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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

How did this happen so suddenly?

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How did this happen so suddenly?

Post  Meggiemay on Thu Sep 25, 2014 7:32 pm

Hi all! I'm 29 years old and I live in the states. A few weeks ago I was absolutely fine "down there". I had protected sex one evening with my partner, nothing out of the ordinary but I noticed I was feeling a bit more sensitive (not in a good way) than usual so we stopped. The next day I felt a bit irritated but wasn't to concerned. The day after that my vulva started to burn. It was a feeling I had not experienced before, not like any yeast infection I'd ever had. I saw a doctor and she tested me for STDs, BV, and yeast. The test came back positive for what she described as "maybe a tiny bit of yeast" she also said I looked a little irritated but there were no sores or anything. I received 3 diflucan 150 pills and some anti fungal/cortisone cream and was sent on my way. None of these things have relived my symptoms unfortunately. I went back to see the GYN, and they tested for yeast again... The test came back negative. She had me do another round of diflucan, and I this point I'm getting worried. I've googled "constant burning vulva" and every link that comes up has to do with vulvodynia Crying or Very sad

I don't have pain when I insert my finger or when she did the swab... Just burning and I guess hypersensitivity. Like I'm very aware of my vulva rubbing against clothing, and even walking feels uncomfortable... Not pain, just sensitive.

How the hell did all this happen from 1 freakin sexual encounter??? I don't understand....
I was completely fine that morning before sex and now I'm waddling around my house in nothing but a bathrobe because my lady bits are so irritated. The thought of this lasting months or years or FOREVER is so depressing I can't stand it.


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Re: How did this happen so suddenly?

Post  Zbrown on Thu Sep 25, 2014 10:52 pm

It does seem to set on very out of the blue mine seemed to set on after a fall next morning very irritated burning that was November :/ to be honest I can't say there's any easy fix iv read hours at a time anything I can find but it seems everyone is different in what there cause is and what helps them best.
Some things which have helped slightly white cotton loose underwear , no fabric softener or anything to scented down there wash with water ect. So far iv tried acupuncture physio and tones of creams and deep breathing exercises also most recently dialators. I think next stop is medication but honestly I can say stress makes it so much worse it's hard to relax when constantly in pain. I hope you get things sorted and you don't suffer too long xxx


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Re: How did this happen so suddenly?

Post  Alana3 on Mon Sep 29, 2014 2:52 pm

That's how it happened for me too Sad where are you from? I live in Florida and have a great doc if you can see him he's worth it! I'm all better now but lasted for 7 years before I saw him.


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Re: How did this happen so suddenly?

Post  Chinchilla on Mon Oct 06, 2014 5:05 pm

The onset was very sudden for me, too, although I cannot think of a specific trigger. Discouraging, I know, but thankfully it has never been as severe as the first while, for me. Whether that is because it improved, I got used to it, or I learned to do/not do various things to help it, I am not sure which.

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Re: How did this happen so suddenly?

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