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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Dryness fed up :(

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Dryness fed up :(

Post  Zbrown on Mon Sep 22, 2014 11:28 pm

Does anyone find there quite dry there and there's no natural lubrication ??? Causes irritation . Hormonal maybe
So far tryed
Physio.acupuncture, various antibiotics,cansten(thrush creams and pesaries) natural yogurt, steroid creams, epaderm cream..... Best thing so far physio.
Gynocologist has suggested to my gp gapapentin or go to a pain clinic if that fails .... I have had a good bit of relief but not enough too actully enjoy sex completely especially afterwards very raw feeling. Is it possible to have a combination of both vestibule pain and generalized. I wish someone could find a cure Sad 22 it really does drain us all . I also have a lot of other symptoms restless leg syndrome , painful legs, visible veins in legs since thus occurred, painful hands and feet list goes on. I would give anything to go back in time and apreciate being healthy! Praying for everyone on here tonight hopefully brings us a miracle xxxx

Zbrown

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Re: Dryness fed up :(

Post  bridget234 on Tue Sep 23, 2014 10:25 pm

I have the same problem... I think it just goes along with the rest of the symptoms and until there is a cure/solution it will always be there. Buy some lube and use A LOT of it

My dr did write me a prescription for a hormone that would increase natural lubrication but it did nothing so idk

bridget234

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Re: Dryness fed up :(

Post  Zbrown on Wed Sep 24, 2014 7:42 am

Oh really :/ it is such a complicated thing all this. Have u tried much things yet ??? If so any beneficial mine seems to occur inner thighs down legs ect also have an appointment follow up 9th oct after being done with physio hopefully they are willing to try something else as I have taken the more me hands on approaches no medication so far xx

Zbrown

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Re: Dryness fed up :(

Post  Melian on Tue Feb 17, 2015 10:58 pm

I have recently tried this lubricant.
it is called "YES"
I use it every day before sleep and it does gives me some relief!
(i just registered but I have been reading the forum for quite a while Smile)

It is plant based (the water based one) and help to rehydrate our bits Smile doesn't solve the problem unfortunately,
but helps to manage the dryness and burning.

Melian

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Re: Dryness fed up :(

Post  sailor_moon on Wed Feb 18, 2015 10:17 am

Yep I get this horrible dryness and I am only 27! I have low estrogen which is part of the problem. I have found the best thing to use down there is 100% virgin coconut oil. It is perfectly safe to use and is chemical free so you won't suffer any nasty chemical irritation. Many women wear by olive oil but it leaves really bad oil stains.
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sailor_moon

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Re: Dryness fed up :(

Post  Melian on Wed Feb 18, 2015 10:55 am

Also I find is better if I wax the area as there is less friction.

Melian

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Re: Dryness fed up :(

Post  Mariek on Sat Mar 14, 2015 11:54 am

I started using coconut oil after my showers or when ever. It seems to be helping.

Mariek

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Re: Dryness fed up :(

Post  Redhead23 on Tue Apr 21, 2015 11:36 am

I too suffer with this on and off. Also I have restless leg syndrome too. Ive heard a lot of good things about coconut oil and its many properties x

Redhead23

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Re: Dryness fed up :(

Post  JulesB on Mon Apr 27, 2015 4:46 pm

Coconut oil is very soothing and can be used as a sexual lube. Internally I use yes oil based - I cover him in it! Any water based lubes (I've tried several) seem to sting me.

JulesB

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Re: Dryness fed up :(

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