Log in

I forgot my password

Latest topics
» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 1:33 pm by mary jane

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3


Healing is possible

Go down

Healing is possible

Post  Cured patient on Sun Jul 27, 2014 8:51 pm

Hi ladies,

I have been healed of this terrible, debilitating disease for almost one year now. I hope that my story can bring you peace of mind that it is possible to have a rich, fulfilled, and pain free life without vulvodynia.

Like many of you, my story begins with what I thought was a UTI, which then developed into a supposed yeast infection from the antibiotic. The itching literally kept me up at night, with occasional stabbing pains in my vaginal area. I constantly felt raw and I would imagine that it must be what sandpaper to skin felt like. Sometimes it would feel as though acid was pouring out of my vagina. I literally could not think of anything else. I was a prisoner to my pain and I grew more and more depressed with constant thoughts of how I would be able to go through another maybe 60-70 years of life like this (I am in my mid 20s).

I visited at least three doctors before receiving my diagnosis (which actually is not a lot), and the diagnosis in and of itself was relieving because I had suspected vulvodynia from the start. Even after the diagnosis, I shuffled doctors continuously paying absurd amounts of money to be told the same thing (often with little to no compassion).

Throughout my journey, I took topical corticosteroids and anitfungals, oral antibiotics, probiotics, low dose antidepressants, and lidocaine to numb the pain out of my weary vagina. I ceased birth control for three month only to explode in painful ovarian cysts. I was relegated to a wardrobe of long skirts and dresses, not being able to wear underwear or sit for prolonged periods of time. I missed hours upon hours of work going to doctors appointments, spent money I didn't have, and scoured the internet in the little spare time I did. I was so weary, willing to try anything.

Eventually, I started pelvic floor therapy and performed exercises with a gel like cone that to me looked like a scary sex toy. But of course, sex was the last thing I wanted at this time (yet always on my mind). As I'm sure many of you can attest to, the fear of losing your significant other to this awful condition is unbearably frustrating.

Besides my diet and my detergent, I changed my entire lifestyle. I caved to yoga and chiropractic relief. Again, I'd do anything for a respite.

Today, I write this on a bus ride home, a five hour trip is never have been able to complete over a year ago without writhing in pain. On the occasional time there was a break from the physical agony, the mental torture kicked up a notch. I was a broken soul. I wanted to give up.

I'm not exactly sure what the turn around was for me, but I think it was when I decided that my happiness was worth fighting for. The medicine, the physical therapy, etc. served their purpose. But the willingness to let go of the tormenting anxiety and hand it over to God was the paradigm shift for me.

I sincerely pray and am hopeful for all of you that you will find relief and healing. This is such a difficult journey, please please do not give up.

Cured patient

Posts : 1
Join date : 2014-07-27

View user profile

Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum