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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


CRISCO on the Vulva???

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CRISCO on the Vulva???

Post  noelle2530 on Fri Aug 29, 2014 3:25 pm

Hi all I was just diagnosed and my dr told me to put crisco on my vulva 2x a day also is making me and my bf use dove sensitive skin unscented soup, and unscented laundry det, wear cotton under wear, and so on... She said I have to try this for 8 weeks she didn't want to start me on meds yet. Has this worked for anyone else?

noelle2530

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Age : 33
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Re: CRISCO on the Vulva???

Post  meelie on Sat Aug 30, 2014 1:57 pm

Haven't tried the Crisco yet, but the other stuff yes. Please just be sure you don't put the soap, even Dove, on your vulva. Wash all around it but just rinse the actual vulva.
Dry real good before you put the Crisco on. I finally got a Rx. for lidocaine and flexeril cream. Doesn't really help much except to keep it from feeling real dry. I also use something called Yes for moisture especially if we try having sex. It makes things real wet down there and slippery.:Laughing There are different stuff out there for moisture just make sure it doesn't have glycol or glycemic acid. I think those are correct, they turn to sugar and cause yeast. Watch your ingredients. Remember, no soap on the vulva.

meelie

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Re: CRISCO on the Vulva???

Post  meelie on Thu Sep 04, 2014 4:16 pm

curious, how did the crisco work? Coconut oil stings me

meelie

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Re: CRISCO on the Vulva???

Post  Pianochickens on Thu Feb 12, 2015 2:53 am

I've been using crisco for a couple months. my dr. Said to do it many times a day. It hasn't helped the pain, but I noticed when I go to long with out using, it feels more raw. How did it work for you?

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crisco

Post  noelle2530 on Thu Feb 12, 2015 5:56 pm

I haven't been using it much I feel like my vulvodynia has steeled down some but when I'm really dry like during my period and I have a tampon in I get dry so I use it the nand it really soothes me.

noelle2530

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Re: CRISCO on the Vulva???

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