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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Happened So Suddenly

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Happened So Suddenly

Post  ChrisB on Fri Oct 24, 2014 1:11 pm

Hello... I am becoming desperate. I dont know how much more I can take. This all started back in May. I was having an IBS flare up and found it easier at work to use baby wipes. This had been happening for a few weeks. It was a friday night and I had sex with my guy. Over the weekend I felt irritated but assumed it was from sex. I was also not feeling well so I didnt pay too much attention. It continued on for a while but so did my illness and I was put on some meds for it. I saw a gyno and was tested for STDs, all negative. I was trying to explain to the gyno that it was a weird sensation, almost like my vag had pins and needles. No answers. I went to another gyno in the group and again, no answers. I tried an allergist even. No allergies that they can find. I was referred to a vaginal specialist. It is now August. He told me I had vulvo-vaginitis and some yeast but not common yeast, another type which likely came from the antibiotics and predinisone I had to take when I was sick. The problem is that the meds that kill this yeast also cause a vaginitis flare up. Whatever at this point, so I just took the meds. And boy did I flare up. but again, whatever at this point b/c it is now August and im getting fed up. Went back for my follow up and it seemed to have gotten worse. The swab test felt like he was dragging sand paper on my vag. I had been eliminating all fragrances and stopped using soap down there, basically everything that the doc told me to do. I had to go back again on November 5th and my assignment for this follow up was to eliminate every possible thing I could think of that could irritate me. If I have eliminated everything and still have not gotten relief then I have vulvodynia. Since my last visit I have not used soap down there, I have even covered my vag with a clean facecloth so that excess soap, shampoo and conditioner doesnt drip down, worn cotton undies, used vaseline to protect the skin, switched to Seventh Generation detergent and eliminated coffee. The coffee thing is interesting. I found that when I drank coffee, my urine burned me badly after, I guess b/c it was more acidic. IDK if its a mental thing or not but its what I noticed. Like I said, I am desperate. So now here I am 2 weeks from my visit and the burning has been bad. When the burning is bad, so is the discharge. Normal color discharge. Like I said, I have been tested for everything. I took a Benadryl 2 nights ago and the entire next day I did not have burning. It was amazing. So this is my story. I am becoming severely depressed b/c of this. I dont want to go on anti-seizure medication if its vulvodynia. I just want it to go away as quickly as it came on.
I just keep thinking, what if I never used those baby wipes? Could that really be the culprit? Or just a coincidence?
I guess I am just looking for support from people who are in the same boat. Any insight is appreciated.
Sad Sad Sad Sad

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 5:59 pm

It seems to happen suddenly with most Sad same with me :/ have your tried physio ?? I done acupuncture physio tried loads of antibiotics and creams but honestly physio was best I still have a stinging rawness :/ it's a nightmare I'd give anything to go back to wing my old self xxx

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Re: Happened So Suddenly

Post  ChrisB on Fri Oct 24, 2014 6:22 pm

I have not tried anything yet. I was not officially diagnosed yet. November 5th will be the deciding day if the doc thinks I vulvadynia or just a severe irritation from something that I have not yet identified that I am still in contact with.
Thanks for the suggestions. This is a nightmare. I just keep wondering if I caused this by using the baby wipes. B/c after stopping for a few weeks, the burning went away and then I tried using them again and the burning came back. Now I stopped altogether.

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 10:18 pm

Stop altogether and see how that goes or change brands of wipes to a more sensitive one ???? Mines nothing really to do with baby wipes I don't think tbh :/ mines a mystery tbh. I have had numerous tests xx

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 10:19 pm

Stop altogether and see how that goes or change brands of wipes to a more sensitive one ???? Mines nothing really to do with baby wipes I don't think tbh :/ mines a mystery tbh. I have had numerous tests xx

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Re: Happened So Suddenly

Post  ChrisB on Sat Oct 25, 2014 2:03 am

I went from regular wipes to sensitive skin to Seventh Generation to now stopping altogether.

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Re: Happened So Suddenly

Post  Zbrown on Sat Oct 25, 2014 9:32 pm

Has that made any change ??? X

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Re: Happened So Suddenly

Post  ChrisB on Mon Oct 27, 2014 12:44 pm

unfortunately no it hasnt. It feels like the "damage" is already done. Since this started I have not been able to use any products in this area now. The only relief I have is lately, I have been taking a few benadyls per week. One benadryl gives me relief for days. One thing that is postive is that I do not have pain during intercourse. If anything, I am more sensitive in a good way.

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Re: Happened So Suddenly

Post  Zbrown on Mon Oct 27, 2014 2:57 pm

Awww that's not a bad thing I have pain with intercourse as the muscles pelvic floor had tightened due I pain aparntly ? Physio helped a bit but things still aren't back to normal I just think I'm going to have to adjust to the way things are but it is a lot better than this time last year xxx

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Re: Happened So Suddenly

Post  ChrisB on Mon Oct 27, 2014 3:02 pm

Its a shame that this happens to us women. I might look into physio if this will be my diagnosis. Thank you for all your help.

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Re: Happened So Suddenly

Post  tinkerbelle2 on Sun Nov 09, 2014 11:56 am

Hi Chris. Sorry to hear you're stuck in this crappy boat too.. it could be that the baby wipes disrupted your vag flora or it could be a coincidence? Mine came on pretty randomly too. When it started, I was a virgin, rarely used tampons, never had any infections down below even thrush or a uti and had zero health conditions and a perfectly pain free vagina.. quite lucky really! Since this i have had thrush bv and several urine infections :S
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Re: Happened So Suddenly

Post  ChrisB on Mon Nov 10, 2014 1:50 pm

I saw my gyno (specialist) this past wednesday and he cannoto find anything else that is wrong with me. He is hesitant to say it is vulvodynia but that is the only diagnosis left. I was put on Cymbalta to see if that helps with the symptoms.
SIGH Crying or Very sad Crying or Very sad

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Re: Happened So Suddenly

Post  tinkerbelle2 on Fri Nov 14, 2014 12:35 pm

Good luck!! is cymbalta the same as lyrica? i think a few women on here were actually cured by it so fingers crossed and best wishes I love you
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Re: Happened So Suddenly

Post  ChrisB on Fri Nov 14, 2014 2:32 pm

No they are different. I think Lyrica is more of an anti-seizure medication. Cymbalta is an anti-depression medication. My doctor thinks I am not severe enough to treat with something heavier them Cymbalta. Luckily. Fingers Crossed.

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Re: Happened So Suddenly

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