Log in

I forgot my password

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Pregabalin

View previous topic View next topic Go down

Pregabalin

Post  Sarah001 on Fri Nov 19, 2010 7:41 pm

I took my form from the vulvar dermatologist to my GP today requesting Gabapentin and she immediately said why didn't she tell you to ask for Pregabalin (Lyrica) as it's just as effective at a lower dose and better for Fibromyalgia? I was pretty surprised because the dermatologist said Pregabalin would be the better option but as it was pretty expensive alot of doctors won't prescribe it which is why she recommended Gabapentin so I explained this to my GP and she said "well, we do prescribe Pregabalin here when it's the better option and it is for you so that's what I'm going to give you"!! Shocked I can't believe I skipped the cheap option and went straight to the expensive one, amazing!

She also said she's sure my dodgy SI joints and resulting muscle problems are irritating nerves in the pelvis and causing the Vulvodynia so if meds don't work I may have to have nerve blocks but the physio might cure the problem so keep going with that and see where it takes me. I'm really impressed with this GP, she seems to really listen and take it all in. I collect my Pregabalin on Monday as the pharmacy had run out so we'll see how I get on.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Pregabalin

Post  jules on Mon Nov 22, 2010 4:29 am

Good luck. it worked for me. i was going to taper off, but as i did, i the pain came back. i started low and went up to 300 mgs. it may have caused weight gain for me...but it could just have been my drinking and eating.

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Pregabalin

Post  Jacky51 on Thu Nov 25, 2010 5:02 pm

Sarah

Did your GP say you could 'take the pregbalin with Ami, or has she taken you off that?

J

Jacky51

Posts : 18
Join date : 2010-11-15
Location : East London

View user profile

Back to top Go down

Re: Pregabalin

Post  Sarah001 on Thu Nov 25, 2010 7:55 pm

You can take both together but if the Pregabalin is alot more successful than the Ami the Ami dose will be lowered a bit, I won't be coming off Ami because I take it to get proper sleep and without it I feel constantly exhausted due to Fibromyalgia so I'll have to find a balance between the two.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Pregabalin

Post  Jacky51 on Thu Nov 25, 2010 9:24 pm

I'm going to ask my gp to prescribe this as well. I desparately need a painkiller whilst the other medication kicks in, my pain is at a 10 most days surely there must be something I can take to give me some relief.

Jacky51

Posts : 18
Join date : 2010-11-15
Location : East London

View user profile

Back to top Go down

Re: Pregabalin

Post  jules on Sat Nov 27, 2010 5:57 pm

Jacky,

Opiates are known to help w/ this pain. I get a monthly prescription for hydrocodone (Vicodin). I take up to three pills per day. I am able to work on these pain pills. When the pain is very bad it just takes the edge off. The other meds will eventually help decrease the pain. It won't always be this bad.

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Pregabalin

Post  Sebby (Admin) on Sun Nov 28, 2010 11:16 am


Yes I take condine 15mg (wiv paracetamol) x2 tabs per dose. If pain is bad..wont use it every day tho unless needed. It does work but spaces me out..its just something to get me through until I find out if the nerve block works.
avatar
Sebby (Admin)
Admin

Posts : 749
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Pregabelin

Post  Jacky51 on Wed Dec 01, 2010 2:06 pm

Sarah how are you getting on withe the Lyrica? Have you noticed an improvement?

Jx

Jacky51

Posts : 18
Join date : 2010-11-15
Location : East London

View user profile

Back to top Go down

Re: Pregabalin

Post  Sarah001 on Wed Dec 01, 2010 8:07 pm

To be honest I haven't started taking it yet, I was warned it may make me drowsy especially alongside the Ami so I'm waiting for a time when I don't have to drive anywhere for a week or so just in case it does that. I have been told it's like Ami though and takes a while to build up in your system and also often needs an increase in dose to do any good so it's not a quick fix like opiates so I don't think I'll notice an immediate difference. I'll report back once I get going with it.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Pregabalin

Post  jules on Sat Dec 11, 2010 6:27 pm

i have had very little pain over the past week. My nurse practitioner increased my Gabepentin to 3600 mgs (highest dose) and i still take the Lyrica (Pregabelin) 150 mgs. Neither of them made me tired, but i am not on Ami. It's been a good week. I give most of the credit to Pregabelin. hang in there ladies!

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Pregabalin

Post  Sebby (Admin) on Sun Dec 12, 2010 9:49 am


So glad to hear that Jules!! Smile
avatar
Sebby (Admin)
Admin

Posts : 749
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Pregabalin

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum