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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Post  Marylynnreily on Mon Jun 16, 2014 1:56 pm

Hello ladies, just wanted to say, I recently had a relapse that lasted a really long time, and the Clindesse cream and antifungals didn't do much for me this time. I was really upset  and threw myself at the mercy of my Gyno-.
To add to the frustration, I was not showing any kind of infection in my tests, yeast / bacterial.
She placed me on about 4 refills of the clindamycin cream, finished them all, felt better (as always) when Im on them but as soon as I got off, I was burning again. My bladder was also acting up, and hurting me, but ofcourse, tests showed nothing, she treated me anyway, with Bactrim.
Then she decided to try me on oral clindamycin, 300mg twice a day for 10 days. Her concern was c diff. Clinda has been shown to cause c-diff in sensitive people, and severe digestive problems for some people, it can really mess up your system, but its such a broad spectrum antibiotic, it kills everything, even the beneficial bacteria, so you might have gut issues after.
years of suffering, and what do ya know, turned out to be some kind of bad bacteria after all...

Last edited by Marylynnreily on Mon Oct 27, 2014 1:13 am; edited 1 time in total

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Post  Marylynnreily on Mon Jun 16, 2014 1:58 pm

I also did some research online and clindamycin is prescribed a lot for tooth infections and severe infections, dentists prescribe it regularly, because the mouth harbors so many different kinds of bad bacteria.

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Re: Breakthru-

Post  Alana3 on Mon Jun 16, 2014 3:29 pm

I would be careful with that yes it wipes everything out but when it comes back after youre done it can be a lot worse than what you had before.  Be careful asking for antibiotics especially if you don't know what kind of infection or if you even have an infection.


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Re: Breakthru-

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