Log in

I forgot my password

Latest topics
» wheelchairs
Today at 4:25 am by SinclairSassy

» I don't know what to do anymore
Sat May 26, 2018 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Dilators for trigger points

Go down

Dilators for trigger points

Post  Sarah001 on Thu Nov 25, 2010 2:26 pm

I noticed someone said the other day they'd been advised to use dilators, was it jules? Anyway, I've just received a set of dilators I ordered as in Ending Female Pain the author advises using them for reaching trigger points high up in the pelvic floor where you can't reach with your fingers. I'll only be using the smallest one as it's going to be used as a trigger point tool but any of you girls interested in them in the UK can actually get them free on the NHS if you ask your doctor. I bought mine as I couldn't face collecting them from the pharmacy where I get all my prescriptions from and all the people there know me (too embarrassing!) and they cost me about £25. I'll update about how effective they are for pelvic floor stretching and trigger point work once I start using them (got my period at the moment so won't start for a few days).
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Dilators for trigger points

Post  jules on Thu Nov 25, 2010 5:46 pm

yep, it was me. i haven't used mine yet because of pain in my vagina has been bad this week. my P.T. told me once i get used to the size i have, we will move up in size...or should i say once i can tolerate this size we will move up. my husband is feeling very left out. :-)

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Dilators for trigger points

Post  Sarah001 on Thu Nov 25, 2010 8:00 pm

I intend to use them in size order at a later date, I think I'll need to get rid of some skin inflammation first. How are you finding them? I'm a bit surprised you've been given them as your resting tone is so low, I wouldn't have thought stretching the muscles and vaginal opening would be necessary in that situation? Obviously I could be wrong! Another thing the book suggests is imitating sex with them but I have wayyyyy too much inflamed skin for that! Not that I have anyone to have sex with anyway so no rush!
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Dilators for trigger points

Post  jules on Sat Nov 27, 2010 6:02 pm

I did have a low resting rate, however the P.T did find some tightness in the pelvic walls. She wanted me to work out messaging the walls, i guess. I feel like i am an experiment. The P.T. is trying things w/ me that she has learned about from workshops etc. I still haven't tried the dilator. I got so sore after my p.t. used it on me, that i am afraid to try. Today may be a good day because i have no pain???? don't know why. I'll let you know.

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Dilators for trigger points

Post  Sarah001 on Tue Dec 14, 2010 2:25 pm

How are you getting on with the dilators jules? I find immediately after using the small one to press trigger points (I have loads and alot of them refer to my external hip rotators so I'm treating the obturator internus as well now) and stretch the pelvic floor I have a warm relaxed feeling in the pelvic floor, it's almost as if I can feel the blood flowing for a short period but it doesn't last at the moment. Still it's a good sign that they reduce my symptoms even for a short time. I'm still not using any other size though as I basically use the small one to imitate a long finger that can reach the high trigger points and spasm. Any of you girls in the UK if you get the Femmax set the small one is like a long slim plastic finger so inserting it isn't a problem, I use Bio Fem gel sometimes as it's ph balanced or vaseline if I use it in the bath.

I also have a really tight muscle just at the entrance to the vagina and if I press on that it reproduces the sore, raw feeling that I have where my skin is inflamed. I'm not sure if it's because it's right near the inflamed skin or if it's the source of the inflamed skin but I'll keep going and let you know. Another tip I came across was to use dilators to stretch the pelvic floor then do some kegels with the emphasis on relaxing after each contraction so the blood flows better.

And yet another tip I found was to place a tennis ball under the perineum to release the muscles from an external area. Lots of the pelvic floor muscles meet or cross the perineum so relaxing that area catches lots of them. I use mine on the bed at the moment as placing it on the floor then sitting on it is very painful so my mattress has a bit of give in it to decrease the intensity. If you try ths and it's painful you've got tight muscles in the pelvic floor so it's a good test too!
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Dilators for trigger points

Post  jules on Wed Dec 15, 2010 2:40 am

hi Sarah,

I still have not used my dilator. I should, but i hurt so bad after the P.T. used it during my therapy session that i don't want to aggravate the area. i stopped P.T. but i started hurting again today so i may give it another shot. i have had no real pain for a good 7 days. I spoke too soon..cause now it's back. my p.t. showed me the exercise w/ the tennis ball. she has some other ideas for me and would like me to come back. dang, i thought i was on the mend. i will likely start the messaging of the pelvic walls soon. but don't want to do it when i have this pain. glad to hear you get some relief. keep me in the loop.

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Dilators for trigger points

Post  Sarah001 on Sat Jan 01, 2011 7:51 pm

It seems using the dilator to stretch the pelvic floor and hit trigger points was a bit too effective for me! I've had a month of 2-3 SI joint flare ups every week because I released my pelvic floor a bit too much so I've backed off for now. I'll start again once I've seen my therapist and got some new stability exercises from her. Bloody SI joints. Rolling Eyes
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Dilators for trigger points

Post  Sebby (Admin) on Mon Jan 03, 2011 11:17 pm


I just ordered my dialators as well as the ending female pain book.

Am looking forward to getting started actually lol its good to just feel like im moving forward with trying different treatments

I will let you guys know how I get on as well!

avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Dilators for trigger points

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum