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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vestibulectomy

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Vestibulectomy

Post  estweets on Sun Jul 20, 2014 6:01 pm

Hi,

So on Wednesday I had a Vestibulectomy. I am 19 so they were quite surprised with how young I am to have one. I have been suffering with Painful Sex for just over 2 and a half years.

The operation went really well. They said they had to remove a lot of skin, more than they thought. I wasn't that sore when I came round, but to be honest I wasn't really with it due to the anaesthetic. I felt very sick, and was kept in for a few hours.
They gave me co-codamol and ibuprofen, and I took these as instructed.
The next day (2) I slept a lot. I wasn't very conscious so I didn't really notice the pain.
Day 3 - I was feeling very sick and was eventually sick. My mum believed this to be down to the co codamol so I switched to paracetamol. The pain was also unbearable. I hardly slept that night, because I kept waking up in pain. However I napped in the day on day 4 so that wasn't so bad. I am currently on day 4 and I am very uncomfortable. There is some swelling and frozen peas do help, but they melt so you can only have them for so long....

I have been told to use some tea tree oil - 5 drops in a bath. I also wash my vagina with 5 drops and a teaspoon of milk in a jug of warm water before and after I wee, to help any stinging and to keep it clean. I then dry the area with a hair dryer. But you need to keep the paracetamol and ibup regular.

I have read a few different things, most say that after day 5 it starts to become less painful. So i'm hoping that after tomorrow I will be in less pain and will start to be more mobile. Im hoping to sleep all the way through tonight.

I had a look at my vagina  - I wouldn't advise it! It looks awful, it is all blue/black and bruised and is ugly as! Hopefully this will all be worth it! I just want to get out of the intense pain stage... I can deal with being uncomfortable but pain is a big no no for me -  I am a wuss.

If anyone has any advice or wants me to answer anything/update them then let me know.
Smile


Last edited by estweets on Sun Jul 20, 2014 6:02 pm; edited 1 time in total (Reason for editing : Wanted to be more specific)

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Re: Vestibulectomy

Post  Alana3 on Mon Jul 21, 2014 11:59 am

Everything sounds normal you'll love it when you're healed. I don't remember that much pain but were all different!

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Re: Vestibulectomy

Post  estweets on Mon Jul 21, 2014 12:58 pm

Good! Thanks for saying so. I can't wait to be normal! It's been the worst thing ever so I'm looking forward to being healed!
The pain isn't as much today so the swelling must be going down

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Re: Vestibulectomy

Post  Alana3 on Mon Jul 21, 2014 2:25 pm

I literally slept with an icepack for 3 weeks I kept it on at all times and I had no pain after 3 days. I went out on day 4 for lunch and ripped a few stitches (which didn't hurt). You should be ok just use your ice and get up and walk as much as you can Smile don't overdue it tho, you're still recovering from surgery and need rest but you need to move too. But ice was my lifesaver it kept my swelling down and I had little problems after.

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Re: Vestibulectomy

Post  estweets on Mon Jul 21, 2014 3:08 pm

Brilliant. I've used one every day mainly in the morning but not all day so may have to increase the amount of time I use it. I've been walking about today a lot more and it sometimes feels better to be up than lay down.
Thanks so much for your advice.

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Re: Vestibulectomy

Post  Alana3 on Mon Jul 21, 2014 3:35 pm

Yup I slept with ice when I wasn't moving there was ice in my pants haha. My dad would come in at midnight and get me more ice it was nuts! But well worth it. Yeah I never looked at my vag during recovery too scary. I would use a light soap down there, I was too scared to touch it and got a yeast infection (oops lol) but keep it clean, my doc was like you can touch it now! haha But def don't be afraid to touch it. Just be careful. I also do physical therapy for a few months after and I think that really helped. I didn't have sex until like 8 months after only because I didn't have a boyfriend. I will tell you I was really freaked to have sex, but we went slow and it was fine just a little tight. But I think a lot of that was me tensing. But I totally recommend it- totally great surgery haha you'll be feeling better in about 2-3 weeks and then it's downhill from there. Let me know if you have any other questions Smile

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Re: Vestibulectomy

Post  estweets on Mon Jul 21, 2014 5:34 pm

What kind of ohysical therapy? How did you get into it. Think when it's more healed I'm going to do pelvic floors and some yoga.
Yeah I think I'll be abit anxious to have sex again but when the first time is out of the way hopefully all will be well! Smile

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Re: Vestibulectomy

Post  Alana3 on Mon Jul 21, 2014 6:02 pm

Can I offer a suggestion? I don't want to meddle but it REALLY helped me after. PT I just went, but I had been going for some time prior. It was concentrated on pelvic floor. And I love yoga- hadn't been in some time, but looove it!

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Re: Vestibulectomy

Post  estweets on Mon Jul 21, 2014 9:12 pm

Yeah sure fire me any suggestions!

