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» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 1:33 pm by mary jane

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3


post surgery

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post surgery

Post  sbinnzeeta on Thu Oct 09, 2014 4:47 pm

Hi everyone

I first got diagnosed with vestibulodynia 8 months ago after suffering with it for three years. I went to the doctors countless times & kept getting treated for thrush when that didnt work i got referred to a gyno. She thought that I had herpes even though the swabs were negative I got tested for every STI under the sun including HIV which all came back negative. During all this time I was single and even though the pain was getting worse to use tampons and have a period it was manageable and I wasnt sexually active so it wasnt on the top of my list. However once I met my current partner I had to get this sorted I explained to him at the beginning the problems I was having and luckily he was very supportive we couldnt have sex for a couple of months as pain symptoms came and went when we did manage to it was really uncomfortable.

The gyno then referred me to a professor of gynecology and when he looked at me he knew what it was straight away. I was so relieved I have felt like a freak and dirty/unnattractive for so long thinking I was never going to get to the bottom of it. He gave me some steroid cream & local anaesthetic to use and if it worked he suggested that as my symptoms were so bad I would need surgery. I was delighted that they did work and even though it didnt solve the problem at least I was able to have sex a few times. When I went back it was decided that I should have the surgery & was booked in 6 weeks later. So on the 24/9/14 I had the surgery done as a day patient. I left the hospital at 6pm that evening and although I was sore it wasnt as bad as I was expecting as the local he had injected was still working.

The first time I looked with a mirror two days post surgery I cried my eyes out the bruising and swelling was awful. The two weeks following I have had a terrible recovery firstly I had a reaction to the pain relief, I then despite following all post op advice got an infection which is common so they say. I then had a horrendous vomiting & diarrhoea bug just to top it all off. Currently my wound is not to bad they said considering I went back monday as was worried. However I am concerned now as there was a slight gap in the suture at the bottom and even tho the gyno said didnt look too bad I am still worrying about it. I just wondered if anyone else that had had surgery had experienced any problems like mine? Im trying to not let it get me down but I am such an active person and normally walk my dogs for two hours a day and to have to stay in bed for 8 days & now be stuck on the sofa im finding it really difficult to stay positive and cant imagine this problem ever going away. I think to myself should I have not had the surgery? But I know for me there was no choice as it got so bad I couldnt carry on living that way I couldnt even have a period as the sensation of the bleed stung and was unbearable. Can anyone offer any postives to a very down beat sufferer? xx

sbinnzeeta

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Re: post surgery

Post  Alana3 on Thu Oct 09, 2014 7:26 pm

Read the message I sent you- everything seems ok!!! I didnt even look at my vagina for like 3 months I was too scared lol it looks normal, my boyfriend says it does look different, but he said it didnt feel different hahaha so were good Smile and he said it wasn't ugly so were good lol Very Happy

Alana3

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Re: post surgery

Post  sbinnzeeta on Thu Oct 09, 2014 7:57 pm

Thank you!! How long did you use I've for? & when were you able to go back to work? I live in uk where are u from? Are you totally pain free now? X

sbinnzeeta

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Re: post surgery

Post  sbinnzeeta on Thu Oct 09, 2014 8:02 pm

That meant to say ice!!

sbinnzeeta

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Re: post surgery

Post  Alana3 on Thu Oct 09, 2014 8:54 pm

2 weeks ice 3 weeks work I'm from Florida and I love that surgery! hahaha worked well Smile

Alana3

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Re: post surgery

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