Vulvodynia Support
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» Hope to all my suffering ladies
I'm getting my Brenda out! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
I'm getting my Brenda out! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
I'm getting my Brenda out! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
I'm getting my Brenda out! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
I'm getting my Brenda out! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
I'm getting my Brenda out! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
I'm getting my Brenda out! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
I'm getting my Brenda out! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
I'm getting my Brenda out! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


I'm getting my Brenda out!

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I'm getting my Brenda out! Empty I'm getting my Brenda out!

Post  Sarah001 Fri Nov 19, 2010 7:43 pm

No that isn't a pet name I have for my lady bits!! Laughing I bought a Brenda McGraf stepper about a year ago and have barely used it so I'm going to pull it back out and see if I can use it without any flare ups of anything, wish me luck!
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  Sebby (Admin) Fri Nov 19, 2010 8:14 pm


Oh lol I really did think it was a nickname for ya downstairs lol

Good luck!! Very Happy
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
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Age : 43
Location : London UK

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Post  naomi Fri Nov 19, 2010 8:28 pm

wish i had the enthusiasim to get my 'brenda' out Smile

I got a fitness step a while ago and i managed about 10 minutes last week, it nearly killed me...im so so unfit its not funny!
naomi
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

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Post  Sebby (Admin) Fri Nov 19, 2010 8:40 pm


Im sick of getting my brenda out lol Wink so many people have seen it....drs that is!!! hahahaa
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
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Age : 43
Location : London UK

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Post  Mouse Fri Nov 19, 2010 9:19 pm

My "Brenda" is my cousin... awkward! We should get her out she can make grown men cry.

If I was looking for a pet name for my girl bits it would be something like screaming Mimi.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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Post  Sarah001 Sat Nov 20, 2010 8:48 pm

Me too Naomi, years of dislocating joints have left me seriously, and I really mean seriously, unfit. I'm going to start with a few minutes a day and see if I can avoid dislocating anything or setting off my "Tallulah" (that's my pet name!).
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  naomi Sun Nov 21, 2010 5:28 pm

its a shame we cant go swimming, but if ur anything like me the feeling of water getting up there aka my brenda Very Happy makes me hit the roof, esp with all that chlorine!
naomi
naomi
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Posts : 262
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Location : Cheltenham

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Post  Mouse Sun Nov 21, 2010 7:22 pm

Ok it seems it's now a Brenda! That will be amusing at Christmas.

When I had my first baby I had a few stitches down there - ouch! For some reason everyone wanted to see them. I'm not making this up, it was a teaching hospital and it seemed like every student in the bloody place came by and said do you mind??? REALLY??? I lifted that sheet so often the cleaner almost got a flash.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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Post  Sebby (Admin) Sun Nov 21, 2010 8:35 pm


Yep its offical they are our brendas!! Laughing
Sebby (Admin)
Sebby (Admin)
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Location : London UK

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Post  jules Mon Nov 22, 2010 4:09 am

i have two brendas. one is a 22 year old male and the other is a 30 something female. they work my ass off three times a week total. k..talking about my trainers that lead my fitness class at the gym. nick name: my husband calls my lady part my "dynia" he asks how my dynia is. yep, took the name off the tale end of this disorder. kind of clever.

jules

Posts : 225
Join date : 2010-03-17

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