Vulvodynia Support
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» Hope to all my suffering ladies
Recommendations for a Doc in Michigan EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Recommendations for a Doc in Michigan EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Recommendations for a Doc in Michigan EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Recommendations for a Doc in Michigan EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Recommendations for a Doc in Michigan EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Recommendations for a Doc in Michigan EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Recommendations for a Doc in Michigan EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Recommendations for a Doc in Michigan EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Recommendations for a Doc in Michigan EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Recommendations for a Doc in Michigan

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Recommendations for a Doc in Michigan Empty Recommendations for a Doc in Michigan

Post  leitheij Mon Oct 06, 2014 8:03 pm

Can anybody recommend a doctor in the metro Detroit area for Vulvar burning. I've been to a few and they haven't been able to help me. Thanks!

leitheij

Posts : 9
Join date : 2014-08-25

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Recommendations for a Doc in Michigan Empty Re: Recommendations for a Doc in Michigan

Post  emalita Tue May 31, 2016 2:58 pm

The University of Michigan has a vulvar specialist clinic, but they aren't the easiest to get in to see (referral is required, lots of paperwork, long wait time, etc.). Plus, they are a teaching facility, and I was told you don't have the right to refuse having a Resident in the room (or possibly providing treatment). However, regardless of their horrible bedside manner (many negative reviews on certain doctors), they are supposed to be one of the best vulvovaginal clinics in the U.S.

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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Recommendations for a Doc in Michigan Empty Re: Recommendations for a Doc in Michigan

Post  girlcraft Sat Jun 04, 2016 11:24 pm

emalita wrote:The University of Michigan has a vulvar specialist clinic, but they aren't the easiest to get in to see (referral is required, lots of paperwork, long wait time, etc.). Plus, they are a teaching facility, and I was told you don't have the right to refuse having a Resident in the room (or possibly providing treatment). However, regardless of their horrible bedside manner (many negative reviews on certain doctors), they are supposed to be one of the best vulvovaginal clinics in the U.S.

I currently go to U of M Chelsea clinic to see Dr. Karen Muslof, honestly she is great in person but EXTREMELY difficult to contact and doesn't listen. U of M insists you contact your doc through email portal, which I have done, she takes weeks to reply doesn't listen when I tell her the pain is getting worse. The only thing she's done is up my dose up dose and the side effects have become so terrible that I rather not take nothing and live with the Vulvodynia than continue her treatments. I've asked for different medication and alternatives multiple times and she ignored that. I've tried to call the clinic to speak with her and she doesn't return calls. Honestly, she has been no help at all aside from diagnosing me with this condition. There is another doctor at Ann Arbor location that is suppose to be just as good, I'd go to her if anything

girlcraft

Posts : 6
Join date : 2016-06-04

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Recommendations for a Doc in Michigan Empty Re: Recommendations for a Doc in Michigan

Post  emalita Sat Jun 04, 2016 11:36 pm

girlcraft - I'm so sorry to hear about your experience. I don't understand how it seems so easy for so many doctors to just forget that they are sometimes the only hope a person has. I've had so many doctors rattle off their credentials to me like it is supposed to matter how many degrees they have...no amount of schooling can make them kind people. I hope you've found a better doctor.

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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