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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


any V Drs in or around Atlanta, Ga

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any V Drs in or around Atlanta, Ga

Post  meelie on Tue Jun 24, 2014 1:58 am

Hi all, have been having really bad days. Does anyone know of any Drs that really know something about this horrible curse in or around Atlanta, Ga. I actually live south of Atlanta. Or a Physical Therapist south of Atlanta. Was going to one in Decatur but didn't have good results. Thanks. I think she gave up on me.

meelie

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Re: any V Drs in or around Atlanta, Ga

Post  Alana3 on Tue Jun 24, 2014 2:09 pm

Come to west palm beach florida!  I have the best doc!!! But when I searched for him I wrote in google "South Florida vulvodynia specialists" and found him that way, maybe you could do that for where you live?

Alana3

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Re: any V Drs in or around Atlanta, Ga

Post  SinclairSassy on Sun Aug 07, 2016 7:09 pm

I know you posted your question a few years ago, but I wanted to send a reply to you. I live in Huntsville, AL. When I started having symptoms in June of 2016, I asked my gynecologist if she treated vulvodynia. She said she did not and referred me to Dr. Alex Childs in Birmingham, AL. She said he is the only doctor in the southeast that treats vulvodynia. I have not seen him yet, my appointment isn't until December. (My original appointment was for March of 2017, but got moved up to December of 2016 due to a cancellation.)

SinclairSassy

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Re: any V Drs in or around Atlanta, Ga

Post  lindsey_taylor on Sun Aug 07, 2016 10:39 pm

I'm in the same boat. Seeing a Dr. Weiss this week at the Emory Clinic. Sad

lindsey_taylor

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Re: any V Drs in or around Atlanta, Ga

Post  SinclairSassy on Mon Aug 08, 2016 1:59 pm

Hey Lindsey! I lived in Alpharetta, GA, for most of my adult life. My husband and I moved to Huntsville, AL, for his job. I miss GA! Hearing that you have an appointment with a doctor in GA makes me skeptical of what my own gynecologist is telling me (i.e. that Dr. Childs is the only doctor in the SE that treats V). During routine annual exams and bladder treatments for BPS/IC, the MINUTE I mentioned anything outside the realm of "normal gynecological" procedures to my gynecologist, she literally shut down and pretended ignorance at the symptoms I was mentioning (painful urethra, vulva pain). After I researched my symptoms and asked her straight out about V, she sent me to Dr. Childs. Honestly, I don't know if I trust doctors that much anymore and that makes me sad and angry.

Please let me know how it goes with Dr. Weiss.

Hugs to you!!

SinclairSassy

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Re: any V Drs in or around Atlanta, Ga

Post  lindsey_taylor on Tue Aug 09, 2016 11:35 pm

Hello SinclairSassy! Thank you for the reply and the encouragement and hugs! I am seeing this doctor tomorrow morning and will let you know how it goes. I honestly don't know if this guy is a specialist or can help... but I hope.

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How did the appt go

Post  surprisemom44 on Mon Feb 20, 2017 9:04 am

I live in Marietta GA and need to find a gyn who handles this. How did your appt go?

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Re: any V Drs in or around Atlanta, Ga

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