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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


any V Drs in or around Atlanta, Ga

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any V Drs in or around Atlanta, Ga

Post  meelie on Tue Jun 24, 2014 1:58 am

Hi all, have been having really bad days. Does anyone know of any Drs that really know something about this horrible curse in or around Atlanta, Ga. I actually live south of Atlanta. Or a Physical Therapist south of Atlanta. Was going to one in Decatur but didn't have good results. Thanks. I think she gave up on me.

meelie

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Re: any V Drs in or around Atlanta, Ga

Post  Alana3 on Tue Jun 24, 2014 2:09 pm

Come to west palm beach florida!  I have the best doc!!! But when I searched for him I wrote in google "South Florida vulvodynia specialists" and found him that way, maybe you could do that for where you live?

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Re: any V Drs in or around Atlanta, Ga

Post  SinclairSassy on Sun Aug 07, 2016 7:09 pm

I know you posted your question a few years ago, but I wanted to send a reply to you. I live in Huntsville, AL. When I started having symptoms in June of 2016, I asked my gynecologist if she treated vulvodynia. She said she did not and referred me to Dr. Alex Childs in Birmingham, AL. She said he is the only doctor in the southeast that treats vulvodynia. I have not seen him yet, my appointment isn't until December. (My original appointment was for March of 2017, but got moved up to December of 2016 due to a cancellation.)

SinclairSassy

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Re: any V Drs in or around Atlanta, Ga

Post  lindsey_taylor on Sun Aug 07, 2016 10:39 pm

I'm in the same boat. Seeing a Dr. Weiss this week at the Emory Clinic. Sad

lindsey_taylor

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Re: any V Drs in or around Atlanta, Ga

Post  SinclairSassy on Mon Aug 08, 2016 1:59 pm

Hey Lindsey! I lived in Alpharetta, GA, for most of my adult life. My husband and I moved to Huntsville, AL, for his job. I miss GA! Hearing that you have an appointment with a doctor in GA makes me skeptical of what my own gynecologist is telling me (i.e. that Dr. Childs is the only doctor in the SE that treats V). During routine annual exams and bladder treatments for BPS/IC, the MINUTE I mentioned anything outside the realm of "normal gynecological" procedures to my gynecologist, she literally shut down and pretended ignorance at the symptoms I was mentioning (painful urethra, vulva pain). After I researched my symptoms and asked her straight out about V, she sent me to Dr. Childs. Honestly, I don't know if I trust doctors that much anymore and that makes me sad and angry.

Please let me know how it goes with Dr. Weiss.

Hugs to you!!

SinclairSassy

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Re: any V Drs in or around Atlanta, Ga

Post  lindsey_taylor on Tue Aug 09, 2016 11:35 pm

Hello SinclairSassy! Thank you for the reply and the encouragement and hugs! I am seeing this doctor tomorrow morning and will let you know how it goes. I honestly don't know if this guy is a specialist or can help... but I hope.

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How did the appt go

Post  surprisemom44 on Mon Feb 20, 2017 9:04 am

I live in Marietta GA and need to find a gyn who handles this. How did your appt go?

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Re: any V Drs in or around Atlanta, Ga

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