Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
If this will help anyone...My triggers EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
If this will help anyone...My triggers EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
If this will help anyone...My triggers EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
If this will help anyone...My triggers EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
If this will help anyone...My triggers EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
If this will help anyone...My triggers EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
If this will help anyone...My triggers EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
If this will help anyone...My triggers EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
If this will help anyone...My triggers EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


If this will help anyone...My triggers

2 posters

Go down

If this will help anyone...My triggers Empty If this will help anyone...My triggers

Post  Rainy Day Mon May 06, 2013 9:00 pm

I developed vulvodynia in Feb 2012 after 1) a massive kidney infection 2) Then, I got a bacterial/yeast infection from the antiobiotics, 3) I fell on my pelvis the same month. After a year of this garbage, I finally figured out what my trigger is. It's totally STRESS related. Anytime I have an anxiety attack, or if I get extremely angry, I flare. For some reason, sadness doesn't flare me though. When it first started, I had a flare that lasted 6 straight months- hardly considered a flare since it was constant 24 hrs a day. My symptoms caused me not to be able to wear undies or pants AT ALL. Only skirts. When it started, I had just lost my dad to cancer and mom got diagnosed with cancer shortly after he died. They were 59, so it was all unexpected and happened fast. I was so bad that I even couldn't sit over a few minutes. My legs were the worst symtom. The backs of the legs just burned and burned. My vagina area was very sensitive too, but the legs bothered me more.

I tried Gabapentin for a while...and it worked great until my mom was diagnosed with cancer. I didn't completely understand it was triggered by stress at that point. Upped my Rx of Gaba, and it didn't help...mom was going through surgery, radiation, etc...was still VERY stressed. Changed my Rx to Desapramine 75 mg and 300 mg of Gaba too. Slowly I started to improve, but my biggest improvement was when I took a leave of absense from work for about 4 months. My mom helped me/hubby during those 4 months by holding my daycare spot (paying for it) and paying for Pelvic Floor Therapy (not covered insurance--out of network). Slowly got better. I still have flares, but they are only caused by stress. Am now taking anxiety meds to prevent anxiety. Works pretty good, but my life is still pretty stressful with other stuff.

I have got to the point where I can gradually lower my dosages and still not flare. I am down to 75 mg of Desapramine only. Will try going down a dose in a month.

Other things that help my symptoms:

Yoga

Meditation

Counselling (I went through counselling on my dad's death for about 5 months)

Anxiety Medications

Moisturizer for vagina (Slippery Stuff) when I feel dry (I get dry at the start of a flare)

When I feel like ants are crawling around my vagina or butt--Rub the area with a rag to desensitize, then, ice cubes on area for 1 minute, I rub with a rag for 1 minute, then do ice cubes on area, then hot rag on area. I read this in Amy Stein's pelvic book...and my phsyio recommended it too. It helps a LOT when you feel the ant crawling thing.

When I have the symptom around 'butt' area, that is totally related to a muscle on top of my sit bones. Physio can fix that in about 24 hours by massaging it...then I do the rub with rag, then ice, then hot rag. Also, I do a lot of stretches to help this.

Tens unit- This is helpful with the 'ant crawling' feeling. Not as helpful for the burning feeling.

RIght when I start flaring, stop wearing undies/pants.

I don't put 'anything' down there...besides moisturizer. Everything else makes me worst.

I am still not recovered, but I am much closer to figuring out this beast. I have times where I feel perfect. I think I could wear jeans sometime in the future if I could control my stress.

I hope this helps someone....





Rainy Day

Posts : 54
Join date : 2012-07-19
Location : US

Back to top Go down

If this will help anyone...My triggers Empty Ice/Heat

Post  Rainy Day Mon May 06, 2013 9:02 pm

Realized I wrote that wrong. I use rag for a minute on area. Then, ice cube on area for a minute, then hot rag on area for a minute. This helps desensitize areas for me.

Rainy Day

Posts : 54
Join date : 2012-07-19
Location : US

Back to top Go down

If this will help anyone...My triggers Empty Forgot Physical Therapy too!

Post  Rainy Day Mon May 06, 2013 9:12 pm

Physio was a must for me! I still go once every 3 weeks to maintain my healing. I get sacro-iliac joint dysfunction during a flare, and therapy helps TONS with that. When I first started going, all my muscles were in a state of constant spasm. I would think most people with V would have that problem...since one problem causes many other problems with the pelvic area.

Rainy Day

Posts : 54
Join date : 2012-07-19
Location : US

Back to top Go down

If this will help anyone...My triggers Empty Ants crawling

Post  noelle2530 Mon Jul 14, 2014 1:46 pm

Hi I am new to this site and everything else and I get that feeling like bugs are crawling around down there too... Is this a common symptom?

noelle2530

Posts : 23
Join date : 2014-07-09
Age : 40
Location : MISSOURI

Back to top Go down

If this will help anyone...My triggers Empty Re: If this will help anyone...My triggers

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum