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» What's next?
Fri Apr 20, 2018 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Please help

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Please help

Post  noelle2530 on Wed Jul 09, 2014 7:01 pm

Hello ladies I have yet to be diagnosed I have been to many doctors plan on going back in a couple weeks I have been tracking my symptoms daily I was hoping someone could tell me if it sounds like what they have experienced. I would appreciate any help I could get I am desperate for answers...

05/12: felt fine
05/13: burning
05/14: Some slite burning kinda irritated feeling,
05/15 burning lasted the and some pains burning stopped mid afternoon
05/16 burning in the morning after pee, not as bad as yesterday… lastnight slite burning around 11.40 after pee.. … felt fine rest of the day….
05/17: felt fine
05/18: felt fine had some cream colored discharge
05/19: slight burning in the morning,,,, felt a bit irritated late morning/afternoon
05/20: felt fine seem to have thick white discharge (not much)
05/21: felt fine no burning….
05/22: No burning felt fine had some crawling feelings last night… Feel a little burning mid after noon…. Had some thick cream colored discharge burning is gone this is 4pm
05/23: feel okay kinda achy in the anal area??…
05/24: Felt okay
05/25: burning irritated valva
05/26: same feelings a little worse
05/27: felt some burning in the morning went away …. Feel a little achy
05/28: felt no burning
05/29: some burning after morning pee… 05/30: fell fine
05/31: felt fine
06/01: had mild burning in the evening
06/02: felt fine had some achiness in my clit
06/03: no burning still a bit achy…
06/04: felt fine kinda burned a little after mid-morning pee
06/05: felt fine
06/06: felt some burning late
06/07: felt fine
06/08: felt fine
06/09: felt a bit warm… kinda irritated … burned a little after oral and sex
06/10: felt a little warm and mild irritation.. some swelling felt irritated While at the gym (swelling of my vaginal wall/entrances to vagina
06/11: felt some irritation swelling seems to be going down, feel a little burning around noon… everything looks normal the area near my clit is kinda tender started feeling better around 2… felt fine in the evening
06/12: felt okay had some mild irritation after sex this morning no burning… feeling a bit irritated 1040am .. feel kinda achy
06/13: had some burning with morning pee feel a little irritated… nothing looks red or anything felt fine later in the day
06/14: felt fine
06/15: felt fine
06/16: felt a little irritated felt fine
06/17: feel a bit achy kinda swollen white pasty discharge swelling and irritation went away later in the day
06/18: feel fine
06/19 felt fine
06/20 feel fine a bit irritated/achy
06/21: felt fine most of the day had a little burring in the evening
06/22; felt fine
06/23: feel okay a little irritated/achy feeling felt fine in the evening
06/24: feel fine in the morning feel kinda achy white discharge /swelling burning feelings around 330pm felt fine in the evening
06/25: feeling a little irritated white discharge …… felt fine rest of the day
06/26: I feel okay kinda achy ..buring around 230 …felt fine later
06/27: felt fine when I got up then started feeling achy around 930 felt fine rest of the day
06/28: felt some burning
06/29: felt some burning red vulva
06/30: felt irritated, got my period, felt fine most of the day then started feeling achy around 440pm
07/01: felt some pain last night at the entrance of vagina… today feel some burning vulva looks a little red
07/02: no burning feel a little irritated
07/03: feel fine a little red
07/04: felt irritated
07/05: felt fine
07/06: felt mostly fine
07/07: burning after morning pee then felt fine
07/08: burning this morning felt fine rest of the day some leg pain and pain in the arms right leg right arm some in left foot
07/09: feel fine some pains in the leg and arm

noelle2530

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Re: Please help

Post  sailor_moon on Thu Jul 10, 2014 9:40 am

Have you had any tests done? Swabs, blood tests, biopsies?
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Re: Please help

Post  noelle2530 on Thu Jul 10, 2014 7:07 pm

I have been tested for all stds, and had blood test done for herpes thats all... everything is negative.

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Re: Please help

Post  Alana3 on Thu Jul 10, 2014 7:26 pm

Go to a specialist! If they're only looking for STDs you need to find someone who can think outside the box.  And I would try and not wait a couple of weeks.  Go now, it's probably not going to get better by itself.  Did they test for ureaplasma, strep, BV? Yeast?  Did they tell you your skin was miscolored?  Anything other then "oh you're negative for stds".  I'll tell you my specialist didn't even hint at testing me for that stuff because he saw right away what the problem was.  A run of the mill gyno is not something you'd want for actual problems.  I had one put my acyclovir for herpes WHEN I DIDNT HAVE HERPES!  I finally said ENOUGH and paid a little more for better care. STD's were never mentioned.  I honestly feel that the only reason they test for those is because they don't know why else and at least they did something.

Don't play Dr. Google. It's a waste of everyone's time and you're going to freak yourself out worse.

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Re: Please help

Post  noelle2530 on Thu Jul 10, 2014 9:08 pm

I have been tested for bv and yeast... I had a uti a while ago they treated that. I thought it was herpes too but all my blood tests are neg and I don't get sores or anything. Also I would not have almost daily symptoms for months. I know I need to go to a better dr I just can't afford it right now. The drs just keep telling me it sounds like a skin irritation and to use dove soap and things like that.

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Re: Please help

Post  Alana3 on Thu Jul 10, 2014 11:00 pm

Is there a cleveland clinic nearby? They were good. I went thru the herpes/wart scare too. Trust me you do not have them. Its probably along the lines of vulvodynia but you really need a.diagnosis.

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Re: Please help

Post  sailor_moon on Thu Jul 10, 2014 11:07 pm

Why the hell are they telling you to use Dove soap? It's full of irritants!!!

Until you can get a diagnosis, try and wash with only water as you may have an allergy to a chemical and make it worse.

Alana3 may I ask what "type" of specialist was the one to finally diagnose your condition correctly? A vulva specialist, Gyno, dermatologist?
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Re: Please help

Post  bvnh13 on Thu Jul 10, 2014 11:28 pm

My Obgyn actually said dont use soap down there...your vagina is self cleaning...you can take aveeno oatmeal baths a couple of times a week that might help

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Re: Please help

Post  Alana3 on Fri Jul 11, 2014 2:02 pm

Vulva specialist. Yeah steer clear of dove.

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Re: Please help

Post  Alana3 on Fri Jul 11, 2014 3:40 pm

And what's up with the types in quotations?

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Re: Please help

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