Vulvodynia Support
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» Hope to all my suffering ladies
I cant take it anymore!! Thinking of ending my life, I dont know what to do :(((( - Page 2 EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
I cant take it anymore!! Thinking of ending my life, I dont know what to do :(((( - Page 2 EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
I cant take it anymore!! Thinking of ending my life, I dont know what to do :(((( - Page 2 EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
I cant take it anymore!! Thinking of ending my life, I dont know what to do :(((( - Page 2 EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
I cant take it anymore!! Thinking of ending my life, I dont know what to do :(((( - Page 2 EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
I cant take it anymore!! Thinking of ending my life, I dont know what to do :(((( - Page 2 EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
I cant take it anymore!! Thinking of ending my life, I dont know what to do :(((( - Page 2 EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
I cant take it anymore!! Thinking of ending my life, I dont know what to do :(((( - Page 2 EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
I cant take it anymore!! Thinking of ending my life, I dont know what to do :(((( - Page 2 EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


I cant take it anymore!! Thinking of ending my life, I dont know what to do :((((

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I cant take it anymore!! Thinking of ending my life, I dont know what to do :(((( - Page 2 Empty Re: I cant take it anymore!! Thinking of ending my life, I dont know what to do :((((

Post  BpCookie Fri Oct 09, 2015 2:51 pm

Oh hun, I totally understand about the pain meds. I need Lyrica for my vulva pain and the Dr. I see hates to prescribe it to me. He acts like the stuff is going to kill me and he will get sued. I also have neck, back and tail bone pain and trying to get my pain meds for that is a night mare. I went to a pain specialist and they acted as if I were a drug addicted. I left the place bawling. I cried all the way home. Now my family Dr. prescribes my back pain meds. but she is limited to how many she can give me. So now I suffer in pain every day and I hold on to my pain meds like they were made of gold. Oh well, I have no choice but to follow their rules and hope for the best. I just wake up in the mornings and try to adjust each day to my pain. I have a great life, the only bit thats not great is the pain but I can work through that.

All the best to you sweetie pie

hugs
Cookie

p.s. if you get relief when your on your period because your unable to have sex, then you need to kick your husband in the ying-ying and then ask him if he wants to have sex. I can't stand men who think of only themselves. My husband is extremely understanding and sympathetic.
BpCookie
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

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