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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


New to forum but not new to vulvodynia

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New to forum but not new to vulvodynia

Post  Nelliewelly on Thu Aug 14, 2014 2:31 pm

New to forum. Based in UK (south east). Just come from another gynae appointment- you have to laugh or you'd cry. Gynae suggested injections to turn off ovaries then hysterectomy. I am 40 and had 2 major vulvodynia flares lasting months-years since I was 20. This is third flare caused by a dreadful routine cervical smear by professional nurse (?!?!) in December 2013. I try to stay positive, don't we all? But, get fed up with lack of support/advice. I would like to hear from anyone in UK who sees a specialist - i can only only find Dr Wendy Reid but there must be more than one. I think I need to take control of this as am slipping into depression and I need to find a way to deal with this. The previous occasions I had these symptoms I was told I had thrush (yeast) and uti and took tablets and thrush treatment and eventually it went away - frustrating as I never tested positive for thrush and am sure those creams did more harm than good. I believe I had vulvodynia then but this was never diagnosed. I think there are so many things to try that I need to be more proactive and research more than I have done. Just wanted to post here as I read forum all time and am hopeful that we can all find some respite from vulvodynia. I believe there are lots of triggers and lots of treatments but 'one size' does not fit all. Anyway, just wanted to finally post a 'post'. H xx

Nelliewelly

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Re: New to forum but not new to vulvodynia

Post  Alana3 on Thu Aug 14, 2014 3:41 pm

what in the world would that do?  Great treatment for endometriosis but certainly not for vulvodynia.  Do not go thru that.

Alana3

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Re: New to forum but not new to vulvodynia

Post  Nelliewelly on Thu Aug 14, 2014 6:21 pm

Thanks for reply. I won't be turning my ovaries off any time soon. Googled all his advice/medications when I got home and thought this is JUST WRONG. I am however now determined to find a decent specialist who is not so dramatic with diagnosis. I was so shocked he suggested it that I didn't ask what effect it would have ... He gave a big old smile and ushered me out of office!! I laughed all way to car park.. and also ran a little a bit as was slightly panicked!! I think he thought it might be hormonal so I would think blood tests first.... I might add he did not examine me or seek any detailed information about my symptoms. Scary and funny at same time. H x

Nelliewelly

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Re: New to forum but not new to vulvodynia

Post  Alana3 on Thu Aug 14, 2014 8:27 pm

That's horrifying! I'm glad your smart enough to not do that as it is a very VERY wrong diagnosis!  Find a specialist and I think it'll help you loads Smile hope you're feeling OK today!!!

Alana3

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GUM Clinic

Post  bearferret on Tue Aug 19, 2014 5:35 pm

I know it may not work for everyone but I went to the GUM clinic, really embarrasing, but wow was the doctor understanding. Amitryptilin in v low dose for three months and I'm all better, well almost not quite the same sensation down there, but no pain.

Have you tried Amitryptilin? It an anti depressant that you take in a much smaller dose and it retrains the nerves. Worked wonders for me, but the I have a new boyfriend who has been great and understanding so some of it could be his help.

bearferret

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Re: New to forum but not new to vulvodynia

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