08, 2019 7:11 pm by scrumptuous

» MonaLisa Touch
Fri Mar 08, 2019 4:46 pm by rl2091

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7


when I loved myself enough. ...

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when I loved myself enough. ...

Post  zarli on Sun Jun 08, 2014 10:51 am

I have just read some recent posts which brought me back to my darkest days...I drove myself to an after hours clinic 7.5 years ago telling them I wanted to not be here any more because of this shit chronic pain disorder, a lady doctor saw me she was my 6th doctor she diagnosed me and prescribed amiltriptilyn. I started at 10 mg and slowly went up to 35mg. It saved my life. I am here for any one of you even if you think you can't say what you are thinking. No one understands this unless they have it. Neuralgia pain is often called the suicide pain. BUT as much as its how we may feel there is help and long lasting pain relief. Typical of us women that we have to sometimes ( often) find our own support and way ahead. I have learnt to say in the mirror every day WHEN I LOVED MYSELF ENOUGH. ....I WILL ALWAYS TAKE CARE OF MY MIND AND BODY BECAUSE I AM WORTH IT.

zarli

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Thanks

Post  Caropes on Sun Jun 08, 2014 1:22 pm

Thanks Zarli. Very well said Smile

Caropes

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In need of a rant!

Post  virgo33 on Mon Jun 16, 2014 2:03 am

Ok so I am new here but have been suffering with vulvodynia for a little over 2 years. I have seen 4 docs., taking amitriptyline 50m per night, fish oil/daily, magnesium/daily and coq10/daily. My meds for the most part keep my pain at a level 1-2 the majority of the time, which at this stage is tolerable being that my pain began anywhere between 5-10 and was unable to sleep most nights. I am excited that I have found this site. When I have been to the dr. I say it is really hard and I feel alone without support. I'm sure you know the response I get"Yes I have other patients that say this too". But that is where it ends! no support group name, no 800#  no website. I can tell my sis and bff but they can only relate so much. They don't understand that this really does affect my everyday life and that I have to put on a happy face because I cant just go around telling people when they ask how I'm doing that the truth is my vag burns all the time and when they say they can't believe i'm single or that some one hasn't just swept me off my feet I want to say oh they could but then they wouldn't be happy with their sex life. Yes I am in need of a rant!
Thanks for being here!

virgo33

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Re: when I loved myself enough. ...

Post  Caropes on Mon Jun 16, 2014 12:12 pm

Hey Virgo33, I sent you a PM.

Caropes

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Re: when I loved myself enough. ...

Post  tinkerbelle2 on Mon Jun 16, 2014 10:03 pm

Sending love  I love you I love you I love you 
tinkerbelle2
tinkerbelle2

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Re: when I loved myself enough. ...

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