Sat Mar 18, 2017 7:37 pm by Lisa1627
Wed Aug 17, 2016 1:39 am by angelique2016
Fri Mar 17, 2017 9:52 pm by canuck girl
I found the site tonight, and am so pleased I did, I hadn't realised it was such a problem, and I for one am grateful that the group exists. I recently had a really awful , well the worst one I had ever had UTI, after 4 days of antibiotics it should have cleared though. i now had this awful feeling, and sensations, very sore, burning, some strange sensations I have that are hard …
Wed Feb 22, 2017 12:15 am by Persevere1990
It's great to see there is a support network here... I was diagnosed a few weeks ago and have started nightly treatment with lidocaine cream one week ago. Not noticing any difference yet.
I notice I get flare ups throughout the day, typically after peeing, showering, walking and when I'm stressed. I'm pretty sure my vulvodynia was caused by nerve damage due to a bad case of thrush …
Wed Jan 18, 2017 11:19 pm by outsider
I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …
Wed Nov 30, 2016 8:54 pm by Roselilyflower
Mon Feb 20, 2017 8:35 am by surprisemom44
I just found this site tonight. I am on my fourth round of antibiotics in a row since Nov. But honestly, have been having the pain, itching, burning for years. I had never heard of this condition until tonight and have not been diagnosed but I feel it has to be what I have. I had my first encounter with burning, itching, pain when I was 12! My mom tried to get me to douche! I had …
Sat Feb 11, 2017 11:22 pm by crackleberry
Mon Dec 12, 2016 1:49 am by 1989SBSC
Thank you all and i hope they come up with a cure. None of us deserve this:(
- Posts : 2
Join date : 2014-08-05
- Posts : 2
Join date : 2014-08-05
I am only just seeing a doctor who knows what he's doing now, after 14 months of dealing with incompetent doctors who just wanted to put me on antidepressants and send me to councilling!
I have a lot of other symptoms accompanying my problem, which may or may not be related.
Many women with vulvodynia have other hormonal issues that the patient doesn't even pick up on until things get REALLY bad. I didn't pick up on my other symptoms at first until they escalated to extremes because I was so wrapped up and focused on my vulva, I was ignorant of all the other symptoms I was expiriencing, even though they all started at the same time (and the doctors were fobbing off my other symptoms as stress...ummm extremely sore breasts are not caused by stress!)
It wouldn't hurt to have blood tests, especially with the way you are saying about your response to hormones. And low hormone levels are suspected already, so it can't hurt! At least you will be ruling it out. It may not give you an answer, but it may!
I work in a pharmacy and one woman has suffered vulvadynia due to lack of estrogen. She uses estrogen cream and is on HRT and it fixed the problem. Another lady was experiencing vulvodynia-like symptoms because she had no testosterone in her body. She gets testosterone shots now and the problem is fixed. Lack of iron can cause vulva issues.....oh the list goes on!
It is up to you to decide what action you want to take, but if you are anything like me, you would do anything to be rid of this horrific condition.
The women on this site are awesome, I have gotten some very valuable information from this site, and the ladies are awesome to chat to for advice.
- Posts : 182
Join date : 2013-08-11
Location : Australia
- Posts : 7
Join date : 2014-08-19