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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Veins and hormones ?

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Veins and hormones ?

Post  Zbrown on Thu Oct 02, 2014 2:22 pm

After researching last night about the blue veins on my body becoming more viable ect I read it effects more women because of a certain hormone ? Anyone think this could be a connection other symptoms hair loss more spots lately hair sprouting up under chin ect ? This all started more around my vginal burnig upper thighs stared funny ? Appointment next Thursday going to push for hormones tested ! Also last 3 days very persistent white discharge thick ? Typical as I head off tomarrow to see my boyfriend at his university. Any answers and suggestions I'm glad to hear Smile have a nice weekend thinking off everyone xoxo

Zbrown

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Re: Veins and hormones ?

Post  zarli on Fri Oct 03, 2014 11:34 am

Hi zbrown
I have thinning hair, chin hair and now some hair on my neck and my veins are more pronounced than they used to be. I had hormones tested 3 times and they were normal. So I cant figure out why but my doctor said its genetics ??
Good luck and take care

zarli

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Re: Veins and hormones ?

Post  Zbrown on Fri Oct 03, 2014 3:03 pm

I haven't had any hormones teste at all my shoes thinning so bad it never was mega thick but I think it's nori only thinner. Varicose veins on my legs have popped up :/ it's a disaster I'm going away tonight and just hoping this flares a blip after doing some hair removal my skin seems very sore. Xx

Zbrown

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Re: Veins and hormones ?

Post  sailor_moon on Fri Oct 03, 2014 9:23 pm

Hair falling out and chin hair are signs of a major hormone imbalance...not genetics! Seriously WTF. Too much Testosterone is usually responsible for these type of actions. Or lack of Estrogen which makes Testosterone dominant.

I dont know about the vein thing. Id be going and asking for hormone tests. Proper hormone tests, once a week over 4 weeks of your cycle, as hormones change week to week, 3 weeks testosterone may be dominant, and Estrogen may rise enough to dominate for 1 week....and in that case if its a 1 off test and your estrogen level has risen for just that week or day, and you get tested on that day, the doctors will tell you theres nothing wrong.

And ask to get your AMH hormone tested too.
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Re: Veins and hormones ?

Post  Zbrown on Tue Oct 07, 2014 11:30 pm

Iv asked them countless times my gp ! Useless they insist I'm too young but we all know it can happen any she ! As I gave been back on birth control pill cliest but I stopped it for months nothing improves tbh xx

Zbrown

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Re: Veins and hormones ?

Post  sailor_moon on Wed Oct 08, 2014 11:13 am

Sounds like typical PCOS symptoms to me or something similar. Can I ask if your periods are overly heavy or irregular. . Though if you are on the pill it fakes regular periods anyway.

I'd ask the doctors what harm could it do by having poper hormone testing!?

Time to change GPs from the sound of it!
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Re: Veins and hormones ?

Post  Zbrown on Wed Oct 08, 2014 9:19 pm

Ammmm with pill I guess there regular without where every month but exstremly like draining :/
Like I'm going to gps tomarrow but I'm on the verge of moving surgery Sad I could ask like about hormones Ijust want answers xx

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Re: Veins and hormones ?

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