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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Shut up, Put up....

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Shut up, Put up....

Post  naomi on Fri Nov 19, 2010 8:44 pm

....I dont bloody think so mr!!!

cock.

SO the gynae consultant has once again joined the others and 'passed the buck'.

Told me that I shouldnt bother looking for a cure/treatment as there really isnt any point. I should just deal with it and have pain management. So I told him to FUCK RIGHT OFFFFFF! His reasons were that in England its all to do with money, the wont fund into the research of all our gynae conditions. I asked him to tell me something I dont know.

ok i didnt tell him to f off but I say "call me a stubborn bitch but I will not sit her and put up with it, risk my happiness, and make do...with no sex life, kids etc etc" If we all sat there and did fuck all where would we be now?!...living in caves still! I asked him if his nether regions were showing the same symptoms would he sit there and put up with it....he then change then subject mr!!

I asked him to refer me to someone else he can suggest.. and he couldnt even do that!

So onwards I battle on! So tired of it all i feel like i havent got any more fight left in me....for this week anyway Smile

I just realised I havent sworn enough in my post....ARSE FUCKIDY FUCKING TOSSPOT DICKHEAD GYNAE CONSULTANT THAT CANT THINK OUTSIDE THE FUCKING TWATING BOX!!!!!!!!

there...i think i have had my quota of venting words now Smile

tits

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Re: Shut up, Put up....

Post  Sarah001 on Sat Nov 20, 2010 9:11 pm

Have you been to a vulva clinic Naomi? I can't recall if you said you had or not but if not maybe one of these doctors could refer you to one? I find practically all doctors know next to nothing about this because they don't know why the problem is there to begin with so don't know which angle to approach it from. Or what about a pain clinic to try and find effective medication? I know you're like me and have the inflamed skin aspect too (lucky us) but the pain is still transmitted through nerves and nerves can cause inflammation so meds might help.

I totally understand how frustrated you feel though, perhaps it's time to start investigating more yourself and see if you can figure out why it's there Suspect and which direction to go in.

By the way your last little "tits" did make me laugh!! Laughing
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Re: Shut up, Put up....

Post  naomi on Sun Nov 21, 2010 5:35 pm

yeh im waiting on a referral still for pain clinic.

And now Ive gona down the nhs route and secured my benefits (for the time being anyway) I will continue with the Dr Crandall theory as that one still seems to be one explanation which is the closest to matching my symptoms. Its just a case of finding a doctor that will support me in the uk and dish out the meds. As its so far fetched in the uk and not the norm none of the consultants ive seen will support me.

The clinic Ive been going to was a vulval clinic and now between the pair of consultants i saw in this joint clinic noether of them could suggest where i go or who i see next...useless!! so it looks like its down to me again, no surprise there!!

Makes me want to punish a punish bag!!! failing that if u tell me where ur ex is sarah i could kill two birds so to speak!hehe! and cheryl cole is a nob. scuse my french.
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Re: Shut up, Put up....

Post  Sarah001 on Sun Nov 21, 2010 8:00 pm

Ha ha, best add punch bag to your santa list! Funnily enough I expected to have to sort this out myself, I've had years of doctors ignoring my joint problems and leaving me to spend thousands on private physio when it turned out to be a genetic condition they'd missed and can't be cured by physio so I'm pretty pissed off at the amount of time and money I've spent on that (about 15 grand over the years they ignored me) and the fact it's robbed me of most of my life. If they'd listened sooner it might not have got to the vulvodynia stage so I'm very annoyed at the medical profession in general too.

On a positive note though my hairdresser was telling me about her knee problems a while ago and after being given the run around she decided to see a pilates teacher who immediately spotted a problem around the hip and pelvic joint and helped her solve it. The one thing she didn't tell me at the time though was she had bright red skin in her vulva (like us) and felt like she had a constant really bad case of thrush that wouldn't go until she stabilised her hip and pelvis so it could well be a mechanical problem for you (I know it is for me!) and that can include the red inflamed skin. Maybe a referral to a general physio to have a look at your hips, pelvis and spine might be a good plan? Get what you can from the NHS before the Tories completely destroy it!

I suspect I'll end up at a pain clinic in the future too, I'm trying to sort that side of stuff out without having to wait for a referral and at least the vulvar dermatologist is good for prescribing me medication if she isn't good for anything else! It's crap that the people you've seen are at a vulvar clinic, I was keeping that option in reserve but it seems it's pointless!

I've got weird burning down the front of my thighs today too so I can't wait to see my physio again (about 2 weeks away) to see what she makes of that! I'm thinking something's probably irritating my ilioinguinal or genitofemoral nerves so I've spent most of the day googling to try and piece it all together Rolling Eyes I can't help it, I'm a geek! Laughing
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you tell him!!!

Post  sadone on Tue Dec 27, 2011 11:47 pm

I asked him if his nether regions were showing the same symptoms would he sit there and put up with it....he then change then subject mr!!"

love that you had the guts to tell the gyn this, naomi!

glad it made him so uncomfortable, that he had to change the subject. insensitive jerk!
he deserved that! some people need to be shocked in order to get them to think straight!
sheeeeeesh!!

you go girl!

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Re: Shut up, Put up....

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