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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Vulvodynia and antihistamines

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Vulvodynia and antihistamines

Post  Sherylvp on Sun Aug 24, 2014 12:48 pm

Hello, I have suffered with vulvodynia from the first time I had sex until the age I am now, 25. The pain ranged from a mild burning sensation to throbbing pain and bleeding. I found it particularly painful when my partner ejaculated inside me, and the stinging would continue for days afterwards. I was also very prone to cyctitis as a result of the swelling. Originally I thought that all women must be suffering during sex, but once I spoke to my friends I realised that this is not the case. I saw my doctor, who took swabs and examined me to find nothing. I asked the pharmacist for lidocaine ointment, which helped enormously but could still cause a little stinging. I saw a gaenocologist who offered only steroid cream to help with the pain but nothing more.

Finally, in July of this year my mother in law told me that she had seen an episode of embarrassing bodies on channel 4 (UK), where a lady with similar symptoms had been cured. She has a condition where her body produced too much histamine (an allergic reaction) to scratching and rubbing. This was particularly bad in her vagina. The solution was so simple - a standard hayfever one-a-day tablet every day. Within weeks she was cured. I was very skeptical, thinking that if it was so easier then why hadn't the gaenocologist suggested it? However I gave it a go. On holiday this year my partner suggested sex without the lidocaine and I reluctantly agreed. To my amazement there was no pain. The sex was as I imagined it should be for most women- comfortable, stimulating, arousing. We then had sex every day for the 10 days we were away and every time was the same - no pain even if i was not fully aroused.

If you are suffering like I was, I urge you to please, please try anti allergy medication - loratadine 10mg tablets (over the counter from most supermarkets, boots, pharmacies, ect) Clarityn brand name in the UK. These will do you no harm, even if they do not solve your personal vulval/vagina problems so it is surely worth a try.

Thank you


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Re: Vulvodynia and antihistamines

Post  Alana3 on Sun Aug 24, 2014 2:12 pm

That would only work if you were infact allergic to something. Most women on here have problems way worse than allergies. But it can't hurt to try it. I just dont want someone thinking that its that easy to cure because typically it isn't.


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