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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Healing is possible

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Healing is possible

Post  Cured patient on Sun Jul 27, 2014 8:51 pm

Hi ladies,

I have been healed of this terrible, debilitating disease for almost one year now. I hope that my story can bring you peace of mind that it is possible to have a rich, fulfilled, and pain free life without vulvodynia.

Like many of you, my story begins with what I thought was a UTI, which then developed into a supposed yeast infection from the antibiotic. The itching literally kept me up at night, with occasional stabbing pains in my vaginal area. I constantly felt raw and I would imagine that it must be what sandpaper to skin felt like. Sometimes it would feel as though acid was pouring out of my vagina. I literally could not think of anything else. I was a prisoner to my pain and I grew more and more depressed with constant thoughts of how I would be able to go through another maybe 60-70 years of life like this (I am in my mid 20s).

I visited at least three doctors before receiving my diagnosis (which actually is not a lot), and the diagnosis in and of itself was relieving because I had suspected vulvodynia from the start. Even after the diagnosis, I shuffled doctors continuously paying absurd amounts of money to be told the same thing (often with little to no compassion).

Throughout my journey, I took topical corticosteroids and anitfungals, oral antibiotics, probiotics, low dose antidepressants, and lidocaine to numb the pain out of my weary vagina. I ceased birth control for three month only to explode in painful ovarian cysts. I was relegated to a wardrobe of long skirts and dresses, not being able to wear underwear or sit for prolonged periods of time. I missed hours upon hours of work going to doctors appointments, spent money I didn't have, and scoured the internet in the little spare time I did. I was so weary, willing to try anything.

Eventually, I started pelvic floor therapy and performed exercises with a gel like cone that to me looked like a scary sex toy. But of course, sex was the last thing I wanted at this time (yet always on my mind). As I'm sure many of you can attest to, the fear of losing your significant other to this awful condition is unbearably frustrating.

Besides my diet and my detergent, I changed my entire lifestyle. I caved to yoga and chiropractic relief. Again, I'd do anything for a respite.

Today, I write this on a bus ride home, a five hour trip is never have been able to complete over a year ago without writhing in pain. On the occasional time there was a break from the physical agony, the mental torture kicked up a notch. I was a broken soul. I wanted to give up.

I'm not exactly sure what the turn around was for me, but I think it was when I decided that my happiness was worth fighting for. The medicine, the physical therapy, etc. served their purpose. But the willingness to let go of the tormenting anxiety and hand it over to God was the paradigm shift for me.

I sincerely pray and am hopeful for all of you that you will find relief and healing. This is such a difficult journey, please please do not give up.

Cured patient

Posts : 1
Join date : 2014-07-27

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