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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


any V Drs in or around Atlanta, Ga

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any V Drs in or around Atlanta, Ga

Post  meelie on Tue Jun 24, 2014 1:58 am

Hi all, have been having really bad days. Does anyone know of any Drs that really know something about this horrible curse in or around Atlanta, Ga. I actually live south of Atlanta. Or a Physical Therapist south of Atlanta. Was going to one in Decatur but didn't have good results. Thanks. I think she gave up on me.

meelie

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Re: any V Drs in or around Atlanta, Ga

Post  Alana3 on Tue Jun 24, 2014 2:09 pm

Come to west palm beach florida!  I have the best doc!!! But when I searched for him I wrote in google "South Florida vulvodynia specialists" and found him that way, maybe you could do that for where you live?

Alana3

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Re: any V Drs in or around Atlanta, Ga

Post  SinclairSassy on Sun Aug 07, 2016 7:09 pm

I know you posted your question a few years ago, but I wanted to send a reply to you. I live in Huntsville, AL. When I started having symptoms in June of 2016, I asked my gynecologist if she treated vulvodynia. She said she did not and referred me to Dr. Alex Childs in Birmingham, AL. She said he is the only doctor in the southeast that treats vulvodynia. I have not seen him yet, my appointment isn't until December. (My original appointment was for March of 2017, but got moved up to December of 2016 due to a cancellation.)

SinclairSassy

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Re: any V Drs in or around Atlanta, Ga

Post  lindsey_taylor on Sun Aug 07, 2016 10:39 pm

I'm in the same boat. Seeing a Dr. Weiss this week at the Emory Clinic. Sad

lindsey_taylor

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Re: any V Drs in or around Atlanta, Ga

Post  SinclairSassy on Mon Aug 08, 2016 1:59 pm

Hey Lindsey! I lived in Alpharetta, GA, for most of my adult life. My husband and I moved to Huntsville, AL, for his job. I miss GA! Hearing that you have an appointment with a doctor in GA makes me skeptical of what my own gynecologist is telling me (i.e. that Dr. Childs is the only doctor in the SE that treats V). During routine annual exams and bladder treatments for BPS/IC, the MINUTE I mentioned anything outside the realm of "normal gynecological" procedures to my gynecologist, she literally shut down and pretended ignorance at the symptoms I was mentioning (painful urethra, vulva pain). After I researched my symptoms and asked her straight out about V, she sent me to Dr. Childs. Honestly, I don't know if I trust doctors that much anymore and that makes me sad and angry.

Please let me know how it goes with Dr. Weiss.

Hugs to you!!

SinclairSassy

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Re: any V Drs in or around Atlanta, Ga

Post  lindsey_taylor on Tue Aug 09, 2016 11:35 pm

Hello SinclairSassy! Thank you for the reply and the encouragement and hugs! I am seeing this doctor tomorrow morning and will let you know how it goes. I honestly don't know if this guy is a specialist or can help... but I hope.

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How did the appt go

Post  surprisemom44 on Mon Feb 20, 2017 9:04 am

I live in Marietta GA and need to find a gyn who handles this. How did your appt go?

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Re: any V Drs in or around Atlanta, Ga

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