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» UK Vulvodynia Clinics
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» 8 years and struggling
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Long time sufferer

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Long time sufferer

Post  mirror on Sat Oct 25, 2014 5:07 am

I'm 34 years old, I've been married for seven years, and we can't have sex because I'm so miserable.  And this has been going on my entire adult life.  Any kind of penetration ranges from extremely uncomfortable to downright excruciating for me.  I don't wear tampons unless I absolutely have to because even inserting a small tampon is awful.  And I can constantly feel it as I wear it, like it's rubbing raw flesh inside me.  I would describe my pain as raw, irritating, and burning.  The intensity varies.

I used to be too afraid to see a doctor about this; and up until this year, I'd only seen a gynecologist once, and that was when I was 21.  I finally got up the courage to try again last spring.  She says she cannot find anything physically wrong with me.  The only abnormality she sees is on my slides.  She says I have no infections, but I also have NO good bacteria.  She said my vaginal flora is pretty much non-existent or dead.  I started taking probiotics, but it hasn't helped.  I've tried Rephresh.  I tried some natural suppositories.  I tried a $150 anti-fungal steroidal ointment that was a total waste of money.  I stopped using any kind of soap or cleanser down there, only water.  Nothing gets rid of the burning pain.    

In order to help my sex life, she prescribed Xanax for me to take to calm me down.  Because I expect the pain, I tense up terribly and then nothing can get in.  The Xanax does help me to relax a bit, but we still can't have sex.  I've just been using dilators to get more used to penetration, but it still hurts and I don't enjoy any sexual activity.  In fact, I just feel dread and I feel annoyed by it.  I've come to hate anything or anyone sexual because I cannot enjoy that part of myself.  My doctor also gave me a numbing gel to use during sex, but I haven't even tried it.  For me, what is the point of having sex if I have to numb myself to get through it?  

Xanax and numbing gel.  Not exactly what I always dreamed sex would be like at this age.

I've also been going to therapy to talk about this.  I told her recently that I don't even feel like a woman anymore, and haven't for a long, long time.  I feel defective and broken.  My self-esteem is dead.  While my doctor says I have no infections, I often get a "yeasty" smell without the clumpy white discharge or itching.  Most of the time my discharge is clear, thin, and occasionally has a yellowish tinge to it.  It definitely doesn't seem like a yeast infection, except for the occasional odor.  I told my doctor that I often get the feeling that part of this is hormonal, but she seemed to blow that idea off.  I suggested that to her because I still get acne every month, and I'm constantly exhausted, and I'm a type two diabetic.  I take metformin, but it doesn't have any effect on my sex life.  Something is just off with me.  She wants me to come back in a few weeks for a recheck, but I don't want to.  I've been to her twice, and I feel like conventional medicine is not going to cure this.  My next step is going to be to try acupuncture, but I'm not getting my hopes up.  I've lived a lifetime of this, and I'm starting to think I will never have a normal sex life (or any other kind) or be able to have kids.  

Anyway, it's nice to find this forum and to be among women who understand me.  I feel like less of a freak already.

mirror

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Re: Long time sufferer

Post  EverythingIsDifferentNow on Sat Oct 25, 2014 5:36 pm

I'm so sorry about this Crying or Very sad I've actually heard that type 2 diabetic women experience more problems with their vagina or "down area" more than people who don't have type 2 diabetes. Have you had any problems with your back? Are you eating healthy? Are you eating food that is causing the pH in your vagina to be unsuitable for your body?
Stuff to try if you haven't already:
-all natural vitamin pills
-calcium citrate
-exercising regularly (especially abdominal core exercises)
-drink plenty of water
-NO TAMPONS (use non-irritating pads)
-pelvic floor exercises?
-problems with your back or pelvis? use therapy
-non-scented detergent
-loose-fit clothing
-no bicycles or bikes
-acupuncture has helped some women, has lowered some of their symptoms down to 20% or more
-heating pads
-warm baths (no lotion or body wash, keep shampoo and conditioner as far away from your down area as possible)
-ice packs work for a lot of people

Stuff to help your mind, lose more stress:
-yoga
-meditation
-therapy (this forum can be a form of therapy)
-classical music always helps me

MORE TREATMENTS IF YOU'D LIKE TO SEE AND HOW WOMEN WITH VULVODYNIA REACT TO THEM sunny
http://curetogether.com/vulvodynia/treatments/

EverythingIsDifferentNow

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Re: Long time sufferer

Post  Sparkle on Sat Oct 25, 2014 6:49 pm

I have had really bad pain with intercourse too. It's absolutely soul distroying so I know how u feel. You don't feel like a women and it can send u to aug a dark place. Fortunatly I have made some simple changes which has made a massive difference and non are pills it's more natural.
Have a look under the anouncements section and read my post. It's called healing with simple changes...or somthink like rhat. I think you should give some of my methods a go for a month doing them all religiously and see if anything changes for u. It worth a try...

I'm so sorry to hear how much you are suffering. This condition is horrible but you can't lose faith. Thers so many things to try that doctor doesn't have to percribe. I hope you find your solution soon. It sounds like you have had it hard for a very long time.

Sparkle

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Some links and clindamycin

Post  Marylynnreily on Mon Oct 27, 2014 1:02 am

You guys, I urge any of you to ask your doctor for clindamycin pills 300mg, 2times a day for 10 days.
Its the standard treatment for BV, but ALSO for Tooth abscesses, jaw infections and other really severe infections.
Ever since doing that Im all but cured, except some yeast issues after which went away eventually with diflucan and Floraster aswell as other probiotics,  that were recommended by other women. And stoneyfield yogurt, and Kefir.

The thing is, taking clindamycin carries risks, altho commonly prescribed by dentists and gynecologists.

An intestinal infection called C-Diff can result, as clindamycin effectively wipes out all the good bacteria in your intestines(aswell as bad in your body), and you can have the runs for months after taking a round of it. You can either get loose stools that will eventually go back to normal after a few weeks to a few months or c-diff which can be potentially life threatening. Please research. It doesn't happen to everyone but it does happen to some people, and this infection can result from any antibiotic, but is expecially linked to Clindamycin because its so powerful.

You will have to ask your doctor. I am not giving you medical advice, this is just what my doctor prescribed me. I convinced him.
Youll have to be taking the probiotics with the antibiotics a few hours apart from eachother, and months after, you must keep on with the probiotics.

Ask your doctor, ask your doctor!!!
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Re: Long time sufferer

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