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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

Fibromyalgia & this condition

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Fibromyalgia & this condition

Post  sparkles on Sun Oct 26, 2014 5:15 pm

Hi Im new here, and came across this site while trying to find out the cause of my occasionaly flare ups of hell. You all know what I mean. After doing loads of research I now realise that its a direct symptom of my Fibromyagia. I had no idea that it could be linked and now it all makes sense.  I have had fibro for over 10 years but it has got really bad over the last three. I feel claustrophobic with pain. Of course no one believes me as they cant see it. But this vulva condition I have also come to realise started about the same time. Iv'e been to doctors and clinics convinced I had something terrible but they could find nothing, only redness and puffiness with raised small bumps that are not the type to pop. So weird. I get flare ups every so often that are agony, then after a week its all over. Its so sore, and I noticed I get a flare up when Im stressed. I was diagnosed with fibro over 3 years ago now and at last I now know what is causing my downstairs to hurt so much. I used to be embarassed about telling the doctor as I thought they might think its herpes or something, but that was thankfully not the case. I just say to my husband now, oh god f...y things coming, I can feel it. Im so glad I know why i get it now. Its only taken me 10 years to find out, and doctors didn't even suggest it. They just said oh its nothing. Hmm they should try coping with it.  Im 56 by the way, and into the menopause, which makes it worse than ever. What we women have to go through!


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Re: Fibromyalgia & this condition

Post  yoginimom on Tue Oct 28, 2014 2:54 am

sparkles wrote: I have had fibro for over 10 years but it has got really bad over the last three. I feel claustrophobic with pain. Of course no one believes me as they cant see it.

Have you ever tried EMDR? It helps the body react differently to pain. You can see a trauma therapist, or just put it into youtube for free. Also brain gym and EFT would have similar effects.


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