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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Pregabalin

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Pregabalin

Post  Sarah001 on Fri Nov 19, 2010 7:41 pm

I took my form from the vulvar dermatologist to my GP today requesting Gabapentin and she immediately said why didn't she tell you to ask for Pregabalin (Lyrica) as it's just as effective at a lower dose and better for Fibromyalgia? I was pretty surprised because the dermatologist said Pregabalin would be the better option but as it was pretty expensive alot of doctors won't prescribe it which is why she recommended Gabapentin so I explained this to my GP and she said "well, we do prescribe Pregabalin here when it's the better option and it is for you so that's what I'm going to give you"!! Shocked I can't believe I skipped the cheap option and went straight to the expensive one, amazing!

She also said she's sure my dodgy SI joints and resulting muscle problems are irritating nerves in the pelvis and causing the Vulvodynia so if meds don't work I may have to have nerve blocks but the physio might cure the problem so keep going with that and see where it takes me. I'm really impressed with this GP, she seems to really listen and take it all in. I collect my Pregabalin on Monday as the pharmacy had run out so we'll see how I get on.
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Re: Pregabalin

Post  jules on Mon Nov 22, 2010 4:29 am

Good luck. it worked for me. i was going to taper off, but as i did, i the pain came back. i started low and went up to 300 mgs. it may have caused weight gain for me...but it could just have been my drinking and eating.

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Re: Pregabalin

Post  Jacky51 on Thu Nov 25, 2010 5:02 pm

Sarah

Did your GP say you could 'take the pregbalin with Ami, or has she taken you off that?

J

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Re: Pregabalin

Post  Sarah001 on Thu Nov 25, 2010 7:55 pm

You can take both together but if the Pregabalin is alot more successful than the Ami the Ami dose will be lowered a bit, I won't be coming off Ami because I take it to get proper sleep and without it I feel constantly exhausted due to Fibromyalgia so I'll have to find a balance between the two.
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Re: Pregabalin

Post  Jacky51 on Thu Nov 25, 2010 9:24 pm

I'm going to ask my gp to prescribe this as well. I desparately need a painkiller whilst the other medication kicks in, my pain is at a 10 most days surely there must be something I can take to give me some relief.

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Re: Pregabalin

Post  jules on Sat Nov 27, 2010 5:57 pm

Jacky,

Opiates are known to help w/ this pain. I get a monthly prescription for hydrocodone (Vicodin). I take up to three pills per day. I am able to work on these pain pills. When the pain is very bad it just takes the edge off. The other meds will eventually help decrease the pain. It won't always be this bad.

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Re: Pregabalin

Post  Sebby (Admin) on Sun Nov 28, 2010 11:16 am


Yes I take condine 15mg (wiv paracetamol) x2 tabs per dose. If pain is bad..wont use it every day tho unless needed. It does work but spaces me out..its just something to get me through until I find out if the nerve block works.
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Pregabelin

Post  Jacky51 on Wed Dec 01, 2010 2:06 pm

Sarah how are you getting on withe the Lyrica? Have you noticed an improvement?

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Re: Pregabalin

Post  Sarah001 on Wed Dec 01, 2010 8:07 pm

To be honest I haven't started taking it yet, I was warned it may make me drowsy especially alongside the Ami so I'm waiting for a time when I don't have to drive anywhere for a week or so just in case it does that. I have been told it's like Ami though and takes a while to build up in your system and also often needs an increase in dose to do any good so it's not a quick fix like opiates so I don't think I'll notice an immediate difference. I'll report back once I get going with it.
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Re: Pregabalin

Post  jules on Sat Dec 11, 2010 6:27 pm

i have had very little pain over the past week. My nurse practitioner increased my Gabepentin to 3600 mgs (highest dose) and i still take the Lyrica (Pregabelin) 150 mgs. Neither of them made me tired, but i am not on Ami. It's been a good week. I give most of the credit to Pregabelin. hang in there ladies!

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Re: Pregabalin

Post  Sebby (Admin) on Sun Dec 12, 2010 9:49 am


So glad to hear that Jules!! Smile
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Re: Pregabalin

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