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Re: Vestibulectomy

Post  Alana3 on Tue Jul 22, 2014 1:06 pm

After I got the OK return to life I bought a vibrator and used it myself so I could reassure myself that it wasn't going to be bad.  I used it everyday for 15 minutes in the shower to stretch out any sore muscles and get my brain used to having something down there where it wasn't hurting.  It helped when I went to have sex because I still had the OMG ITS GOING TO HURT but because I used the vibrator it was less of a horrific ordeal in fact it was quite lovely lol.  But a vibrator or dilators (which come in like 5 different sizes) I def recommend!  How are you feeling today???

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Re: Vestibulectomy

Post  estweets on Tue Jul 22, 2014 4:38 pm

Okay! I'll try that then definitely. Makes sense cos like you say re-introducing it to that area. Won't be such a shock to the system when I have sex again.

A lot better! Still stings abit but it's bearable. It stings more in the morning which is a pain but I slept right through last night! Been up more today trying to keep mobile.
Not sure if I have an infection cos I am still bleeding a little but there's a yellow tinge to it. May phone my doctors tomorrow and see what they think. Smile

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Re: Vestibulectomy

Post  Alana3 on Tue Jul 22, 2014 5:40 pm

You probably have a yeast infection if anything do NOT freak out I'm pretty sure you're ok! Glad you're feeling better, and def call the doc cant be too safe!  You are going to LOVE this- it's like new vagina new life! Get ready to party! Where are you from?

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Re: Vestibulectomy

Post  estweets on Tue Jul 22, 2014 7:31 pm

Okay good. Probably is an infection but nothing serious like you said a yeast one. Just need some antibiotics!
Hahaha I can't wait I actually can't! Can't wait to not have any pain anymore! Been the worst two years ever! I'm gonna be having sex 24/7 hahahaha.
From Manchester in UK. What about you? Smile

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Re: Vestibulectomy

Post  Alana3 on Tue Jul 22, 2014 11:27 pm

Haha I have sex like a million times a day now... more like three but still! Keep in mind when you have sex that much it begins to hurt lol. Im from Florida! Were far apart.

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Re: Vestibulectomy

Post  estweets on Wed Jul 23, 2014 9:40 am

Hahahah well it's a lot more than would be possible before! That'd be me over like 3 weeks hahaha!
Yeah we are! Madness isn't it!
Feeling slightly better today. The doctor said she reckons it's a yeast infection so you're right! Haha Smile

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Re: Vestibulectomy

Post  Alana3 on Wed Jul 23, 2014 2:18 pm

haha yeah I know I am Smile its mostly because there was a lot of activity down there for one and two your probably not cleaning it as well as before (I did the same exact thing!) because you're afraid to touch it.  Glad you're feeling better it gets easier everyday!

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Re: Vestibulectomy

Post  estweets on Thu Jul 24, 2014 8:49 am

What've you used to clean with? Yeah I was afraid to touch it but fine with touching it now.
Yeah feeling loads better today. Uncomfortable but definitely not as sore. Been a week and a day today

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Re: Vestibulectomy

Post  Alana3 on Thu Jul 24, 2014 2:14 pm

Yeah youll be good Smile

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Re: Vestibulectomy

Post  estweets on Thu Jul 24, 2014 7:32 pm

Went for a walk aswell! Only ten minutes but felt good to do.
Had a look at my bruising, it's started to change colour so is definitely improving. Smile

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Re: Vestibulectomy

Post  Alana3 on Thu Jul 24, 2014 7:38 pm

omg I def never looked haha but yeah it'll improve everyday!  You're doing well Very Happy

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Re: Vestibulectomy

Post  estweets on Thu Jul 24, 2014 9:05 pm

I wish I hadn't looked it's like a bomb site!!! It's horrid hahahah!!!
Thanks. Thanks for the support too been brilliant to talk to someone about it x

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Wondering..

Post  Marylynnreily on Thu Jul 24, 2014 10:24 pm

Ive been considering, lately doing a V surgery myself. Im feeling alright right now, but I live in fear of it returning. @Alana, do you use Lubrication during sex??, 3 times a day seems like ALOT after surgery, that sounds awesome actually, since even doing it once a day everyday makes me sore, if that..
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lube

Post  Marylynnreily on Thu Jul 24, 2014 10:26 pm

and what kind of lube?? What kind of lubrication do you guys recommend?
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Re: Vestibulectomy

Post  Alana3 on Thu Jul 24, 2014 11:58 pm

Hahaha I dont use lube didnt need it! Im about a year anf a half post surgery very worth it! Haha a a bomb site hahahaha. That's awesome. Totally recommend the surgery!

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Re: Vestibulectomy

Post  estweets on Fri Jul 25, 2014 9:00 am

I used lube sometimes. I used one called "yes" because the kiwi in another one made me react.
Hahaha it is a bomb site!!! But yeah it's gettin better day by day, just have to wait for the results but there's an 80% success rate so I'm very confident with those results!

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Re: Vestibulectomy

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