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» What's next?
Fri Apr 20, 2018 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Happened So Suddenly

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Happened So Suddenly

Post  ChrisB on Fri Oct 24, 2014 1:11 pm

Hello... I am becoming desperate. I dont know how much more I can take. This all started back in May. I was having an IBS flare up and found it easier at work to use baby wipes. This had been happening for a few weeks. It was a friday night and I had sex with my guy. Over the weekend I felt irritated but assumed it was from sex. I was also not feeling well so I didnt pay too much attention. It continued on for a while but so did my illness and I was put on some meds for it. I saw a gyno and was tested for STDs, all negative. I was trying to explain to the gyno that it was a weird sensation, almost like my vag had pins and needles. No answers. I went to another gyno in the group and again, no answers. I tried an allergist even. No allergies that they can find. I was referred to a vaginal specialist. It is now August. He told me I had vulvo-vaginitis and some yeast but not common yeast, another type which likely came from the antibiotics and predinisone I had to take when I was sick. The problem is that the meds that kill this yeast also cause a vaginitis flare up. Whatever at this point, so I just took the meds. And boy did I flare up. but again, whatever at this point b/c it is now August and im getting fed up. Went back for my follow up and it seemed to have gotten worse. The swab test felt like he was dragging sand paper on my vag. I had been eliminating all fragrances and stopped using soap down there, basically everything that the doc told me to do. I had to go back again on November 5th and my assignment for this follow up was to eliminate every possible thing I could think of that could irritate me. If I have eliminated everything and still have not gotten relief then I have vulvodynia. Since my last visit I have not used soap down there, I have even covered my vag with a clean facecloth so that excess soap, shampoo and conditioner doesnt drip down, worn cotton undies, used vaseline to protect the skin, switched to Seventh Generation detergent and eliminated coffee. The coffee thing is interesting. I found that when I drank coffee, my urine burned me badly after, I guess b/c it was more acidic. IDK if its a mental thing or not but its what I noticed. Like I said, I am desperate. So now here I am 2 weeks from my visit and the burning has been bad. When the burning is bad, so is the discharge. Normal color discharge. Like I said, I have been tested for everything. I took a Benadryl 2 nights ago and the entire next day I did not have burning. It was amazing. So this is my story. I am becoming severely depressed b/c of this. I dont want to go on anti-seizure medication if its vulvodynia. I just want it to go away as quickly as it came on.
I just keep thinking, what if I never used those baby wipes? Could that really be the culprit? Or just a coincidence?
I guess I am just looking for support from people who are in the same boat. Any insight is appreciated.
Sad Sad Sad Sad

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 5:59 pm

It seems to happen suddenly with most Sad same with me :/ have your tried physio ?? I done acupuncture physio tried loads of antibiotics and creams but honestly physio was best I still have a stinging rawness :/ it's a nightmare I'd give anything to go back to wing my old self xxx

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Re: Happened So Suddenly

Post  ChrisB on Fri Oct 24, 2014 6:22 pm

I have not tried anything yet. I was not officially diagnosed yet. November 5th will be the deciding day if the doc thinks I vulvadynia or just a severe irritation from something that I have not yet identified that I am still in contact with.
Thanks for the suggestions. This is a nightmare. I just keep wondering if I caused this by using the baby wipes. B/c after stopping for a few weeks, the burning went away and then I tried using them again and the burning came back. Now I stopped altogether.

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 10:18 pm

Stop altogether and see how that goes or change brands of wipes to a more sensitive one ???? Mines nothing really to do with baby wipes I don't think tbh :/ mines a mystery tbh. I have had numerous tests xx

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Re: Happened So Suddenly

Post  Zbrown on Fri Oct 24, 2014 10:19 pm

Stop altogether and see how that goes or change brands of wipes to a more sensitive one ???? Mines nothing really to do with baby wipes I don't think tbh :/ mines a mystery tbh. I have had numerous tests xx

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Re: Happened So Suddenly

Post  ChrisB on Sat Oct 25, 2014 2:03 am

I went from regular wipes to sensitive skin to Seventh Generation to now stopping altogether.

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Re: Happened So Suddenly

Post  Zbrown on Sat Oct 25, 2014 9:32 pm

Has that made any change ??? X

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Re: Happened So Suddenly

Post  ChrisB on Mon Oct 27, 2014 12:44 pm

unfortunately no it hasnt. It feels like the "damage" is already done. Since this started I have not been able to use any products in this area now. The only relief I have is lately, I have been taking a few benadyls per week. One benadryl gives me relief for days. One thing that is postive is that I do not have pain during intercourse. If anything, I am more sensitive in a good way.

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Re: Happened So Suddenly

Post  Zbrown on Mon Oct 27, 2014 2:57 pm

Awww that's not a bad thing I have pain with intercourse as the muscles pelvic floor had tightened due I pain aparntly ? Physio helped a bit but things still aren't back to normal I just think I'm going to have to adjust to the way things are but it is a lot better than this time last year xxx

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Re: Happened So Suddenly

Post  ChrisB on Mon Oct 27, 2014 3:02 pm

Its a shame that this happens to us women. I might look into physio if this will be my diagnosis. Thank you for all your help.

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Re: Happened So Suddenly

Post  tinkerbelle2 on Sun Nov 09, 2014 11:56 am

Hi Chris. Sorry to hear you're stuck in this crappy boat too.. it could be that the baby wipes disrupted your vag flora or it could be a coincidence? Mine came on pretty randomly too. When it started, I was a virgin, rarely used tampons, never had any infections down below even thrush or a uti and had zero health conditions and a perfectly pain free vagina.. quite lucky really! Since this i have had thrush bv and several urine infections :S
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Re: Happened So Suddenly

Post  ChrisB on Mon Nov 10, 2014 1:50 pm

I saw my gyno (specialist) this past wednesday and he cannoto find anything else that is wrong with me. He is hesitant to say it is vulvodynia but that is the only diagnosis left. I was put on Cymbalta to see if that helps with the symptoms.
SIGH Crying or Very sad Crying or Very sad

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Re: Happened So Suddenly

Post  tinkerbelle2 on Fri Nov 14, 2014 12:35 pm

Good luck!! is cymbalta the same as lyrica? i think a few women on here were actually cured by it so fingers crossed and best wishes I love you
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Re: Happened So Suddenly

Post  ChrisB on Fri Nov 14, 2014 2:32 pm

No they are different. I think Lyrica is more of an anti-seizure medication. Cymbalta is an anti-depression medication. My doctor thinks I am not severe enough to treat with something heavier them Cymbalta. Luckily. Fingers Crossed.

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Re: Happened So Suddenly

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