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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Pregabalin

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Pregabalin

Post  Sarah001 on Fri Nov 19, 2010 7:41 pm

I took my form from the vulvar dermatologist to my GP today requesting Gabapentin and she immediately said why didn't she tell you to ask for Pregabalin (Lyrica) as it's just as effective at a lower dose and better for Fibromyalgia? I was pretty surprised because the dermatologist said Pregabalin would be the better option but as it was pretty expensive alot of doctors won't prescribe it which is why she recommended Gabapentin so I explained this to my GP and she said "well, we do prescribe Pregabalin here when it's the better option and it is for you so that's what I'm going to give you"!! Shocked I can't believe I skipped the cheap option and went straight to the expensive one, amazing!

She also said she's sure my dodgy SI joints and resulting muscle problems are irritating nerves in the pelvis and causing the Vulvodynia so if meds don't work I may have to have nerve blocks but the physio might cure the problem so keep going with that and see where it takes me. I'm really impressed with this GP, she seems to really listen and take it all in. I collect my Pregabalin on Monday as the pharmacy had run out so we'll see how I get on.
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Re: Pregabalin

Post  jules on Mon Nov 22, 2010 4:29 am

Good luck. it worked for me. i was going to taper off, but as i did, i the pain came back. i started low and went up to 300 mgs. it may have caused weight gain for me...but it could just have been my drinking and eating.

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Re: Pregabalin

Post  Jacky51 on Thu Nov 25, 2010 5:02 pm

Sarah

Did your GP say you could 'take the pregbalin with Ami, or has she taken you off that?

J

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Re: Pregabalin

Post  Sarah001 on Thu Nov 25, 2010 7:55 pm

You can take both together but if the Pregabalin is alot more successful than the Ami the Ami dose will be lowered a bit, I won't be coming off Ami because I take it to get proper sleep and without it I feel constantly exhausted due to Fibromyalgia so I'll have to find a balance between the two.
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Re: Pregabalin

Post  Jacky51 on Thu Nov 25, 2010 9:24 pm

I'm going to ask my gp to prescribe this as well. I desparately need a painkiller whilst the other medication kicks in, my pain is at a 10 most days surely there must be something I can take to give me some relief.

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Re: Pregabalin

Post  jules on Sat Nov 27, 2010 5:57 pm

Jacky,

Opiates are known to help w/ this pain. I get a monthly prescription for hydrocodone (Vicodin). I take up to three pills per day. I am able to work on these pain pills. When the pain is very bad it just takes the edge off. The other meds will eventually help decrease the pain. It won't always be this bad.

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Re: Pregabalin

Post  Sebby (Admin) on Sun Nov 28, 2010 11:16 am


Yes I take condine 15mg (wiv paracetamol) x2 tabs per dose. If pain is bad..wont use it every day tho unless needed. It does work but spaces me out..its just something to get me through until I find out if the nerve block works.
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Pregabelin

Post  Jacky51 on Wed Dec 01, 2010 2:06 pm

Sarah how are you getting on withe the Lyrica? Have you noticed an improvement?

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Re: Pregabalin

Post  Sarah001 on Wed Dec 01, 2010 8:07 pm

To be honest I haven't started taking it yet, I was warned it may make me drowsy especially alongside the Ami so I'm waiting for a time when I don't have to drive anywhere for a week or so just in case it does that. I have been told it's like Ami though and takes a while to build up in your system and also often needs an increase in dose to do any good so it's not a quick fix like opiates so I don't think I'll notice an immediate difference. I'll report back once I get going with it.
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Re: Pregabalin

Post  jules on Sat Dec 11, 2010 6:27 pm

i have had very little pain over the past week. My nurse practitioner increased my Gabepentin to 3600 mgs (highest dose) and i still take the Lyrica (Pregabelin) 150 mgs. Neither of them made me tired, but i am not on Ami. It's been a good week. I give most of the credit to Pregabelin. hang in there ladies!

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Re: Pregabalin

Post  Sebby (Admin) on Sun Dec 12, 2010 9:49 am


So glad to hear that Jules!! Smile
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Re: Pregabalin

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