Vulvodynia Support
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» Hope to all my suffering ladies
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» Please tell me this can get better
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» By no means cured, but doing much better!
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» How I cured my Vulvodynia!
NEWBIE UNCERTAIN EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
NEWBIE UNCERTAIN EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
NEWBIE UNCERTAIN EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
NEWBIE UNCERTAIN EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
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» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
NEWBIE UNCERTAIN EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

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An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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Post  QueenLatifahzw Wed Aug 20, 2014 10:48 am

Hi I am a newbie glad to join your site can already see it going to be much help.
I am 52 years old going through menopause. This has been going on for close to 3 years. It all started when my periods began to be irregular and for the first time in my life I came down with a UTI which was treated with antibiotics but I started to experience frequent urination and burning thereafter not all the time but sometimes. Went to different doctors countless times and was given different antibiotics no change. Subsequently developed a stabbing/ needle like sensation inside right side of pee hole felt when I flex my big toe cant really call it painful but irritation is just always there. I have no discharge only experience itching outside wherever pee touches like in the morning when I wash I really want to scrub the itch away like feeling. All day I do not itch. I have tried everything diet wise, no sugar or sugaries ets exercise am very health conscious am wondering if this vulvodynia please help!

QueenLatifahzw

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Join date : 2014-08-14
Age : 62
Location : Zimbabwe

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Post  sailor_moon Thu Aug 21, 2014 11:44 am

Have you seen a Gynecologist/Uregynocologist? Or a vulva specialist? Sounds like it is to do with your urethral area. A gyne that also specialises in Uregynocology/bladder issues might be your best bet.

My problem started when I went off the pill . My periods are super irregular...and thats where my problem started. I am currently getting blood tests over every week this month to see what the hell my hormones are doing!

Have you had a monthly hormone test? Seeing as your periods are irregular it might be worth a try?
sailor_moon
sailor_moon

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Post  Alana3 Thu Aug 21, 2014 1:12 pm

Could be IC too, I'd go to a specialist..

Alana3

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Post  bluejean Thu Oct 16, 2014 3:51 am

Hi Queen, I too am entering menopausal age..I'm 48 but still have a period. About two years ago I started having extreme painful sex and itching, burning and stabbing feelings. I started going to my GYNO and he gave tested me for everything...one time I tested for a bacterial infection but other than that never anything else.....He finally told me I had vulvodynia and sent me to a specialist who insisted I have a biopsy.
It seems to get better when I'm on my period. I bought some primrose oil tablets and started them last night. The only thing that helps me is using coconut oil with essential oils. I'm wondering if it's my hormones and ask my Dr would he please give me some hormone cream but he said No way..............I guess it could cause cancer or something if your not past menopause......I don't know but I'm so worn out with hurting.............

bluejean

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