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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Contraception related? Implant/injection

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Contraception related? Implant/injection

Post  morgaan_xo on Fri Aug 08, 2014 12:50 pm

This is purely out of interest... Did anyone else start getting symptoms of vulvodynia and pain down there after having the progesteon only implant or injection??

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Re: Contraception related? Implant/injection

Post  sailor_moon on Sun Aug 10, 2014 2:20 am

No, but I definitely believe birth control/hormones plays a part. All my problems started after coming off the pill.
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Re: Contraception related? Implant/injection

Post  morgaan_xo on Sun Aug 10, 2014 4:16 am

Hmmm, were you on progesteon only pill?

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Re: Contraception related? Implant/injection

Post  sailor_moon on Sun Aug 10, 2014 4:21 am

No I was on combined. After seeing a new specialist he suspects estrogen may be my problem, whether it be deficiency, too much, or estrogen sensitivity. Or a combination of estrogen and Progesterone. I have to undergo blood tests for every week of the month to see what my hormones are doing. I just started taking Provera (Progesterone) to make me get my period so I can start the blood tests. No period yet.
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Re: Contraception related? Implant/injection

Post  morgaan_xo on Sun Aug 10, 2014 9:22 am

See I think mines all down to hormones but my gyna won't babe any of it! She did one blood test and said there was nothing wrong... Do you have to so quite a few to see if there is anything going on?

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Re: Contraception related? Implant/injection

Post  sailor_moon on Sun Aug 10, 2014 9:31 am

Really? One blood test?

I just saw a new doctor on Tuesday who believes it is hormonal related. My I have only had 3 periods since January. And I have other symptoms as well.

He is giving me Provera to take so I will have a period. Then I stop taking it when my period comes. Then, 7 days after my period starts I have to have a blood test, then 7 days after that -on day 14, then day 21 then day 28 to see what my hormone levels are doing, when and whether or not they are rising snd falling, whether I'm even ovulating or not ect. He said a one-off basic blood test will not show hormone imbalance, as the imbalance is often at particular times of the month ect . My symptoms are always worse leading up to and during my period. Even worse if I don't get my period.

Do you have any other symptoms?
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Re: Contraception related? Implant/injection

Post  morgaan_xo on Sun Aug 10, 2014 9:49 am

Yes one! I'm seeing her again in September so I'll just say that it won't show up on one, doubt she'll like that ahahah

And mine is that I'm having to many they're really irregular and have about a week or two week break, that's only been this year though as my injections wearing off but my symptoms have got worse since my periods have been coming and going. When I was on my injection I didn't bleed at all but I'd have a constant burning pain and was unable to have sex, now my injection is wearing off my pain is worse before and after my period, my skin is physically sore at this time too! This is what makes me thinks it's hormones and yours sounds a lot like mine to be honest!! I think I need to find a different doctor! Your doctor actually sounds interested to sort your problems!!

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Re: Contraception related? Implant/injection

Post  sailor_moon on Sun Aug 10, 2014 10:06 am

Well there you go then! Obviously if you are having irregular periods like you are there is obviously a hormone problem, whether or not it is related to your V symptoms it still needs to get sorted! They need to see what your hormones are doing to try and sort them out.

Did your problems start while on the injection?

See, I am 26, I went on the pill at 17 to stop my horrible horrible periods. I had vomiting, fainting, diarreah, periods would last for 10 days and be so heavy they looked like chopped liver and were extremely irregular.

So, I was on it for 9 years. And while the pill made my periods regular and shorter, I'd still get diarreah and migraines and all that bad PMS biz.

It was when I came off the pill at the start of last year my problem started. I wonder if I have had a big hormone problem all this time but the pill has masked my symptoms for the past 9 years. My V symptoms started 1 month after I went off the pill.

It has taken 12 doctors to get to the one I have just started seeing. I pray that my tests will show something.

Have you thought about seeing a different doctor?

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Re: Contraception related? Implant/injection

Post  sailor_moon on Sun Aug 10, 2014 10:08 am

http://m.nativeremedies.com/ailment/symptoms-of-hormone-imbalance.html


Check out this link and scroll down to where you can click and view all the different hormone problems. Very interesting!
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Re: Contraception related? Implant/injection

Post  morgaan_xo on Sun Aug 10, 2014 4:08 pm

I'm going to address the hormone problem again when I next see her, she only did a blood test because I kept going on and on at her!!

I'm 17 now And my problems started while I was on the implant at the age of 14 because I was bleeding all the time and I developed an over active bladder and bladder pain syndrome, I had the implant taken out at the age of 15 and then they put me on the injection to stop my bleeding and my problems became worse and more noticeable and I thought if I came off the injection it would go but my body still hasn't gone back to normal and it's been almost a year since I stopped having the injection (stopped that at 16) so I think my hormones are still all over the place!! I have had my problems for two and a half years!

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Re: Contraception related? Implant/injection

Post  A2015 on Fri Aug 14, 2015 10:20 am

I wanted to post about my story to reiterate that there are DEFINITELY cases where VVS is caused by hormonal contraceptives, even when not immediately obvious.
I want to desperately encourage anyone who has VVS to come off hormonal contraceptives if possible.

In 2012, I had unprotected sex and took the morning after pill. I developed vestibule redness/soreness/itchiness. The clinic confirmed a Yeast & BV infection, explaining that this was common after sex (though I had never had any vaginal problems for years before). They also put me on the Pill (Microgynon 30). The infections cleared (tested negative) but my symptoms remained constant.

My symptoms extended beyond vestibule pain. I also had itchiness, redness & subtle inflammation of the whole vestibule (localised to this area), my vestibule skin started to tear during sex, get more inflammed & very regularly develop new infections (Yeast/Bacterial). I also had a lot of discomfort/itchiness in & around my anus.

Firstly, this made me question whether I had VVS because I didn't just have pain of the vestibule, as I kept getting infections too (now I understand that women with VVS are often simply more prone to infections & discomfort of the whole area).
Secondly, I assumed my VVS must have been caused by the infections (proliferation of nerves in the vestibule after infection), because the symptoms I had felt like they were permanent, that the skin itself was not normal anymore & seemed irreparable.

I didn't come off the Pill until mid 2013, when I had read more info about a link. I felt I should just come off it in case it might have been making anything worse.

The reality was (by my complete surprise and total elation) that within a month, my vestibule returned to completely normal and ALL other related symptoms also disappeared — the anal discomfort/itchiness & bring prone to developing infections.

I hadn't thought the Pill could be causing my VVS, because I had developed the infections before I started the Pill (I didn't consider at the time that just before I got the infections, I had taken the morning after pill which is a huge dose of progesterone). I also had no understanding of hormones & no idea how they could cause pain in a specific area of the body like this! Every doctor I asked said there was no way the Pill was relevant, which made me have little hope.

I believe there are 2 main causes for VVS — hormonal or a response to an infection. But there can be an overlap, and I didn't consider the Pill could be the cause because I kept getting the infections. But I was mistaken (and so were over 10 doctors & specialists).

I really hope this can help any women suffering.

As a side point, unfortunately, after being perfectly normal for 18 months, this year I developed infections (no hormones involved) and VVS has fully returned. I feel that my body has learned how it responded to infections when I was on the Pill, and now the nerves are irritated again = VVS Sad

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Re: Contraception related? Implant/injection

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