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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


desperate for answers..

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desperate for answers..

Post  noelle2530 on Wed Jul 09, 2014 5:35 pm

Hello ladies I have yet to be diagnosed I have been to many doctors plan on going back in a couple weeks I have been tracking my symptoms daily I was hoping someone could tell me if it sounds like what they have experienced. I would appreciate any help I could get I am desperate for answers...

05/12: felt fine
05/13: burning
05/14: Some slite burning kinda irritated feeling,
05/15 burning lasted the and some pains burning stopped mid afternoon
05/16 burning in the morning after pee, not as bad as yesterday…  lastnight slite burning around 11.40 after pee.. … felt fine rest of the day….
05/17: felt fine
05/18: felt fine had some cream colored discharge
05/19: slight burning in the morning,,,, felt a bit irritated late morning/afternoon
05/20: felt fine seem to have thick white discharge (not much)
05/21: felt fine no burning….
05/22: No burning felt fine had some crawling feelings last night… Feel a little burning mid after noon…. Had some thick cream colored discharge burning is gone this is 4pm
05/23: feel okay kinda achy in the anal area??…
05/24: Felt okay
05/25: burning irritated valva
05/26: same feelings a little worse
05/27: felt some burning in the morning went away ….  Feel a little achy
05/28: felt no burning
05/29: some burning after morning pee… 05/30: fell fine
05/31: felt fine
06/01: had mild burning in the evening
06/02: felt fine had some achiness in my clit
06/03: no burning still a bit achy…
06/04: felt fine kinda burned a little after mid-morning pee
06/05: felt fine
06/06: felt some burning late
06/07: felt fine
06/08: felt fine
06/09: felt a bit warm…  kinda irritated … burned a little after oral and sex
06/10: felt a little warm and mild irritation..  some swelling felt irritated While at the gym (swelling of my vaginal wall/entrances to vagina
06/11: felt some irritation swelling seems to be going down, feel a little burning around noon… everything looks normal the area near my clit is kinda tender started feeling better around 2… felt fine in the evening
06/12: felt okay had some mild irritation after sex this morning no burning… feeling a bit irritated 1040am .. feel kinda achy
06/13: had some burning with morning pee feel a little irritated… nothing looks red or anything felt fine later in the day
06/14: felt fine
06/15: felt fine
06/16: felt a little irritated felt fine
06/17: feel a bit achy kinda swollen white pasty discharge swelling and irritation went away later in the day
06/18: feel fine
06/19 felt fine
06/20 feel fine a bit irritated/achy
06/21: felt fine most of the day had a little burring in the evening
06/22; felt fine
06/23: feel okay a little irritated/achy  feeling felt fine in the evening  
06/24: feel fine in the morning feel kinda achy white discharge /swelling burning feelings around 330pm felt fine in the evening
06/25: feeling a little irritated  white discharge …… felt fine rest of the day
06/26: I feel okay kinda achy ..buring around 230 …felt fine later
06/27: felt fine when I got up then started feeling achy around 930  felt fine rest of the day
06/28: felt some burning
06/29: felt some burning red vulva
06/30: felt irritated, got my period, felt fine most of the day then started feeling achy around 440pm
07/01: felt some pain last night at the entrance of vagina… today feel some burning vulva looks a little red
07/02: no burning feel a little irritated
07/03: feel fine a little red
07/04: felt irritated
07/05: felt fine
07/06: felt mostly fine
07/07: burning after morning pee then felt fine
07/08: burning this morning felt fine rest of the day some leg pain and pain in the arms right leg right arm some in left foot
07/09: feel fine some pains in the leg and arm

noelle2530

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Join date : 2014-07-09
Age : 33
Location : MISSOURI

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Re: desperate for answers..

Post  Alana3 on Wed Jul 09, 2014 5:52 pm

Where are you located?  And it sounds like it could be nerves.

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Re: desperate for answers..

Post  noelle2530 on Wed Jul 09, 2014 6:22 pm

I am located in Arnold MO, what do you mean by nerves? Isn't that what Vulvodynia is?


Last edited by noelle2530 on Wed Jul 09, 2014 6:33 pm; edited 1 time in total (Reason for editing : added something)

noelle2530

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Re: desperate for answers..

Post  Alana3 on Wed Jul 09, 2014 7:27 pm

vulvodynia is broad it just means a painful vulva.  There are a million reasons why that could happen. Skin reactions, infections, muscles, nerves, etc.

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Re: desperate for answers..

Post  noelle2530 on Wed Jul 09, 2014 7:29 pm

Right I understand I have been tested for everything and its all negative. My question is do my symptoms sound like Vulvodynia? The burning I experience is on my vulva just wanted to make sure that was clear lol.

noelle2530

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Re: desperate for answers..

Post  Alana3 on Wed Jul 09, 2014 8:17 pm

Yes, BUT there are other conditions that can cause symptoms similar to vulvodynia (I'm not necessarily talking about infections, but like Lichen Scleorsis is an example, or something as easy as ureaplasma which many doctors do NOT test for, or strep B which is usually only seen in pregnant women, but hey I got that too!)... I'm just saying until you get a definite diagnosis don't assume its vulvodynia. (And I'm not being a bitch just saying)

That being said!Smile Since you live in Missouri, I would suggest googling a vulovdynia specialist.  I found mind by putting in vulvodynia specialist + South Florida in the search bar and I found my doc who is absolutely AMAZING!

Yours does sound like it could be vulvodynia, but what I was trying to say before is there are multiple reasons why vulvodynia can occur, so finding out is crucial to your treatment.  I had the nerves and muscles which was a great deal of fun.

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Re: desperate for answers..

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