Vulvodynia Support
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» Hope to all my suffering ladies
Shut up, Put up.... EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Shut up, Put up.... EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Shut up, Put up.... EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Shut up, Put up.... EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Shut up, Put up.... EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Shut up, Put up.... EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Shut up, Put up.... EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Shut up, Put up.... EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Shut up, Put up.... EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Shut up, Put up....

3 posters

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Shut up, Put up.... Empty Shut up, Put up....

Post  naomi Fri Nov 19, 2010 8:44 pm

....I dont bloody think so mr!!!

cock.

SO the gynae consultant has once again joined the others and 'passed the buck'.

Told me that I shouldnt bother looking for a cure/treatment as there really isnt any point. I should just deal with it and have pain management. So I told him to FUCK RIGHT OFFFFFF! His reasons were that in England its all to do with money, the wont fund into the research of all our gynae conditions. I asked him to tell me something I dont know.

ok i didnt tell him to f off but I say "call me a stubborn bitch but I will not sit her and put up with it, risk my happiness, and make do...with no sex life, kids etc etc" If we all sat there and did fuck all where would we be now?!...living in caves still! I asked him if his nether regions were showing the same symptoms would he sit there and put up with it....he then change then subject mr!!

I asked him to refer me to someone else he can suggest.. and he couldnt even do that!

So onwards I battle on! So tired of it all i feel like i havent got any more fight left in me....for this week anyway Smile

I just realised I havent sworn enough in my post....ARSE FUCKIDY FUCKING TOSSPOT DICKHEAD GYNAE CONSULTANT THAT CANT THINK OUTSIDE THE FUCKING TWATING BOX!!!!!!!!

there...i think i have had my quota of venting words now Smile

tits

naomi
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

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Post  Sarah001 Sat Nov 20, 2010 9:11 pm

Have you been to a vulva clinic Naomi? I can't recall if you said you had or not but if not maybe one of these doctors could refer you to one? I find practically all doctors know next to nothing about this because they don't know why the problem is there to begin with so don't know which angle to approach it from. Or what about a pain clinic to try and find effective medication? I know you're like me and have the inflamed skin aspect too (lucky us) but the pain is still transmitted through nerves and nerves can cause inflammation so meds might help.

I totally understand how frustrated you feel though, perhaps it's time to start investigating more yourself and see if you can figure out why it's there Suspect and which direction to go in.

By the way your last little "tits" did make me laugh!! Laughing
Sarah001
Sarah001

Posts : 1164
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Age : 50
Location : UK

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Post  naomi Sun Nov 21, 2010 5:35 pm

yeh im waiting on a referral still for pain clinic.

And now Ive gona down the nhs route and secured my benefits (for the time being anyway) I will continue with the Dr Crandall theory as that one still seems to be one explanation which is the closest to matching my symptoms. Its just a case of finding a doctor that will support me in the uk and dish out the meds. As its so far fetched in the uk and not the norm none of the consultants ive seen will support me.

The clinic Ive been going to was a vulval clinic and now between the pair of consultants i saw in this joint clinic noether of them could suggest where i go or who i see next...useless!! so it looks like its down to me again, no surprise there!!

Makes me want to punish a punish bag!!! failing that if u tell me where ur ex is sarah i could kill two birds so to speak!hehe! and cheryl cole is a nob. scuse my french.
naomi
naomi
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Posts : 262
Join date : 2010-04-09
Location : Cheltenham

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Post  Sarah001 Sun Nov 21, 2010 8:00 pm

Ha ha, best add punch bag to your santa list! Funnily enough I expected to have to sort this out myself, I've had years of doctors ignoring my joint problems and leaving me to spend thousands on private physio when it turned out to be a genetic condition they'd missed and can't be cured by physio so I'm pretty pissed off at the amount of time and money I've spent on that (about 15 grand over the years they ignored me) and the fact it's robbed me of most of my life. If they'd listened sooner it might not have got to the vulvodynia stage so I'm very annoyed at the medical profession in general too.

On a positive note though my hairdresser was telling me about her knee problems a while ago and after being given the run around she decided to see a pilates teacher who immediately spotted a problem around the hip and pelvic joint and helped her solve it. The one thing she didn't tell me at the time though was she had bright red skin in her vulva (like us) and felt like she had a constant really bad case of thrush that wouldn't go until she stabilised her hip and pelvis so it could well be a mechanical problem for you (I know it is for me!) and that can include the red inflamed skin. Maybe a referral to a general physio to have a look at your hips, pelvis and spine might be a good plan? Get what you can from the NHS before the Tories completely destroy it!

I suspect I'll end up at a pain clinic in the future too, I'm trying to sort that side of stuff out without having to wait for a referral and at least the vulvar dermatologist is good for prescribing me medication if she isn't good for anything else! It's crap that the people you've seen are at a vulvar clinic, I was keeping that option in reserve but it seems it's pointless!

I've got weird burning down the front of my thighs today too so I can't wait to see my physio again (about 2 weeks away) to see what she makes of that! I'm thinking something's probably irritating my ilioinguinal or genitofemoral nerves so I've spent most of the day googling to try and piece it all together Rolling Eyes I can't help it, I'm a geek! Laughing
Sarah001
Sarah001

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Shut up, Put up.... Empty you tell him!!!

Post  sadone Tue Dec 27, 2011 11:47 pm

I asked him if his nether regions were showing the same symptoms would he sit there and put up with it....he then change then subject mr!!"

love that you had the guts to tell the gyn this, naomi!

glad it made him so uncomfortable, that he had to change the subject. insensitive jerk!
he deserved that! some people need to be shocked in order to get them to think straight!
sheeeeeesh!!

you go girl!

sadone

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