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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


post surgery

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post surgery

Post  sbinnzeeta on Thu Oct 09, 2014 4:47 pm

Hi everyone

I first got diagnosed with vestibulodynia 8 months ago after suffering with it for three years. I went to the doctors countless times & kept getting treated for thrush when that didnt work i got referred to a gyno. She thought that I had herpes even though the swabs were negative I got tested for every STI under the sun including HIV which all came back negative. During all this time I was single and even though the pain was getting worse to use tampons and have a period it was manageable and I wasnt sexually active so it wasnt on the top of my list. However once I met my current partner I had to get this sorted I explained to him at the beginning the problems I was having and luckily he was very supportive we couldnt have sex for a couple of months as pain symptoms came and went when we did manage to it was really uncomfortable.

The gyno then referred me to a professor of gynecology and when he looked at me he knew what it was straight away. I was so relieved I have felt like a freak and dirty/unnattractive for so long thinking I was never going to get to the bottom of it. He gave me some steroid cream & local anaesthetic to use and if it worked he suggested that as my symptoms were so bad I would need surgery. I was delighted that they did work and even though it didnt solve the problem at least I was able to have sex a few times. When I went back it was decided that I should have the surgery & was booked in 6 weeks later. So on the 24/9/14 I had the surgery done as a day patient. I left the hospital at 6pm that evening and although I was sore it wasnt as bad as I was expecting as the local he had injected was still working.

The first time I looked with a mirror two days post surgery I cried my eyes out the bruising and swelling was awful. The two weeks following I have had a terrible recovery firstly I had a reaction to the pain relief, I then despite following all post op advice got an infection which is common so they say. I then had a horrendous vomiting & diarrhoea bug just to top it all off. Currently my wound is not to bad they said considering I went back monday as was worried. However I am concerned now as there was a slight gap in the suture at the bottom and even tho the gyno said didnt look too bad I am still worrying about it. I just wondered if anyone else that had had surgery had experienced any problems like mine? Im trying to not let it get me down but I am such an active person and normally walk my dogs for two hours a day and to have to stay in bed for 8 days & now be stuck on the sofa im finding it really difficult to stay positive and cant imagine this problem ever going away. I think to myself should I have not had the surgery? But I know for me there was no choice as it got so bad I couldnt carry on living that way I couldnt even have a period as the sensation of the bleed stung and was unbearable. Can anyone offer any postives to a very down beat sufferer? xx

sbinnzeeta

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Re: post surgery

Post  Alana3 on Thu Oct 09, 2014 7:26 pm

Read the message I sent you- everything seems ok!!! I didnt even look at my vagina for like 3 months I was too scared lol it looks normal, my boyfriend says it does look different, but he said it didnt feel different hahaha so were good Smile and he said it wasn't ugly so were good lol Very Happy

Alana3

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Re: post surgery

Post  sbinnzeeta on Thu Oct 09, 2014 7:57 pm

Thank you!! How long did you use I've for? & when were you able to go back to work? I live in uk where are u from? Are you totally pain free now? X

sbinnzeeta

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Re: post surgery

Post  sbinnzeeta on Thu Oct 09, 2014 8:02 pm

That meant to say ice!!

sbinnzeeta

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Re: post surgery

Post  Alana3 on Thu Oct 09, 2014 8:54 pm

2 weeks ice 3 weeks work I'm from Florida and I love that surgery! hahaha worked well Smile

Alana3

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Re: post surgery

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