Log in

I forgot my password

Latest topics
» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


New and confused :( opinions needed please

Go down

New and confused :( opinions needed please

Post  quixotic on Fri Jul 11, 2014 5:52 pm

Hello, i'm very confused and upset and looking for some opinions on what could be going on with me, I will try to keep it brief...

Problem started January after two courses of antibiotics - suspected Thrush, no swab taken at time due to how swollen/painful area was, felt and looked very red/inflammed and aggravated inside, alot of discharge, thick white/yellow coloured, multipe doses of Fluconazole.

After the treatments of Fluconazole the extent of the interal swelling/aggravated feeling had subsided but it did feel like there was still swelling around the opening, there was still a lot of discharge and a very uncomfortable feeling externally, very sore at times, started burning when urinating and discharge was ranging from a thick yellow to a watery grey/white colour. In addition to this there has been pelvic pain, burning and sharp pains around ovary area and abdominal pain.

As of July 2014, the external pain/burning/extreme discomfort feels like it starts at the vulva and goes all the way back to the anus, looks red and inflammed and at the start and end of the monthly cycle it feels like it flares up even worse, this has been happening monthly for the last seven months, still burning/stinging when uriniting and even after bladder is empty the stinging/burning feeling lasts a minute or two afterwards. Vulva feels very aggravated and uncomfortable, doesn't feel like a mild irritation, feels very deep within, the worst feeling parts seem to be the clitoris going down to the perineum and at times the perineum feels hard and sore. Aqueous cream that was suggested has had no effect on any relief, have also tried Timodine and Clotrimazole amongst many other creams and none of these have any effect. I also feel like the discomfort is in my lower back and when this all started I had very sore lower back pain with no reason as to where it came from. I do not wear restrictive tight clothing and I wear cotton underwear. I use dermol to wash the area and even though it was suggested that it could be my washing powder that is causing it, I do not believe this is the case as having changed my washing powder to non biological and using a hypoallergenic softer (do not use the softer on underwear) I still have no relief and I do not see how washing powder can cause internal pain, I also do not have any skin irritation elsewhere. This problem is causing me sleepless nights, the feeling down there does not feel like a mild aggravation due to an allergy of sorts, feeling very stressed out and upset that seven months later I have no answers as to why this is happening and do not feel like it is being taken seriously how badly this feels, it is not something I can live with, I feel constantly upset on a daily basis by it, it is so uncomfortable and distressing that leading any sort of normality is very difficult Sad

I was sent to a gynecologist who didn't bother to do anything other than yet another swab test which came back negative for stds and the type of infections they test for, i'm now being referred elsewhere and hoping that someone will take the time to look into what is going on. I have asked the non interested doctor if I have possibly caused myself some sort of infection by shaving and cutting myself accidently down there but that was just ignored.

Basically what i'm wondering is does the above sound like vulvodynia? does vulvodynia cause the same feeling in and around the anus or is it mostly restricted to just the vagina? I honestly feel like i'm on the verge of a breakdown, I feel constantly upset and on the brink of tears Sad

Any opinions would be really appreciated, I feel like i'm completely alone with this to the point that the doctors don't even realise how bad it feels.

quixotic

Posts : 3
Join date : 2014-07-11

View user profile

Back to top Go down

Re: New and confused :( opinions needed please

Post  Caropes on Fri Jul 11, 2014 6:52 pm

So sorry for your pain! I have many of your same symptoms. My pain started after back to back treatment for a bacterial infection. My pain is on the outside, all around the vulva. The pain is nerve-like and constant. The pain feels deep and does seem like it goes straight back to the perineum and up to the clitoris. I also have very low back pain. After seeing multiple doctors, one doctor diagnosed me with Vulvar Vestibulitis. (This was only after I brought to him the info I had found on the internet!!). He prescribed me Neurontin (Gabapentin). I have worked up to 600mg x 3 day. It has not really helped much at all. My pain level is still around 7. The meds did help a bit with my depression though. I have been and still am where you are. I feel your pain and depression. Who knew something like this even existed? I have an appt with a new gynocologist next week for a second opinion and hopes of getting some different meds. I have read many women benefit from Lyrica and Amitriptyline.

Can you see a different Gyno, urologist, specialist? Where do you live? Our symptoms do sound mostly similar. Feel free to IM me or my personal email is caropes32@hotmail.com Just try to hang in there. I have found some relief with this forum and all the caring women. Just one day at a time is all you can do for now.

Caropes

Posts : 58
Join date : 2014-06-02
Location : Alabama

View user profile

Back to top Go down

Re: New and confused :( opinions needed please

Post  quixotic on Fri Jul 11, 2014 7:40 pm

Hello, I really appreciate you responding. When you say pain what do you mean exactly? I don't feel it as pain as such, do you mean pain as if you accidently cut yourself or stubbed your toe? I have had a hard time describing what it feels like, the only way I can describe it is like a deep aggravated bothersome chronic feeling, like an irritation but not itchy, it's never been something I want to itch. Last week was my first Gyno appointment, i've never had blood tested (not sure if that's something they do) i've never had an internal exam, the Gyno basically just done another swab and looked externally and said it looked mildly irritated but on the day I went it didn't even feel bad, it wasn't until the weekend that it's got insanely bad feeling which made me think it was due to shaving and accidently cutting myself as it usually only flares up this bad before and after my period. I just feel like i'm going round in circles with doctors who aren't interested and want to use any excuse as the problem Sad today I was given Nystatin cream but i'm sure that's for thrush so I don't know why the GP (not my usual doctor) bothered, the other thing i've been given in the past is  Instillagel which is generally used when inserting catheters in people or before internal invasive procedures so does that not say something about the lack of understanding or interest from the doctors I have seen? I have been referred onto some sexual health clinic now, apparently with gynos but apparently it's a walk in place mostly but they take appointments, somewhere that people mostly go to for STDS so i'm not sure how helpful they are going to be Sad I also live in Scotland, where are you from? also i'm really baffled about how they diagnose such a thing when professionals don't seem to know what it is or how to cure it?

quixotic

Posts : 3
Join date : 2014-07-11

View user profile

Back to top Go down

Re: New and confused :( opinions needed please

Post  quixotic on Fri Jul 11, 2014 8:03 pm

Does anyone have the feeling they get in the vagina going all the way round to the anus? even above? I even feel it in my lower back, it's really uncomfortable, it almost feels like it's inside and like some sort of irritated pressure.

quixotic

Posts : 3
Join date : 2014-07-11

View user profile

Back to top Go down

Re: New and confused :( opinions needed please

Post  Caropes on Fri Jul 11, 2014 8:20 pm

Got your email and sent you one back.

Caropes

Posts : 58
Join date : 2014-06-02
Location : Alabama

View user profile

Back to top Go down

Re: New and confused :( opinions needed please

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum