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Yesterday at 7:34 pm by Jo44

» Weird Reactions to Natural Remedies
Yesterday at 4:38 pm by emalita

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Vestibulectomy

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Vestibulectomy

Post  estweets on Sun Jul 20, 2014 6:01 pm

Hi,

So on Wednesday I had a Vestibulectomy. I am 19 so they were quite surprised with how young I am to have one. I have been suffering with Painful Sex for just over 2 and a half years.

The operation went really well. They said they had to remove a lot of skin, more than they thought. I wasn't that sore when I came round, but to be honest I wasn't really with it due to the anaesthetic. I felt very sick, and was kept in for a few hours.
They gave me co-codamol and ibuprofen, and I took these as instructed.
The next day (2) I slept a lot. I wasn't very conscious so I didn't really notice the pain.
Day 3 - I was feeling very sick and was eventually sick. My mum believed this to be down to the co codamol so I switched to paracetamol. The pain was also unbearable. I hardly slept that night, because I kept waking up in pain. However I napped in the day on day 4 so that wasn't so bad. I am currently on day 4 and I am very uncomfortable. There is some swelling and frozen peas do help, but they melt so you can only have them for so long....

I have been told to use some tea tree oil - 5 drops in a bath. I also wash my vagina with 5 drops and a teaspoon of milk in a jug of warm water before and after I wee, to help any stinging and to keep it clean. I then dry the area with a hair dryer. But you need to keep the paracetamol and ibup regular.

I have read a few different things, most say that after day 5 it starts to become less painful. So i'm hoping that after tomorrow I will be in less pain and will start to be more mobile. Im hoping to sleep all the way through tonight.

I had a look at my vagina  - I wouldn't advise it! It looks awful, it is all blue/black and bruised and is ugly as! Hopefully this will all be worth it! I just want to get out of the intense pain stage... I can deal with being uncomfortable but pain is a big no no for me -  I am a wuss.

If anyone has any advice or wants me to answer anything/update them then let me know.
Smile


Last edited by estweets on Sun Jul 20, 2014 6:02 pm; edited 1 time in total (Reason for editing : Wanted to be more specific)

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Re: Vestibulectomy

Post  Alana3 on Mon Jul 21, 2014 11:59 am

Everything sounds normal you'll love it when you're healed. I don't remember that much pain but were all different!

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Re: Vestibulectomy

Post  estweets on Mon Jul 21, 2014 12:58 pm

Good! Thanks for saying so. I can't wait to be normal! It's been the worst thing ever so I'm looking forward to being healed!
The pain isn't as much today so the swelling must be going down

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Re: Vestibulectomy

Post  Alana3 on Mon Jul 21, 2014 2:25 pm

I literally slept with an icepack for 3 weeks I kept it on at all times and I had no pain after 3 days. I went out on day 4 for lunch and ripped a few stitches (which didn't hurt). You should be ok just use your ice and get up and walk as much as you can Smile don't overdue it tho, you're still recovering from surgery and need rest but you need to move too. But ice was my lifesaver it kept my swelling down and I had little problems after.

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Re: Vestibulectomy

Post  estweets on Mon Jul 21, 2014 3:08 pm

Brilliant. I've used one every day mainly in the morning but not all day so may have to increase the amount of time I use it. I've been walking about today a lot more and it sometimes feels better to be up than lay down.
Thanks so much for your advice.

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Re: Vestibulectomy

Post  Alana3 on Mon Jul 21, 2014 3:35 pm

Yup I slept with ice when I wasn't moving there was ice in my pants haha. My dad would come in at midnight and get me more ice it was nuts! But well worth it. Yeah I never looked at my vag during recovery too scary. I would use a light soap down there, I was too scared to touch it and got a yeast infection (oops lol) but keep it clean, my doc was like you can touch it now! haha But def don't be afraid to touch it. Just be careful. I also do physical therapy for a few months after and I think that really helped. I didn't have sex until like 8 months after only because I didn't have a boyfriend. I will tell you I was really freaked to have sex, but we went slow and it was fine just a little tight. But I think a lot of that was me tensing. But I totally recommend it- totally great surgery haha you'll be feeling better in about 2-3 weeks and then it's downhill from there. Let me know if you have any other questions Smile

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Re: Vestibulectomy

Post  estweets on Mon Jul 21, 2014 5:34 pm

What kind of ohysical therapy? How did you get into it. Think when it's more healed I'm going to do pelvic floors and some yoga.
Yeah I think I'll be abit anxious to have sex again but when the first time is out of the way hopefully all will be well! Smile

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Re: Vestibulectomy

Post  Alana3 on Mon Jul 21, 2014 6:02 pm

Can I offer a suggestion? I don't want to meddle but it REALLY helped me after. PT I just went, but I had been going for some time prior. It was concentrated on pelvic floor. And I love yoga- hadn't been in some time, but looove it!

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Re: Vestibulectomy

Post  estweets on Mon Jul 21, 2014 9:12 pm

Yeah sure fire me any suggestions!

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Re: Vestibulectomy

Post  Alana3 on Tue Jul 22, 2014 1:06 pm

After I got the OK return to life I bought a vibrator and used it myself so I could reassure myself that it wasn't going to be bad.  I used it everyday for 15 minutes in the shower to stretch out any sore muscles and get my brain used to having something down there where it wasn't hurting.  It helped when I went to have sex because I still had the OMG ITS GOING TO HURT but because I used the vibrator it was less of a horrific ordeal in fact it was quite lovely lol.  But a vibrator or dilators (which come in like 5 different sizes) I def recommend!  How are you feeling today???

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Re: Vestibulectomy

Post  estweets on Tue Jul 22, 2014 4:38 pm

Okay! I'll try that then definitely. Makes sense cos like you say re-introducing it to that area. Won't be such a shock to the system when I have sex again.

A lot better! Still stings abit but it's bearable. It stings more in the morning which is a pain but I slept right through last night! Been up more today trying to keep mobile.
Not sure if I have an infection cos I am still bleeding a little but there's a yellow tinge to it. May phone my doctors tomorrow and see what they think. Smile

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Re: Vestibulectomy

Post  Alana3 on Tue Jul 22, 2014 5:40 pm

You probably have a yeast infection if anything do NOT freak out I'm pretty sure you're ok! Glad you're feeling better, and def call the doc cant be too safe!  You are going to LOVE this- it's like new vagina new life! Get ready to party! Where are you from?

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Re: Vestibulectomy

Post  estweets on Tue Jul 22, 2014 7:31 pm

Okay good. Probably is an infection but nothing serious like you said a yeast one. Just need some antibiotics!
Hahaha I can't wait I actually can't! Can't wait to not have any pain anymore! Been the worst two years ever! I'm gonna be having sex 24/7 hahahaha.
From Manchester in UK. What about you? Smile

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Re: Vestibulectomy

Post  Alana3 on Tue Jul 22, 2014 11:27 pm

Haha I have sex like a million times a day now... more like three but still! Keep in mind when you have sex that much it begins to hurt lol. Im from Florida! Were far apart.

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Re: Vestibulectomy

Post  estweets on Wed Jul 23, 2014 9:40 am

Hahahah well it's a lot more than would be possible before! That'd be me over like 3 weeks hahaha!
Yeah we are! Madness isn't it!
Feeling slightly better today. The doctor said she reckons it's a yeast infection so you're right! Haha Smile

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Re: Vestibulectomy

Post  Alana3 on Wed Jul 23, 2014 2:18 pm

haha yeah I know I am Smile its mostly because there was a lot of activity down there for one and two your probably not cleaning it as well as before (I did the same exact thing!) because you're afraid to touch it.  Glad you're feeling better it gets easier everyday!

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Re: Vestibulectomy

Post  estweets on Thu Jul 24, 2014 8:49 am

What've you used to clean with? Yeah I was afraid to touch it but fine with touching it now.
Yeah feeling loads better today. Uncomfortable but definitely not as sore. Been a week and a day today

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Re: Vestibulectomy

Post  Alana3 on Thu Jul 24, 2014 2:14 pm

Yeah youll be good Smile

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Re: Vestibulectomy

Post  estweets on Thu Jul 24, 2014 7:32 pm

Went for a walk aswell! Only ten minutes but felt good to do.
Had a look at my bruising, it's started to change colour so is definitely improving. Smile

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Re: Vestibulectomy

Post  Alana3 on Thu Jul 24, 2014 7:38 pm

omg I def never looked haha but yeah it'll improve everyday!  You're doing well Very Happy

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Re: Vestibulectomy

Post  estweets on Thu Jul 24, 2014 9:05 pm

I wish I hadn't looked it's like a bomb site!!! It's horrid hahahah!!!
Thanks. Thanks for the support too been brilliant to talk to someone about it x

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Wondering..

Post  Marylynnreily on Thu Jul 24, 2014 10:24 pm

Ive been considering, lately doing a V surgery myself. Im feeling alright right now, but I live in fear of it returning. @Alana, do you use Lubrication during sex??, 3 times a day seems like ALOT after surgery, that sounds awesome actually, since even doing it once a day everyday makes me sore, if that..
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lube

Post  Marylynnreily on Thu Jul 24, 2014 10:26 pm

and what kind of lube?? What kind of lubrication do you guys recommend?
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Re: Vestibulectomy

Post  Alana3 on Thu Jul 24, 2014 11:58 pm

Hahaha I dont use lube didnt need it! Im about a year anf a half post surgery very worth it! Haha a a bomb site hahahaha. That's awesome. Totally recommend the surgery!

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Re: Vestibulectomy

Post  estweets on Fri Jul 25, 2014 9:00 am

I used lube sometimes. I used one called "yes" because the kiwi in another one made me react.
Hahaha it is a bomb site!!! But yeah it's gettin better day by day, just have to wait for the results but there's an 80% success rate so I'm very confident with those results!

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Re: Vestibulectomy

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