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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Dilators for trigger points

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Dilators for trigger points

Post  Sarah001 on Thu Nov 25, 2010 2:26 pm

I noticed someone said the other day they'd been advised to use dilators, was it jules? Anyway, I've just received a set of dilators I ordered as in Ending Female Pain the author advises using them for reaching trigger points high up in the pelvic floor where you can't reach with your fingers. I'll only be using the smallest one as it's going to be used as a trigger point tool but any of you girls interested in them in the UK can actually get them free on the NHS if you ask your doctor. I bought mine as I couldn't face collecting them from the pharmacy where I get all my prescriptions from and all the people there know me (too embarrassing!) and they cost me about £25. I'll update about how effective they are for pelvic floor stretching and trigger point work once I start using them (got my period at the moment so won't start for a few days).
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Re: Dilators for trigger points

Post  jules on Thu Nov 25, 2010 5:46 pm

yep, it was me. i haven't used mine yet because of pain in my vagina has been bad this week. my P.T. told me once i get used to the size i have, we will move up in size...or should i say once i can tolerate this size we will move up. my husband is feeling very left out. :-)

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Re: Dilators for trigger points

Post  Sarah001 on Thu Nov 25, 2010 8:00 pm

I intend to use them in size order at a later date, I think I'll need to get rid of some skin inflammation first. How are you finding them? I'm a bit surprised you've been given them as your resting tone is so low, I wouldn't have thought stretching the muscles and vaginal opening would be necessary in that situation? Obviously I could be wrong! Another thing the book suggests is imitating sex with them but I have wayyyyy too much inflamed skin for that! Not that I have anyone to have sex with anyway so no rush!
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Re: Dilators for trigger points

Post  jules on Sat Nov 27, 2010 6:02 pm

I did have a low resting rate, however the P.T did find some tightness in the pelvic walls. She wanted me to work out messaging the walls, i guess. I feel like i am an experiment. The P.T. is trying things w/ me that she has learned about from workshops etc. I still haven't tried the dilator. I got so sore after my p.t. used it on me, that i am afraid to try. Today may be a good day because i have no pain???? don't know why. I'll let you know.

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Re: Dilators for trigger points

Post  Sarah001 on Tue Dec 14, 2010 2:25 pm

How are you getting on with the dilators jules? I find immediately after using the small one to press trigger points (I have loads and alot of them refer to my external hip rotators so I'm treating the obturator internus as well now) and stretch the pelvic floor I have a warm relaxed feeling in the pelvic floor, it's almost as if I can feel the blood flowing for a short period but it doesn't last at the moment. Still it's a good sign that they reduce my symptoms even for a short time. I'm still not using any other size though as I basically use the small one to imitate a long finger that can reach the high trigger points and spasm. Any of you girls in the UK if you get the Femmax set the small one is like a long slim plastic finger so inserting it isn't a problem, I use Bio Fem gel sometimes as it's ph balanced or vaseline if I use it in the bath.

I also have a really tight muscle just at the entrance to the vagina and if I press on that it reproduces the sore, raw feeling that I have where my skin is inflamed. I'm not sure if it's because it's right near the inflamed skin or if it's the source of the inflamed skin but I'll keep going and let you know. Another tip I came across was to use dilators to stretch the pelvic floor then do some kegels with the emphasis on relaxing after each contraction so the blood flows better.

And yet another tip I found was to place a tennis ball under the perineum to release the muscles from an external area. Lots of the pelvic floor muscles meet or cross the perineum so relaxing that area catches lots of them. I use mine on the bed at the moment as placing it on the floor then sitting on it is very painful so my mattress has a bit of give in it to decrease the intensity. If you try ths and it's painful you've got tight muscles in the pelvic floor so it's a good test too!
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Re: Dilators for trigger points

Post  jules on Wed Dec 15, 2010 2:40 am

hi Sarah,

I still have not used my dilator. I should, but i hurt so bad after the P.T. used it during my therapy session that i don't want to aggravate the area. i stopped P.T. but i started hurting again today so i may give it another shot. i have had no real pain for a good 7 days. I spoke too soon..cause now it's back. my p.t. showed me the exercise w/ the tennis ball. she has some other ideas for me and would like me to come back. dang, i thought i was on the mend. i will likely start the messaging of the pelvic walls soon. but don't want to do it when i have this pain. glad to hear you get some relief. keep me in the loop.

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Re: Dilators for trigger points

Post  Sarah001 on Sat Jan 01, 2011 7:51 pm

It seems using the dilator to stretch the pelvic floor and hit trigger points was a bit too effective for me! I've had a month of 2-3 SI joint flare ups every week because I released my pelvic floor a bit too much so I've backed off for now. I'll start again once I've seen my therapist and got some new stability exercises from her. Bloody SI joints. Rolling Eyes
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Re: Dilators for trigger points

Post  Sebby (Admin) on Mon Jan 03, 2011 11:17 pm


I just ordered my dialators as well as the ending female pain book.

Am looking forward to getting started actually lol its good to just feel like im moving forward with trying different treatments

I will let you guys know how I get on as well!

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Re: Dilators for trigger points

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