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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


New Here ~~~~

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New Here ~~~~

Post  daisiesfordays on Mon Aug 04, 2014 5:07 am

Hi all,  I love you 
I'm new here!
I'm a junior in college and was recently diagnosed with VVS. I had been taking birth control for the past year and 2 months before getting diagnosed, since it was the only thing that worked for my skin. Of course, I'm one of those people who hates hates hates blood, so I would always skip the sugar pills and start a new pack.
I got a yeast infection once, and didn't think much that the applicator hurt to use. The YI went away, but I went to gynecologist anyways. When she swabbed me, I nearly fell off the table! She was surprised and asked if I had any problems with tampons (I hadn't in the past).
Long story short, YI came back because of antibiotic she prescribed me. It was awful and the gynecologist couldn't even examine me because just touching the vestibule with a q-tip set me off the table.
By now, I'm on my third doctor. I just finished my period (had stopped taking BC pills) and the itching came back. I was getting really tired of taking Diflucan, so I looked for some home remedies. I tried Gentian Violet, which only ended up burning my vagina. Really fun! (I think that's why I'm having issues now).

I finally found a specialist in my city, nonetheless. I went to visit him, and he diagnosed me with VVS and secondary vaginismus. He said it was due to my BC pills. So basically, I can never take those bad boys again. I've been using estrace cream which helped a TON, but ever since I started on spirolonactone 2 days ago, it's been acting up again. I just feel burning on the left side, but it's not ALL the time? And it's not super painful, just annoying! Any advice?
Thanks! Nice to meet all of y'all

daisiesfordays

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Hi there!

Post  907hopeful on Mon Aug 04, 2014 10:51 pm

I just got a note that you posted on one of my old posts. I have not been on this forum for a while. I don't have time to write my whole story out, but you might be able to find it if you search for my old posts. In a nutshell I have vulvodynia which started out as irritation when I used tampons and through multiple creams and treatments later ended up as severe burning and vestibulitis. I found a dr in AZ and spent lots of money to travel and see him. He has been an absolute life saver. He retired from the Mayo clinic and opened up a clinic just to treat chronic vulvar/vaginal issues. I am on month 4 of treatment and would say I feel 75-80% better. Google him - Dr Fowler in AZ. His website seems a little quirky (more like a business than a dr's office), but he knows his stuff! He has me on a regime of anti-fungal, anti-bacterial and estrogen creams. Send me a message if you want to know more. And keep your head up. This is a nasty disease and it is easy to get depressed and feel alone and isolated. Ive joined another chat board that has been very helpful and has pulled me through this mess. Having a support network is priceless!

907hopeful

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Re: New Here ~~~~

Post  sailor_moon on Tue Aug 05, 2014 8:54 pm

Welcome to the forum! Smile

Do you have any other symptoms besides the vulvodynia? How old are you?

What makes the doctor say that BC pills caused the problem? Has the doctor done a 4 week blood test? Doind a blood test once a week to see what your hormones are actually doing? Hormone imbalance can cause a lot of issues, especially if you have come off the pill. I am just about to go through this test nyself after seeing over 10 useless doctors who would not check my hormones.

If it is on your left side only it may be nerves, or it could be to do with an internal issue. There are so so many different things that could be causing it.
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sailor_moon

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Re: New Here ~~~~

Post  daisiesfordays on Wed Aug 06, 2014 2:26 am

907hopeful -
I'll definitely send you a message! I go to Dr. Brooks at AZ Vulva Clinic.

sailor_moon -
Thanks!
Nope, this is it. I'm 19. I had never had any issues before I took BC, and after stopping it for a month and applying Estrace cream to the opening, the q-tip test no longer hurt, just felt a little sensitive when I was swabbed, but no way like when I almost fell off the table the first time!
I went in yesterday, (his nurse had seen me about 3 weeks ago and noted that the skin was looking much better) and he noted there was a lot of redness and tenderness now. I think it may be due to my taking of spironolactone (anti-androgen). It was only after I started taking it that I started feeling uncomfortable again down there (after a month of feeling GREAT!!! I was able to use the 5th dilator in the pure romance set with very little pain, just some discomfort from the stretching) and I was doing some research today, it seems that the vestibule needs a balance of testosterone/estrogen, and my theory is that my testosterone level was already low, so the anti-androgen therapy (again, for my face  tongue ) could've reduced it so much that it was near 0! I'm debating getting a hormonal blood test done when I go in to get a shot at my GP on thursday. Although, am going to go see specialist tomorrow, just going to request the estrogen/testosterone compounded cream. He seemed perplexed and couldn't figure out how it could be the spironolactone, but apparently it's a new procedure to do a compounded cream of both testosterone and estrogen.
Oh, before I forget -- he examined me and said the sore spot on the left is my muscles spasming, so was prescribed a valium suppository. Helped a TON.

daisiesfordays

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Re: New Here ~~~~

Post  emalita on Tue Apr 05, 2016 1:56 pm

907hopeful wrote:I am on month 4 of treatment and would say I feel 75-80% better. Google him - Dr Fowler in AZ. His website seems a little quirky (more like a business than a dr's office), but he knows his stuff! He has me on a regime of anti-fungal, anti-bacterial and estrogen creams. Send me a message if you want to know more.

907hopeful - How have things been going since seeing Dr. Fowler? I just started week three of his treatment.

emalita

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Re: New Here ~~~~

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