Vulvodynia Support
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» Hope to all my suffering ladies
Vestibulectomy - Page 2 EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Vestibulectomy - Page 2 EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Vestibulectomy - Page 2 EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Vestibulectomy - Page 2 EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Vestibulectomy - Page 2 EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Vestibulectomy - Page 2 EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Vestibulectomy - Page 2 EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Vestibulectomy - Page 2 EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Vestibulectomy - Page 2 EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Vestibulectomy

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Vestibulectomy - Page 2 Empty Re: Vestibulectomy

Post  Alana3 Wed Jul 23, 2014 2:18 pm

haha yeah I know I am Smile its mostly because there was a lot of activity down there for one and two your probably not cleaning it as well as before (I did the same exact thing!) because you're afraid to touch it.  Glad you're feeling better it gets easier everyday!

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  estweets Thu Jul 24, 2014 8:49 am

What've you used to clean with? Yeah I was afraid to touch it but fine with touching it now.
Yeah feeling loads better today. Uncomfortable but definitely not as sore. Been a week and a day today

estweets

Posts : 15
Join date : 2014-07-20

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Post  Alana3 Thu Jul 24, 2014 2:14 pm

Yeah youll be good Smile

Alana3

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Post  estweets Thu Jul 24, 2014 7:32 pm

Went for a walk aswell! Only ten minutes but felt good to do.
Had a look at my bruising, it's started to change colour so is definitely improving. Smile

estweets

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Post  Alana3 Thu Jul 24, 2014 7:38 pm

omg I def never looked haha but yeah it'll improve everyday!  You're doing well Very Happy

Alana3

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Post  estweets Thu Jul 24, 2014 9:05 pm

I wish I hadn't looked it's like a bomb site!!! It's horrid hahahah!!!
Thanks. Thanks for the support too been brilliant to talk to someone about it x

estweets

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Vestibulectomy - Page 2 Empty Wondering..

Post  Marylynnreily Thu Jul 24, 2014 10:24 pm

Ive been considering, lately doing a V surgery myself. Im feeling alright right now, but I live in fear of it returning. @Alana, do you use Lubrication during sex??, 3 times a day seems like ALOT after surgery, that sounds awesome actually, since even doing it once a day everyday makes me sore, if that..
Marylynnreily
Marylynnreily

Posts : 27
Join date : 2013-05-21

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Vestibulectomy - Page 2 Empty lube

Post  Marylynnreily Thu Jul 24, 2014 10:26 pm

and what kind of lube?? What kind of lubrication do you guys recommend?
Marylynnreily
Marylynnreily

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Post  Alana3 Thu Jul 24, 2014 11:58 pm

Hahaha I dont use lube didnt need it! Im about a year anf a half post surgery very worth it! Haha a a bomb site hahahaha. That's awesome. Totally recommend the surgery!

Alana3

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Post  estweets Fri Jul 25, 2014 9:00 am

I used lube sometimes. I used one called "yes" because the kiwi in another one made me react.
Hahaha it is a bomb site!!! But yeah it's gettin better day by day, just have to wait for the results but there's an 80% success rate so I'm very confident with those results!

estweets

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Post  Alana3 Fri Jul 25, 2014 1:26 pm

To the other girl who commented forgot your name... keep in mind the surgery is not for every v person. Make sure it's an option for you before you get excited. But if you're a candidate I recommend it def!

Alana3

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Post  estweets Sun Jul 27, 2014 2:37 pm

Feeling loads better today. Even driven my car! Tiring me out trying to get back to normality tho!

estweets

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Post  Alana3 Sun Jul 27, 2014 3:52 pm

It'll take a bit you'll be fine!

Alana3

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Post  estweets Sun Aug 03, 2014 7:02 pm

So I'm now 2 and a half weeks post op - I ripped a stitch and have had a few days rest due to it. Seems to be healing tho!!! Had thrush twice now - and my stitches are starting to come out!! No pain whatsoever. Just looking forward to recovering

estweets

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Post  Alana3 Thu Aug 14, 2014 11:46 pm

Yup it happens! You'll be ok I just saw this how are you feeling now

Alana3

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