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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Feels like there's a lot of pressure down there... Help? En

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Feels like there's a lot of pressure down there... Help? En

Post  morgaan_xo on Tue Jul 29, 2014 9:07 pm

Kind of stuck on what to do at the moment. My lidocaine ointment is no longer numbing my pain...My burning pain seems to be getting worse before and after periods and my skin is physically sore(before and after periods)... And when it's not physically sore I have the burning pain that I normally have, and when I'm sat down and I lean forward it gets worse... Almost like it feels like there's to much pressure... Does anyone else have this problem?

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Re: Feels like there's a lot of pressure down there... Help? En

Post  Zbrown on Wed Jul 30, 2014 7:44 am

I for a few months felt the same before starting acupuncture then going to physical therapy , majority of my burning pain has lessened but the skin is still fragile and red at times and during intercourse tends to I think split and lightly bleed althowe idk if this is from using steroid ointment at the beginning has this made it fragile ? I also use dialators ATM but should be doing them more frequently. Next place I'm hoping to go is vulva dermatologist. How did your symptoms start xo

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Re: Feels like there's a lot of pressure down there... Help? En

Post  morgaan_xo on Wed Jul 30, 2014 8:16 am

My doctor seems to be set in her ways and doesn't talk about me trying new things... I'm going to suggest a lot of things to her when I next see her!! See my skin has never ripped or anything it's just very sore at times and it's tender to touch and I can't even wipe after I've had a wee... She has prescribed me dilators but they don't make any difference because my pain isn't inside or anything and when my skin is so sore I can't even wipe myself let alone use dialtors so I'm kind of stuck what to do... Because I've seen her a few times and she just keeps telling me to use the lidocaine and dialtors And I've copied what I put on my story when I first joined if you want to have a read...

I'm only 17 and I have been with my boyfriend for 3 years. I have been living with several different problems and unable to have sex for nearly 2 and a half years (the majority of my relationship). I met my boyfriend when I was 14 (I know really young) My mum wanted me on contraception and I had to go on the implant as I suffer with migraines with aura. I was fine for 3 months until I started bleeding all the time and getting cystitis all the time. The doctors were just giving me more and more hormones to stop the bleeding but nothing would work. I started to have a real problem with having sex and with my bladder. I had a constant burning pain and found it hard to urinate with out pain and my bladder would only hold 10-30ml (suppose to hold 300ml comfortably). The doctors finally took my implant out after a year of having it (September 2012, age 15) and was put on the progesterone only injection in the October to stop my bleeding (I never bled while on the injection) I still had all my problems while on the injection. I was finally referred to the hospital to see a bladder specialist (June/July 2013 age 16). I was diagnosed with bladder pain syndrome and bladder pain which I now take solifenacin and amitriptyline for. I thought my constant burning pain and pain during sex would subside along with the bladder problems but it hasn't. I also stopped taking the contraceptive injection because I thought it was down to hormones. I was referred to a gynaecologist who told me I had vaginismus without even examining me and prescribed my dilators... at this point I was willing to try anything... I became so down and it had start to take its tol on my relationship me and my boyfriend had split up last year in the October... I wasn't coping with anything at this point and went back to my bladder doctor(she was lovely) and she examined me and said my skin looked raw and prescribed me a steroid cream which I had a really bad reaction to over Christmas (was back with my boyfriend at this point) I had severe thrush and swelling so I went to the nhs who were really concerned that I was using a steroid cream for a skin condition that hasn't been diagnosed. They then examined me and said I need to come back and see there Doctor. I went and saw the doctor who diagnosed me with vulvodynia but said there isn't anything she can do for me and that I need to get my thoughts in my head to match the thoughts in my vagina, basically telling me its all in my head. I burst into tears when I left the room. I went back to see the gynaecologist at the hospital who felt sorry for me and said it does sound like vulvodynia but she also thought it could have been down to hormones too as it takes a year for the injection to wear off. She prescribed me lidocaine gel, which to begin with really helped, I had good times and bad, sometimes it hurt more than others and there has been some weekends that it hasn't hurt at all. I noticed sometimes I felt like I had a deep bruising pain. (I thought this could be my injection wearing off) I'm starting to have periods again but they are all over the place. I saw the gynaecologist again a couple of weeks ago and she did a scan and blood tests and everything is normal... I was hoping for them to find something!!! So now I feel like I am stuck and I just don't know what I can do. MY cycle is all over the place and even using the lidocaine my burning pain is still there pretty much all of the time, my body just randomly decides when it doesn't want to hurt (very rare) please someone help or give some advice?????

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Re: Feels like there's a lot of pressure down there... Help? En

Post  Zbrown on Wed Jul 30, 2014 10:45 pm

It is awful what some doctors come off with :/ I don't really know what started mine tbh I was on cliest 4 years no problems odd spot bleeding , a healthy sex life never no pain cystis thrush was acctully never really sick :/

Then out of the blue gazillion problems Sad it is a hard thing to battle physo has helped me loads about how tight my pelvic floor was and I do understand when the skins so bad not being able to do dialators sometimes I get really sharp burning. I hope we all find something to help I think everyone's has a different cause. Steroid cream was a big no no for me it made my skin fragile I used it without even having a biopsy on my skin bad call caused skin to tear :/ have u tried any meds ? Xox

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Re: Feels like there's a lot of pressure down there... Help? En

Post  morgaan_xo on Thu Jul 31, 2014 5:20 am

Mine was bruing before it a started so wasn't a shock when it all started, just can't believe I'm
Two and a half years down the line and still no answers or help, and that's what's doctor did they just prescribeds the steroid cream by looking!!

I just need to find something that suits me, or I need more tests, my body is on a funny one at they omens and something is seriously not right!! And I'm on nortrytilin For my bladder but that hasn't made any different to my vaginal pain, have you tried any meds?xxx

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Re: Feels like there's a lot of pressure down there... Help? En

Post  Zbrown on Thu Jul 31, 2014 2:29 pm

It is crazy how unsympathetic they can be , like it's not as bad as you think crazy

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Re: Feels like there's a lot of pressure down there... Help? En

Post  morgaan_xo on Thu Jul 31, 2014 3:31 pm

It is I had one doctor tell they can't do anything and I have to live with it... It's shocking!!xxx

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Re: Feels like there's a lot of pressure down there... Help? En

Post  Zbrown on Thu Jul 31, 2014 10:27 pm

One said to me it was dermatitis learn to live with it and give me some odd cream which done nothing , but she never done any tests just visually looked ! I walked out of there in tears until I finally found this website and went to my proper gp and paid privately and just worked my wY around things from there. It is better but I still think there's room for improvement. Keep trying things will get better xxx

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Re: Feels like there's a lot of pressure down there... Help? En

Post  morgaan_xo on Mon Aug 04, 2014 9:28 am

That's exactly what everyone has been like with me and I have joined this to see if I can find help, feel like I'm stuck at a dead end at the moment!xxx

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