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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


New here, diagnosed 2 years ago

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New here, diagnosed 2 years ago

Post  mythreesons on Wed Jul 30, 2014 8:17 pm

I'm Teri from Alberta, Canada. I was diagnosed with Vulvodynia 2 years ago after 2 months of terrible burning pain that doctors could find no reason for. I started taking Elavil (30 mg per day) and Vagifem 2 times/week. That kept symptoms mostly under control for almost 2 full years. About 6 weeks ago, I started my first major flare-up for reasons unknown and can't seem to get it under control again. My doctor is very uneducated on this condition and I'm in the process of trying to find a new doctor.

I'm trying to follow the low oxalate diet, but have found conflicting info on it. Some sites list certain foods that are okay while other sites say to avoid. How do I know which list to follow? I've also been taking calcium citrate for about 3 weeks (1200 mg per day). I've had some improvement since the start of this flare-up, but I'm a very long way from total relief. Some days are much worse than others. I'm feeling very lost.

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Re: New here, diagnosed 2 years ago

Post  zarli on Thu Jul 31, 2014 6:13 am

It is so hard and understandable that you are feeling lost. You have been going through this for2 years. Keep researching doctors in your area you will find one that helps it can be along process. It is great that something worked for 2 years that means something will work again you might need your meds updated. Kind thoughts sent your way

zarli

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Re: New here, diagnosed 2 years ago

Post  Alana3 on Thu Jul 31, 2014 1:08 pm

I am not sure about the oxalate diet.  But there is a website solely for the purpose of vulvodynia.  (vulvodynia.com I think) I would go with what they say! Low to NO sugar, no yeast, it's pretty much a gluten free diet.  I couldn't do it I love food too much!  Maybe you should do a cleanse and then slowly add food back in your diet and see what effects you!

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Re: New here, diagnosed 2 years ago

Post  sailor_moon on Thu Jul 31, 2014 9:44 pm

You poor thing! Needless to say you have come to the right place being on here. All the girls are amazing and very informative too Smile

How old are you? What tests and investigations have the doctors actually done on you?
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Re: New here, diagnosed 2 years ago

Post  mythreesons on Sat Aug 02, 2014 12:54 am

Thank you. I am 45. Honestly, nothing has been done since I first started suffering 2 years ago. At that time, my doctor checked my hormone levels, tested me for STD's, yeast and BV. Despite testing negative for yeast, I was put on Fluconazole for a month, which did nothing. My doctor then gave me a steroid cream thinking perhaps I had lichen sclerosis (despite the fact my vulva did not appear as it would if I had this). Didn't help. After everything else failed, I was diagnosed as having vulvodynia. Like I said, treatment worked for 2 years so I've done no further investigating into finding a cause for my symptoms (if a cause can ever be found).

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Re: New here, diagnosed 2 years ago

Post  sailor_moon on Sat Aug 02, 2014 1:04 am

Is your doctor a specialist? A Gynecologist or Vulva specialist? If not you need to find a different doctor who knows what they are doing.

Now, I know what it is like to deal with incompetent doctors, I am seeing a new doctor in 3 days time and I have done my research with hormones! A basic blood test will NOT show a hormone imbalance most of the time. You need to get a special 24hour urine test, saliva test and special blood tests done. I will be asking this new doctor to do this for me because I believe my problem is hormonal.

Have you had a biopsy done? They are nowhere near as bad as people say, I have had 2 done and you literally can not tell where they got done! If you do have lichen sclerosis a biopsy will confirm it.

I have been like this for a year and a half, this new doctor will be doctor number 12! I will not give up until I find a cure for myself!

Do you have any other symptoms? Or are you totally healthy otherwise?
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Re: New here, diagnosed 2 years ago

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