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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


New to forum but not new to vulvodynia

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New to forum but not new to vulvodynia

Post  Nelliewelly on Thu Aug 14, 2014 2:31 pm

New to forum. Based in UK (south east). Just come from another gynae appointment- you have to laugh or you'd cry. Gynae suggested injections to turn off ovaries then hysterectomy. I am 40 and had 2 major vulvodynia flares lasting months-years since I was 20. This is third flare caused by a dreadful routine cervical smear by professional nurse (?!?!) in December 2013. I try to stay positive, don't we all? But, get fed up with lack of support/advice. I would like to hear from anyone in UK who sees a specialist - i can only only find Dr Wendy Reid but there must be more than one. I think I need to take control of this as am slipping into depression and I need to find a way to deal with this. The previous occasions I had these symptoms I was told I had thrush (yeast) and uti and took tablets and thrush treatment and eventually it went away - frustrating as I never tested positive for thrush and am sure those creams did more harm than good. I believe I had vulvodynia then but this was never diagnosed. I think there are so many things to try that I need to be more proactive and research more than I have done. Just wanted to post here as I read forum all time and am hopeful that we can all find some respite from vulvodynia. I believe there are lots of triggers and lots of treatments but 'one size' does not fit all. Anyway, just wanted to finally post a 'post'. H xx

Nelliewelly

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Re: New to forum but not new to vulvodynia

Post  Alana3 on Thu Aug 14, 2014 3:41 pm

what in the world would that do?  Great treatment for endometriosis but certainly not for vulvodynia.  Do not go thru that.

Alana3

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Re: New to forum but not new to vulvodynia

Post  Nelliewelly on Thu Aug 14, 2014 6:21 pm

Thanks for reply. I won't be turning my ovaries off any time soon. Googled all his advice/medications when I got home and thought this is JUST WRONG. I am however now determined to find a decent specialist who is not so dramatic with diagnosis. I was so shocked he suggested it that I didn't ask what effect it would have ... He gave a big old smile and ushered me out of office!! I laughed all way to car park.. and also ran a little a bit as was slightly panicked!! I think he thought it might be hormonal so I would think blood tests first.... I might add he did not examine me or seek any detailed information about my symptoms. Scary and funny at same time. H x

Nelliewelly

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Re: New to forum but not new to vulvodynia

Post  Alana3 on Thu Aug 14, 2014 8:27 pm

That's horrifying! I'm glad your smart enough to not do that as it is a very VERY wrong diagnosis!  Find a specialist and I think it'll help you loads Smile hope you're feeling OK today!!!

Alana3

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GUM Clinic

Post  bearferret on Tue Aug 19, 2014 5:35 pm

I know it may not work for everyone but I went to the GUM clinic, really embarrasing, but wow was the doctor understanding. Amitryptilin in v low dose for three months and I'm all better, well almost not quite the same sensation down there, but no pain.

Have you tried Amitryptilin? It an anti depressant that you take in a much smaller dose and it retrains the nerves. Worked wonders for me, but the I have a new boyfriend who has been great and understanding so some of it could be his help.

bearferret

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Re: New to forum but not new to vulvodynia

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