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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


desperate for answers..

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desperate for answers..

Post  noelle2530 on Wed Jul 09, 2014 5:35 pm

Hello ladies I have yet to be diagnosed I have been to many doctors plan on going back in a couple weeks I have been tracking my symptoms daily I was hoping someone could tell me if it sounds like what they have experienced. I would appreciate any help I could get I am desperate for answers...

05/12: felt fine
05/13: burning
05/14: Some slite burning kinda irritated feeling,
05/15 burning lasted the and some pains burning stopped mid afternoon
05/16 burning in the morning after pee, not as bad as yesterday…  lastnight slite burning around 11.40 after pee.. … felt fine rest of the day….
05/17: felt fine
05/18: felt fine had some cream colored discharge
05/19: slight burning in the morning,,,, felt a bit irritated late morning/afternoon
05/20: felt fine seem to have thick white discharge (not much)
05/21: felt fine no burning….
05/22: No burning felt fine had some crawling feelings last night… Feel a little burning mid after noon…. Had some thick cream colored discharge burning is gone this is 4pm
05/23: feel okay kinda achy in the anal area??…
05/24: Felt okay
05/25: burning irritated valva
05/26: same feelings a little worse
05/27: felt some burning in the morning went away ….  Feel a little achy
05/28: felt no burning
05/29: some burning after morning pee… 05/30: fell fine
05/31: felt fine
06/01: had mild burning in the evening
06/02: felt fine had some achiness in my clit
06/03: no burning still a bit achy…
06/04: felt fine kinda burned a little after mid-morning pee
06/05: felt fine
06/06: felt some burning late
06/07: felt fine
06/08: felt fine
06/09: felt a bit warm…  kinda irritated … burned a little after oral and sex
06/10: felt a little warm and mild irritation..  some swelling felt irritated While at the gym (swelling of my vaginal wall/entrances to vagina
06/11: felt some irritation swelling seems to be going down, feel a little burning around noon… everything looks normal the area near my clit is kinda tender started feeling better around 2… felt fine in the evening
06/12: felt okay had some mild irritation after sex this morning no burning… feeling a bit irritated 1040am .. feel kinda achy
06/13: had some burning with morning pee feel a little irritated… nothing looks red or anything felt fine later in the day
06/14: felt fine
06/15: felt fine
06/16: felt a little irritated felt fine
06/17: feel a bit achy kinda swollen white pasty discharge swelling and irritation went away later in the day
06/18: feel fine
06/19 felt fine
06/20 feel fine a bit irritated/achy
06/21: felt fine most of the day had a little burring in the evening
06/22; felt fine
06/23: feel okay a little irritated/achy  feeling felt fine in the evening  
06/24: feel fine in the morning feel kinda achy white discharge /swelling burning feelings around 330pm felt fine in the evening
06/25: feeling a little irritated  white discharge …… felt fine rest of the day
06/26: I feel okay kinda achy ..buring around 230 …felt fine later
06/27: felt fine when I got up then started feeling achy around 930  felt fine rest of the day
06/28: felt some burning
06/29: felt some burning red vulva
06/30: felt irritated, got my period, felt fine most of the day then started feeling achy around 440pm
07/01: felt some pain last night at the entrance of vagina… today feel some burning vulva looks a little red
07/02: no burning feel a little irritated
07/03: feel fine a little red
07/04: felt irritated
07/05: felt fine
07/06: felt mostly fine
07/07: burning after morning pee then felt fine
07/08: burning this morning felt fine rest of the day some leg pain and pain in the arms right leg right arm some in left foot
07/09: feel fine some pains in the leg and arm

noelle2530

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Age : 33
Location : MISSOURI

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Re: desperate for answers..

Post  Alana3 on Wed Jul 09, 2014 5:52 pm

Where are you located?  And it sounds like it could be nerves.

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Re: desperate for answers..

Post  noelle2530 on Wed Jul 09, 2014 6:22 pm

I am located in Arnold MO, what do you mean by nerves? Isn't that what Vulvodynia is?


Last edited by noelle2530 on Wed Jul 09, 2014 6:33 pm; edited 1 time in total (Reason for editing : added something)

noelle2530

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Re: desperate for answers..

Post  Alana3 on Wed Jul 09, 2014 7:27 pm

vulvodynia is broad it just means a painful vulva.  There are a million reasons why that could happen. Skin reactions, infections, muscles, nerves, etc.

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Re: desperate for answers..

Post  noelle2530 on Wed Jul 09, 2014 7:29 pm

Right I understand I have been tested for everything and its all negative. My question is do my symptoms sound like Vulvodynia? The burning I experience is on my vulva just wanted to make sure that was clear lol.

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Re: desperate for answers..

Post  Alana3 on Wed Jul 09, 2014 8:17 pm

Yes, BUT there are other conditions that can cause symptoms similar to vulvodynia (I'm not necessarily talking about infections, but like Lichen Scleorsis is an example, or something as easy as ureaplasma which many doctors do NOT test for, or strep B which is usually only seen in pregnant women, but hey I got that too!)... I'm just saying until you get a definite diagnosis don't assume its vulvodynia. (And I'm not being a bitch just saying)

That being said!Smile Since you live in Missouri, I would suggest googling a vulovdynia specialist.  I found mind by putting in vulvodynia specialist + South Florida in the search bar and I found my doc who is absolutely AMAZING!

Yours does sound like it could be vulvodynia, but what I was trying to say before is there are multiple reasons why vulvodynia can occur, so finding out is crucial to your treatment.  I had the nerves and muscles which was a great deal of fun.

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Re: desperate for answers..

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