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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


NEWBIE UNCERTAIN

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NEWBIE UNCERTAIN

Post  QueenLatifahzw on Wed Aug 20, 2014 10:48 am

Hi I am a newbie glad to join your site can already see it going to be much help.
I am 52 years old going through menopause. This has been going on for close to 3 years. It all started when my periods began to be irregular and for the first time in my life I came down with a UTI which was treated with antibiotics but I started to experience frequent urination and burning thereafter not all the time but sometimes. Went to different doctors countless times and was given different antibiotics no change. Subsequently developed a stabbing/ needle like sensation inside right side of pee hole felt when I flex my big toe cant really call it painful but irritation is just always there. I have no discharge only experience itching outside wherever pee touches like in the morning when I wash I really want to scrub the itch away like feeling. All day I do not itch. I have tried everything diet wise, no sugar or sugaries ets exercise am very health conscious am wondering if this vulvodynia please help!

QueenLatifahzw

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Re: NEWBIE UNCERTAIN

Post  sailor_moon on Thu Aug 21, 2014 11:44 am

Have you seen a Gynecologist/Uregynocologist? Or a vulva specialist? Sounds like it is to do with your urethral area. A gyne that also specialises in Uregynocology/bladder issues might be your best bet.

My problem started when I went off the pill . My periods are super irregular...and thats where my problem started. I am currently getting blood tests over every week this month to see what the hell my hormones are doing!

Have you had a monthly hormone test? Seeing as your periods are irregular it might be worth a try?
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Re: NEWBIE UNCERTAIN

Post  Alana3 on Thu Aug 21, 2014 1:12 pm

Could be IC too, I'd go to a specialist..

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Re: NEWBIE UNCERTAIN

Post  bluejean on Thu Oct 16, 2014 3:51 am

Hi Queen, I too am entering menopausal age..I'm 48 but still have a period. About two years ago I started having extreme painful sex and itching, burning and stabbing feelings. I started going to my GYNO and he gave tested me for everything...one time I tested for a bacterial infection but other than that never anything else.....He finally told me I had vulvodynia and sent me to a specialist who insisted I have a biopsy.
It seems to get better when I'm on my period. I bought some primrose oil tablets and started them last night. The only thing that helps me is using coconut oil with essential oils. I'm wondering if it's my hormones and ask my Dr would he please give me some hormone cream but he said No way..............I guess it could cause cancer or something if your not past menopause......I don't know but I'm so worn out with hurting.............

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Re: NEWBIE UNCERTAIN

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