Vulvodynia Support
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    » Hope to all my suffering ladies
    :'( rock bottom EmptyFri Oct 23, 2020 12:04 am by ringostarr26

    » Please tell me this can get better
    :'( rock bottom EmptySat Jul 18, 2020 7:38 pm by sammykramer

    » By no means cured, but doing much better!
    :'( rock bottom EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

    » How I cured my Vulvodynia!
    :'( rock bottom EmptySat Dec 07, 2019 11:54 am by Millie

    » 7 months since the diagnosis
    :'( rock bottom EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    :'( rock bottom EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    :'( rock bottom EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    :'( rock bottom EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    :'( rock bottom EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


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    Post  sailor_moon Sun Aug 03, 2014 10:44 am

    Well, lucky I see a new doctor in 2 days.

    These past few days I have been IN PAIN.

    So, I didn't get my period for 68 days last time round. It was hell when I finally got them.

    I am 21 days since my last period and over the past 3 days I have been expiriencing chronic pain on my right ovary area, as well as come-and-go widespread period-like cramps. I have had a HUGE excessive amount of clear slimy (like rhe slime toys kids play with) sticky discharge coming out of me. I can't go to the loo without big clumps of it coming out of me. I feel like this discharge burns my skin....maybe it is just a coincidence that my burning skin is just flared up by everything else?


    My boobs are extremely sore....even showering is hurting when the water hits my chest. I am also getting pain in my lower back.

    One would say this is normal ovulation but I really don't believe it is, not to this extent.

    Knowing my luck, it will all have cleared up by the time I see the doctor Sad

    I broke down and cried and cried in the shower. I am so scared this new doctor won't have a clue. And I am scared I will be in too much pain to work....my boss has already threatened to fire me over the ordeal having so much time off being ill. Very scary when I have a mortgage to pay and expensive doctors bills.

    I am in a state of mind that I am going to be stuck like this forever. My relationship with my husband is deteriorating, with both of us only being in our 20's, we have so much life left to live. My husband deserves a wife he can have sex with and enjoy life with, one that can willingly give him a child. He deserves so much better than the bullshit I have given him for the past year and a half. He has been very supportive but I feel so guilty. I think about separating from him for his own good, so he can find someone "normal", he is such an amazing man and I feel like such a burden. I don't want to be the one who drags him down from living a happy life. :'(

    It has gotten to the point where I have told my mum and my husband that I wish I was dead. I'm on antidepressants but they have done f*ck all except make me more nauseated and vomit more than I already do.

    This is not how I imagined my life to be. I just keep asking myself what the f*ck have I done to deserve this.

    Sorry about the self-pity party. I just don't know what to do anymore. I don't know who I am anymore. I hate what this thing has turned me into Sad


    sailor_moon
    sailor_moon

    Posts : 222
    Join date : 2014-07-06
    Location : Australia

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    Post  zarli Sun Aug 03, 2014 11:51 am

    Ok lets start with you. . Can you get a sample of this discharge and take a photo of it. I know sounds yuk but I feel it would help to show the doctor. Do you live near an A and E department ? If I were you I would go while you are the way you are right now. Its time to get help lean on emergency room staff. The pain is not normal and you need answers immediately. If you were my daughter I would take you up to an A and E as you are atm.
    As for your husband forget all that bullshit talk how he deserves someone better. During your life together he will need you for something and you will be there. You need to put you first...I mean you have to come first right now in this present moment. Forget all your other negative thoughts cause thats all they are and you are thinking that way because your not well. I wish I lived near you I would come and get you to emergency because sometimes thats what it takes. You sound like a strong women but now its time to lean on help. You will get help and you wont be like it forever. I drove myself to an after hours clinic at 1 in the morning. Get help asap please. Don't keep waiting its your body you have to love it and take the best action for it and it may take your rock bottom t lo insist on help. How far is your public hospital away ?

    zarli

    Posts : 182
    Join date : 2013-08-11
    Location : Australia

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    Post  zarli Sun Aug 03, 2014 12:17 pm

    Also don't be frightened to use A and E departments for pain there free and sometimes they do all the tests and keep you in overnight. I am not being dramatic im just saying its your body and you know its not right.

    zarli

    Posts : 182
    Join date : 2013-08-11
    Location : Australia

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