Vulvodynia Support
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» Hope to all my suffering ladies
Someone please help!  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Someone please help!  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Someone please help!  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Someone please help!  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Someone please help!  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Someone please help!  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Someone please help!  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Someone please help!  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Someone please help!  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Someone please help!

4 posters

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Post  Mandadity Fri Aug 22, 2014 6:00 pm

I have had vulvadynia since I was 17, I'm now 24. It took them hundreds of tests/exams/doctors(about 10 docs) and 5 years to diagnose me with it. Since before I ever had been diagnosed I have lost jobs, lost relationships/friendships (from never being able to hang out and always crying), I've lost many homes because I couldn't pay rent and so much more. I had a baby before being diagnosed, she's 3 now and has major psychological problems due to her father(and is still legally obligated to go see him) and I try to be there and keep her active and doing other things but with the passion I have, trying to have a job and pay rent, that's not been possible.

Since diagnosed and I have state insurance, I have been declined physical therapy, which my doctors say I need to get better, medications like nortriptolene, lidocaine, progesterone only pills, birth control, vicodin, Tylenol, ibuprofen, nothing has worked. I have a heating pad that on full blast takes the edge off of my pain but leaves me with blisters everywhere else the pad touches(still less pain then vulvadynia). Sometimes sitting in the tub with no water and just force pee every drop out helps(no uti, bacterial infection, not eating high acidic food, nothing), but only some times.

My daughter's dad and I split in sept 2013 and since January of 2014 I've been diagnosed with PTSD, and MAJOR DEPRESSION. This has only made things 100x worse. I'm always having panic attacks, can't breathe sometimes, can't get out of bed, crying all day while trying to keep a happy baby, anxiety attacks, feel so numb I can't move/think.

I have been reapplying to social security and I'm done being denied so many times, so I've decided to get a lawyer (that was in may 2014), still nothing yet.

I am working as a live in nanny but just got informed that I have 2-3 months to leave because me and the mom's personalities clash too much(per her).

All community resources(dhs,211, crisis lines)have led me nowhere and have made me feel more hopeless and helpless then ever before.

I have no friends, no family, no support of any kind. I've tried to get myself in therapy again but no body will take me because I have no choice but to bring my daughter with me.

So, soon I'm going to be a 24 year old woman, with a 3 year old, with PTSD, depression, anxiety attacks, panic attacks,homeless, jobless, and so on, with me trying as hard as I can to be otherwise.

I need so much help! :'( *I'm in NW Oregon.*

Mandadity

Posts : 7
Join date : 2012-07-24
Age : 33
Location : Tigard, Oregon

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Post  sailor_moon Sat Aug 23, 2014 1:06 pm

Omfg! I just want to give you a big hug! Sad you poor thing! ! You have come to the right place, the women on this forum are a wonderful support system.

I can't say I know what you are going through, your situation is worse than mine. I don't have a child to care for. I do, however; being a young woman in my 20's, know how this condition destroys every aspect of your life. And I know what it is like suffering from depression, acute anxiety and PTSD. I have developed PTSD as a result of my vulva problem.

Can I ask how your problem all started? Do you have any other symptoms? Is it just pain or is it itching and burning too?

I jumped on this site out of desperation at my lowest point, I felt so alone. It helped me a lot, chatting to ladies who know exactly how it feels. At this point they have helped save my sanity. Don't feel like you have no-one, you have support here. X

sailor_moon
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

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Post  zarli Sun Aug 24, 2014 10:30 am

You poor darling. You are so courageous to come on this forum and poor your heart out. You must be exhausted and feeling very vulnerable. I don't know what you're health system is like there but you need to get physical help and by that I mean like womens crisis centres, community hubs. You need alot of help and you must search out these kinds of places that are there for women and their children. Prioritize you're problems and tackle them one at a time. Can you find a social worker ? They would be a fabulous starting point for you to start getting the help you need. Anxiety and panic attacks are horrendous but with the right help you will beat them. I have lived with anxiety all my life and I beat panic attacks years ago. Try to think of panic attacks as a separate thing to you, and say to yourself I will not be controlled by you. I like to refer to panic attacks as "it" and say to yourself 'it will not control me I will control it'. You will be ok you will find a way to get help and until then stay in contact with all of us on here.
Kindest thoughts sent your way

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

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Post  meelie Mon Aug 25, 2014 2:34 pm

I am so so sorry to read your story. I can't say I know how you feel except in the vulvodynia part. It is horrendous and it, in my opinion can give the same symptoms as PTSD. The depression is overwhelming. You need medication. Have you applied for Federal Medicaid? There are women's shelters that will help. There is what we call down south DFACS. Department of family and children services. There are people there that can help.
And I know there will be people on here that will disagree, but there is also prayer.
I am most definitely not a Holier tha thou person but I believe in God and Jesus Christ and I know that They give strength and courage. Have you been to any Church's to seek help. I know they all are not what God intended but there must be one that lives up to God's intentions of helping people. There is nothing in your past that He won't forgive. Please seek the help of a church and true Christians. I am way too far away to physically help but I can and will pray for you.
God Bless you and your baby.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

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