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Sat May 26, 2018 5:21 pm by Aquaben

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» Cleveland Clinic - Pain Management, Weston, FL
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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Dryness fed up :(

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Dryness fed up :(

Post  Zbrown on Mon Sep 22, 2014 11:28 pm

Does anyone find there quite dry there and there's no natural lubrication ??? Causes irritation . Hormonal maybe
So far tryed
Physio.acupuncture, various antibiotics,cansten(thrush creams and pesaries) natural yogurt, steroid creams, epaderm cream..... Best thing so far physio.
Gynocologist has suggested to my gp gapapentin or go to a pain clinic if that fails .... I have had a good bit of relief but not enough too actully enjoy sex completely especially afterwards very raw feeling. Is it possible to have a combination of both vestibule pain and generalized. I wish someone could find a cure Sad 22 it really does drain us all . I also have a lot of other symptoms restless leg syndrome , painful legs, visible veins in legs since thus occurred, painful hands and feet list goes on. I would give anything to go back in time and apreciate being healthy! Praying for everyone on here tonight hopefully brings us a miracle xxxx

Zbrown

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Re: Dryness fed up :(

Post  bridget234 on Tue Sep 23, 2014 10:25 pm

I have the same problem... I think it just goes along with the rest of the symptoms and until there is a cure/solution it will always be there. Buy some lube and use A LOT of it

My dr did write me a prescription for a hormone that would increase natural lubrication but it did nothing so idk

bridget234

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Re: Dryness fed up :(

Post  Zbrown on Wed Sep 24, 2014 7:42 am

Oh really :/ it is such a complicated thing all this. Have u tried much things yet ??? If so any beneficial mine seems to occur inner thighs down legs ect also have an appointment follow up 9th oct after being done with physio hopefully they are willing to try something else as I have taken the more me hands on approaches no medication so far xx

Zbrown

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Re: Dryness fed up :(

Post  Melian on Tue Feb 17, 2015 10:58 pm

I have recently tried this lubricant.
it is called "YES"
I use it every day before sleep and it does gives me some relief!
(i just registered but I have been reading the forum for quite a while Smile)

It is plant based (the water based one) and help to rehydrate our bits Smile doesn't solve the problem unfortunately,
but helps to manage the dryness and burning.

Melian

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Re: Dryness fed up :(

Post  sailor_moon on Wed Feb 18, 2015 10:17 am

Yep I get this horrible dryness and I am only 27! I have low estrogen which is part of the problem. I have found the best thing to use down there is 100% virgin coconut oil. It is perfectly safe to use and is chemical free so you won't suffer any nasty chemical irritation. Many women wear by olive oil but it leaves really bad oil stains.
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sailor_moon

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Re: Dryness fed up :(

Post  Melian on Wed Feb 18, 2015 10:55 am

Also I find is better if I wax the area as there is less friction.

Melian

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Re: Dryness fed up :(

Post  Mariek on Sat Mar 14, 2015 11:54 am

I started using coconut oil after my showers or when ever. It seems to be helping.

Mariek

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Re: Dryness fed up :(

Post  Redhead23 on Tue Apr 21, 2015 11:36 am

I too suffer with this on and off. Also I have restless leg syndrome too. Ive heard a lot of good things about coconut oil and its many properties x

Redhead23

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Re: Dryness fed up :(

Post  JulesB on Mon Apr 27, 2015 4:46 pm

Coconut oil is very soothing and can be used as a sexual lube. Internally I use yes oil based - I cover him in it! Any water based lubes (I've tried several) seem to sting me.

JulesB

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Re: Dryness fed up :(

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