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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Happened So Suddenly

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Happened So Suddenly

Post  ChrisB on Fri Oct 24, 2014 1:11 pm

Hello... I am becoming desperate. I dont know how much more I can take. This all started back in May. I was having an IBS flare up and found it easier at work to use baby wipes. This had been happening for a few weeks. It was a friday night and I had sex with my guy. Over the weekend I felt irritated but assumed it was from sex. I was also not feeling well so I didnt pay too much attention. It continued on for a while but so did my illness and I was put on some meds for it. I saw a gyno and was tested for STDs, all negative. I was trying to explain to the gyno that it was a weird sensation, almost like my vag had pins and needles. No answers. I went to another gyno in the group and again, no answers. I tried an allergist even. No allergies that they can find. I was referred to a vaginal specialist. It is now August. He told me I had vulvo-vaginitis and some yeast but not common yeast, another type which likely came from the antibiotics and predinisone I had to take when I was sick. The problem is that the meds that kill this yeast also cause a vaginitis flare up. Whatever at this point, so I just took the meds. And boy did I flare up. but again, whatever at this point b/c it is now August and im getting fed up. Went back for my follow up and it seemed to have gotten worse. The swab test felt like he was dragging sand paper on my vag. I had been eliminating all fragrances and stopped using soap down there, basically everything that the doc told me to do. I had to go back again on November 5th and my assignment for this follow up was to eliminate every possible thing I could think of that could irritate me. If I have eliminated everything and still have not gotten relief then I have vulvodynia. Since my last visit I have not used soap down there, I have even covered my vag with a clean facecloth so that excess soap, shampoo and conditioner doesnt drip down, worn cotton undies, used vaseline to protect the skin, switched to Seventh Generation detergent and eliminated coffee. The coffee thing is interesting. I found that when I drank coffee, my urine burned me badly after, I guess b/c it was more acidic. IDK if its a mental thing or not but its what I noticed. Like I said, I am desperate. So now here I am 2 weeks from my visit and the burning has been bad. When the burning is bad, so is the discharge. Normal color discharge. Like I said, I have been tested for everything. I took a Benadryl 2 nights ago and the entire next day I did not have burning. It was amazing. So this is my story. I am becoming severely depressed b/c of this. I dont want to go on anti-seizure medication if its vulvodynia. I just want it to go away as quickly as it came on.
I just keep thinking, what if I never used those baby wipes? Could that really be the culprit? Or just a coincidence?
I guess I am just looking for support from people who are in the same boat. Any insight is appreciated.
Sad Sad Sad Sad

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 5:59 pm

It seems to happen suddenly with most Sad same with me :/ have your tried physio ?? I done acupuncture physio tried loads of antibiotics and creams but honestly physio was best I still have a stinging rawness :/ it's a nightmare I'd give anything to go back to wing my old self xxx

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Re: Happened So Suddenly

Post  ChrisB on Fri Oct 24, 2014 6:22 pm

I have not tried anything yet. I was not officially diagnosed yet. November 5th will be the deciding day if the doc thinks I vulvadynia or just a severe irritation from something that I have not yet identified that I am still in contact with.
Thanks for the suggestions. This is a nightmare. I just keep wondering if I caused this by using the baby wipes. B/c after stopping for a few weeks, the burning went away and then I tried using them again and the burning came back. Now I stopped altogether.

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 10:18 pm

Stop altogether and see how that goes or change brands of wipes to a more sensitive one ???? Mines nothing really to do with baby wipes I don't think tbh :/ mines a mystery tbh. I have had numerous tests xx

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 10:19 pm

Stop altogether and see how that goes or change brands of wipes to a more sensitive one ???? Mines nothing really to do with baby wipes I don't think tbh :/ mines a mystery tbh. I have had numerous tests xx

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Re: Happened So Suddenly

Post  ChrisB on Sat Oct 25, 2014 2:03 am

I went from regular wipes to sensitive skin to Seventh Generation to now stopping altogether.

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Re: Happened So Suddenly

Post  Zbrown on Sat Oct 25, 2014 9:32 pm

Has that made any change ??? X

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Re: Happened So Suddenly

Post  ChrisB on Mon Oct 27, 2014 12:44 pm

unfortunately no it hasnt. It feels like the "damage" is already done. Since this started I have not been able to use any products in this area now. The only relief I have is lately, I have been taking a few benadyls per week. One benadryl gives me relief for days. One thing that is postive is that I do not have pain during intercourse. If anything, I am more sensitive in a good way.

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Re: Happened So Suddenly

Post  Zbrown on Mon Oct 27, 2014 2:57 pm

Awww that's not a bad thing I have pain with intercourse as the muscles pelvic floor had tightened due I pain aparntly ? Physio helped a bit but things still aren't back to normal I just think I'm going to have to adjust to the way things are but it is a lot better than this time last year xxx

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Re: Happened So Suddenly

Post  ChrisB on Mon Oct 27, 2014 3:02 pm

Its a shame that this happens to us women. I might look into physio if this will be my diagnosis. Thank you for all your help.

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Re: Happened So Suddenly

Post  tinkerbelle2 on Sun Nov 09, 2014 11:56 am

Hi Chris. Sorry to hear you're stuck in this crappy boat too.. it could be that the baby wipes disrupted your vag flora or it could be a coincidence? Mine came on pretty randomly too. When it started, I was a virgin, rarely used tampons, never had any infections down below even thrush or a uti and had zero health conditions and a perfectly pain free vagina.. quite lucky really! Since this i have had thrush bv and several urine infections :S
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Re: Happened So Suddenly

Post  ChrisB on Mon Nov 10, 2014 1:50 pm

I saw my gyno (specialist) this past wednesday and he cannoto find anything else that is wrong with me. He is hesitant to say it is vulvodynia but that is the only diagnosis left. I was put on Cymbalta to see if that helps with the symptoms.
SIGH Crying or Very sad Crying or Very sad

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Re: Happened So Suddenly

Post  tinkerbelle2 on Fri Nov 14, 2014 12:35 pm

Good luck!! is cymbalta the same as lyrica? i think a few women on here were actually cured by it so fingers crossed and best wishes I love you
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Re: Happened So Suddenly

Post  ChrisB on Fri Nov 14, 2014 2:32 pm

No they are different. I think Lyrica is more of an anti-seizure medication. Cymbalta is an anti-depression medication. My doctor thinks I am not severe enough to treat with something heavier them Cymbalta. Luckily. Fingers Crossed.

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Re: Happened So Suddenly

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