Log in

I forgot my password

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


New here, diagnosed 2 years ago

View previous topic View next topic Go down

New here, diagnosed 2 years ago

Post  mythreesons on Wed Jul 30, 2014 8:17 pm

I'm Teri from Alberta, Canada. I was diagnosed with Vulvodynia 2 years ago after 2 months of terrible burning pain that doctors could find no reason for. I started taking Elavil (30 mg per day) and Vagifem 2 times/week. That kept symptoms mostly under control for almost 2 full years. About 6 weeks ago, I started my first major flare-up for reasons unknown and can't seem to get it under control again. My doctor is very uneducated on this condition and I'm in the process of trying to find a new doctor.

I'm trying to follow the low oxalate diet, but have found conflicting info on it. Some sites list certain foods that are okay while other sites say to avoid. How do I know which list to follow? I've also been taking calcium citrate for about 3 weeks (1200 mg per day). I've had some improvement since the start of this flare-up, but I'm a very long way from total relief. Some days are much worse than others. I'm feeling very lost.

mythreesons

Posts : 4
Join date : 2014-07-30

View user profile

Back to top Go down

Re: New here, diagnosed 2 years ago

Post  zarli on Thu Jul 31, 2014 6:13 am

It is so hard and understandable that you are feeling lost. You have been going through this for2 years. Keep researching doctors in your area you will find one that helps it can be along process. It is great that something worked for 2 years that means something will work again you might need your meds updated. Kind thoughts sent your way

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: New here, diagnosed 2 years ago

Post  Alana3 on Thu Jul 31, 2014 1:08 pm

I am not sure about the oxalate diet.  But there is a website solely for the purpose of vulvodynia.  (vulvodynia.com I think) I would go with what they say! Low to NO sugar, no yeast, it's pretty much a gluten free diet.  I couldn't do it I love food too much!  Maybe you should do a cleanse and then slowly add food back in your diet and see what effects you!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New here, diagnosed 2 years ago

Post  sailor_moon on Thu Jul 31, 2014 9:44 pm

You poor thing! Needless to say you have come to the right place being on here. All the girls are amazing and very informative too Smile

How old are you? What tests and investigations have the doctors actually done on you?
avatar
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

View user profile

Back to top Go down

Re: New here, diagnosed 2 years ago

Post  mythreesons on Sat Aug 02, 2014 12:54 am

Thank you. I am 45. Honestly, nothing has been done since I first started suffering 2 years ago. At that time, my doctor checked my hormone levels, tested me for STD's, yeast and BV. Despite testing negative for yeast, I was put on Fluconazole for a month, which did nothing. My doctor then gave me a steroid cream thinking perhaps I had lichen sclerosis (despite the fact my vulva did not appear as it would if I had this). Didn't help. After everything else failed, I was diagnosed as having vulvodynia. Like I said, treatment worked for 2 years so I've done no further investigating into finding a cause for my symptoms (if a cause can ever be found).

mythreesons

Posts : 4
Join date : 2014-07-30

View user profile

Back to top Go down

Re: New here, diagnosed 2 years ago

Post  sailor_moon on Sat Aug 02, 2014 1:04 am

Is your doctor a specialist? A Gynecologist or Vulva specialist? If not you need to find a different doctor who knows what they are doing.

Now, I know what it is like to deal with incompetent doctors, I am seeing a new doctor in 3 days time and I have done my research with hormones! A basic blood test will NOT show a hormone imbalance most of the time. You need to get a special 24hour urine test, saliva test and special blood tests done. I will be asking this new doctor to do this for me because I believe my problem is hormonal.

Have you had a biopsy done? They are nowhere near as bad as people say, I have had 2 done and you literally can not tell where they got done! If you do have lichen sclerosis a biopsy will confirm it.

I have been like this for a year and a half, this new doctor will be doctor number 12! I will not give up until I find a cure for myself!

Do you have any other symptoms? Or are you totally healthy otherwise?
avatar
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

View user profile

Back to top Go down

Re: New here, diagnosed 2 years ago

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum