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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


How did this happen so suddenly?

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How did this happen so suddenly?

Post  Meggiemay on Thu Sep 25, 2014 7:32 pm

Hi all! I'm 29 years old and I live in the states. A few weeks ago I was absolutely fine "down there". I had protected sex one evening with my partner, nothing out of the ordinary but I noticed I was feeling a bit more sensitive (not in a good way) than usual so we stopped. The next day I felt a bit irritated but wasn't to concerned. The day after that my vulva started to burn. It was a feeling I had not experienced before, not like any yeast infection I'd ever had. I saw a doctor and she tested me for STDs, BV, and yeast. The test came back positive for what she described as "maybe a tiny bit of yeast" she also said I looked a little irritated but there were no sores or anything. I received 3 diflucan 150 pills and some anti fungal/cortisone cream and was sent on my way. None of these things have relived my symptoms unfortunately. I went back to see the GYN, and they tested for yeast again... The test came back negative. She had me do another round of diflucan, and I this point I'm getting worried. I've googled "constant burning vulva" and every link that comes up has to do with vulvodynia Crying or Very sad

I don't have pain when I insert my finger or when she did the swab... Just burning and I guess hypersensitivity. Like I'm very aware of my vulva rubbing against clothing, and even walking feels uncomfortable... Not pain, just sensitive.

How the hell did all this happen from 1 freakin sexual encounter??? I don't understand....
I was completely fine that morning before sex and now I'm waddling around my house in nothing but a bathrobe because my lady bits are so irritated. The thought of this lasting months or years or FOREVER is so depressing I can't stand it.

Meggiemay

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Re: How did this happen so suddenly?

Post  Zbrown on Thu Sep 25, 2014 10:52 pm

It does seem to set on very out of the blue mine seemed to set on after a fall next morning very irritated burning that was November :/ to be honest I can't say there's any easy fix iv read hours at a time anything I can find but it seems everyone is different in what there cause is and what helps them best.
Some things which have helped slightly white cotton loose underwear , no fabric softener or anything to scented down there wash with water ect. So far iv tried acupuncture physio and tones of creams and deep breathing exercises also most recently dialators. I think next stop is medication but honestly I can say stress makes it so much worse it's hard to relax when constantly in pain. I hope you get things sorted and you don't suffer too long xxx

Zbrown

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Re: How did this happen so suddenly?

Post  Alana3 on Mon Sep 29, 2014 2:52 pm

That's how it happened for me too Sad where are you from? I live in Florida and have a great doc if you can see him he's worth it! I'm all better now but lasted for 7 years before I saw him.

Alana3

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Re: How did this happen so suddenly?

Post  Chinchilla on Mon Oct 06, 2014 5:05 pm

The onset was very sudden for me, too, although I cannot think of a specific trigger. Discouraging, I know, but thankfully it has never been as severe as the first while, for me. Whether that is because it improved, I got used to it, or I learned to do/not do various things to help it, I am not sure which.
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Chinchilla

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Re: How did this happen so suddenly?

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