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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 0


Sat Feb 10, 2018 12:18 am by rockylife


Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

new job...big stress big flare

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new job...big stress big flare

Post  zarli on Sat Jul 26, 2014 3:55 am

Hi all. I have been studying for a year and have a year to go I needed to do placement hours so quit my secure job ( thought I hated it) and took up a new one in my field of study. It was one of the worst decisions of my life. The new requirements are for sleep overs ( I work in disability) and all evening shifts. My old job was 3 days aweek I was home with my family at night but thought I hated my job because it was physical and on my feet all day. My stress and anxiety is through the roof and guess what of course vulvodynia pain is 10 out of 10. My new job is less money my husband has to work more over time etc etc...
just needed to vent. I rang my old boss back and begged for my job back and he said no I had been there 10 years. I find it hard to learn in my new job because of my meds and anxiety. I feel horrid and can't believe what I have done.
Sorry its a poor me pity post


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Re: new job...big stress big flare

Post  Caropes on Sat Jul 26, 2014 5:18 pm

Oh no!!! I am so sorry to hear you are not doing well. I hate this terrible condition. I can't even imagine how you must be feeling and that your boss wouldn't give your old job back. And if you are going to "pity-post", this is this place. Will your hours at your new job be permanent? Could you possibly ask for different hours maybe? I am very sorry. Please let me know to any updates. Hang in there girlie Very Happy 


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Re: new job...big stress big flare

Post  zarli on Sun Jul 27, 2014 12:43 am

Thanks cathy. I am just hanging in there. I will have to look for another job but my anxiety is debilitating so I will have to stick at this job until I get anxiety under control. Everything just fell apart over night. But I have to keep going. My new hours in my new job cant be changed. My 15 year old son is missing me at night and that is killing me. Life just sucks sometimes but we have to keep going don't we. Hope you are doing better. Is gaba lyrica ? I have asked before but I have forgotten. Any way let me know how you are ? :-)


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Re: new job...big stress big flare

Post  EverythingIsDifferentNow on Thu Oct 09, 2014 5:56 pm

try Edmuaid (all natural ointment, 98% success rate). I have a lot more advice if you want any just email me if ur interesting and i hope you're doing well


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Re: new job...big stress big flare

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