Log in

I forgot my password

Latest topics
» Please tell me this can get better
Today at 2:10 am by anon99

» Acupuncture advice please
Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Physio Success so far

Go down

Physio Success so far

Post  ringostarr26 on Sun Jul 20, 2014 4:43 pm

Hi Ladies,

I have been MIA a bit studying for my last exam of my undergrad so I haven't been able to post, but I wanted to share some positive news. I have found an amazing physic therapist whose sole speciality is pelvic floor dysfunction in both women and men. She focuses a lot on breathing techniques and fascia massage to help lengthen and soften the muscles in the pelvic floor and surrounding tissues. I know PFD is common in women with vulvodynia so I really do believe getting a knowledgable physic therapist is important. I tried physic prior to this and felt to relief but her techniques were very different and she did not send me home with anything that I could do on my own. I hope everyone is getting some relief and remember stay positive. I know it is hard, trust me there are days when getting out of my bed is a struggle, but there are people out there who want to help us. Sending positive vibes to all you wonderful women who are going through this horrible condition. <3

ringostarr26

Posts : 58
Join date : 2012-07-31

View user profile

Back to top Go down

Re: Physio Success so far

Post  kelseyanne on Fri Aug 22, 2014 11:26 pm

How are you progressing? And what exactly are,your symptoms? I have inflamed vulvar skin and hard sore pelvic floor muscles. Im looking for success stories of women with similar symptoms. I started PT last week. Please tell me how its going!

kelseyanne

Posts : 6
Join date : 2014-08-22

View user profile

Back to top Go down

Re: Physio Success so far

Post  ringostarr26 on Thu Nov 26, 2015 3:23 pm

Wow i have been gone from this forum for a while but I saw your post and wanted to give you an update. I am doing incredibly well. I did physio for about a year and I really do think it helped tremendously. Anytime I get a flare up I can usually keep it to minimal pain and return to normal activity. I have to say I am 90% pain free but it wasn't an easy journey. My pain started years ago, probably 7 years now. I saw many doctors and once i got my proper diagnosis I was on the mend. Please keep up with physio IF you have pelvic floor dysfunction issues. It truly is a life saver.

ringostarr26

Posts : 58
Join date : 2012-07-31

View user profile

Back to top Go down

Re: Physio Success so far

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum