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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


New to forum but not new to vulvodynia

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New to forum but not new to vulvodynia

Post  Nelliewelly on Thu Aug 14, 2014 2:31 pm

New to forum. Based in UK (south east). Just come from another gynae appointment- you have to laugh or you'd cry. Gynae suggested injections to turn off ovaries then hysterectomy. I am 40 and had 2 major vulvodynia flares lasting months-years since I was 20. This is third flare caused by a dreadful routine cervical smear by professional nurse (?!?!) in December 2013. I try to stay positive, don't we all? But, get fed up with lack of support/advice. I would like to hear from anyone in UK who sees a specialist - i can only only find Dr Wendy Reid but there must be more than one. I think I need to take control of this as am slipping into depression and I need to find a way to deal with this. The previous occasions I had these symptoms I was told I had thrush (yeast) and uti and took tablets and thrush treatment and eventually it went away - frustrating as I never tested positive for thrush and am sure those creams did more harm than good. I believe I had vulvodynia then but this was never diagnosed. I think there are so many things to try that I need to be more proactive and research more than I have done. Just wanted to post here as I read forum all time and am hopeful that we can all find some respite from vulvodynia. I believe there are lots of triggers and lots of treatments but 'one size' does not fit all. Anyway, just wanted to finally post a 'post'. H xx

Nelliewelly

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Re: New to forum but not new to vulvodynia

Post  Alana3 on Thu Aug 14, 2014 3:41 pm

what in the world would that do?  Great treatment for endometriosis but certainly not for vulvodynia.  Do not go thru that.

Alana3

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Re: New to forum but not new to vulvodynia

Post  Nelliewelly on Thu Aug 14, 2014 6:21 pm

Thanks for reply. I won't be turning my ovaries off any time soon. Googled all his advice/medications when I got home and thought this is JUST WRONG. I am however now determined to find a decent specialist who is not so dramatic with diagnosis. I was so shocked he suggested it that I didn't ask what effect it would have ... He gave a big old smile and ushered me out of office!! I laughed all way to car park.. and also ran a little a bit as was slightly panicked!! I think he thought it might be hormonal so I would think blood tests first.... I might add he did not examine me or seek any detailed information about my symptoms. Scary and funny at same time. H x

Nelliewelly

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Re: New to forum but not new to vulvodynia

Post  Alana3 on Thu Aug 14, 2014 8:27 pm

That's horrifying! I'm glad your smart enough to not do that as it is a very VERY wrong diagnosis!  Find a specialist and I think it'll help you loads Smile hope you're feeling OK today!!!

Alana3

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GUM Clinic

Post  bearferret on Tue Aug 19, 2014 5:35 pm

I know it may not work for everyone but I went to the GUM clinic, really embarrasing, but wow was the doctor understanding. Amitryptilin in v low dose for three months and I'm all better, well almost not quite the same sensation down there, but no pain.

Have you tried Amitryptilin? It an anti depressant that you take in a much smaller dose and it retrains the nerves. Worked wonders for me, but the I have a new boyfriend who has been great and understanding so some of it could be his help.

bearferret

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Re: New to forum but not new to vulvodynia

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