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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

How did this happen so suddenly?

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How did this happen so suddenly?

Post  Meggiemay on Thu Sep 25, 2014 7:32 pm

Hi all! I'm 29 years old and I live in the states. A few weeks ago I was absolutely fine "down there". I had protected sex one evening with my partner, nothing out of the ordinary but I noticed I was feeling a bit more sensitive (not in a good way) than usual so we stopped. The next day I felt a bit irritated but wasn't to concerned. The day after that my vulva started to burn. It was a feeling I had not experienced before, not like any yeast infection I'd ever had. I saw a doctor and she tested me for STDs, BV, and yeast. The test came back positive for what she described as "maybe a tiny bit of yeast" she also said I looked a little irritated but there were no sores or anything. I received 3 diflucan 150 pills and some anti fungal/cortisone cream and was sent on my way. None of these things have relived my symptoms unfortunately. I went back to see the GYN, and they tested for yeast again... The test came back negative. She had me do another round of diflucan, and I this point I'm getting worried. I've googled "constant burning vulva" and every link that comes up has to do with vulvodynia Crying or Very sad

I don't have pain when I insert my finger or when she did the swab... Just burning and I guess hypersensitivity. Like I'm very aware of my vulva rubbing against clothing, and even walking feels uncomfortable... Not pain, just sensitive.

How the hell did all this happen from 1 freakin sexual encounter??? I don't understand....
I was completely fine that morning before sex and now I'm waddling around my house in nothing but a bathrobe because my lady bits are so irritated. The thought of this lasting months or years or FOREVER is so depressing I can't stand it.


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Re: How did this happen so suddenly?

Post  Zbrown on Thu Sep 25, 2014 10:52 pm

It does seem to set on very out of the blue mine seemed to set on after a fall next morning very irritated burning that was November :/ to be honest I can't say there's any easy fix iv read hours at a time anything I can find but it seems everyone is different in what there cause is and what helps them best.
Some things which have helped slightly white cotton loose underwear , no fabric softener or anything to scented down there wash with water ect. So far iv tried acupuncture physio and tones of creams and deep breathing exercises also most recently dialators. I think next stop is medication but honestly I can say stress makes it so much worse it's hard to relax when constantly in pain. I hope you get things sorted and you don't suffer too long xxx


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Re: How did this happen so suddenly?

Post  Alana3 on Mon Sep 29, 2014 2:52 pm

That's how it happened for me too Sad where are you from? I live in Florida and have a great doc if you can see him he's worth it! I'm all better now but lasted for 7 years before I saw him.


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Re: How did this happen so suddenly?

Post  Chinchilla on Mon Oct 06, 2014 5:05 pm

The onset was very sudden for me, too, although I cannot think of a specific trigger. Discouraging, I know, but thankfully it has never been as severe as the first while, for me. Whether that is because it improved, I got used to it, or I learned to do/not do various things to help it, I am not sure which.

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Re: How did this happen so suddenly?

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