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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Need Readers for a New Book - Vagina Talks

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Need Readers for a New Book - Vagina Talks

Post  vagina talks on Mon Aug 25, 2014 4:52 pm

Good Morning,
I was a member of this group years ago when I suffered with vulva pain and irritation for over 15 years. I've been cured for 5 years now and want to share what I learned with other women in a book I've written, Vagina Talks.
It looks at vaginal health within the larger cultural context of women's health and sexuality.
I want this book to be truly helpful to women who suffered like I did with no hope in sight.
I am looking for about 5 readers for each chapter of the book.
I want to know what questions your chapter leaves unanswered. What topics you would add. What information you are looking for on the topics in your chapter that I haven't already addressed.
Each reader will receive a free copy of the book when it goes to press in December.
If you are interested in being a reader, please let me know!

You can also join the Facebook Group at: Vagina Talks
Thank You,
Alison Buehler

vagina talks

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Re: Need Readers for a New Book - Vagina Talks

Post  Alana3 on Mon Aug 25, 2014 5:50 pm

Sounds interesting!

Alana3

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Re: Need Readers for a New Book - Vagina Talks

Post  meelie on Tue Aug 26, 2014 3:25 pm

I would be interested in helping but will admit I am most interested in knowing how you cured it.

meelie

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Re: Need Readers for a New Book - Vagina Talks

Post  Alana3 on Tue Aug 26, 2014 5:57 pm

Meelie- I'm sorry, I do read your stuff, but it tends to be overwhelming in remembering everyone's specific problems.  Is yours provoked or all the time?

Alana3

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Re: Need Readers for a New Book - Vagina Talks

Post  meelie on Tue Aug 26, 2014 8:24 pm

We think mine is from pelvic floor dysfunction. It is burning all the time but seems to o away while I sleep, I take xanax to sleep, and then after about 2 hours after being up out of bed it starts again. So, of course, I can't wait till bed time. Makes for a miserable way to dread my days. GYN says skin looks okay, I take a hormone replacement and have been for years and years and years. Have had a hysterectomy, my pain started after a bad bout with constipation three year ago in Sept.
Hope that helps. Neurontin didn't help. Amitriptyline drove me crazy. No one will give me pain med. Got some tramadol the other day for bad back, it was like squeezing blood out of a turnip to get it. I haven't tried it yet. Been taking out of date percocet but I am about out. I am panicked to think I will not have anything to give me a break once in a while. Everyone who asks for pain med IS NOT AN ADDICT. But Dr.'s don't understand. I would love to pour acid on their vulva's or penis's and see what they think.

meelie

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Re: Need Readers for a New Book - Vagina Talks

Post  zarli on Wed Aug 27, 2014 12:24 am

I would love to be apart of your book. Thank you for the opportunity.
Kind Regards

zarli

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Re: Need Readers for a New Book - Vagina Talks

Post  Qu_789 on Sat Apr 30, 2016 5:15 pm

Hi, I know these posts were from a while ago...but did you ever publish the book?

Thanks

Qu_789

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Re: Need Readers for a New Book - Vagina Talks

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