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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

new job...big stress big flare

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new job...big stress big flare

Post  zarli on Sat Jul 26, 2014 3:55 am

Hi all. I have been studying for a year and have a year to go I needed to do placement hours so quit my secure job ( thought I hated it) and took up a new one in my field of study. It was one of the worst decisions of my life. The new requirements are for sleep overs ( I work in disability) and all evening shifts. My old job was 3 days aweek I was home with my family at night but thought I hated my job because it was physical and on my feet all day. My stress and anxiety is through the roof and guess what of course vulvodynia pain is 10 out of 10. My new job is less money my husband has to work more over time etc etc...
just needed to vent. I rang my old boss back and begged for my job back and he said no I had been there 10 years. I find it hard to learn in my new job because of my meds and anxiety. I feel horrid and can't believe what I have done.
Sorry its a poor me pity post


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Re: new job...big stress big flare

Post  Caropes on Sat Jul 26, 2014 5:18 pm

Oh no!!! I am so sorry to hear you are not doing well. I hate this terrible condition. I can't even imagine how you must be feeling and that your boss wouldn't give your old job back. And if you are going to "pity-post", this is this place. Will your hours at your new job be permanent? Could you possibly ask for different hours maybe? I am very sorry. Please let me know to any updates. Hang in there girlie Very Happy 


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Re: new job...big stress big flare

Post  zarli on Sun Jul 27, 2014 12:43 am

Thanks cathy. I am just hanging in there. I will have to look for another job but my anxiety is debilitating so I will have to stick at this job until I get anxiety under control. Everything just fell apart over night. But I have to keep going. My new hours in my new job cant be changed. My 15 year old son is missing me at night and that is killing me. Life just sucks sometimes but we have to keep going don't we. Hope you are doing better. Is gaba lyrica ? I have asked before but I have forgotten. Any way let me know how you are ? :-)


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Re: new job...big stress big flare

Post  EverythingIsDifferentNow on Thu Oct 09, 2014 5:56 pm

try Edmuaid (all natural ointment, 98% success rate). I have a lot more advice if you want any just email me if ur interesting and i hope you're doing well


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Re: new job...big stress big flare

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