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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


New and confused :( opinions needed please

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New and confused :( opinions needed please

Post  quixotic on Fri Jul 11, 2014 5:52 pm

Hello, i'm very confused and upset and looking for some opinions on what could be going on with me, I will try to keep it brief...

Problem started January after two courses of antibiotics - suspected Thrush, no swab taken at time due to how swollen/painful area was, felt and looked very red/inflammed and aggravated inside, alot of discharge, thick white/yellow coloured, multipe doses of Fluconazole.

After the treatments of Fluconazole the extent of the interal swelling/aggravated feeling had subsided but it did feel like there was still swelling around the opening, there was still a lot of discharge and a very uncomfortable feeling externally, very sore at times, started burning when urinating and discharge was ranging from a thick yellow to a watery grey/white colour. In addition to this there has been pelvic pain, burning and sharp pains around ovary area and abdominal pain.

As of July 2014, the external pain/burning/extreme discomfort feels like it starts at the vulva and goes all the way back to the anus, looks red and inflammed and at the start and end of the monthly cycle it feels like it flares up even worse, this has been happening monthly for the last seven months, still burning/stinging when uriniting and even after bladder is empty the stinging/burning feeling lasts a minute or two afterwards. Vulva feels very aggravated and uncomfortable, doesn't feel like a mild irritation, feels very deep within, the worst feeling parts seem to be the clitoris going down to the perineum and at times the perineum feels hard and sore. Aqueous cream that was suggested has had no effect on any relief, have also tried Timodine and Clotrimazole amongst many other creams and none of these have any effect. I also feel like the discomfort is in my lower back and when this all started I had very sore lower back pain with no reason as to where it came from. I do not wear restrictive tight clothing and I wear cotton underwear. I use dermol to wash the area and even though it was suggested that it could be my washing powder that is causing it, I do not believe this is the case as having changed my washing powder to non biological and using a hypoallergenic softer (do not use the softer on underwear) I still have no relief and I do not see how washing powder can cause internal pain, I also do not have any skin irritation elsewhere. This problem is causing me sleepless nights, the feeling down there does not feel like a mild aggravation due to an allergy of sorts, feeling very stressed out and upset that seven months later I have no answers as to why this is happening and do not feel like it is being taken seriously how badly this feels, it is not something I can live with, I feel constantly upset on a daily basis by it, it is so uncomfortable and distressing that leading any sort of normality is very difficult Sad

I was sent to a gynecologist who didn't bother to do anything other than yet another swab test which came back negative for stds and the type of infections they test for, i'm now being referred elsewhere and hoping that someone will take the time to look into what is going on. I have asked the non interested doctor if I have possibly caused myself some sort of infection by shaving and cutting myself accidently down there but that was just ignored.

Basically what i'm wondering is does the above sound like vulvodynia? does vulvodynia cause the same feeling in and around the anus or is it mostly restricted to just the vagina? I honestly feel like i'm on the verge of a breakdown, I feel constantly upset and on the brink of tears Sad

Any opinions would be really appreciated, I feel like i'm completely alone with this to the point that the doctors don't even realise how bad it feels.

quixotic

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Re: New and confused :( opinions needed please

Post  Caropes on Fri Jul 11, 2014 6:52 pm

So sorry for your pain! I have many of your same symptoms. My pain started after back to back treatment for a bacterial infection. My pain is on the outside, all around the vulva. The pain is nerve-like and constant. The pain feels deep and does seem like it goes straight back to the perineum and up to the clitoris. I also have very low back pain. After seeing multiple doctors, one doctor diagnosed me with Vulvar Vestibulitis. (This was only after I brought to him the info I had found on the internet!!). He prescribed me Neurontin (Gabapentin). I have worked up to 600mg x 3 day. It has not really helped much at all. My pain level is still around 7. The meds did help a bit with my depression though. I have been and still am where you are. I feel your pain and depression. Who knew something like this even existed? I have an appt with a new gynocologist next week for a second opinion and hopes of getting some different meds. I have read many women benefit from Lyrica and Amitriptyline.

Can you see a different Gyno, urologist, specialist? Where do you live? Our symptoms do sound mostly similar. Feel free to IM me or my personal email is caropes32@hotmail.com Just try to hang in there. I have found some relief with this forum and all the caring women. Just one day at a time is all you can do for now.

Caropes

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Re: New and confused :( opinions needed please

Post  quixotic on Fri Jul 11, 2014 7:40 pm

Hello, I really appreciate you responding. When you say pain what do you mean exactly? I don't feel it as pain as such, do you mean pain as if you accidently cut yourself or stubbed your toe? I have had a hard time describing what it feels like, the only way I can describe it is like a deep aggravated bothersome chronic feeling, like an irritation but not itchy, it's never been something I want to itch. Last week was my first Gyno appointment, i've never had blood tested (not sure if that's something they do) i've never had an internal exam, the Gyno basically just done another swab and looked externally and said it looked mildly irritated but on the day I went it didn't even feel bad, it wasn't until the weekend that it's got insanely bad feeling which made me think it was due to shaving and accidently cutting myself as it usually only flares up this bad before and after my period. I just feel like i'm going round in circles with doctors who aren't interested and want to use any excuse as the problem Sad today I was given Nystatin cream but i'm sure that's for thrush so I don't know why the GP (not my usual doctor) bothered, the other thing i've been given in the past is  Instillagel which is generally used when inserting catheters in people or before internal invasive procedures so does that not say something about the lack of understanding or interest from the doctors I have seen? I have been referred onto some sexual health clinic now, apparently with gynos but apparently it's a walk in place mostly but they take appointments, somewhere that people mostly go to for STDS so i'm not sure how helpful they are going to be Sad I also live in Scotland, where are you from? also i'm really baffled about how they diagnose such a thing when professionals don't seem to know what it is or how to cure it?

quixotic

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Re: New and confused :( opinions needed please

Post  quixotic on Fri Jul 11, 2014 8:03 pm

Does anyone have the feeling they get in the vagina going all the way round to the anus? even above? I even feel it in my lower back, it's really uncomfortable, it almost feels like it's inside and like some sort of irritated pressure.

quixotic

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Re: New and confused :( opinions needed please

Post  Caropes on Fri Jul 11, 2014 8:20 pm

Got your email and sent you one back.

Caropes

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Re: New and confused :( opinions needed please

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