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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


in London!!!

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in London!!!

Post  zarli on Sat Aug 30, 2014 7:20 pm

Hi girls
just thought I would let you all know I am in London on the first leg of my holiday. God its along plane flight from Australia. I keep thinking about all you London girls as I am site seeing. Can't believe I had no pain on flight and no pain on holiday. Its great. What a beautiful city and lovely people. Really enjoying it so far. Off to Scotland on Monday.
Kind Regards Z

zarli

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Re: in London!!!

Post  Alana3 on Tue Sep 02, 2014 3:44 pm

Come to Florida!!!!

Alana3

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Re: in London!!!

Post  zarli on Sun Sep 07, 2014 8:08 pm

Oh I would love to come to Florida !!!! I will have to save up. I am in Dublin atm.. its my first night I hate to say it but I am disappointed. ..oh I apologise to any one on here from Dublin. I will be seeing alot more over the next couple of days so I might get to like it more. Didn't help that someone tried to take my phone !!! The rest of Ireland has been amazing. But I am so in love with Wales and south Devon in England so beautiful. I feel so very fortunate to be on a holiday at all. Alana if I ever get to Florida my high light would be meeting you ! I can't wait to meet a fellow sufferer face to face because no one else could possibly understand what we go through. Xx

zarli

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Re: in London!!!

Post  Alana3 on Mon Sep 08, 2014 3:48 pm

haha let me know if you make it down and if I ever make it to you the same goes! Dublin was nice from what I remember, dont judge it on one moron. Are you feeling OK?

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Re: in London!!!

Post  zarli on Mon Sep 08, 2014 8:53 pm

Yes feeling ok thanks. I had a feeling I would be ok as relaxing and less stress helps me but I am shocked at me being able to sit the whole flight 13 hours then 7hours with out pain just goes to show what stress does. Had a good day today in Dublin. Looking forward to seeing Scotland and Paris, I am still in shock at being overseas on a holiday its so surreal. Hope you are doing well ? Talk soon

zarli

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Re: in London!!!

Post  zarli on Wed Sep 24, 2014 1:17 pm

Back home in Australia. I had the best time and can't believe I have been overseas. I also have known all along the effects of stress on vulvodynia but I am in shock at how much it has effected me. Which makes me pose a question. ... just like people who are prone to other illnesses due to stress could vulvodynia be attributed to stress stimulus ? Meaning that there is nothing else to discover?
7 years of resesrch and trying everything there is to try from the wacky ideas to the conventional and nothing has taken vulvodynia away. Medication helps. I could not take on less physical work because I couldn't sit for more than half an hour, but I sat for 7 hours then 13 flying and had no discomfort at all. Not only my vulvodynia but also no pain from my fibromyalgia. Makes me think harder about my life and try to make some changes to give me some happiness on regular basis.

zarli

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Re: in London!!!

Post  Caropes on Thu Sep 25, 2014 1:40 am

So, so glad you had a great vacation and are feeling better. Very great to hear Very Happy

Caropes

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Re: in London!!!

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