Log in

I forgot my password

Latest topics
Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Physio Success so far

Go down

Physio Success so far

Post  ringostarr26 on Sun Jul 20, 2014 4:43 pm

Hi Ladies,

I have been MIA a bit studying for my last exam of my undergrad so I haven't been able to post, but I wanted to share some positive news. I have found an amazing physic therapist whose sole speciality is pelvic floor dysfunction in both women and men. She focuses a lot on breathing techniques and fascia massage to help lengthen and soften the muscles in the pelvic floor and surrounding tissues. I know PFD is common in women with vulvodynia so I really do believe getting a knowledgable physic therapist is important. I tried physic prior to this and felt to relief but her techniques were very different and she did not send me home with anything that I could do on my own. I hope everyone is getting some relief and remember stay positive. I know it is hard, trust me there are days when getting out of my bed is a struggle, but there are people out there who want to help us. Sending positive vibes to all you wonderful women who are going through this horrible condition. <3

ringostarr26

Posts : 58
Join date : 2012-07-31

View user profile

Back to top Go down

Re: Physio Success so far

Post  Guest on Fri Aug 22, 2014 11:26 pm

How are you progressing? And what exactly are,your symptoms? I have inflamed vulvar skin and hard sore pelvic floor muscles. Im looking for success stories of women with similar symptoms. I started PT last week. Please tell me how its going!

Guest
Guest


Back to top Go down

Re: Physio Success so far

Post  ringostarr26 on Thu Nov 26, 2015 3:23 pm

Wow i have been gone from this forum for a while but I saw your post and wanted to give you an update. I am doing incredibly well. I did physio for about a year and I really do think it helped tremendously. Anytime I get a flare up I can usually keep it to minimal pain and return to normal activity. I have to say I am 90% pain free but it wasn't an easy journey. My pain started years ago, probably 7 years now. I saw many doctors and once i got my proper diagnosis I was on the mend. Please keep up with physio IF you have pelvic floor dysfunction issues. It truly is a life saver.

ringostarr26

Posts : 58
Join date : 2012-07-31

View user profile

Back to top Go down

Re: Physio Success so far

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum