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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Recommendations for a Doc in Michigan

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Recommendations for a Doc in Michigan

Post  leitheij on Mon Oct 06, 2014 8:03 pm

Can anybody recommend a doctor in the metro Detroit area for Vulvar burning. I've been to a few and they haven't been able to help me. Thanks!

leitheij

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Re: Recommendations for a Doc in Michigan

Post  emalita on Tue May 31, 2016 2:58 pm

The University of Michigan has a vulvar specialist clinic, but they aren't the easiest to get in to see (referral is required, lots of paperwork, long wait time, etc.). Plus, they are a teaching facility, and I was told you don't have the right to refuse having a Resident in the room (or possibly providing treatment). However, regardless of their horrible bedside manner (many negative reviews on certain doctors), they are supposed to be one of the best vulvovaginal clinics in the U.S.

emalita

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Re: Recommendations for a Doc in Michigan

Post  girlcraft on Sat Jun 04, 2016 11:24 pm

emalita wrote:The University of Michigan has a vulvar specialist clinic, but they aren't the easiest to get in to see (referral is required, lots of paperwork, long wait time, etc.). Plus, they are a teaching facility, and I was told you don't have the right to refuse having a Resident in the room (or possibly providing treatment). However, regardless of their horrible bedside manner (many negative reviews on certain doctors), they are supposed to be one of the best vulvovaginal clinics in the U.S.

I currently go to U of M Chelsea clinic to see Dr. Karen Muslof, honestly she is great in person but EXTREMELY difficult to contact and doesn't listen. U of M insists you contact your doc through email portal, which I have done, she takes weeks to reply doesn't listen when I tell her the pain is getting worse. The only thing she's done is up my dose up dose and the side effects have become so terrible that I rather not take nothing and live with the Vulvodynia than continue her treatments. I've asked for different medication and alternatives multiple times and she ignored that. I've tried to call the clinic to speak with her and she doesn't return calls. Honestly, she has been no help at all aside from diagnosing me with this condition. There is another doctor at Ann Arbor location that is suppose to be just as good, I'd go to her if anything

girlcraft

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Re: Recommendations for a Doc in Michigan

Post  emalita on Sat Jun 04, 2016 11:36 pm

girlcraft - I'm so sorry to hear about your experience. I don't understand how it seems so easy for so many doctors to just forget that they are sometimes the only hope a person has. I've had so many doctors rattle off their credentials to me like it is supposed to matter how many degrees they have...no amount of schooling can make them kind people. I hope you've found a better doctor.

emalita

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Re: Recommendations for a Doc in Michigan

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