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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Pregabalin

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Pregabalin

Post  Sarah001 on Fri Nov 19, 2010 7:41 pm

I took my form from the vulvar dermatologist to my GP today requesting Gabapentin and she immediately said why didn't she tell you to ask for Pregabalin (Lyrica) as it's just as effective at a lower dose and better for Fibromyalgia? I was pretty surprised because the dermatologist said Pregabalin would be the better option but as it was pretty expensive alot of doctors won't prescribe it which is why she recommended Gabapentin so I explained this to my GP and she said "well, we do prescribe Pregabalin here when it's the better option and it is for you so that's what I'm going to give you"!! Shocked I can't believe I skipped the cheap option and went straight to the expensive one, amazing!

She also said she's sure my dodgy SI joints and resulting muscle problems are irritating nerves in the pelvis and causing the Vulvodynia so if meds don't work I may have to have nerve blocks but the physio might cure the problem so keep going with that and see where it takes me. I'm really impressed with this GP, she seems to really listen and take it all in. I collect my Pregabalin on Monday as the pharmacy had run out so we'll see how I get on.
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Re: Pregabalin

Post  jules on Mon Nov 22, 2010 4:29 am

Good luck. it worked for me. i was going to taper off, but as i did, i the pain came back. i started low and went up to 300 mgs. it may have caused weight gain for me...but it could just have been my drinking and eating.

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Re: Pregabalin

Post  Jacky51 on Thu Nov 25, 2010 5:02 pm

Sarah

Did your GP say you could 'take the pregbalin with Ami, or has she taken you off that?

J

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Re: Pregabalin

Post  Sarah001 on Thu Nov 25, 2010 7:55 pm

You can take both together but if the Pregabalin is alot more successful than the Ami the Ami dose will be lowered a bit, I won't be coming off Ami because I take it to get proper sleep and without it I feel constantly exhausted due to Fibromyalgia so I'll have to find a balance between the two.
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Re: Pregabalin

Post  Jacky51 on Thu Nov 25, 2010 9:24 pm

I'm going to ask my gp to prescribe this as well. I desparately need a painkiller whilst the other medication kicks in, my pain is at a 10 most days surely there must be something I can take to give me some relief.

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Re: Pregabalin

Post  jules on Sat Nov 27, 2010 5:57 pm

Jacky,

Opiates are known to help w/ this pain. I get a monthly prescription for hydrocodone (Vicodin). I take up to three pills per day. I am able to work on these pain pills. When the pain is very bad it just takes the edge off. The other meds will eventually help decrease the pain. It won't always be this bad.

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Re: Pregabalin

Post  Sebby (Admin) on Sun Nov 28, 2010 11:16 am


Yes I take condine 15mg (wiv paracetamol) x2 tabs per dose. If pain is bad..wont use it every day tho unless needed. It does work but spaces me out..its just something to get me through until I find out if the nerve block works.
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Pregabelin

Post  Jacky51 on Wed Dec 01, 2010 2:06 pm

Sarah how are you getting on withe the Lyrica? Have you noticed an improvement?

Jx

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Re: Pregabalin

Post  Sarah001 on Wed Dec 01, 2010 8:07 pm

To be honest I haven't started taking it yet, I was warned it may make me drowsy especially alongside the Ami so I'm waiting for a time when I don't have to drive anywhere for a week or so just in case it does that. I have been told it's like Ami though and takes a while to build up in your system and also often needs an increase in dose to do any good so it's not a quick fix like opiates so I don't think I'll notice an immediate difference. I'll report back once I get going with it.
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Re: Pregabalin

Post  jules on Sat Dec 11, 2010 6:27 pm

i have had very little pain over the past week. My nurse practitioner increased my Gabepentin to 3600 mgs (highest dose) and i still take the Lyrica (Pregabelin) 150 mgs. Neither of them made me tired, but i am not on Ami. It's been a good week. I give most of the credit to Pregabelin. hang in there ladies!

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Re: Pregabalin

Post  Sebby (Admin) on Sun Dec 12, 2010 9:49 am


So glad to hear that Jules!! Smile
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Re: Pregabalin

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