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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Anyone tried botox?

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Anyone tried botox?

Post  yoginimom on Tue Oct 21, 2014 2:45 am

I went to my internal physio again today and she recommended i try botox injections in the vaginal muscles. Has anyone tried that approach? Any thoughts?

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Re: Anyone tried botox?

Post  Alana3 on Tue Oct 21, 2014 7:20 pm

I was going to, but too many side effects. If you do decide to go that road it's perfectly fine if you have vaginismus! But only muscular problems. Make sure you have a doctor who knows what they are doing. There are a ton of side effects that could occur if your doc is not proficient in injecting the Botox. I won't scare you with side effects, because it's a good treatment option with the right doctor (just like everything else).

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Re: Anyone tried botox?

Post  yoginimom on Tue Oct 21, 2014 7:22 pm

what is vaginismus?

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Re: Anyone tried botox?

Post  Alana3 on Tue Oct 21, 2014 7:24 pm

when your muscles are affected.

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Re: Anyone tried botox?

Post  annealexander on Wed Jun 10, 2015 3:49 am

I’ve never even heard of any treatment that involves taking botox injections in the vaginal muscles. What Alana3 said is right. You need to do your due diligence to find the best surgeon around who does something like this. I can only imagine the side effects if something goes wrong.  Sad  I spent a whole 3 months searching for and shortlisting good surgeons for my botox lip injections in Langley. I finally chose a nearby skin care clinic called Beauti-med. I don’t know if they do vaginal botox injections though. You may check on their site- beauti-med.com

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Tried Botox twice not worked

Post  teresa6115 on Thu Oct 15, 2015 11:09 am

Hi Ladies,

I am new to this but desperate for help, I have suffered for three years now having paid private for several specialists after useless Doctors appointments. I have tried Botox twice under a specialist it is very painful and did not work for me. I have yet another appointment today with Womens Hospital to discuss the use of dialators! Creams have not worked I am on Pregabalin which works a little to relieve the constant pain. I am a little down at present and this is difficult as I am not in a great place. I have a very supportive husband of 33 years who has been my rock through this. My family are very close and are always there for me. However I know I do not have the dreaded C or anything life threatening but I feel this is wearing me down. I have had constant back ache since March and do not know if this is related or I am just getting old 53. My husband has encouraged me to join this forum for support. He is amazing!

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Botox

Post  amyhp on Thu Oct 15, 2015 7:42 pm

I have had Botox many times and it did not work to take away my pain. It relaxed my muscles, but my pain stayed the same. I would say if your pain is just with sex, it would be worth the shot. I know a lot of women have had success.

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Re: Anyone tried botox?

Post  web96 on Thu Oct 15, 2015 11:16 pm

I believe the idea of Botox is to paralyze the nerve to reduce pain. I haven't had Botox before but I am planning on undergoing Prolotherapy/Neural Therapy with a Naturopathic Doctor, that is, injections of a Dextrose Solution with Lidocaine over the next few months to numb the nerve. I have contact nerve pain localized to the vestibule area after experiencing severe irritation for years caused by a sulphate allergy.
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Re: Anyone tried botox?

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