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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Contraception related? Implant/injection

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Contraception related? Implant/injection

Post  morgaan_xo on Fri Aug 08, 2014 12:50 pm

This is purely out of interest... Did anyone else start getting symptoms of vulvodynia and pain down there after having the progesteon only implant or injection??

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Re: Contraception related? Implant/injection

Post  sailor_moon on Sun Aug 10, 2014 2:20 am

No, but I definitely believe birth control/hormones plays a part. All my problems started after coming off the pill.
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Re: Contraception related? Implant/injection

Post  morgaan_xo on Sun Aug 10, 2014 4:16 am

Hmmm, were you on progesteon only pill?

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Re: Contraception related? Implant/injection

Post  sailor_moon on Sun Aug 10, 2014 4:21 am

No I was on combined. After seeing a new specialist he suspects estrogen may be my problem, whether it be deficiency, too much, or estrogen sensitivity. Or a combination of estrogen and Progesterone. I have to undergo blood tests for every week of the month to see what my hormones are doing. I just started taking Provera (Progesterone) to make me get my period so I can start the blood tests. No period yet.
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Re: Contraception related? Implant/injection

Post  morgaan_xo on Sun Aug 10, 2014 9:22 am

See I think mines all down to hormones but my gyna won't babe any of it! She did one blood test and said there was nothing wrong... Do you have to so quite a few to see if there is anything going on?

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Re: Contraception related? Implant/injection

Post  sailor_moon on Sun Aug 10, 2014 9:31 am

Really? One blood test?

I just saw a new doctor on Tuesday who believes it is hormonal related. My I have only had 3 periods since January. And I have other symptoms as well.

He is giving me Provera to take so I will have a period. Then I stop taking it when my period comes. Then, 7 days after my period starts I have to have a blood test, then 7 days after that -on day 14, then day 21 then day 28 to see what my hormone levels are doing, when and whether or not they are rising snd falling, whether I'm even ovulating or not ect. He said a one-off basic blood test will not show hormone imbalance, as the imbalance is often at particular times of the month ect . My symptoms are always worse leading up to and during my period. Even worse if I don't get my period.

Do you have any other symptoms?
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Re: Contraception related? Implant/injection

Post  morgaan_xo on Sun Aug 10, 2014 9:49 am

Yes one! I'm seeing her again in September so I'll just say that it won't show up on one, doubt she'll like that ahahah

And mine is that I'm having to many they're really irregular and have about a week or two week break, that's only been this year though as my injections wearing off but my symptoms have got worse since my periods have been coming and going. When I was on my injection I didn't bleed at all but I'd have a constant burning pain and was unable to have sex, now my injection is wearing off my pain is worse before and after my period, my skin is physically sore at this time too! This is what makes me thinks it's hormones and yours sounds a lot like mine to be honest!! I think I need to find a different doctor! Your doctor actually sounds interested to sort your problems!!

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Re: Contraception related? Implant/injection

Post  sailor_moon on Sun Aug 10, 2014 10:06 am

Well there you go then! Obviously if you are having irregular periods like you are there is obviously a hormone problem, whether or not it is related to your V symptoms it still needs to get sorted! They need to see what your hormones are doing to try and sort them out.

Did your problems start while on the injection?

See, I am 26, I went on the pill at 17 to stop my horrible horrible periods. I had vomiting, fainting, diarreah, periods would last for 10 days and be so heavy they looked like chopped liver and were extremely irregular.

So, I was on it for 9 years. And while the pill made my periods regular and shorter, I'd still get diarreah and migraines and all that bad PMS biz.

It was when I came off the pill at the start of last year my problem started. I wonder if I have had a big hormone problem all this time but the pill has masked my symptoms for the past 9 years. My V symptoms started 1 month after I went off the pill.

It has taken 12 doctors to get to the one I have just started seeing. I pray that my tests will show something.

Have you thought about seeing a different doctor?

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Re: Contraception related? Implant/injection

Post  sailor_moon on Sun Aug 10, 2014 10:08 am

http://m.nativeremedies.com/ailment/symptoms-of-hormone-imbalance.html


Check out this link and scroll down to where you can click and view all the different hormone problems. Very interesting!
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Re: Contraception related? Implant/injection

Post  morgaan_xo on Sun Aug 10, 2014 4:08 pm

I'm going to address the hormone problem again when I next see her, she only did a blood test because I kept going on and on at her!!

I'm 17 now And my problems started while I was on the implant at the age of 14 because I was bleeding all the time and I developed an over active bladder and bladder pain syndrome, I had the implant taken out at the age of 15 and then they put me on the injection to stop my bleeding and my problems became worse and more noticeable and I thought if I came off the injection it would go but my body still hasn't gone back to normal and it's been almost a year since I stopped having the injection (stopped that at 16) so I think my hormones are still all over the place!! I have had my problems for two and a half years!

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Re: Contraception related? Implant/injection

Post  A2015 on Fri Aug 14, 2015 10:20 am

I wanted to post about my story to reiterate that there are DEFINITELY cases where VVS is caused by hormonal contraceptives, even when not immediately obvious.
I want to desperately encourage anyone who has VVS to come off hormonal contraceptives if possible.

In 2012, I had unprotected sex and took the morning after pill. I developed vestibule redness/soreness/itchiness. The clinic confirmed a Yeast & BV infection, explaining that this was common after sex (though I had never had any vaginal problems for years before). They also put me on the Pill (Microgynon 30). The infections cleared (tested negative) but my symptoms remained constant.

My symptoms extended beyond vestibule pain. I also had itchiness, redness & subtle inflammation of the whole vestibule (localised to this area), my vestibule skin started to tear during sex, get more inflammed & very regularly develop new infections (Yeast/Bacterial). I also had a lot of discomfort/itchiness in & around my anus.

Firstly, this made me question whether I had VVS because I didn't just have pain of the vestibule, as I kept getting infections too (now I understand that women with VVS are often simply more prone to infections & discomfort of the whole area).
Secondly, I assumed my VVS must have been caused by the infections (proliferation of nerves in the vestibule after infection), because the symptoms I had felt like they were permanent, that the skin itself was not normal anymore & seemed irreparable.

I didn't come off the Pill until mid 2013, when I had read more info about a link. I felt I should just come off it in case it might have been making anything worse.

The reality was (by my complete surprise and total elation) that within a month, my vestibule returned to completely normal and ALL other related symptoms also disappeared — the anal discomfort/itchiness & bring prone to developing infections.

I hadn't thought the Pill could be causing my VVS, because I had developed the infections before I started the Pill (I didn't consider at the time that just before I got the infections, I had taken the morning after pill which is a huge dose of progesterone). I also had no understanding of hormones & no idea how they could cause pain in a specific area of the body like this! Every doctor I asked said there was no way the Pill was relevant, which made me have little hope.

I believe there are 2 main causes for VVS — hormonal or a response to an infection. But there can be an overlap, and I didn't consider the Pill could be the cause because I kept getting the infections. But I was mistaken (and so were over 10 doctors & specialists).

I really hope this can help any women suffering.

As a side point, unfortunately, after being perfectly normal for 18 months, this year I developed infections (no hormones involved) and VVS has fully returned. I feel that my body has learned how it responded to infections when I was on the Pill, and now the nerves are irritated again = VVS Sad

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