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» Acupuncture advice please
Yesterday at 6:08 pm by fairlight10

» Please tell me this can get better
Yesterday at 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Recommendations for a Doc in Michigan

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Recommendations for a Doc in Michigan

Post  leitheij on Mon Oct 06, 2014 8:03 pm

Can anybody recommend a doctor in the metro Detroit area for Vulvar burning. I've been to a few and they haven't been able to help me. Thanks!

leitheij

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Re: Recommendations for a Doc in Michigan

Post  emalita on Tue May 31, 2016 2:58 pm

The University of Michigan has a vulvar specialist clinic, but they aren't the easiest to get in to see (referral is required, lots of paperwork, long wait time, etc.). Plus, they are a teaching facility, and I was told you don't have the right to refuse having a Resident in the room (or possibly providing treatment). However, regardless of their horrible bedside manner (many negative reviews on certain doctors), they are supposed to be one of the best vulvovaginal clinics in the U.S.

emalita

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Re: Recommendations for a Doc in Michigan

Post  girlcraft on Sat Jun 04, 2016 11:24 pm

emalita wrote:The University of Michigan has a vulvar specialist clinic, but they aren't the easiest to get in to see (referral is required, lots of paperwork, long wait time, etc.). Plus, they are a teaching facility, and I was told you don't have the right to refuse having a Resident in the room (or possibly providing treatment). However, regardless of their horrible bedside manner (many negative reviews on certain doctors), they are supposed to be one of the best vulvovaginal clinics in the U.S.

I currently go to U of M Chelsea clinic to see Dr. Karen Muslof, honestly she is great in person but EXTREMELY difficult to contact and doesn't listen. U of M insists you contact your doc through email portal, which I have done, she takes weeks to reply doesn't listen when I tell her the pain is getting worse. The only thing she's done is up my dose up dose and the side effects have become so terrible that I rather not take nothing and live with the Vulvodynia than continue her treatments. I've asked for different medication and alternatives multiple times and she ignored that. I've tried to call the clinic to speak with her and she doesn't return calls. Honestly, she has been no help at all aside from diagnosing me with this condition. There is another doctor at Ann Arbor location that is suppose to be just as good, I'd go to her if anything

girlcraft

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Re: Recommendations for a Doc in Michigan

Post  emalita on Sat Jun 04, 2016 11:36 pm

girlcraft - I'm so sorry to hear about your experience. I don't understand how it seems so easy for so many doctors to just forget that they are sometimes the only hope a person has. I've had so many doctors rattle off their credentials to me like it is supposed to matter how many degrees they have...no amount of schooling can make them kind people. I hope you've found a better doctor.

emalita

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Re: Recommendations for a Doc in Michigan

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