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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Vestibulectomy

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Vestibulectomy

Post  estweets on Sun Jul 20, 2014 6:01 pm

Hi,

So on Wednesday I had a Vestibulectomy. I am 19 so they were quite surprised with how young I am to have one. I have been suffering with Painful Sex for just over 2 and a half years.

The operation went really well. They said they had to remove a lot of skin, more than they thought. I wasn't that sore when I came round, but to be honest I wasn't really with it due to the anaesthetic. I felt very sick, and was kept in for a few hours.
They gave me co-codamol and ibuprofen, and I took these as instructed.
The next day (2) I slept a lot. I wasn't very conscious so I didn't really notice the pain.
Day 3 - I was feeling very sick and was eventually sick. My mum believed this to be down to the co codamol so I switched to paracetamol. The pain was also unbearable. I hardly slept that night, because I kept waking up in pain. However I napped in the day on day 4 so that wasn't so bad. I am currently on day 4 and I am very uncomfortable. There is some swelling and frozen peas do help, but they melt so you can only have them for so long....

I have been told to use some tea tree oil - 5 drops in a bath. I also wash my vagina with 5 drops and a teaspoon of milk in a jug of warm water before and after I wee, to help any stinging and to keep it clean. I then dry the area with a hair dryer. But you need to keep the paracetamol and ibup regular.

I have read a few different things, most say that after day 5 it starts to become less painful. So i'm hoping that after tomorrow I will be in less pain and will start to be more mobile. Im hoping to sleep all the way through tonight.

I had a look at my vagina  - I wouldn't advise it! It looks awful, it is all blue/black and bruised and is ugly as! Hopefully this will all be worth it! I just want to get out of the intense pain stage... I can deal with being uncomfortable but pain is a big no no for me -  I am a wuss.

If anyone has any advice or wants me to answer anything/update them then let me know.
Smile


Last edited by estweets on Sun Jul 20, 2014 6:02 pm; edited 1 time in total (Reason for editing : Wanted to be more specific)

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Re: Vestibulectomy

Post  Alana3 on Mon Jul 21, 2014 11:59 am

Everything sounds normal you'll love it when you're healed. I don't remember that much pain but were all different!

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Re: Vestibulectomy

Post  estweets on Mon Jul 21, 2014 12:58 pm

Good! Thanks for saying so. I can't wait to be normal! It's been the worst thing ever so I'm looking forward to being healed!
The pain isn't as much today so the swelling must be going down

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Re: Vestibulectomy

Post  Alana3 on Mon Jul 21, 2014 2:25 pm

I literally slept with an icepack for 3 weeks I kept it on at all times and I had no pain after 3 days. I went out on day 4 for lunch and ripped a few stitches (which didn't hurt). You should be ok just use your ice and get up and walk as much as you can Smile don't overdue it tho, you're still recovering from surgery and need rest but you need to move too. But ice was my lifesaver it kept my swelling down and I had little problems after.

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Re: Vestibulectomy

Post  estweets on Mon Jul 21, 2014 3:08 pm

Brilliant. I've used one every day mainly in the morning but not all day so may have to increase the amount of time I use it. I've been walking about today a lot more and it sometimes feels better to be up than lay down.
Thanks so much for your advice.

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Re: Vestibulectomy

Post  Alana3 on Mon Jul 21, 2014 3:35 pm

Yup I slept with ice when I wasn't moving there was ice in my pants haha. My dad would come in at midnight and get me more ice it was nuts! But well worth it. Yeah I never looked at my vag during recovery too scary. I would use a light soap down there, I was too scared to touch it and got a yeast infection (oops lol) but keep it clean, my doc was like you can touch it now! haha But def don't be afraid to touch it. Just be careful. I also do physical therapy for a few months after and I think that really helped. I didn't have sex until like 8 months after only because I didn't have a boyfriend. I will tell you I was really freaked to have sex, but we went slow and it was fine just a little tight. But I think a lot of that was me tensing. But I totally recommend it- totally great surgery haha you'll be feeling better in about 2-3 weeks and then it's downhill from there. Let me know if you have any other questions Smile

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Re: Vestibulectomy

Post  estweets on Mon Jul 21, 2014 5:34 pm

What kind of ohysical therapy? How did you get into it. Think when it's more healed I'm going to do pelvic floors and some yoga.
Yeah I think I'll be abit anxious to have sex again but when the first time is out of the way hopefully all will be well! Smile

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Re: Vestibulectomy

Post  Alana3 on Mon Jul 21, 2014 6:02 pm

Can I offer a suggestion? I don't want to meddle but it REALLY helped me after. PT I just went, but I had been going for some time prior. It was concentrated on pelvic floor. And I love yoga- hadn't been in some time, but looove it!

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Re: Vestibulectomy

Post  estweets on Mon Jul 21, 2014 9:12 pm

Yeah sure fire me any suggestions!

