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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Shut up, Put up....

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Shut up, Put up....

Post  naomi on Fri Nov 19, 2010 8:44 pm

....I dont bloody think so mr!!!

cock.

SO the gynae consultant has once again joined the others and 'passed the buck'.

Told me that I shouldnt bother looking for a cure/treatment as there really isnt any point. I should just deal with it and have pain management. So I told him to FUCK RIGHT OFFFFFF! His reasons were that in England its all to do with money, the wont fund into the research of all our gynae conditions. I asked him to tell me something I dont know.

ok i didnt tell him to f off but I say "call me a stubborn bitch but I will not sit her and put up with it, risk my happiness, and make do...with no sex life, kids etc etc" If we all sat there and did fuck all where would we be now?!...living in caves still! I asked him if his nether regions were showing the same symptoms would he sit there and put up with it....he then change then subject mr!!

I asked him to refer me to someone else he can suggest.. and he couldnt even do that!

So onwards I battle on! So tired of it all i feel like i havent got any more fight left in me....for this week anyway Smile

I just realised I havent sworn enough in my post....ARSE FUCKIDY FUCKING TOSSPOT DICKHEAD GYNAE CONSULTANT THAT CANT THINK OUTSIDE THE FUCKING TWATING BOX!!!!!!!!

there...i think i have had my quota of venting words now Smile

tits

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Re: Shut up, Put up....

Post  Sarah001 on Sat Nov 20, 2010 9:11 pm

Have you been to a vulva clinic Naomi? I can't recall if you said you had or not but if not maybe one of these doctors could refer you to one? I find practically all doctors know next to nothing about this because they don't know why the problem is there to begin with so don't know which angle to approach it from. Or what about a pain clinic to try and find effective medication? I know you're like me and have the inflamed skin aspect too (lucky us) but the pain is still transmitted through nerves and nerves can cause inflammation so meds might help.

I totally understand how frustrated you feel though, perhaps it's time to start investigating more yourself and see if you can figure out why it's there Suspect and which direction to go in.

By the way your last little "tits" did make me laugh!! Laughing
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Re: Shut up, Put up....

Post  naomi on Sun Nov 21, 2010 5:35 pm

yeh im waiting on a referral still for pain clinic.

And now Ive gona down the nhs route and secured my benefits (for the time being anyway) I will continue with the Dr Crandall theory as that one still seems to be one explanation which is the closest to matching my symptoms. Its just a case of finding a doctor that will support me in the uk and dish out the meds. As its so far fetched in the uk and not the norm none of the consultants ive seen will support me.

The clinic Ive been going to was a vulval clinic and now between the pair of consultants i saw in this joint clinic noether of them could suggest where i go or who i see next...useless!! so it looks like its down to me again, no surprise there!!

Makes me want to punish a punish bag!!! failing that if u tell me where ur ex is sarah i could kill two birds so to speak!hehe! and cheryl cole is a nob. scuse my french.
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Re: Shut up, Put up....

Post  Sarah001 on Sun Nov 21, 2010 8:00 pm

Ha ha, best add punch bag to your santa list! Funnily enough I expected to have to sort this out myself, I've had years of doctors ignoring my joint problems and leaving me to spend thousands on private physio when it turned out to be a genetic condition they'd missed and can't be cured by physio so I'm pretty pissed off at the amount of time and money I've spent on that (about 15 grand over the years they ignored me) and the fact it's robbed me of most of my life. If they'd listened sooner it might not have got to the vulvodynia stage so I'm very annoyed at the medical profession in general too.

On a positive note though my hairdresser was telling me about her knee problems a while ago and after being given the run around she decided to see a pilates teacher who immediately spotted a problem around the hip and pelvic joint and helped her solve it. The one thing she didn't tell me at the time though was she had bright red skin in her vulva (like us) and felt like she had a constant really bad case of thrush that wouldn't go until she stabilised her hip and pelvis so it could well be a mechanical problem for you (I know it is for me!) and that can include the red inflamed skin. Maybe a referral to a general physio to have a look at your hips, pelvis and spine might be a good plan? Get what you can from the NHS before the Tories completely destroy it!

I suspect I'll end up at a pain clinic in the future too, I'm trying to sort that side of stuff out without having to wait for a referral and at least the vulvar dermatologist is good for prescribing me medication if she isn't good for anything else! It's crap that the people you've seen are at a vulvar clinic, I was keeping that option in reserve but it seems it's pointless!

I've got weird burning down the front of my thighs today too so I can't wait to see my physio again (about 2 weeks away) to see what she makes of that! I'm thinking something's probably irritating my ilioinguinal or genitofemoral nerves so I've spent most of the day googling to try and piece it all together Rolling Eyes I can't help it, I'm a geek! Laughing
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you tell him!!!

Post  sadone on Tue Dec 27, 2011 11:47 pm

I asked him if his nether regions were showing the same symptoms would he sit there and put up with it....he then change then subject mr!!"

love that you had the guts to tell the gyn this, naomi!

glad it made him so uncomfortable, that he had to change the subject. insensitive jerk!
he deserved that! some people need to be shocked in order to get them to think straight!
sheeeeeesh!!

you go girl!

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Re: Shut up, Put up....

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