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» What's next?
Fri Apr 20, 2018 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Anyone tried botox?

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Anyone tried botox?

Post  yoginimom on Tue Oct 21, 2014 2:45 am

I went to my internal physio again today and she recommended i try botox injections in the vaginal muscles. Has anyone tried that approach? Any thoughts?

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Re: Anyone tried botox?

Post  Alana3 on Tue Oct 21, 2014 7:20 pm

I was going to, but too many side effects. If you do decide to go that road it's perfectly fine if you have vaginismus! But only muscular problems. Make sure you have a doctor who knows what they are doing. There are a ton of side effects that could occur if your doc is not proficient in injecting the Botox. I won't scare you with side effects, because it's a good treatment option with the right doctor (just like everything else).

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Re: Anyone tried botox?

Post  yoginimom on Tue Oct 21, 2014 7:22 pm

what is vaginismus?

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Re: Anyone tried botox?

Post  Alana3 on Tue Oct 21, 2014 7:24 pm

when your muscles are affected.

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Re: Anyone tried botox?

Post  annealexander on Wed Jun 10, 2015 3:49 am

I’ve never even heard of any treatment that involves taking botox injections in the vaginal muscles. What Alana3 said is right. You need to do your due diligence to find the best surgeon around who does something like this. I can only imagine the side effects if something goes wrong.  Sad  I spent a whole 3 months searching for and shortlisting good surgeons for my botox lip injections in Langley. I finally chose a nearby skin care clinic called Beauti-med. I don’t know if they do vaginal botox injections though. You may check on their site- beauti-med.com

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Tried Botox twice not worked

Post  teresa6115 on Thu Oct 15, 2015 11:09 am

Hi Ladies,

I am new to this but desperate for help, I have suffered for three years now having paid private for several specialists after useless Doctors appointments. I have tried Botox twice under a specialist it is very painful and did not work for me. I have yet another appointment today with Womens Hospital to discuss the use of dialators! Creams have not worked I am on Pregabalin which works a little to relieve the constant pain. I am a little down at present and this is difficult as I am not in a great place. I have a very supportive husband of 33 years who has been my rock through this. My family are very close and are always there for me. However I know I do not have the dreaded C or anything life threatening but I feel this is wearing me down. I have had constant back ache since March and do not know if this is related or I am just getting old 53. My husband has encouraged me to join this forum for support. He is amazing!

teresa6115

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Botox

Post  amyhp on Thu Oct 15, 2015 7:42 pm

I have had Botox many times and it did not work to take away my pain. It relaxed my muscles, but my pain stayed the same. I would say if your pain is just with sex, it would be worth the shot. I know a lot of women have had success.

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Re: Anyone tried botox?

Post  web96 on Thu Oct 15, 2015 11:16 pm

I believe the idea of Botox is to paralyze the nerve to reduce pain. I haven't had Botox before but I am planning on undergoing Prolotherapy/Neural Therapy with a Naturopathic Doctor, that is, injections of a Dextrose Solution with Lidocaine over the next few months to numb the nerve. I have contact nerve pain localized to the vestibule area after experiencing severe irritation for years caused by a sulphate allergy.
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Re: Anyone tried botox?

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