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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Feels like there's a lot of pressure down there... Help? En

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Feels like there's a lot of pressure down there... Help? En

Post  morgaan_xo on Tue Jul 29, 2014 9:07 pm

Kind of stuck on what to do at the moment. My lidocaine ointment is no longer numbing my pain...My burning pain seems to be getting worse before and after periods and my skin is physically sore(before and after periods)... And when it's not physically sore I have the burning pain that I normally have, and when I'm sat down and I lean forward it gets worse... Almost like it feels like there's to much pressure... Does anyone else have this problem?

morgaan_xo

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Re: Feels like there's a lot of pressure down there... Help? En

Post  Zbrown on Wed Jul 30, 2014 7:44 am

I for a few months felt the same before starting acupuncture then going to physical therapy , majority of my burning pain has lessened but the skin is still fragile and red at times and during intercourse tends to I think split and lightly bleed althowe idk if this is from using steroid ointment at the beginning has this made it fragile ? I also use dialators ATM but should be doing them more frequently. Next place I'm hoping to go is vulva dermatologist. How did your symptoms start xo

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Re: Feels like there's a lot of pressure down there... Help? En

Post  morgaan_xo on Wed Jul 30, 2014 8:16 am

My doctor seems to be set in her ways and doesn't talk about me trying new things... I'm going to suggest a lot of things to her when I next see her!! See my skin has never ripped or anything it's just very sore at times and it's tender to touch and I can't even wipe after I've had a wee... She has prescribed me dilators but they don't make any difference because my pain isn't inside or anything and when my skin is so sore I can't even wipe myself let alone use dialtors so I'm kind of stuck what to do... Because I've seen her a few times and she just keeps telling me to use the lidocaine and dialtors And I've copied what I put on my story when I first joined if you want to have a read...

I'm only 17 and I have been with my boyfriend for 3 years. I have been living with several different problems and unable to have sex for nearly 2 and a half years (the majority of my relationship). I met my boyfriend when I was 14 (I know really young) My mum wanted me on contraception and I had to go on the implant as I suffer with migraines with aura. I was fine for 3 months until I started bleeding all the time and getting cystitis all the time. The doctors were just giving me more and more hormones to stop the bleeding but nothing would work. I started to have a real problem with having sex and with my bladder. I had a constant burning pain and found it hard to urinate with out pain and my bladder would only hold 10-30ml (suppose to hold 300ml comfortably). The doctors finally took my implant out after a year of having it (September 2012, age 15) and was put on the progesterone only injection in the October to stop my bleeding (I never bled while on the injection) I still had all my problems while on the injection. I was finally referred to the hospital to see a bladder specialist (June/July 2013 age 16). I was diagnosed with bladder pain syndrome and bladder pain which I now take solifenacin and amitriptyline for. I thought my constant burning pain and pain during sex would subside along with the bladder problems but it hasn't. I also stopped taking the contraceptive injection because I thought it was down to hormones. I was referred to a gynaecologist who told me I had vaginismus without even examining me and prescribed my dilators... at this point I was willing to try anything... I became so down and it had start to take its tol on my relationship me and my boyfriend had split up last year in the October... I wasn't coping with anything at this point and went back to my bladder doctor(she was lovely) and she examined me and said my skin looked raw and prescribed me a steroid cream which I had a really bad reaction to over Christmas (was back with my boyfriend at this point) I had severe thrush and swelling so I went to the nhs who were really concerned that I was using a steroid cream for a skin condition that hasn't been diagnosed. They then examined me and said I need to come back and see there Doctor. I went and saw the doctor who diagnosed me with vulvodynia but said there isn't anything she can do for me and that I need to get my thoughts in my head to match the thoughts in my vagina, basically telling me its all in my head. I burst into tears when I left the room. I went back to see the gynaecologist at the hospital who felt sorry for me and said it does sound like vulvodynia but she also thought it could have been down to hormones too as it takes a year for the injection to wear off. She prescribed me lidocaine gel, which to begin with really helped, I had good times and bad, sometimes it hurt more than others and there has been some weekends that it hasn't hurt at all. I noticed sometimes I felt like I had a deep bruising pain. (I thought this could be my injection wearing off) I'm starting to have periods again but they are all over the place. I saw the gynaecologist again a couple of weeks ago and she did a scan and blood tests and everything is normal... I was hoping for them to find something!!! So now I feel like I am stuck and I just don't know what I can do. MY cycle is all over the place and even using the lidocaine my burning pain is still there pretty much all of the time, my body just randomly decides when it doesn't want to hurt (very rare) please someone help or give some advice?????

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Re: Feels like there's a lot of pressure down there... Help? En

Post  Zbrown on Wed Jul 30, 2014 10:45 pm

It is awful what some doctors come off with :/ I don't really know what started mine tbh I was on cliest 4 years no problems odd spot bleeding , a healthy sex life never no pain cystis thrush was acctully never really sick :/

Then out of the blue gazillion problems Sad it is a hard thing to battle physo has helped me loads about how tight my pelvic floor was and I do understand when the skins so bad not being able to do dialators sometimes I get really sharp burning. I hope we all find something to help I think everyone's has a different cause. Steroid cream was a big no no for me it made my skin fragile I used it without even having a biopsy on my skin bad call caused skin to tear :/ have u tried any meds ? Xox

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Re: Feels like there's a lot of pressure down there... Help? En

Post  morgaan_xo on Thu Jul 31, 2014 5:20 am

Mine was bruing before it a started so wasn't a shock when it all started, just can't believe I'm
Two and a half years down the line and still no answers or help, and that's what's doctor did they just prescribeds the steroid cream by looking!!

I just need to find something that suits me, or I need more tests, my body is on a funny one at they omens and something is seriously not right!! And I'm on nortrytilin For my bladder but that hasn't made any different to my vaginal pain, have you tried any meds?xxx

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Post  Zbrown on Thu Jul 31, 2014 2:29 pm

It is crazy how unsympathetic they can be , like it's not as bad as you think crazy

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Post  morgaan_xo on Thu Jul 31, 2014 3:31 pm

It is I had one doctor tell they can't do anything and I have to live with it... It's shocking!!xxx

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Post  Zbrown on Thu Jul 31, 2014 10:27 pm

One said to me it was dermatitis learn to live with it and give me some odd cream which done nothing , but she never done any tests just visually looked ! I walked out of there in tears until I finally found this website and went to my proper gp and paid privately and just worked my wY around things from there. It is better but I still think there's room for improvement. Keep trying things will get better xxx

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Re: Feels like there's a lot of pressure down there... Help? En

Post  morgaan_xo on Mon Aug 04, 2014 9:28 am

That's exactly what everyone has been like with me and I have joined this to see if I can find help, feel like I'm stuck at a dead end at the moment!xxx

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