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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


post surgery

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post surgery

Post  sbinnzeeta on Thu Oct 09, 2014 4:47 pm

Hi everyone

I first got diagnosed with vestibulodynia 8 months ago after suffering with it for three years. I went to the doctors countless times & kept getting treated for thrush when that didnt work i got referred to a gyno. She thought that I had herpes even though the swabs were negative I got tested for every STI under the sun including HIV which all came back negative. During all this time I was single and even though the pain was getting worse to use tampons and have a period it was manageable and I wasnt sexually active so it wasnt on the top of my list. However once I met my current partner I had to get this sorted I explained to him at the beginning the problems I was having and luckily he was very supportive we couldnt have sex for a couple of months as pain symptoms came and went when we did manage to it was really uncomfortable.

The gyno then referred me to a professor of gynecology and when he looked at me he knew what it was straight away. I was so relieved I have felt like a freak and dirty/unnattractive for so long thinking I was never going to get to the bottom of it. He gave me some steroid cream & local anaesthetic to use and if it worked he suggested that as my symptoms were so bad I would need surgery. I was delighted that they did work and even though it didnt solve the problem at least I was able to have sex a few times. When I went back it was decided that I should have the surgery & was booked in 6 weeks later. So on the 24/9/14 I had the surgery done as a day patient. I left the hospital at 6pm that evening and although I was sore it wasnt as bad as I was expecting as the local he had injected was still working.

The first time I looked with a mirror two days post surgery I cried my eyes out the bruising and swelling was awful. The two weeks following I have had a terrible recovery firstly I had a reaction to the pain relief, I then despite following all post op advice got an infection which is common so they say. I then had a horrendous vomiting & diarrhoea bug just to top it all off. Currently my wound is not to bad they said considering I went back monday as was worried. However I am concerned now as there was a slight gap in the suture at the bottom and even tho the gyno said didnt look too bad I am still worrying about it. I just wondered if anyone else that had had surgery had experienced any problems like mine? Im trying to not let it get me down but I am such an active person and normally walk my dogs for two hours a day and to have to stay in bed for 8 days & now be stuck on the sofa im finding it really difficult to stay positive and cant imagine this problem ever going away. I think to myself should I have not had the surgery? But I know for me there was no choice as it got so bad I couldnt carry on living that way I couldnt even have a period as the sensation of the bleed stung and was unbearable. Can anyone offer any postives to a very down beat sufferer? xx

sbinnzeeta

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Re: post surgery

Post  Alana3 on Thu Oct 09, 2014 7:26 pm

Read the message I sent you- everything seems ok!!! I didnt even look at my vagina for like 3 months I was too scared lol it looks normal, my boyfriend says it does look different, but he said it didnt feel different hahaha so were good Smile and he said it wasn't ugly so were good lol Very Happy

Alana3

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Re: post surgery

Post  sbinnzeeta on Thu Oct 09, 2014 7:57 pm

Thank you!! How long did you use I've for? & when were you able to go back to work? I live in uk where are u from? Are you totally pain free now? X

sbinnzeeta

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Re: post surgery

Post  sbinnzeeta on Thu Oct 09, 2014 8:02 pm

That meant to say ice!!

sbinnzeeta

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Re: post surgery

Post  Alana3 on Thu Oct 09, 2014 8:54 pm

2 weeks ice 3 weeks work I'm from Florida and I love that surgery! hahaha worked well Smile

Alana3

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Re: post surgery

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