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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Inflammation and hormones! HELP!

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Inflammation and hormones! HELP!

Post  sailor_moon on Mon Jul 07, 2014 12:04 am

Hi ladies,

I have been dealing with a chronic itch and burning for the last year. I am only 26. I had 2 biopsies done, the first one was normal, the second one showed chronic non-specific inflammation.

Does vulvodynia involve chronic inflammation? Because doctors tell me that if I had vulvodynia my vulva would look normal with no inflammation. I do not have pain at touch of a q-tip test.

I have intense itching on an everyday basis as well as burning leading up to my period. My periods are all over the place. 47 days apart, 66 days apart ect.

I have tried every lotion and potion on the market. If I hear the word "steroid cream" one more time I am going to scream, steriod cream does not work!!!

I feel like this thing is coming from the inside out. I also experience constant nausea, lethargy, vomiting and acne. I feel like my problem is hormonal but doctors do a basic blood test and tell me my hormones are "good" and dismiss me. All they want to do is send me to councilling! How is councilling going to fix my vag!

I have read that a basic hormone blood test will not give a real reading if you have a hormone imbalance. I read you have to do a 24 hour hormone blood test and a saliva hormone test to show a real reading?

Any advice would be much much appreciated. I am going insane. Noone should have to go though this :'(


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Re: Inflammation and hormones! HELP!

Post  Alana3 on Mon Jul 07, 2014 2:28 pm

Try to find a diagnosis for strep B or ureaplasma!

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Re: Inflammation and hormones! HELP!

Post  sailor_moon on Mon Jul 07, 2014 9:52 pm

Thankyou,

I don't know if I have been tested for strep B or Ureaplasma. Isn't Ureaplasma an STD? I thought if it was the doctors would have checked me for that? I'm married and I made my husband go and get tested too and everything they tested him for came back negative.
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Re: Inflammation and hormones! HELP!

Post  Alana3 on Tue Jul 08, 2014 12:56 pm

No ureaplasma is NOT an STD! I got it and was NOT having sex. 

http://my.clevelandclinic.org/disorders/infections/hic_ureaplasma_and_mycoplasma.aspx

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Re: Inflammation and hormones! HELP!

Post  sailor_moon on Tue Jul 08, 2014 9:20 pm

Oh ok! Thankyou. I thought it was an STD. I will definitely be asking the new Gyno I'm seeing in a few weeks.

I've read some of your other posts and it looks like you have done your research and know your stuff Smile

The last doctor that did a biopsy held a magnifier over the area and said under the magnifier it looks like this inflammed 'rash' is covered in tiny little yellow-white dots. But only non-specific inflammation came back as a result.

Any ideas on what it could be?
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Re: Inflammation and hormones! HELP!

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