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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Happened So Suddenly

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Happened So Suddenly

Post  ChrisB on Fri Oct 24, 2014 1:11 pm

Hello... I am becoming desperate. I dont know how much more I can take. This all started back in May. I was having an IBS flare up and found it easier at work to use baby wipes. This had been happening for a few weeks. It was a friday night and I had sex with my guy. Over the weekend I felt irritated but assumed it was from sex. I was also not feeling well so I didnt pay too much attention. It continued on for a while but so did my illness and I was put on some meds for it. I saw a gyno and was tested for STDs, all negative. I was trying to explain to the gyno that it was a weird sensation, almost like my vag had pins and needles. No answers. I went to another gyno in the group and again, no answers. I tried an allergist even. No allergies that they can find. I was referred to a vaginal specialist. It is now August. He told me I had vulvo-vaginitis and some yeast but not common yeast, another type which likely came from the antibiotics and predinisone I had to take when I was sick. The problem is that the meds that kill this yeast also cause a vaginitis flare up. Whatever at this point, so I just took the meds. And boy did I flare up. but again, whatever at this point b/c it is now August and im getting fed up. Went back for my follow up and it seemed to have gotten worse. The swab test felt like he was dragging sand paper on my vag. I had been eliminating all fragrances and stopped using soap down there, basically everything that the doc told me to do. I had to go back again on November 5th and my assignment for this follow up was to eliminate every possible thing I could think of that could irritate me. If I have eliminated everything and still have not gotten relief then I have vulvodynia. Since my last visit I have not used soap down there, I have even covered my vag with a clean facecloth so that excess soap, shampoo and conditioner doesnt drip down, worn cotton undies, used vaseline to protect the skin, switched to Seventh Generation detergent and eliminated coffee. The coffee thing is interesting. I found that when I drank coffee, my urine burned me badly after, I guess b/c it was more acidic. IDK if its a mental thing or not but its what I noticed. Like I said, I am desperate. So now here I am 2 weeks from my visit and the burning has been bad. When the burning is bad, so is the discharge. Normal color discharge. Like I said, I have been tested for everything. I took a Benadryl 2 nights ago and the entire next day I did not have burning. It was amazing. So this is my story. I am becoming severely depressed b/c of this. I dont want to go on anti-seizure medication if its vulvodynia. I just want it to go away as quickly as it came on.
I just keep thinking, what if I never used those baby wipes? Could that really be the culprit? Or just a coincidence?
I guess I am just looking for support from people who are in the same boat. Any insight is appreciated.
Sad Sad Sad Sad

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 5:59 pm

It seems to happen suddenly with most Sad same with me :/ have your tried physio ?? I done acupuncture physio tried loads of antibiotics and creams but honestly physio was best I still have a stinging rawness :/ it's a nightmare I'd give anything to go back to wing my old self xxx

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Re: Happened So Suddenly

Post  ChrisB on Fri Oct 24, 2014 6:22 pm

I have not tried anything yet. I was not officially diagnosed yet. November 5th will be the deciding day if the doc thinks I vulvadynia or just a severe irritation from something that I have not yet identified that I am still in contact with.
Thanks for the suggestions. This is a nightmare. I just keep wondering if I caused this by using the baby wipes. B/c after stopping for a few weeks, the burning went away and then I tried using them again and the burning came back. Now I stopped altogether.

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 10:18 pm

Stop altogether and see how that goes or change brands of wipes to a more sensitive one ???? Mines nothing really to do with baby wipes I don't think tbh :/ mines a mystery tbh. I have had numerous tests xx

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 10:19 pm

Stop altogether and see how that goes or change brands of wipes to a more sensitive one ???? Mines nothing really to do with baby wipes I don't think tbh :/ mines a mystery tbh. I have had numerous tests xx

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Re: Happened So Suddenly

Post  ChrisB on Sat Oct 25, 2014 2:03 am

I went from regular wipes to sensitive skin to Seventh Generation to now stopping altogether.

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Re: Happened So Suddenly

Post  Zbrown on Sat Oct 25, 2014 9:32 pm

Has that made any change ??? X

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Re: Happened So Suddenly

Post  ChrisB on Mon Oct 27, 2014 12:44 pm

unfortunately no it hasnt. It feels like the "damage" is already done. Since this started I have not been able to use any products in this area now. The only relief I have is lately, I have been taking a few benadyls per week. One benadryl gives me relief for days. One thing that is postive is that I do not have pain during intercourse. If anything, I am more sensitive in a good way.

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Re: Happened So Suddenly

Post  Zbrown on Mon Oct 27, 2014 2:57 pm

Awww that's not a bad thing I have pain with intercourse as the muscles pelvic floor had tightened due I pain aparntly ? Physio helped a bit but things still aren't back to normal I just think I'm going to have to adjust to the way things are but it is a lot better than this time last year xxx

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Re: Happened So Suddenly

Post  ChrisB on Mon Oct 27, 2014 3:02 pm

Its a shame that this happens to us women. I might look into physio if this will be my diagnosis. Thank you for all your help.

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Re: Happened So Suddenly

Post  tinkerbelle2 on Sun Nov 09, 2014 11:56 am

Hi Chris. Sorry to hear you're stuck in this crappy boat too.. it could be that the baby wipes disrupted your vag flora or it could be a coincidence? Mine came on pretty randomly too. When it started, I was a virgin, rarely used tampons, never had any infections down below even thrush or a uti and had zero health conditions and a perfectly pain free vagina.. quite lucky really! Since this i have had thrush bv and several urine infections :S
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Re: Happened So Suddenly

Post  ChrisB on Mon Nov 10, 2014 1:50 pm

I saw my gyno (specialist) this past wednesday and he cannoto find anything else that is wrong with me. He is hesitant to say it is vulvodynia but that is the only diagnosis left. I was put on Cymbalta to see if that helps with the symptoms.
SIGH Crying or Very sad Crying or Very sad

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Re: Happened So Suddenly

Post  tinkerbelle2 on Fri Nov 14, 2014 12:35 pm

Good luck!! is cymbalta the same as lyrica? i think a few women on here were actually cured by it so fingers crossed and best wishes I love you
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Re: Happened So Suddenly

Post  ChrisB on Fri Nov 14, 2014 2:32 pm

No they are different. I think Lyrica is more of an anti-seizure medication. Cymbalta is an anti-depression medication. My doctor thinks I am not severe enough to treat with something heavier them Cymbalta. Luckily. Fingers Crossed.

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Re: Happened So Suddenly

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