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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


vulvodynia

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vulvodynia

Post  owlcity on Tue Aug 05, 2014 8:44 am

I've bee recently diagnosted with vulvodynia. I had my first UTI and that was probably the trigger for me. I started using estrace topical cream and at first it didn't help at all. After few weeks i actually had one month with no pain or burning. I almost forgot that i have a "problem". The lastfew days the burning is back on and off, maybe not as bad as before. I don't know if i should ask my obgyn to give me a new prescription of estrace mixed with progesteron this time. I am getting close to being menopausal I suppose and my hormomes are pretty low. I can tolerate some burning but I never know what the next hour is going to bring. I am a nurse working in the hopital. I have pretty sick patients to take care of and I can't worry about how I feel. I am worried about taking amitryptyline or gabapentin. I can"t afford to be sleepy for hours at the time or quit my job, I am the only one working in my household. Anybody tried other things that worked? Does anybody know if EMUAID cream ever works? Big advertisement on line for it, hard to tell if it's a scam or it's worth the money.
Thank you all and i hope they come up with a cure. None of us deserve this:(

owlcity

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Re: vulvodynia

Post  sailor_moon on Tue Aug 05, 2014 8:45 pm

Do you have any other symtoms besides the vulvodynia?

Have the doctors done a blood test over a 4 week period, doing a blood test every week to see what your hormones are actually doing?
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Re: vulvodynia

Post  owlcity on Wed Aug 06, 2014 8:50 am

Thanks for answering. No symptoms other then burning/stinging/pain. Mostly burning. My doc siad that vaginal dryness is common when you're 50 and most likely my hormons are low. I never actually had any blood tests. I'm pretty familiar with most nursing area expect obgyn/mother-baby/labor and delivery. Maybe I shoud ask my doctor to run some tests? I do seem to have the "classical" symptoms of vulvodynia. Grrrr! My life was so perfect before, I should've appreciate it more! We never do I guess. I dont expect a cure (wouldn't that be nice), just acceptable level of discomfort. I'm so demoralized right now, all I'm reading is that you may have this conidion for years! OMG! Years? I don't think I can take it for fow months let alone years. Thank you so much again for answering.

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Re: vulvodynia

Post  sailor_moon on Wed Aug 06, 2014 9:13 am

I'm only 26 and have had this sh*t for 14 months now. I totally get what you mean about having a wonderful life before Sad it makes me so sad.

I am only just seeing a doctor who knows what he's doing now, after 14 months of dealing with incompetent doctors who just wanted to put me on antidepressants and send me to councilling!

I have a lot of other symptoms accompanying my problem, which may or may not be related.

Many women with vulvodynia have other hormonal issues that the patient doesn't even pick up on until things get REALLY bad. I didn't pick up on my other symptoms at first until they escalated to extremes because I was so wrapped up and focused on my vulva, I was ignorant of all the other symptoms I was expiriencing, even though they all started at the same time (and the doctors were fobbing off my other symptoms as stress...ummm extremely sore breasts are not caused by stress!)

It wouldn't hurt to have blood tests, especially with the way you are saying about your response to hormones. And low hormone levels are suspected already, so it can't hurt! At least you will be ruling it out. It may not give you an answer, but it may!

I work in a pharmacy and one woman has suffered vulvadynia due to lack of estrogen. She uses estrogen cream and is on HRT and it fixed the problem. Another lady was experiencing vulvodynia-like symptoms because she had no testosterone in her body. She gets testosterone shots now and the problem is fixed. Lack of iron can cause vulva issues.....oh the list goes on!

It is up to you to decide what action you want to take, but if you are anything like me, you would do anything to be rid of this horrific condition.

The women on this site are awesome, I have gotten some very valuable information from this site, and the ladies are awesome to chat to for advice.




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Re: vulvodynia

Post  zarli on Wed Aug 06, 2014 9:21 am

Hi maybe you should seek the care of a specialist such as a vulva pain specialist. Don't worry about having it for years everybody is different yours could settle down once you hit a different stage of menopause. On forums they are great but they are just some of the stories of vulvodynia. People who beat it are not necessarily represented on here properly. Stay positive Smile

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Re: vulvodynia

Post  sailor_moon on Wed Aug 06, 2014 9:27 am

I agree with Zarli, try and seek out a specialist that deals with Vulvodynia Smile
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Re: vulvodynia

Post  bearferret on Tue Aug 19, 2014 6:12 pm

Ive been on Amitryptilin for three months and am now pain free, I took it at night before bed so didnt get sleepy during the day. Ive also taken Gabapentin for my back, not that did make me sleeping other times during the day even if I just took it at night. I am pleased with the result of Amitryptilin and would take it again if it flared up again, hoping it doesnt.

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Re: vulvodynia

Post  Alana3 on Tue Aug 19, 2014 6:51 pm

I beat it! But it is true most people who did beat it really don't come back on here.  I had mine about 7 years before I got my fix!  And I def recommend going to a vuvla specialist!

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Re: vulvodynia

Post  kpog on Tue Jan 10, 2017 1:09 am

This post is to sailor_moon. Hoping you are still on this thread. I also have vulvodynia and very sore breasts. Wondering if your issue turned out to be hormonal? What treatments have you tried and did anything work for you?

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Re: vulvodynia

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