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» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 1:33 pm by mary jane

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3


Need Readers for a New Book - Vagina Talks

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Need Readers for a New Book - Vagina Talks

Post  vagina talks on Mon Aug 25, 2014 4:52 pm

Good Morning,
I was a member of this group years ago when I suffered with vulva pain and irritation for over 15 years. I've been cured for 5 years now and want to share what I learned with other women in a book I've written, Vagina Talks.
It looks at vaginal health within the larger cultural context of women's health and sexuality.
I want this book to be truly helpful to women who suffered like I did with no hope in sight.
I am looking for about 5 readers for each chapter of the book.
I want to know what questions your chapter leaves unanswered. What topics you would add. What information you are looking for on the topics in your chapter that I haven't already addressed.
Each reader will receive a free copy of the book when it goes to press in December.
If you are interested in being a reader, please let me know!

You can also join the Facebook Group at: Vagina Talks
Thank You,
Alison Buehler

vagina talks

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Re: Need Readers for a New Book - Vagina Talks

Post  Alana3 on Mon Aug 25, 2014 5:50 pm

Sounds interesting!

Alana3

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Re: Need Readers for a New Book - Vagina Talks

Post  meelie on Tue Aug 26, 2014 3:25 pm

I would be interested in helping but will admit I am most interested in knowing how you cured it.

meelie

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Re: Need Readers for a New Book - Vagina Talks

Post  Alana3 on Tue Aug 26, 2014 5:57 pm

Meelie- I'm sorry, I do read your stuff, but it tends to be overwhelming in remembering everyone's specific problems.  Is yours provoked or all the time?

Alana3

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Re: Need Readers for a New Book - Vagina Talks

Post  meelie on Tue Aug 26, 2014 8:24 pm

We think mine is from pelvic floor dysfunction. It is burning all the time but seems to o away while I sleep, I take xanax to sleep, and then after about 2 hours after being up out of bed it starts again. So, of course, I can't wait till bed time. Makes for a miserable way to dread my days. GYN says skin looks okay, I take a hormone replacement and have been for years and years and years. Have had a hysterectomy, my pain started after a bad bout with constipation three year ago in Sept.
Hope that helps. Neurontin didn't help. Amitriptyline drove me crazy. No one will give me pain med. Got some tramadol the other day for bad back, it was like squeezing blood out of a turnip to get it. I haven't tried it yet. Been taking out of date percocet but I am about out. I am panicked to think I will not have anything to give me a break once in a while. Everyone who asks for pain med IS NOT AN ADDICT. But Dr.'s don't understand. I would love to pour acid on their vulva's or penis's and see what they think.

meelie

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Re: Need Readers for a New Book - Vagina Talks

Post  zarli on Wed Aug 27, 2014 12:24 am

I would love to be apart of your book. Thank you for the opportunity.
Kind Regards

zarli

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Re: Need Readers for a New Book - Vagina Talks

Post  Qu_789 on Sat Apr 30, 2016 5:15 pm

Hi, I know these posts were from a while ago...but did you ever publish the book?

Thanks

Qu_789

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Re: Need Readers for a New Book - Vagina Talks

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