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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Anyone tried botox?

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Anyone tried botox?

Post  yoginimom on Tue Oct 21, 2014 2:45 am

I went to my internal physio again today and she recommended i try botox injections in the vaginal muscles. Has anyone tried that approach? Any thoughts?

yoginimom

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Re: Anyone tried botox?

Post  Alana3 on Tue Oct 21, 2014 7:20 pm

I was going to, but too many side effects. If you do decide to go that road it's perfectly fine if you have vaginismus! But only muscular problems. Make sure you have a doctor who knows what they are doing. There are a ton of side effects that could occur if your doc is not proficient in injecting the Botox. I won't scare you with side effects, because it's a good treatment option with the right doctor (just like everything else).

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Re: Anyone tried botox?

Post  yoginimom on Tue Oct 21, 2014 7:22 pm

what is vaginismus?

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Re: Anyone tried botox?

Post  Alana3 on Tue Oct 21, 2014 7:24 pm

when your muscles are affected.

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Re: Anyone tried botox?

Post  annealexander on Wed Jun 10, 2015 3:49 am

I’ve never even heard of any treatment that involves taking botox injections in the vaginal muscles. What Alana3 said is right. You need to do your due diligence to find the best surgeon around who does something like this. I can only imagine the side effects if something goes wrong.  Sad  I spent a whole 3 months searching for and shortlisting good surgeons for my botox lip injections in Langley. I finally chose a nearby skin care clinic called Beauti-med. I don’t know if they do vaginal botox injections though. You may check on their site- beauti-med.com

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Tried Botox twice not worked

Post  teresa6115 on Thu Oct 15, 2015 11:09 am

Hi Ladies,

I am new to this but desperate for help, I have suffered for three years now having paid private for several specialists after useless Doctors appointments. I have tried Botox twice under a specialist it is very painful and did not work for me. I have yet another appointment today with Womens Hospital to discuss the use of dialators! Creams have not worked I am on Pregabalin which works a little to relieve the constant pain. I am a little down at present and this is difficult as I am not in a great place. I have a very supportive husband of 33 years who has been my rock through this. My family are very close and are always there for me. However I know I do not have the dreaded C or anything life threatening but I feel this is wearing me down. I have had constant back ache since March and do not know if this is related or I am just getting old 53. My husband has encouraged me to join this forum for support. He is amazing!

teresa6115

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Botox

Post  amyhp on Thu Oct 15, 2015 7:42 pm

I have had Botox many times and it did not work to take away my pain. It relaxed my muscles, but my pain stayed the same. I would say if your pain is just with sex, it would be worth the shot. I know a lot of women have had success.

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Re: Anyone tried botox?

Post  web96 on Thu Oct 15, 2015 11:16 pm

I believe the idea of Botox is to paralyze the nerve to reduce pain. I haven't had Botox before but I am planning on undergoing Prolotherapy/Neural Therapy with a Naturopathic Doctor, that is, injections of a Dextrose Solution with Lidocaine over the next few months to numb the nerve. I have contact nerve pain localized to the vestibule area after experiencing severe irritation for years caused by a sulphate allergy.
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Re: Anyone tried botox?

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