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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Feels like there's a lot of pressure down there... Help? En

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Feels like there's a lot of pressure down there... Help? En

Post  morgaan_xo on Tue Jul 29, 2014 9:07 pm

Kind of stuck on what to do at the moment. My lidocaine ointment is no longer numbing my pain...My burning pain seems to be getting worse before and after periods and my skin is physically sore(before and after periods)... And when it's not physically sore I have the burning pain that I normally have, and when I'm sat down and I lean forward it gets worse... Almost like it feels like there's to much pressure... Does anyone else have this problem?

morgaan_xo

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Re: Feels like there's a lot of pressure down there... Help? En

Post  Zbrown on Wed Jul 30, 2014 7:44 am

I for a few months felt the same before starting acupuncture then going to physical therapy , majority of my burning pain has lessened but the skin is still fragile and red at times and during intercourse tends to I think split and lightly bleed althowe idk if this is from using steroid ointment at the beginning has this made it fragile ? I also use dialators ATM but should be doing them more frequently. Next place I'm hoping to go is vulva dermatologist. How did your symptoms start xo

Zbrown

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Re: Feels like there's a lot of pressure down there... Help? En

Post  morgaan_xo on Wed Jul 30, 2014 8:16 am

My doctor seems to be set in her ways and doesn't talk about me trying new things... I'm going to suggest a lot of things to her when I next see her!! See my skin has never ripped or anything it's just very sore at times and it's tender to touch and I can't even wipe after I've had a wee... She has prescribed me dilators but they don't make any difference because my pain isn't inside or anything and when my skin is so sore I can't even wipe myself let alone use dialtors so I'm kind of stuck what to do... Because I've seen her a few times and she just keeps telling me to use the lidocaine and dialtors And I've copied what I put on my story when I first joined if you want to have a read...

I'm only 17 and I have been with my boyfriend for 3 years. I have been living with several different problems and unable to have sex for nearly 2 and a half years (the majority of my relationship). I met my boyfriend when I was 14 (I know really young) My mum wanted me on contraception and I had to go on the implant as I suffer with migraines with aura. I was fine for 3 months until I started bleeding all the time and getting cystitis all the time. The doctors were just giving me more and more hormones to stop the bleeding but nothing would work. I started to have a real problem with having sex and with my bladder. I had a constant burning pain and found it hard to urinate with out pain and my bladder would only hold 10-30ml (suppose to hold 300ml comfortably). The doctors finally took my implant out after a year of having it (September 2012, age 15) and was put on the progesterone only injection in the October to stop my bleeding (I never bled while on the injection) I still had all my problems while on the injection. I was finally referred to the hospital to see a bladder specialist (June/July 2013 age 16). I was diagnosed with bladder pain syndrome and bladder pain which I now take solifenacin and amitriptyline for. I thought my constant burning pain and pain during sex would subside along with the bladder problems but it hasn't. I also stopped taking the contraceptive injection because I thought it was down to hormones. I was referred to a gynaecologist who told me I had vaginismus without even examining me and prescribed my dilators... at this point I was willing to try anything... I became so down and it had start to take its tol on my relationship me and my boyfriend had split up last year in the October... I wasn't coping with anything at this point and went back to my bladder doctor(she was lovely) and she examined me and said my skin looked raw and prescribed me a steroid cream which I had a really bad reaction to over Christmas (was back with my boyfriend at this point) I had severe thrush and swelling so I went to the nhs who were really concerned that I was using a steroid cream for a skin condition that hasn't been diagnosed. They then examined me and said I need to come back and see there Doctor. I went and saw the doctor who diagnosed me with vulvodynia but said there isn't anything she can do for me and that I need to get my thoughts in my head to match the thoughts in my vagina, basically telling me its all in my head. I burst into tears when I left the room. I went back to see the gynaecologist at the hospital who felt sorry for me and said it does sound like vulvodynia but she also thought it could have been down to hormones too as it takes a year for the injection to wear off. She prescribed me lidocaine gel, which to begin with really helped, I had good times and bad, sometimes it hurt more than others and there has been some weekends that it hasn't hurt at all. I noticed sometimes I felt like I had a deep bruising pain. (I thought this could be my injection wearing off) I'm starting to have periods again but they are all over the place. I saw the gynaecologist again a couple of weeks ago and she did a scan and blood tests and everything is normal... I was hoping for them to find something!!! So now I feel like I am stuck and I just don't know what I can do. MY cycle is all over the place and even using the lidocaine my burning pain is still there pretty much all of the time, my body just randomly decides when it doesn't want to hurt (very rare) please someone help or give some advice?????

morgaan_xo

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Re: Feels like there's a lot of pressure down there... Help? En

Post  Zbrown on Wed Jul 30, 2014 10:45 pm

It is awful what some doctors come off with :/ I don't really know what started mine tbh I was on cliest 4 years no problems odd spot bleeding , a healthy sex life never no pain cystis thrush was acctully never really sick :/

Then out of the blue gazillion problems Sad it is a hard thing to battle physo has helped me loads about how tight my pelvic floor was and I do understand when the skins so bad not being able to do dialators sometimes I get really sharp burning. I hope we all find something to help I think everyone's has a different cause. Steroid cream was a big no no for me it made my skin fragile I used it without even having a biopsy on my skin bad call caused skin to tear :/ have u tried any meds ? Xox

Zbrown

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Re: Feels like there's a lot of pressure down there... Help? En

Post  morgaan_xo on Thu Jul 31, 2014 5:20 am

Mine was bruing before it a started so wasn't a shock when it all started, just can't believe I'm
Two and a half years down the line and still no answers or help, and that's what's doctor did they just prescribeds the steroid cream by looking!!

I just need to find something that suits me, or I need more tests, my body is on a funny one at they omens and something is seriously not right!! And I'm on nortrytilin For my bladder but that hasn't made any different to my vaginal pain, have you tried any meds?xxx

morgaan_xo

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Re: Feels like there's a lot of pressure down there... Help? En

Post  Zbrown on Thu Jul 31, 2014 2:29 pm

It is crazy how unsympathetic they can be , like it's not as bad as you think crazy

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Re: Feels like there's a lot of pressure down there... Help? En

Post  morgaan_xo on Thu Jul 31, 2014 3:31 pm

It is I had one doctor tell they can't do anything and I have to live with it... It's shocking!!xxx

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Re: Feels like there's a lot of pressure down there... Help? En

Post  Zbrown on Thu Jul 31, 2014 10:27 pm

One said to me it was dermatitis learn to live with it and give me some odd cream which done nothing , but she never done any tests just visually looked ! I walked out of there in tears until I finally found this website and went to my proper gp and paid privately and just worked my wY around things from there. It is better but I still think there's room for improvement. Keep trying things will get better xxx

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Re: Feels like there's a lot of pressure down there... Help? En

Post  morgaan_xo on Mon Aug 04, 2014 9:28 am

That's exactly what everyone has been like with me and I have joined this to see if I can find help, feel like I'm stuck at a dead end at the moment!xxx

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