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» Change in birth control question
Yesterday at 3:47 pm by Jo44

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Healing is possible

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Healing is possible

Post  Cured patient on Sun Jul 27, 2014 8:51 pm

Hi ladies,

I have been healed of this terrible, debilitating disease for almost one year now. I hope that my story can bring you peace of mind that it is possible to have a rich, fulfilled, and pain free life without vulvodynia.

Like many of you, my story begins with what I thought was a UTI, which then developed into a supposed yeast infection from the antibiotic. The itching literally kept me up at night, with occasional stabbing pains in my vaginal area. I constantly felt raw and I would imagine that it must be what sandpaper to skin felt like. Sometimes it would feel as though acid was pouring out of my vagina. I literally could not think of anything else. I was a prisoner to my pain and I grew more and more depressed with constant thoughts of how I would be able to go through another maybe 60-70 years of life like this (I am in my mid 20s).

I visited at least three doctors before receiving my diagnosis (which actually is not a lot), and the diagnosis in and of itself was relieving because I had suspected vulvodynia from the start. Even after the diagnosis, I shuffled doctors continuously paying absurd amounts of money to be told the same thing (often with little to no compassion).

Throughout my journey, I took topical corticosteroids and anitfungals, oral antibiotics, probiotics, low dose antidepressants, and lidocaine to numb the pain out of my weary vagina. I ceased birth control for three month only to explode in painful ovarian cysts. I was relegated to a wardrobe of long skirts and dresses, not being able to wear underwear or sit for prolonged periods of time. I missed hours upon hours of work going to doctors appointments, spent money I didn't have, and scoured the internet in the little spare time I did. I was so weary, willing to try anything.

Eventually, I started pelvic floor therapy and performed exercises with a gel like cone that to me looked like a scary sex toy. But of course, sex was the last thing I wanted at this time (yet always on my mind). As I'm sure many of you can attest to, the fear of losing your significant other to this awful condition is unbearably frustrating.

Besides my diet and my detergent, I changed my entire lifestyle. I caved to yoga and chiropractic relief. Again, I'd do anything for a respite.

Today, I write this on a bus ride home, a five hour trip is never have been able to complete over a year ago without writhing in pain. On the occasional time there was a break from the physical agony, the mental torture kicked up a notch. I was a broken soul. I wanted to give up.

I'm not exactly sure what the turn around was for me, but I think it was when I decided that my happiness was worth fighting for. The medicine, the physical therapy, etc. served their purpose. But the willingness to let go of the tormenting anxiety and hand it over to God was the paradigm shift for me.

I sincerely pray and am hopeful for all of you that you will find relief and healing. This is such a difficult journey, please please do not give up.

Cured patient

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Join date : 2014-07-27

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