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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Please help

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Please help

Post  noelle2530 on Wed Jul 09, 2014 7:01 pm

Hello ladies I have yet to be diagnosed I have been to many doctors plan on going back in a couple weeks I have been tracking my symptoms daily I was hoping someone could tell me if it sounds like what they have experienced. I would appreciate any help I could get I am desperate for answers...

05/12: felt fine
05/13: burning
05/14: Some slite burning kinda irritated feeling,
05/15 burning lasted the and some pains burning stopped mid afternoon
05/16 burning in the morning after pee, not as bad as yesterday… lastnight slite burning around 11.40 after pee.. … felt fine rest of the day….
05/17: felt fine
05/18: felt fine had some cream colored discharge
05/19: slight burning in the morning,,,, felt a bit irritated late morning/afternoon
05/20: felt fine seem to have thick white discharge (not much)
05/21: felt fine no burning….
05/22: No burning felt fine had some crawling feelings last night… Feel a little burning mid after noon…. Had some thick cream colored discharge burning is gone this is 4pm
05/23: feel okay kinda achy in the anal area??…
05/24: Felt okay
05/25: burning irritated valva
05/26: same feelings a little worse
05/27: felt some burning in the morning went away …. Feel a little achy
05/28: felt no burning
05/29: some burning after morning pee… 05/30: fell fine
05/31: felt fine
06/01: had mild burning in the evening
06/02: felt fine had some achiness in my clit
06/03: no burning still a bit achy…
06/04: felt fine kinda burned a little after mid-morning pee
06/05: felt fine
06/06: felt some burning late
06/07: felt fine
06/08: felt fine
06/09: felt a bit warm… kinda irritated … burned a little after oral and sex
06/10: felt a little warm and mild irritation.. some swelling felt irritated While at the gym (swelling of my vaginal wall/entrances to vagina
06/11: felt some irritation swelling seems to be going down, feel a little burning around noon… everything looks normal the area near my clit is kinda tender started feeling better around 2… felt fine in the evening
06/12: felt okay had some mild irritation after sex this morning no burning… feeling a bit irritated 1040am .. feel kinda achy
06/13: had some burning with morning pee feel a little irritated… nothing looks red or anything felt fine later in the day
06/14: felt fine
06/15: felt fine
06/16: felt a little irritated felt fine
06/17: feel a bit achy kinda swollen white pasty discharge swelling and irritation went away later in the day
06/18: feel fine
06/19 felt fine
06/20 feel fine a bit irritated/achy
06/21: felt fine most of the day had a little burring in the evening
06/22; felt fine
06/23: feel okay a little irritated/achy feeling felt fine in the evening
06/24: feel fine in the morning feel kinda achy white discharge /swelling burning feelings around 330pm felt fine in the evening
06/25: feeling a little irritated white discharge …… felt fine rest of the day
06/26: I feel okay kinda achy ..buring around 230 …felt fine later
06/27: felt fine when I got up then started feeling achy around 930 felt fine rest of the day
06/28: felt some burning
06/29: felt some burning red vulva
06/30: felt irritated, got my period, felt fine most of the day then started feeling achy around 440pm
07/01: felt some pain last night at the entrance of vagina… today feel some burning vulva looks a little red
07/02: no burning feel a little irritated
07/03: feel fine a little red
07/04: felt irritated
07/05: felt fine
07/06: felt mostly fine
07/07: burning after morning pee then felt fine
07/08: burning this morning felt fine rest of the day some leg pain and pain in the arms right leg right arm some in left foot
07/09: feel fine some pains in the leg and arm

noelle2530

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Age : 33
Location : MISSOURI

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Re: Please help

Post  sailor_moon on Thu Jul 10, 2014 9:40 am

Have you had any tests done? Swabs, blood tests, biopsies?
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Re: Please help

Post  noelle2530 on Thu Jul 10, 2014 7:07 pm

I have been tested for all stds, and had blood test done for herpes thats all... everything is negative.

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Re: Please help

Post  Alana3 on Thu Jul 10, 2014 7:26 pm

Go to a specialist! If they're only looking for STDs you need to find someone who can think outside the box.  And I would try and not wait a couple of weeks.  Go now, it's probably not going to get better by itself.  Did they test for ureaplasma, strep, BV? Yeast?  Did they tell you your skin was miscolored?  Anything other then "oh you're negative for stds".  I'll tell you my specialist didn't even hint at testing me for that stuff because he saw right away what the problem was.  A run of the mill gyno is not something you'd want for actual problems.  I had one put my acyclovir for herpes WHEN I DIDNT HAVE HERPES!  I finally said ENOUGH and paid a little more for better care. STD's were never mentioned.  I honestly feel that the only reason they test for those is because they don't know why else and at least they did something.

Don't play Dr. Google. It's a waste of everyone's time and you're going to freak yourself out worse.

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Re: Please help

Post  noelle2530 on Thu Jul 10, 2014 9:08 pm

I have been tested for bv and yeast... I had a uti a while ago they treated that. I thought it was herpes too but all my blood tests are neg and I don't get sores or anything. Also I would not have almost daily symptoms for months. I know I need to go to a better dr I just can't afford it right now. The drs just keep telling me it sounds like a skin irritation and to use dove soap and things like that.

noelle2530

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Re: Please help

Post  Alana3 on Thu Jul 10, 2014 11:00 pm

Is there a cleveland clinic nearby? They were good. I went thru the herpes/wart scare too. Trust me you do not have them. Its probably along the lines of vulvodynia but you really need a.diagnosis.

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Re: Please help

Post  sailor_moon on Thu Jul 10, 2014 11:07 pm

Why the hell are they telling you to use Dove soap? It's full of irritants!!!

Until you can get a diagnosis, try and wash with only water as you may have an allergy to a chemical and make it worse.

Alana3 may I ask what "type" of specialist was the one to finally diagnose your condition correctly? A vulva specialist, Gyno, dermatologist?
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Re: Please help

Post  bvnh13 on Thu Jul 10, 2014 11:28 pm

My Obgyn actually said dont use soap down there...your vagina is self cleaning...you can take aveeno oatmeal baths a couple of times a week that might help

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Re: Please help

Post  Alana3 on Fri Jul 11, 2014 2:02 pm

Vulva specialist. Yeah steer clear of dove.

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Re: Please help

Post  Alana3 on Fri Jul 11, 2014 3:40 pm

And what's up with the types in quotations?

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Re: Please help

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