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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


vulvodynia

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vulvodynia

Post  owlcity on Tue Aug 05, 2014 8:44 am

I've bee recently diagnosted with vulvodynia. I had my first UTI and that was probably the trigger for me. I started using estrace topical cream and at first it didn't help at all. After few weeks i actually had one month with no pain or burning. I almost forgot that i have a "problem". The lastfew days the burning is back on and off, maybe not as bad as before. I don't know if i should ask my obgyn to give me a new prescription of estrace mixed with progesteron this time. I am getting close to being menopausal I suppose and my hormomes are pretty low. I can tolerate some burning but I never know what the next hour is going to bring. I am a nurse working in the hopital. I have pretty sick patients to take care of and I can't worry about how I feel. I am worried about taking amitryptyline or gabapentin. I can"t afford to be sleepy for hours at the time or quit my job, I am the only one working in my household. Anybody tried other things that worked? Does anybody know if EMUAID cream ever works? Big advertisement on line for it, hard to tell if it's a scam or it's worth the money.
Thank you all and i hope they come up with a cure. None of us deserve this:(

owlcity

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Re: vulvodynia

Post  sailor_moon on Tue Aug 05, 2014 8:45 pm

Do you have any other symtoms besides the vulvodynia?

Have the doctors done a blood test over a 4 week period, doing a blood test every week to see what your hormones are actually doing?
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Re: vulvodynia

Post  owlcity on Wed Aug 06, 2014 8:50 am

Thanks for answering. No symptoms other then burning/stinging/pain. Mostly burning. My doc siad that vaginal dryness is common when you're 50 and most likely my hormons are low. I never actually had any blood tests. I'm pretty familiar with most nursing area expect obgyn/mother-baby/labor and delivery. Maybe I shoud ask my doctor to run some tests? I do seem to have the "classical" symptoms of vulvodynia. Grrrr! My life was so perfect before, I should've appreciate it more! We never do I guess. I dont expect a cure (wouldn't that be nice), just acceptable level of discomfort. I'm so demoralized right now, all I'm reading is that you may have this conidion for years! OMG! Years? I don't think I can take it for fow months let alone years. Thank you so much again for answering.

owlcity

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Re: vulvodynia

Post  sailor_moon on Wed Aug 06, 2014 9:13 am

I'm only 26 and have had this sh*t for 14 months now. I totally get what you mean about having a wonderful life before Sad it makes me so sad.

I am only just seeing a doctor who knows what he's doing now, after 14 months of dealing with incompetent doctors who just wanted to put me on antidepressants and send me to councilling!

I have a lot of other symptoms accompanying my problem, which may or may not be related.

Many women with vulvodynia have other hormonal issues that the patient doesn't even pick up on until things get REALLY bad. I didn't pick up on my other symptoms at first until they escalated to extremes because I was so wrapped up and focused on my vulva, I was ignorant of all the other symptoms I was expiriencing, even though they all started at the same time (and the doctors were fobbing off my other symptoms as stress...ummm extremely sore breasts are not caused by stress!)

It wouldn't hurt to have blood tests, especially with the way you are saying about your response to hormones. And low hormone levels are suspected already, so it can't hurt! At least you will be ruling it out. It may not give you an answer, but it may!

I work in a pharmacy and one woman has suffered vulvadynia due to lack of estrogen. She uses estrogen cream and is on HRT and it fixed the problem. Another lady was experiencing vulvodynia-like symptoms because she had no testosterone in her body. She gets testosterone shots now and the problem is fixed. Lack of iron can cause vulva issues.....oh the list goes on!

It is up to you to decide what action you want to take, but if you are anything like me, you would do anything to be rid of this horrific condition.

The women on this site are awesome, I have gotten some very valuable information from this site, and the ladies are awesome to chat to for advice.




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Re: vulvodynia

Post  zarli on Wed Aug 06, 2014 9:21 am

Hi maybe you should seek the care of a specialist such as a vulva pain specialist. Don't worry about having it for years everybody is different yours could settle down once you hit a different stage of menopause. On forums they are great but they are just some of the stories of vulvodynia. People who beat it are not necessarily represented on here properly. Stay positive Smile

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Re: vulvodynia

Post  sailor_moon on Wed Aug 06, 2014 9:27 am

I agree with Zarli, try and seek out a specialist that deals with Vulvodynia Smile
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Re: vulvodynia

Post  bearferret on Tue Aug 19, 2014 6:12 pm

Ive been on Amitryptilin for three months and am now pain free, I took it at night before bed so didnt get sleepy during the day. Ive also taken Gabapentin for my back, not that did make me sleeping other times during the day even if I just took it at night. I am pleased with the result of Amitryptilin and would take it again if it flared up again, hoping it doesnt.

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Re: vulvodynia

Post  Alana3 on Tue Aug 19, 2014 6:51 pm

I beat it! But it is true most people who did beat it really don't come back on here.  I had mine about 7 years before I got my fix!  And I def recommend going to a vuvla specialist!

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Re: vulvodynia

Post  kpog on Tue Jan 10, 2017 1:09 am

This post is to sailor_moon. Hoping you are still on this thread. I also have vulvodynia and very sore breasts. Wondering if your issue turned out to be hormonal? What treatments have you tried and did anything work for you?

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Re: vulvodynia

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