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Re: Vestibulectomy

Post  Alana3 on Tue Jul 22, 2014 1:06 pm

After I got the OK return to life I bought a vibrator and used it myself so I could reassure myself that it wasn't going to be bad.  I used it everyday for 15 minutes in the shower to stretch out any sore muscles and get my brain used to having something down there where it wasn't hurting.  It helped when I went to have sex because I still had the OMG ITS GOING TO HURT but because I used the vibrator it was less of a horrific ordeal in fact it was quite lovely lol.  But a vibrator or dilators (which come in like 5 different sizes) I def recommend!  How are you feeling today???

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Re: Vestibulectomy

Post  estweets on Tue Jul 22, 2014 4:38 pm

Okay! I'll try that then definitely. Makes sense cos like you say re-introducing it to that area. Won't be such a shock to the system when I have sex again.

A lot better! Still stings abit but it's bearable. It stings more in the morning which is a pain but I slept right through last night! Been up more today trying to keep mobile.
Not sure if I have an infection cos I am still bleeding a little but there's a yellow tinge to it. May phone my doctors tomorrow and see what they think. Smile

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Re: Vestibulectomy

Post  Alana3 on Tue Jul 22, 2014 5:40 pm

You probably have a yeast infection if anything do NOT freak out I'm pretty sure you're ok! Glad you're feeling better, and def call the doc cant be too safe!  You are going to LOVE this- it's like new vagina new life! Get ready to party! Where are you from?

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Re: Vestibulectomy

Post  estweets on Tue Jul 22, 2014 7:31 pm

Okay good. Probably is an infection but nothing serious like you said a yeast one. Just need some antibiotics!
Hahaha I can't wait I actually can't! Can't wait to not have any pain anymore! Been the worst two years ever! I'm gonna be having sex 24/7 hahahaha.
From Manchester in UK. What about you? Smile

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Re: Vestibulectomy

Post  Alana3 on Tue Jul 22, 2014 11:27 pm

Haha I have sex like a million times a day now... more like three but still! Keep in mind when you have sex that much it begins to hurt lol. Im from Florida! Were far apart.

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Re: Vestibulectomy

Post  estweets on Wed Jul 23, 2014 9:40 am

Hahahah well it's a lot more than would be possible before! That'd be me over like 3 weeks hahaha!
Yeah we are! Madness isn't it!
Feeling slightly better today. The doctor said she reckons it's a yeast infection so you're right! Haha Smile

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Re: Vestibulectomy

Post  Alana3 on Wed Jul 23, 2014 2:18 pm

haha yeah I know I am Smile its mostly because there was a lot of activity down there for one and two your probably not cleaning it as well as before (I did the same exact thing!) because you're afraid to touch it.  Glad you're feeling better it gets easier everyday!

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Re: Vestibulectomy

Post  estweets on Thu Jul 24, 2014 8:49 am

What've you used to clean with? Yeah I was afraid to touch it but fine with touching it now.
Yeah feeling loads better today. Uncomfortable but definitely not as sore. Been a week and a day today

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Re: Vestibulectomy

Post  Alana3 on Thu Jul 24, 2014 2:14 pm

Yeah youll be good Smile

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Re: Vestibulectomy

Post  estweets on Thu Jul 24, 2014 7:32 pm

Went for a walk aswell! Only ten minutes but felt good to do.
Had a look at my bruising, it's started to change colour so is definitely improving. Smile

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Re: Vestibulectomy

Post  Alana3 on Thu Jul 24, 2014 7:38 pm

omg I def never looked haha but yeah it'll improve everyday!  You're doing well Very Happy

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Re: Vestibulectomy

Post  estweets on Thu Jul 24, 2014 9:05 pm

I wish I hadn't looked it's like a bomb site!!! It's horrid hahahah!!!
Thanks. Thanks for the support too been brilliant to talk to someone about it x

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Wondering..

Post  Marylynnreily on Thu Jul 24, 2014 10:24 pm

Ive been considering, lately doing a V surgery myself. Im feeling alright right now, but I live in fear of it returning. @Alana, do you use Lubrication during sex??, 3 times a day seems like ALOT after surgery, that sounds awesome actually, since even doing it once a day everyday makes me sore, if that..
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lube

Post  Marylynnreily on Thu Jul 24, 2014 10:26 pm

and what kind of lube?? What kind of lubrication do you guys recommend?
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Re: Vestibulectomy

Post  Alana3 on Thu Jul 24, 2014 11:58 pm

Hahaha I dont use lube didnt need it! Im about a year anf a half post surgery very worth it! Haha a a bomb site hahahaha. That's awesome. Totally recommend the surgery!

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Re: Vestibulectomy

Post  estweets on Fri Jul 25, 2014 9:00 am

I used lube sometimes. I used one called "yes" because the kiwi in another one made me react.
Hahaha it is a bomb site!!! But yeah it's gettin better day by day, just have to wait for the results but there's an 80% success rate so I'm very confident with those results!

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Re: Vestibulectomy

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