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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


Recommendations for a Doc in Michigan

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Recommendations for a Doc in Michigan

Post  leitheij on Mon Oct 06, 2014 8:03 pm

Can anybody recommend a doctor in the metro Detroit area for Vulvar burning. I've been to a few and they haven't been able to help me. Thanks!

leitheij

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Re: Recommendations for a Doc in Michigan

Post  emalita on Tue May 31, 2016 2:58 pm

The University of Michigan has a vulvar specialist clinic, but they aren't the easiest to get in to see (referral is required, lots of paperwork, long wait time, etc.). Plus, they are a teaching facility, and I was told you don't have the right to refuse having a Resident in the room (or possibly providing treatment). However, regardless of their horrible bedside manner (many negative reviews on certain doctors), they are supposed to be one of the best vulvovaginal clinics in the U.S.

emalita

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Re: Recommendations for a Doc in Michigan

Post  girlcraft on Sat Jun 04, 2016 11:24 pm

emalita wrote:The University of Michigan has a vulvar specialist clinic, but they aren't the easiest to get in to see (referral is required, lots of paperwork, long wait time, etc.). Plus, they are a teaching facility, and I was told you don't have the right to refuse having a Resident in the room (or possibly providing treatment). However, regardless of their horrible bedside manner (many negative reviews on certain doctors), they are supposed to be one of the best vulvovaginal clinics in the U.S.

I currently go to U of M Chelsea clinic to see Dr. Karen Muslof, honestly she is great in person but EXTREMELY difficult to contact and doesn't listen. U of M insists you contact your doc through email portal, which I have done, she takes weeks to reply doesn't listen when I tell her the pain is getting worse. The only thing she's done is up my dose up dose and the side effects have become so terrible that I rather not take nothing and live with the Vulvodynia than continue her treatments. I've asked for different medication and alternatives multiple times and she ignored that. I've tried to call the clinic to speak with her and she doesn't return calls. Honestly, she has been no help at all aside from diagnosing me with this condition. There is another doctor at Ann Arbor location that is suppose to be just as good, I'd go to her if anything

girlcraft

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Re: Recommendations for a Doc in Michigan

Post  emalita on Sat Jun 04, 2016 11:36 pm

girlcraft - I'm so sorry to hear about your experience. I don't understand how it seems so easy for so many doctors to just forget that they are sometimes the only hope a person has. I've had so many doctors rattle off their credentials to me like it is supposed to matter how many degrees they have...no amount of schooling can make them kind people. I hope you've found a better doctor.

emalita

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Re: Recommendations for a Doc in Michigan

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