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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


in London!!!

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in London!!!

Post  zarli on Sat Aug 30, 2014 7:20 pm

Hi girls
just thought I would let you all know I am in London on the first leg of my holiday. God its along plane flight from Australia. I keep thinking about all you London girls as I am site seeing. Can't believe I had no pain on flight and no pain on holiday. Its great. What a beautiful city and lovely people. Really enjoying it so far. Off to Scotland on Monday.
Kind Regards Z

zarli

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Re: in London!!!

Post  Alana3 on Tue Sep 02, 2014 3:44 pm

Come to Florida!!!!

Alana3

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Re: in London!!!

Post  zarli on Sun Sep 07, 2014 8:08 pm

Oh I would love to come to Florida !!!! I will have to save up. I am in Dublin atm.. its my first night I hate to say it but I am disappointed. ..oh I apologise to any one on here from Dublin. I will be seeing alot more over the next couple of days so I might get to like it more. Didn't help that someone tried to take my phone !!! The rest of Ireland has been amazing. But I am so in love with Wales and south Devon in England so beautiful. I feel so very fortunate to be on a holiday at all. Alana if I ever get to Florida my high light would be meeting you ! I can't wait to meet a fellow sufferer face to face because no one else could possibly understand what we go through. Xx

zarli

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Re: in London!!!

Post  Alana3 on Mon Sep 08, 2014 3:48 pm

haha let me know if you make it down and if I ever make it to you the same goes! Dublin was nice from what I remember, dont judge it on one moron. Are you feeling OK?

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Re: in London!!!

Post  zarli on Mon Sep 08, 2014 8:53 pm

Yes feeling ok thanks. I had a feeling I would be ok as relaxing and less stress helps me but I am shocked at me being able to sit the whole flight 13 hours then 7hours with out pain just goes to show what stress does. Had a good day today in Dublin. Looking forward to seeing Scotland and Paris, I am still in shock at being overseas on a holiday its so surreal. Hope you are doing well ? Talk soon

zarli

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Re: in London!!!

Post  zarli on Wed Sep 24, 2014 1:17 pm

Back home in Australia. I had the best time and can't believe I have been overseas. I also have known all along the effects of stress on vulvodynia but I am in shock at how much it has effected me. Which makes me pose a question. ... just like people who are prone to other illnesses due to stress could vulvodynia be attributed to stress stimulus ? Meaning that there is nothing else to discover?
7 years of resesrch and trying everything there is to try from the wacky ideas to the conventional and nothing has taken vulvodynia away. Medication helps. I could not take on less physical work because I couldn't sit for more than half an hour, but I sat for 7 hours then 13 flying and had no discomfort at all. Not only my vulvodynia but also no pain from my fibromyalgia. Makes me think harder about my life and try to make some changes to give me some happiness on regular basis.

zarli

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Re: in London!!!

Post  Caropes on Thu Sep 25, 2014 1:40 am

So, so glad you had a great vacation and are feeling better. Very great to hear Very Happy

Caropes

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Re: in London!!!

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