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» Struggling
Yesterday at 3:19 am by doublej

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Wed Dec 13, 2017 5:17 pm by Katiej

» Amitriptyline Success and new-found love
Mon Dec 11, 2017 2:47 am by hannah22

» Went Away and Came Back
Sun Dec 10, 2017 8:48 pm by lindsey_taylor

» Somebody please help me...
Sat Dec 09, 2017 5:46 pm by PainBlogger

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 09, 2017 4:40 pm by mary jane

» 7 years later and life looks bleak :(
Thu Dec 07, 2017 12:37 am by sarisbaris

» Laser or Botox Injections for treating vulvodynia
Wed Dec 06, 2017 6:04 am by sarisbaris

» difficult to treat vaginal infections, un-understanding docotrs
Wed Dec 06, 2017 2:52 am by RainyShay77

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Dilators for trigger points

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Dilators for trigger points

Post  Sarah001 on Thu Nov 25, 2010 2:26 pm

I noticed someone said the other day they'd been advised to use dilators, was it jules? Anyway, I've just received a set of dilators I ordered as in Ending Female Pain the author advises using them for reaching trigger points high up in the pelvic floor where you can't reach with your fingers. I'll only be using the smallest one as it's going to be used as a trigger point tool but any of you girls interested in them in the UK can actually get them free on the NHS if you ask your doctor. I bought mine as I couldn't face collecting them from the pharmacy where I get all my prescriptions from and all the people there know me (too embarrassing!) and they cost me about £25. I'll update about how effective they are for pelvic floor stretching and trigger point work once I start using them (got my period at the moment so won't start for a few days).
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Re: Dilators for trigger points

Post  jules on Thu Nov 25, 2010 5:46 pm

yep, it was me. i haven't used mine yet because of pain in my vagina has been bad this week. my P.T. told me once i get used to the size i have, we will move up in size...or should i say once i can tolerate this size we will move up. my husband is feeling very left out. :-)

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Re: Dilators for trigger points

Post  Sarah001 on Thu Nov 25, 2010 8:00 pm

I intend to use them in size order at a later date, I think I'll need to get rid of some skin inflammation first. How are you finding them? I'm a bit surprised you've been given them as your resting tone is so low, I wouldn't have thought stretching the muscles and vaginal opening would be necessary in that situation? Obviously I could be wrong! Another thing the book suggests is imitating sex with them but I have wayyyyy too much inflamed skin for that! Not that I have anyone to have sex with anyway so no rush!
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Re: Dilators for trigger points

Post  jules on Sat Nov 27, 2010 6:02 pm

I did have a low resting rate, however the P.T did find some tightness in the pelvic walls. She wanted me to work out messaging the walls, i guess. I feel like i am an experiment. The P.T. is trying things w/ me that she has learned about from workshops etc. I still haven't tried the dilator. I got so sore after my p.t. used it on me, that i am afraid to try. Today may be a good day because i have no pain???? don't know why. I'll let you know.

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Re: Dilators for trigger points

Post  Sarah001 on Tue Dec 14, 2010 2:25 pm

How are you getting on with the dilators jules? I find immediately after using the small one to press trigger points (I have loads and alot of them refer to my external hip rotators so I'm treating the obturator internus as well now) and stretch the pelvic floor I have a warm relaxed feeling in the pelvic floor, it's almost as if I can feel the blood flowing for a short period but it doesn't last at the moment. Still it's a good sign that they reduce my symptoms even for a short time. I'm still not using any other size though as I basically use the small one to imitate a long finger that can reach the high trigger points and spasm. Any of you girls in the UK if you get the Femmax set the small one is like a long slim plastic finger so inserting it isn't a problem, I use Bio Fem gel sometimes as it's ph balanced or vaseline if I use it in the bath.

I also have a really tight muscle just at the entrance to the vagina and if I press on that it reproduces the sore, raw feeling that I have where my skin is inflamed. I'm not sure if it's because it's right near the inflamed skin or if it's the source of the inflamed skin but I'll keep going and let you know. Another tip I came across was to use dilators to stretch the pelvic floor then do some kegels with the emphasis on relaxing after each contraction so the blood flows better.

And yet another tip I found was to place a tennis ball under the perineum to release the muscles from an external area. Lots of the pelvic floor muscles meet or cross the perineum so relaxing that area catches lots of them. I use mine on the bed at the moment as placing it on the floor then sitting on it is very painful so my mattress has a bit of give in it to decrease the intensity. If you try ths and it's painful you've got tight muscles in the pelvic floor so it's a good test too!
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Re: Dilators for trigger points

Post  jules on Wed Dec 15, 2010 2:40 am

hi Sarah,

I still have not used my dilator. I should, but i hurt so bad after the P.T. used it during my therapy session that i don't want to aggravate the area. i stopped P.T. but i started hurting again today so i may give it another shot. i have had no real pain for a good 7 days. I spoke too soon..cause now it's back. my p.t. showed me the exercise w/ the tennis ball. she has some other ideas for me and would like me to come back. dang, i thought i was on the mend. i will likely start the messaging of the pelvic walls soon. but don't want to do it when i have this pain. glad to hear you get some relief. keep me in the loop.

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Re: Dilators for trigger points

Post  Sarah001 on Sat Jan 01, 2011 7:51 pm

It seems using the dilator to stretch the pelvic floor and hit trigger points was a bit too effective for me! I've had a month of 2-3 SI joint flare ups every week because I released my pelvic floor a bit too much so I've backed off for now. I'll start again once I've seen my therapist and got some new stability exercises from her. Bloody SI joints. Rolling Eyes
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Re: Dilators for trigger points

Post  Sebby (Admin) on Mon Jan 03, 2011 11:17 pm


I just ordered my dialators as well as the ending female pain book.

Am looking forward to getting started actually lol its good to just feel like im moving forward with trying different treatments

I will let you guys know how I get on as well!

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Re: Dilators for trigger points

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