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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


out of ideas

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out of ideas

Post  cremeans24 on Mon Jun 30, 2014 9:57 pm

Hi there,

I found out while I was pregnant with my son about having vulvodynia. I always had trouble having sex but couldn't ever figure out why and it wasn't and still isn't anything I feel like I can talk to any one about. All I am ever told is that I just have a low pain tolerance and nothing is wrong because all test came back normal. In 2012 I got married to my husband after being together for a year and to this day we still have a little bit of issues because we didn't know what was going on but I didn't like sex at all I mean who would like pain that made you cry and so we were surprised when I got pregnant because we hadn't been really trying and not having regular sex but it was a really happy time for us and my son was born on June 13th of this year he is perfect but now I wonder where we go from here. About half way through my pregnancy we stopped being intimate because it hurt me so bad and I have had a history with depression and boy is it back now. I'm working with my OBGYN once i reach the 6 week mark to see if I can get back to a more normal intimate life with my husband, I guess what I"m trying to find out is did anyone else feel like less than a normal woman or am i just plain crazy. but i feel like I don't know what to do and I know my husband doesn't fully understand what I am going through and I'm just trying to find a way to feel better about myself and have people to talk to that understand and can help me through this time as i have no one in my life i feel i can talk to about this that won't essentially make fun of me.

cremeans24

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Re: out of ideas

Post  Alana3 on Tue Jul 01, 2014 2:47 pm

Did you have your baby yet or are you still pregnant?

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Re: out of ideas

Post  cremeans24 on Tue Jul 01, 2014 4:41 pm

Yeah my baby was born on june 13th. Overall once i had the epidural the birth was not as bad as the doctors thought but i did tear pretty bad and had to get more meds so i couldn't feel them stitching me back up. I couldn't get out of bed that first 24 hours on my own though they think that was the meds. But i will say the discomfort after birth was pretty bad and is just starting to lessen after two weeks but if i move too much i feel it.

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Re: out of ideas

Post  Alana3 on Tue Jul 01, 2014 4:56 pm

Supposedly after a vaginal birth (and the recovery), your vulvodynia becomes less intense.  Maybe wait and see what happens after?  Where exactly does it hurt? And is it all the time or just upon penetration?

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Re: out of ideas

Post  cremeans24 on Tue Jul 01, 2014 5:02 pm

Its only ever been during sex, or exams it is why i never really knew there could be something wrong because i had heard that for some women sex was always painful and i never had any abnormal results, utis or infections no stds so i just thought it was normal because no one had answers for me and i had never heard of vulvodynia before

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Re: out of ideas

Post  Alana3 on Tue Jul 01, 2014 5:33 pm

It sounds like you have provoked vulvodynia, like me.  Basically meaning that the only time you have pain is when you have sex.  And only in one spot.  I would go to a specialist and not your obgyn as their primary focus is babies and not really problems.  The good news is you can be fixed but you're going to be doing process of elimination- creams, pills, etc.  I had the surgery back in December 2012 called a vestibulectomy, but this is a last resort surgery and pretty much ONLY for provoked vulvodynia.  But they are going to want to try a less invasive treatment before they come to that.  You can also try women's physical therapy and see if it helps.  Some people claim acupuncture works.  But my best advice is to see a specialist who works closely with vulvodyna.  Where do you live now? 

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Re: out of ideas

Post  cremeans24 on Tue Jul 01, 2014 6:29 pm

I live in michigan, and the obgyn only caught it after i went to her for being pregnant so im less than a year into this and couldnt do treatment while i was pregnant so i am just trying to figure this out as i go with help from someone who understands what i feel and i can stop feeling so hopeless

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Re: out of ideas

Post  Alana3 on Tue Jul 01, 2014 7:17 pm

Don't lose hope I suffered for about 7 or 8 years before I got my fix so totally understand.  Maybe try someone at the University of Michigan if you're close or if there's a Cleveland Clinic near by you could try them- I just went to the one down here in Florida for a second opinion on something irrelevant to vulvodynia, and they were great!  Keep in mind that this isn't a disease no one knows about, it's just difficult to find a doctor who's not an idiot.  I would google vulvodynia specialists + Michigan and see what comes up.  I actually did it and I saw there was a vulvodynia clinic! (see below) maybe go that avenue!  Very Happy 


https://www.google.com/?gws_rd=ssl#q=vulvodynia+specialists+%2B+Michigan+

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Re: out of ideas

Post  cremeans24 on Tue Jul 01, 2014 9:11 pm

Thank you that helps

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Re: out of ideas

Post  Alana3 on Wed Jul 02, 2014 1:38 pm

No problem- let me know what you decide to do Smile But when you're calling around make sure they put some kind of emphasis on the vulva! I can show you my doctors website so you can get an idea

http://www.jaytrabinmd.com/home.html

Notice how vulvodynia is the first thing you see on the page.  My doc took a special interest in it and he's been my lifesaver!

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Re: out of ideas

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