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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Dilators for trigger points

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Dilators for trigger points

Post  Sarah001 on Thu Nov 25, 2010 2:26 pm

I noticed someone said the other day they'd been advised to use dilators, was it jules? Anyway, I've just received a set of dilators I ordered as in Ending Female Pain the author advises using them for reaching trigger points high up in the pelvic floor where you can't reach with your fingers. I'll only be using the smallest one as it's going to be used as a trigger point tool but any of you girls interested in them in the UK can actually get them free on the NHS if you ask your doctor. I bought mine as I couldn't face collecting them from the pharmacy where I get all my prescriptions from and all the people there know me (too embarrassing!) and they cost me about £25. I'll update about how effective they are for pelvic floor stretching and trigger point work once I start using them (got my period at the moment so won't start for a few days).
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Re: Dilators for trigger points

Post  jules on Thu Nov 25, 2010 5:46 pm

yep, it was me. i haven't used mine yet because of pain in my vagina has been bad this week. my P.T. told me once i get used to the size i have, we will move up in size...or should i say once i can tolerate this size we will move up. my husband is feeling very left out. :-)

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Re: Dilators for trigger points

Post  Sarah001 on Thu Nov 25, 2010 8:00 pm

I intend to use them in size order at a later date, I think I'll need to get rid of some skin inflammation first. How are you finding them? I'm a bit surprised you've been given them as your resting tone is so low, I wouldn't have thought stretching the muscles and vaginal opening would be necessary in that situation? Obviously I could be wrong! Another thing the book suggests is imitating sex with them but I have wayyyyy too much inflamed skin for that! Not that I have anyone to have sex with anyway so no rush!
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Re: Dilators for trigger points

Post  jules on Sat Nov 27, 2010 6:02 pm

I did have a low resting rate, however the P.T did find some tightness in the pelvic walls. She wanted me to work out messaging the walls, i guess. I feel like i am an experiment. The P.T. is trying things w/ me that she has learned about from workshops etc. I still haven't tried the dilator. I got so sore after my p.t. used it on me, that i am afraid to try. Today may be a good day because i have no pain???? don't know why. I'll let you know.

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Re: Dilators for trigger points

Post  Sarah001 on Tue Dec 14, 2010 2:25 pm

How are you getting on with the dilators jules? I find immediately after using the small one to press trigger points (I have loads and alot of them refer to my external hip rotators so I'm treating the obturator internus as well now) and stretch the pelvic floor I have a warm relaxed feeling in the pelvic floor, it's almost as if I can feel the blood flowing for a short period but it doesn't last at the moment. Still it's a good sign that they reduce my symptoms even for a short time. I'm still not using any other size though as I basically use the small one to imitate a long finger that can reach the high trigger points and spasm. Any of you girls in the UK if you get the Femmax set the small one is like a long slim plastic finger so inserting it isn't a problem, I use Bio Fem gel sometimes as it's ph balanced or vaseline if I use it in the bath.

I also have a really tight muscle just at the entrance to the vagina and if I press on that it reproduces the sore, raw feeling that I have where my skin is inflamed. I'm not sure if it's because it's right near the inflamed skin or if it's the source of the inflamed skin but I'll keep going and let you know. Another tip I came across was to use dilators to stretch the pelvic floor then do some kegels with the emphasis on relaxing after each contraction so the blood flows better.

And yet another tip I found was to place a tennis ball under the perineum to release the muscles from an external area. Lots of the pelvic floor muscles meet or cross the perineum so relaxing that area catches lots of them. I use mine on the bed at the moment as placing it on the floor then sitting on it is very painful so my mattress has a bit of give in it to decrease the intensity. If you try ths and it's painful you've got tight muscles in the pelvic floor so it's a good test too!
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Re: Dilators for trigger points

Post  jules on Wed Dec 15, 2010 2:40 am

hi Sarah,

I still have not used my dilator. I should, but i hurt so bad after the P.T. used it during my therapy session that i don't want to aggravate the area. i stopped P.T. but i started hurting again today so i may give it another shot. i have had no real pain for a good 7 days. I spoke too soon..cause now it's back. my p.t. showed me the exercise w/ the tennis ball. she has some other ideas for me and would like me to come back. dang, i thought i was on the mend. i will likely start the messaging of the pelvic walls soon. but don't want to do it when i have this pain. glad to hear you get some relief. keep me in the loop.

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Re: Dilators for trigger points

Post  Sarah001 on Sat Jan 01, 2011 7:51 pm

It seems using the dilator to stretch the pelvic floor and hit trigger points was a bit too effective for me! I've had a month of 2-3 SI joint flare ups every week because I released my pelvic floor a bit too much so I've backed off for now. I'll start again once I've seen my therapist and got some new stability exercises from her. Bloody SI joints. Rolling Eyes
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Re: Dilators for trigger points

Post  Sebby (Admin) on Mon Jan 03, 2011 11:17 pm


I just ordered my dialators as well as the ending female pain book.

Am looking forward to getting started actually lol its good to just feel like im moving forward with trying different treatments

I will let you guys know how I get on as well!

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Re: Dilators for trigger points

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