Vulvodynia Support
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» Hope to all my suffering ladies
vaginal moisturizers EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
vaginal moisturizers EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
vaginal moisturizers EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
vaginal moisturizers EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
vaginal moisturizers EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
vaginal moisturizers EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
vaginal moisturizers EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
vaginal moisturizers EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
vaginal moisturizers EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  meelie Wed Jul 02, 2014 4:15 pm

Hi everyone, I'm still alive. Surprised 
I need some advice. I am very very dry and need a vaginal moisturizer. Have been researching on line for a couple days. Here are my choices and would love some feed back from girls who have tried any or all of them and what you would advise. I'm not talking about a lubricant for sex, if I ever have it again. Smile Talking about moisturizers. Replens, Hyalo GYN, Luvena, MeAgain. I actually have haven't looked up on MeAgain, just got tired and thought I would come to my friends on the forum.
Thanks to anyone who would give their opinion.

I apologize if this has been discussed. I couldn't find anything on it though.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

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Post  Caropes Thu Jul 03, 2014 1:40 am

Hi Meelie,

I don't have this problem but I think I have read that the Luvena is a good option.

How are you feeling otherwise?

Hope you are doing good!

Cathy

Caropes

Posts : 58
Join date : 2014-06-02
Location : Alabama

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Post  meelie Thu Jul 03, 2014 12:34 pm


thanks. Somedays are actually better than others. vulva burns worse on some days than others. If I get constipated the burning is unbearable. but that is not the only reason because on other days it burns also, but sometimes not as bad.
Going back to have a epidural cortisone (number 2) in two weeks. Sitting hurts my vulva, standing and walking hurts the back. Still working on it.
How are you? and thanks for the info.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

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Post  Alana3 Thu Jul 03, 2014 1:34 pm

I would double check with your doc before anything.  Are you any meds? That can make things weird.

Alana3

Posts : 1093
Join date : 2012-09-25

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