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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Happened So Suddenly

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Happened So Suddenly

Post  ChrisB on Fri Oct 24, 2014 1:11 pm

Hello... I am becoming desperate. I dont know how much more I can take. This all started back in May. I was having an IBS flare up and found it easier at work to use baby wipes. This had been happening for a few weeks. It was a friday night and I had sex with my guy. Over the weekend I felt irritated but assumed it was from sex. I was also not feeling well so I didnt pay too much attention. It continued on for a while but so did my illness and I was put on some meds for it. I saw a gyno and was tested for STDs, all negative. I was trying to explain to the gyno that it was a weird sensation, almost like my vag had pins and needles. No answers. I went to another gyno in the group and again, no answers. I tried an allergist even. No allergies that they can find. I was referred to a vaginal specialist. It is now August. He told me I had vulvo-vaginitis and some yeast but not common yeast, another type which likely came from the antibiotics and predinisone I had to take when I was sick. The problem is that the meds that kill this yeast also cause a vaginitis flare up. Whatever at this point, so I just took the meds. And boy did I flare up. but again, whatever at this point b/c it is now August and im getting fed up. Went back for my follow up and it seemed to have gotten worse. The swab test felt like he was dragging sand paper on my vag. I had been eliminating all fragrances and stopped using soap down there, basically everything that the doc told me to do. I had to go back again on November 5th and my assignment for this follow up was to eliminate every possible thing I could think of that could irritate me. If I have eliminated everything and still have not gotten relief then I have vulvodynia. Since my last visit I have not used soap down there, I have even covered my vag with a clean facecloth so that excess soap, shampoo and conditioner doesnt drip down, worn cotton undies, used vaseline to protect the skin, switched to Seventh Generation detergent and eliminated coffee. The coffee thing is interesting. I found that when I drank coffee, my urine burned me badly after, I guess b/c it was more acidic. IDK if its a mental thing or not but its what I noticed. Like I said, I am desperate. So now here I am 2 weeks from my visit and the burning has been bad. When the burning is bad, so is the discharge. Normal color discharge. Like I said, I have been tested for everything. I took a Benadryl 2 nights ago and the entire next day I did not have burning. It was amazing. So this is my story. I am becoming severely depressed b/c of this. I dont want to go on anti-seizure medication if its vulvodynia. I just want it to go away as quickly as it came on.
I just keep thinking, what if I never used those baby wipes? Could that really be the culprit? Or just a coincidence?
I guess I am just looking for support from people who are in the same boat. Any insight is appreciated.
Sad Sad Sad Sad

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 5:59 pm

It seems to happen suddenly with most Sad same with me :/ have your tried physio ?? I done acupuncture physio tried loads of antibiotics and creams but honestly physio was best I still have a stinging rawness :/ it's a nightmare I'd give anything to go back to wing my old self xxx

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Re: Happened So Suddenly

Post  ChrisB on Fri Oct 24, 2014 6:22 pm

I have not tried anything yet. I was not officially diagnosed yet. November 5th will be the deciding day if the doc thinks I vulvadynia or just a severe irritation from something that I have not yet identified that I am still in contact with.
Thanks for the suggestions. This is a nightmare. I just keep wondering if I caused this by using the baby wipes. B/c after stopping for a few weeks, the burning went away and then I tried using them again and the burning came back. Now I stopped altogether.

ChrisB

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 10:18 pm

Stop altogether and see how that goes or change brands of wipes to a more sensitive one ???? Mines nothing really to do with baby wipes I don't think tbh :/ mines a mystery tbh. I have had numerous tests xx

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 10:19 pm

Stop altogether and see how that goes or change brands of wipes to a more sensitive one ???? Mines nothing really to do with baby wipes I don't think tbh :/ mines a mystery tbh. I have had numerous tests xx

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Re: Happened So Suddenly

Post  ChrisB on Sat Oct 25, 2014 2:03 am

I went from regular wipes to sensitive skin to Seventh Generation to now stopping altogether.

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Re: Happened So Suddenly

Post  Zbrown on Sat Oct 25, 2014 9:32 pm

Has that made any change ??? X

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Re: Happened So Suddenly

Post  ChrisB on Mon Oct 27, 2014 12:44 pm

unfortunately no it hasnt. It feels like the "damage" is already done. Since this started I have not been able to use any products in this area now. The only relief I have is lately, I have been taking a few benadyls per week. One benadryl gives me relief for days. One thing that is postive is that I do not have pain during intercourse. If anything, I am more sensitive in a good way.

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Re: Happened So Suddenly

Post  Zbrown on Mon Oct 27, 2014 2:57 pm

Awww that's not a bad thing I have pain with intercourse as the muscles pelvic floor had tightened due I pain aparntly ? Physio helped a bit but things still aren't back to normal I just think I'm going to have to adjust to the way things are but it is a lot better than this time last year xxx

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Re: Happened So Suddenly

Post  ChrisB on Mon Oct 27, 2014 3:02 pm

Its a shame that this happens to us women. I might look into physio if this will be my diagnosis. Thank you for all your help.

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Re: Happened So Suddenly

Post  tinkerbelle2 on Sun Nov 09, 2014 11:56 am

Hi Chris. Sorry to hear you're stuck in this crappy boat too.. it could be that the baby wipes disrupted your vag flora or it could be a coincidence? Mine came on pretty randomly too. When it started, I was a virgin, rarely used tampons, never had any infections down below even thrush or a uti and had zero health conditions and a perfectly pain free vagina.. quite lucky really! Since this i have had thrush bv and several urine infections :S
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Re: Happened So Suddenly

Post  ChrisB on Mon Nov 10, 2014 1:50 pm

I saw my gyno (specialist) this past wednesday and he cannoto find anything else that is wrong with me. He is hesitant to say it is vulvodynia but that is the only diagnosis left. I was put on Cymbalta to see if that helps with the symptoms.
SIGH Crying or Very sad Crying or Very sad

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Re: Happened So Suddenly

Post  tinkerbelle2 on Fri Nov 14, 2014 12:35 pm

Good luck!! is cymbalta the same as lyrica? i think a few women on here were actually cured by it so fingers crossed and best wishes I love you
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Re: Happened So Suddenly

Post  ChrisB on Fri Nov 14, 2014 2:32 pm

No they are different. I think Lyrica is more of an anti-seizure medication. Cymbalta is an anti-depression medication. My doctor thinks I am not severe enough to treat with something heavier them Cymbalta. Luckily. Fingers Crossed.

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Re: Happened So Suddenly

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