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    » I think I've developed vulvodynia?? Please help!
    Yesterday at 9:10 pm by Necromeowncer

    » MY STORY & Vestibulectomy 2/8/17
    Yesterday at 12:38 pm by Mel T

    » New w/ Secondary Provoked Vestibuldynia
    Sun Oct 22, 2017 3:47 am by Birdy

    » Newly diagnosed
    Sat Oct 21, 2017 9:50 pm by sarisbaris

    » Prednisone Injections?
    Wed Oct 18, 2017 5:07 am by sarisbaris

    » Has anyone had continued success with gabapentin or Botox injections?
    Wed Oct 18, 2017 4:47 am by sarisbaris

    » Recent "Poke" Pain - So Confused/Losing My Mind
    Wed Oct 18, 2017 2:37 am by sarisbaris

    » What is Vulvodynia?
    Tue Oct 17, 2017 11:57 pm by Jenjen

    » CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
    Mon Oct 16, 2017 2:22 am by Sagewoman

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 4

    Newly diagnosed

    Tue Oct 10, 2017 8:37 pm by Brevispink

    Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

    Comments: 9

    Recent "Poke" Pain - So Confused/Losing My Mind

    Thu Oct 12, 2017 9:26 am by kelseybeth23

    Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

    Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

    Comments: 5

    Does anyone else experience this?

    Sat Oct 14, 2017 5:21 pm by Angelmegs

    Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

    Comments: 0

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 4

    Do you ever worry that you're making it up?

    Fri May 27, 2016 6:50 am by Lucci

    Hello,

    I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

    A few years into treatment, I had the diagnosis of PTSD added on for …

    Comments: 7

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 2

    Cured of Vulvodynia

    Wed Aug 17, 2016 1:39 am by angelique2016

    I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

    Comments: 10

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 1


    I'm getting my Brenda out!

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    I'm getting my Brenda out!

    Post  Sarah001 on Fri Nov 19, 2010 7:43 pm

    No that isn't a pet name I have for my lady bits!! Laughing I bought a Brenda McGraf stepper about a year ago and have barely used it so I'm going to pull it back out and see if I can use it without any flare ups of anything, wish me luck!
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    Re: I'm getting my Brenda out!

    Post  Sebby (Admin) on Fri Nov 19, 2010 8:14 pm


    Oh lol I really did think it was a nickname for ya downstairs lol

    Good luck!! Very Happy
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    Re: I'm getting my Brenda out!

    Post  naomi on Fri Nov 19, 2010 8:28 pm

    wish i had the enthusiasim to get my 'brenda' out Smile

    I got a fitness step a while ago and i managed about 10 minutes last week, it nearly killed me...im so so unfit its not funny!
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    Re: I'm getting my Brenda out!

    Post  Sebby (Admin) on Fri Nov 19, 2010 8:40 pm


    Im sick of getting my brenda out lol Wink so many people have seen it....drs that is!!! hahahaa
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    Re: I'm getting my Brenda out!

    Post  Mouse on Fri Nov 19, 2010 9:19 pm

    My "Brenda" is my cousin... awkward! We should get her out she can make grown men cry.

    If I was looking for a pet name for my girl bits it would be something like screaming Mimi.

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    Re: I'm getting my Brenda out!

    Post  Sarah001 on Sat Nov 20, 2010 8:48 pm

    Me too Naomi, years of dislocating joints have left me seriously, and I really mean seriously, unfit. I'm going to start with a few minutes a day and see if I can avoid dislocating anything or setting off my "Tallulah" (that's my pet name!).
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    Re: I'm getting my Brenda out!

    Post  naomi on Sun Nov 21, 2010 5:28 pm

    its a shame we cant go swimming, but if ur anything like me the feeling of water getting up there aka my brenda Very Happy makes me hit the roof, esp with all that chlorine!
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    Re: I'm getting my Brenda out!

    Post  Mouse on Sun Nov 21, 2010 7:22 pm

    Ok it seems it's now a Brenda! That will be amusing at Christmas.

    When I had my first baby I had a few stitches down there - ouch! For some reason everyone wanted to see them. I'm not making this up, it was a teaching hospital and it seemed like every student in the bloody place came by and said do you mind??? REALLY??? I lifted that sheet so often the cleaner almost got a flash.

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    Re: I'm getting my Brenda out!

    Post  Sebby (Admin) on Sun Nov 21, 2010 8:35 pm


    Yep its offical they are our brendas!! Laughing
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    Re: I'm getting my Brenda out!

    Post  jules on Mon Nov 22, 2010 4:09 am

    i have two brendas. one is a 22 year old male and the other is a 30 something female. they work my ass off three times a week total. k..talking about my trainers that lead my fitness class at the gym. nick name: my husband calls my lady part my "dynia" he asks how my dynia is. yep, took the name off the tale end of this disorder. kind of clever.

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    Re: I'm getting my Brenda out!

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