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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Anyone tried botox?

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Anyone tried botox?

Post  yoginimom on Tue Oct 21, 2014 2:45 am

I went to my internal physio again today and she recommended i try botox injections in the vaginal muscles. Has anyone tried that approach? Any thoughts?

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Re: Anyone tried botox?

Post  Alana3 on Tue Oct 21, 2014 7:20 pm

I was going to, but too many side effects. If you do decide to go that road it's perfectly fine if you have vaginismus! But only muscular problems. Make sure you have a doctor who knows what they are doing. There are a ton of side effects that could occur if your doc is not proficient in injecting the Botox. I won't scare you with side effects, because it's a good treatment option with the right doctor (just like everything else).

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Re: Anyone tried botox?

Post  yoginimom on Tue Oct 21, 2014 7:22 pm

what is vaginismus?

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Re: Anyone tried botox?

Post  Alana3 on Tue Oct 21, 2014 7:24 pm

when your muscles are affected.

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Re: Anyone tried botox?

Post  annealexander on Wed Jun 10, 2015 3:49 am

I’ve never even heard of any treatment that involves taking botox injections in the vaginal muscles. What Alana3 said is right. You need to do your due diligence to find the best surgeon around who does something like this. I can only imagine the side effects if something goes wrong.  Sad  I spent a whole 3 months searching for and shortlisting good surgeons for my botox lip injections in Langley. I finally chose a nearby skin care clinic called Beauti-med. I don’t know if they do vaginal botox injections though. You may check on their site- beauti-med.com

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Tried Botox twice not worked

Post  teresa6115 on Thu Oct 15, 2015 11:09 am

Hi Ladies,

I am new to this but desperate for help, I have suffered for three years now having paid private for several specialists after useless Doctors appointments. I have tried Botox twice under a specialist it is very painful and did not work for me. I have yet another appointment today with Womens Hospital to discuss the use of dialators! Creams have not worked I am on Pregabalin which works a little to relieve the constant pain. I am a little down at present and this is difficult as I am not in a great place. I have a very supportive husband of 33 years who has been my rock through this. My family are very close and are always there for me. However I know I do not have the dreaded C or anything life threatening but I feel this is wearing me down. I have had constant back ache since March and do not know if this is related or I am just getting old 53. My husband has encouraged me to join this forum for support. He is amazing!

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Botox

Post  amyhp on Thu Oct 15, 2015 7:42 pm

I have had Botox many times and it did not work to take away my pain. It relaxed my muscles, but my pain stayed the same. I would say if your pain is just with sex, it would be worth the shot. I know a lot of women have had success.

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Re: Anyone tried botox?

Post  web96 on Thu Oct 15, 2015 11:16 pm

I believe the idea of Botox is to paralyze the nerve to reduce pain. I haven't had Botox before but I am planning on undergoing Prolotherapy/Neural Therapy with a Naturopathic Doctor, that is, injections of a Dextrose Solution with Lidocaine over the next few months to numb the nerve. I have contact nerve pain localized to the vestibule area after experiencing severe irritation for years caused by a sulphate allergy.
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Re: Anyone tried botox?

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