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» Please tell me this can get better
Today at 2:10 am by anon99

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Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Inflammation and hormones! HELP!

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Inflammation and hormones! HELP!

Post  sailor_moon on Mon Jul 07, 2014 12:04 am

Hi ladies,

I have been dealing with a chronic itch and burning for the last year. I am only 26. I had 2 biopsies done, the first one was normal, the second one showed chronic non-specific inflammation.

Does vulvodynia involve chronic inflammation? Because doctors tell me that if I had vulvodynia my vulva would look normal with no inflammation. I do not have pain at touch of a q-tip test.

I have intense itching on an everyday basis as well as burning leading up to my period. My periods are all over the place. 47 days apart, 66 days apart ect.

I have tried every lotion and potion on the market. If I hear the word "steroid cream" one more time I am going to scream, steriod cream does not work!!!

I feel like this thing is coming from the inside out. I also experience constant nausea, lethargy, vomiting and acne. I feel like my problem is hormonal but doctors do a basic blood test and tell me my hormones are "good" and dismiss me. All they want to do is send me to councilling! How is councilling going to fix my vag!

I have read that a basic hormone blood test will not give a real reading if you have a hormone imbalance. I read you have to do a 24 hour hormone blood test and a saliva hormone test to show a real reading?

Any advice would be much much appreciated. I am going insane. Noone should have to go though this :'(


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Re: Inflammation and hormones! HELP!

Post  Alana3 on Mon Jul 07, 2014 2:28 pm

Try to find a diagnosis for strep B or ureaplasma!

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Re: Inflammation and hormones! HELP!

Post  sailor_moon on Mon Jul 07, 2014 9:52 pm

Thankyou,

I don't know if I have been tested for strep B or Ureaplasma. Isn't Ureaplasma an STD? I thought if it was the doctors would have checked me for that? I'm married and I made my husband go and get tested too and everything they tested him for came back negative.
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Re: Inflammation and hormones! HELP!

Post  Alana3 on Tue Jul 08, 2014 12:56 pm

No ureaplasma is NOT an STD! I got it and was NOT having sex. 

http://my.clevelandclinic.org/disorders/infections/hic_ureaplasma_and_mycoplasma.aspx

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Re: Inflammation and hormones! HELP!

Post  sailor_moon on Tue Jul 08, 2014 9:20 pm

Oh ok! Thankyou. I thought it was an STD. I will definitely be asking the new Gyno I'm seeing in a few weeks.

I've read some of your other posts and it looks like you have done your research and know your stuff Smile

The last doctor that did a biopsy held a magnifier over the area and said under the magnifier it looks like this inflammed 'rash' is covered in tiny little yellow-white dots. But only non-specific inflammation came back as a result.

Any ideas on what it could be?
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Re: Inflammation and hormones! HELP!

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