Log in

I forgot my password

Latest topics
Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Need Readers for a New Book - Vagina Talks

Go down

Need Readers for a New Book - Vagina Talks

Post  vagina talks on Mon Aug 25, 2014 4:52 pm

Good Morning,
I was a member of this group years ago when I suffered with vulva pain and irritation for over 15 years. I've been cured for 5 years now and want to share what I learned with other women in a book I've written, Vagina Talks.
It looks at vaginal health within the larger cultural context of women's health and sexuality.
I want this book to be truly helpful to women who suffered like I did with no hope in sight.
I am looking for about 5 readers for each chapter of the book.
I want to know what questions your chapter leaves unanswered. What topics you would add. What information you are looking for on the topics in your chapter that I haven't already addressed.
Each reader will receive a free copy of the book when it goes to press in December.
If you are interested in being a reader, please let me know!

You can also join the Facebook Group at: Vagina Talks
Thank You,
Alison Buehler

vagina talks

Posts : 1
Join date : 2014-08-25

View user profile

Back to top Go down

Re: Need Readers for a New Book - Vagina Talks

Post  Alana3 on Mon Aug 25, 2014 5:50 pm

Sounds interesting!

Alana3

Posts : 1093
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Need Readers for a New Book - Vagina Talks

Post  meelie on Tue Aug 26, 2014 3:25 pm

I would be interested in helping but will admit I am most interested in knowing how you cured it.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: Need Readers for a New Book - Vagina Talks

Post  Alana3 on Tue Aug 26, 2014 5:57 pm

Meelie- I'm sorry, I do read your stuff, but it tends to be overwhelming in remembering everyone's specific problems.  Is yours provoked or all the time?

Alana3

Posts : 1093
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Need Readers for a New Book - Vagina Talks

Post  meelie on Tue Aug 26, 2014 8:24 pm

We think mine is from pelvic floor dysfunction. It is burning all the time but seems to o away while I sleep, I take xanax to sleep, and then after about 2 hours after being up out of bed it starts again. So, of course, I can't wait till bed time. Makes for a miserable way to dread my days. GYN says skin looks okay, I take a hormone replacement and have been for years and years and years. Have had a hysterectomy, my pain started after a bad bout with constipation three year ago in Sept.
Hope that helps. Neurontin didn't help. Amitriptyline drove me crazy. No one will give me pain med. Got some tramadol the other day for bad back, it was like squeezing blood out of a turnip to get it. I haven't tried it yet. Been taking out of date percocet but I am about out. I am panicked to think I will not have anything to give me a break once in a while. Everyone who asks for pain med IS NOT AN ADDICT. But Dr.'s don't understand. I would love to pour acid on their vulva's or penis's and see what they think.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: Need Readers for a New Book - Vagina Talks

Post  zarli on Wed Aug 27, 2014 12:24 am

I would love to be apart of your book. Thank you for the opportunity.
Kind Regards

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

View user profile

Back to top Go down

Re: Need Readers for a New Book - Vagina Talks

Post  Qu_789 on Sat Apr 30, 2016 5:15 pm

Hi, I know these posts were from a while ago...but did you ever publish the book?

Thanks

Qu_789

Posts : 6
Join date : 2016-04-30

View user profile

Back to top Go down

Re: Need Readers for a New Book - Vagina Talks

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum