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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Inflammation and hormones! HELP!

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Inflammation and hormones! HELP!

Post  sailor_moon on Mon Jul 07, 2014 12:04 am

Hi ladies,

I have been dealing with a chronic itch and burning for the last year. I am only 26. I had 2 biopsies done, the first one was normal, the second one showed chronic non-specific inflammation.

Does vulvodynia involve chronic inflammation? Because doctors tell me that if I had vulvodynia my vulva would look normal with no inflammation. I do not have pain at touch of a q-tip test.

I have intense itching on an everyday basis as well as burning leading up to my period. My periods are all over the place. 47 days apart, 66 days apart ect.

I have tried every lotion and potion on the market. If I hear the word "steroid cream" one more time I am going to scream, steriod cream does not work!!!

I feel like this thing is coming from the inside out. I also experience constant nausea, lethargy, vomiting and acne. I feel like my problem is hormonal but doctors do a basic blood test and tell me my hormones are "good" and dismiss me. All they want to do is send me to councilling! How is councilling going to fix my vag!

I have read that a basic hormone blood test will not give a real reading if you have a hormone imbalance. I read you have to do a 24 hour hormone blood test and a saliva hormone test to show a real reading?

Any advice would be much much appreciated. I am going insane. Noone should have to go though this :'(


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Re: Inflammation and hormones! HELP!

Post  Alana3 on Mon Jul 07, 2014 2:28 pm

Try to find a diagnosis for strep B or ureaplasma!

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Re: Inflammation and hormones! HELP!

Post  sailor_moon on Mon Jul 07, 2014 9:52 pm

Thankyou,

I don't know if I have been tested for strep B or Ureaplasma. Isn't Ureaplasma an STD? I thought if it was the doctors would have checked me for that? I'm married and I made my husband go and get tested too and everything they tested him for came back negative.
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Re: Inflammation and hormones! HELP!

Post  Alana3 on Tue Jul 08, 2014 12:56 pm

No ureaplasma is NOT an STD! I got it and was NOT having sex. 

http://my.clevelandclinic.org/disorders/infections/hic_ureaplasma_and_mycoplasma.aspx

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Re: Inflammation and hormones! HELP!

Post  sailor_moon on Tue Jul 08, 2014 9:20 pm

Oh ok! Thankyou. I thought it was an STD. I will definitely be asking the new Gyno I'm seeing in a few weeks.

I've read some of your other posts and it looks like you have done your research and know your stuff Smile

The last doctor that did a biopsy held a magnifier over the area and said under the magnifier it looks like this inflammed 'rash' is covered in tiny little yellow-white dots. But only non-specific inflammation came back as a result.

Any ideas on what it could be?
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Re: Inflammation and hormones! HELP!

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